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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
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Notes
Data Structures with shared data
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NYU Family History Form

nyu_family_history

01

NYU Family History Form as defined by the Phyllis Green and Randolph Cowen Institute for Pediatric Neuroscience, Child Study Centre, New York University Langone Medical Centre

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
depression_familymemberString200RecommendedSubject family member who has depression
depression_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
depression_age_onsetIntegerRecommendedAge of family member at onset of disorder
depression_notesString200RecommendedNotes
bipolar_familymemberString200RecommendedSubject family member who has bipolar disorder
bipolar_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
bipolar_age_onsetIntegerRecommendedAge of family member at onset of disorder
bipolar_notesString200RecommendedNotes
anxiety_familymemberString200RecommendedSubject family member who has anxiety
anxiety_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
anxiety_age_onsetIntegerRecommendedAge of family member at onset of disorder
anxiety_notesString200RecommendedNotes
ocd_familymemberString200RecommendedSubject family member who has ocd
ocd_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
ocd_age_onsetIntegerRecommendedAge of family member at onset of disorder
ocd_notesString200RecommendedNotes
adhd_familymemberString200RecommendedSubject family member who has adhd
adhd_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
adhd_age_onsetIntegerRecommendedAge of family member at onset of disorder
adhd_notesString200RecommendedNotes
eatingdisorder_familymemberString200RecommendedSubject family member who has an eating disorder
eatdisorder_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
eatingdisorder_age_onsetIntegerRecommendedAge of family member at onset of disorder
eatingdisorder_notesString200RecommendedNotes
eccentric_familymemberString200RecommendedSubject family member who is considered eccentric
eccentric_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
eccentric_age_onsetIntegerRecommendedAge of family member at onset of eccentricity
eccentric_notesString200RecommendedNotes
other_familymemberString200RecommendedSubject family member who has other disorder
other_maternal_paternalString8Recommendedmaternal or paternal family member with disordermaternal;paternal
other_familymember_age_onsetIntegerRecommendedAge of family member at onset of disorder
other_notesString200Recommendednotes on other
genderString20RequiredSex of the subjectM;FM = Male; F = Female
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: nyu_family_history01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.