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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Overall Depression Severity and Impairment Scale

odsis

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
odsis_1IntegerRecommendedIn the past week, how often have you felt depressed0::40 = No depression in the past week; 1 = Infrequent depression. Felt depressed a few times; 2 = Occasional depression. Felt depressed as much of the time as not; 3 = Frequent depression. Felt depressed most of the time; 4 = Constant depression. Felt depressed all of the time
odsis_2IntegerRecommendedIn the past week, when you have felt depressed, how intense or severe was your depression0::40 = Little or None: Depression was absent or barely noticeable; 1 = Mild: Depression was at a low level; 2 = Moderate: Depression was distressing and intense at times; 3 = Severe: Depression was intense much of the time; 4 = Extreme: Depression was overwhelming.
odsis_3IntegerRecommendedIn the past week, how often did you have difficulty engaging in or being interested in activities you normally enjoy because of depression0::40 = None: I had no difficulty engaging in or being interested in activities that I normally enjoy because of depression; 1 = Infrequent: A few times I had difficulty engaging in or being interested in activities that I normally enjoy, because of depression.. My lifestyle was not affected; 2 = Occasional: I had some difficulty engaging in or being interested in activities that I normally enjoy, because of depression. My lifestyle has only changed in minor ways; 3 = Frequent: I have considerable difficulty engaging in or being interested in activities that I normally enjoy, because of depression. I have made significant changes in my lifestyle because of being unable to become interested in activities I used to enjoy; 4 = All the Time: I have been unable to participate in or be interested in activities that I normally enjoy, because of depression. My lifestyle has been extensively affected and I no longer do things that I used to enjoy.
odsis_4IntegerRecommendedIn the past week, how much did your depression interfere with your ability to do the things you needed to do at work, at school, or at home0::40 = None: No interference at work/home/school from depression; 1 = Mild: My depression has caused some interference at work/home/school. Things are more difficult, but everything that needs to be done is still getting done; 2 = Moderate: My depression definitely interferes with tasks. Most things are still getting done, but few things are being done as well as in the past; 3 = Severe: My depression has really changed my ability to get things done. Some tasks are still being done, but many things are not. My performance has definitely suffered; 4 = Extreme: My depression has become incapacitating. I am unable to complete tasks and have had to leave school, have quit or been fired from my job, or have been unable to complete tasks at home and have faced consequences like bill collectors, eviction, etc
odsis_5IntegerRecommendedIn the past week, how much has depression interfered with your social life and relationships0::40 = None: My depression doesn�t affect my relationships; 1 = Mild: My depression slightly interferes with my relationships. Some of my friendships and other relationships have suffered, but, overall, my social life is still fulfilling; 2 = Moderate: I have experienced some interference with my social life, but I still have a few close relationships. I don�t spend as much time with others as in the past, but I still socialize sometimes; 3 = Severe: My friendships and other relationships have suffered a lot because of depression. I do not enjoy social activities. I socialize very little; 4 = Extreme: My depression has completely disrupted my social activities. All of my relationships have suffered or ended. My family life is extremely strained.
odsis_totalIntegerRequiredODSIS total score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: odsis01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.