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Diagnostic Odyssey Instrument

odyssey

01

ACE-2 EHCI: Diagnostic Odyssey Instrument v7

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Element NameData TypeSizeRequiredConditionDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
earlydev_aconIntegerRecommendedAge (in months) when parents first noticed that something is not quite right in language, relationships or behavior(in months)0 :: 400;991;992;996;997;998;999991 = Parents not concerned although child was referred by professional; 992 = Parents have been worried since birth (e.g., if baby premature or very ill at birth); 996 = Can't recall but before 3 years; 997 = Can't recall but 3 years or later; 998=N/A; 999=N/K or not asked
earlydev_fsymcString1,024RecommendedFirst symptoms to arouse parental concern (specify)
concern24mIntegerRecommendedWere first concern clearly evident by 24 months?0;10=No; 1=Yes
first_childIntegerRecommendedIs child your first child?0;10=No; 1=Yes
pregia_bIntegerRecommendedHave you been child primary caretaker since birth?0;10=No; 1=Yes
pregia_cString100Conditionalpregia_b === '0'Who else has been a primary caretaker?
pregia_dString100Conditionalpregia_b === '0'When was that person= the primary caretaker?
mpq2String500RecommendedWere there any other important things happening to you or your family right around this time?
fc2_1IntegerConditionalfc2_1 === 0Were you the first person who was concerned that something didnt seem right with childs development?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
fc2_2IntegerConditionalfc2_1 === 0Who was the first person who said they were concerned?1::8; 99; 7799=Don't know; 77=Refused; 1=mother; 2= father; 3= family member/relative; 4=a doctor or other healthcare provider; 5=teacher; 6=the school counselor or nurse; 7=a family friend; 8= other
fc2_2oString100Conditionalfc2_2 == '8'Specify other
fc3String25RecommendedAt the time you were first concerned, did you share your concerns with any of the following?99=Don't know; 77=Refused; 1=spouse or partner; 2=family member; 3= friend; 4= child care provider or babysitter; 5=teacher or school staff; 6=clergy or church staff; 7=pediatrician or health care prvider; 9=other
fc3oString100RecommendedSpecify other people you shared concern with
fc3_1IntegerRecommendedWhen you shared your concerns with these people, did you ever feel like people were not taking your concerns seriously?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=refused
fc3_2IntegerRecommendedWhen you shared your concerns with these people, did you ever feel like someone was trying to keep you from seeking help for child?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=refused
fc3_3String25Conditionalfc3_1 == '1' || fc3_2 == '1'Who did not take your concerns seriously ortried to keep you from seeking help?99=Don't know; 77=Refused; 1=spouse or partner; 2=childs other parent; 3=family member; 4= friend; 5= child care provider or babysitter; 6=teacher or school staff; 7=clergy or church staff; 8=pediatrician or health care prvider; 9=other
fc3_3oString100Conditionalfc3 =='9' ||fc3_3 == '9'Specify other people who refused your concern
fc4IntegerRecommendedWhich one of these did you share your concerns with first?1::6;77;9999=Don't know; 77=Refused; 1= child care provider; 2=teacher or school staff; 3=clergy or church staff; 4=pediatrician or health care prvider; 5=autism research center; 6=other
fc4_1IntegerRecommendedHow old was child when you first shared your concerns with this person? In months
fc5_1IntegerRecommendedDid that person: Conduct developmental tests?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc5_2IntegerRecommendedDid that person: Make a referral to a specialist?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc5_3IntegerRecommendedDid that person: Tell you nothing was wrong- that the behavior was normal, it was too early to tell, or that he/she might "grow out of it?"0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc5_4IntegerRecommendedDid that person: Suggest that you discuss the concern with childs school?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc5_5IntegerRecommendedDid that person do or say anything else?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc5_5oString300Conditionalfc5_5 == '1'Specify
fc6_1IntegerRecommendedAt this time of first concerns: Difficulty finding or keeping child care or babysitters0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_2IntegerRecommendedAt this time of first concerns: Difficulty going places you needed to go like the store0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_3IntegerRecommendedAt this time of first concerns: Difficulty finding or staying in preschool0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_4IntegerRecommendedAt this time of first concerns: School suspensions0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_5IntegerRecommendedAt this time of first concerns: Family Conflict / Martial Stress or Tension Among Adults Residing in the Household0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_6IntegerRecommendedOther difficulties?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
fc6_6oString200Conditionalfc6_6 == '1'Specify other
fc7IntegerRecommendedAt this age was there a place or a doctor that child usually went to for well check-ups when he/she wasn't sick?1::3; 77; 9999=Don't know; 77=Refused; 1=yes; 2= there was no place; 3= there was more than one place
fc7_1IntegerRecommendedAt this age, did child have any kind of health care coverage, including health insurance, prepaid plans such as HMOs, or government plans such as Medicaid or S-CHIP?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
fc7_2IntegerConditionalfc7_1 == 1What type of insurance was it?1::3; 77; 991=private or employer-based; 2=Public health insurance of some type; 3= other; 99=Don't know; 77=Refused
fc7_2oString150Conditionalfc7_2 == '3'Specify other
household_number_in_houseIntegerRecommendedNumber of people living in primary residence for subject (proband)
num_in_house_adultsIntegerRecommendedNumber of Individuals in Household Adults
num_in_house_kidsIntegerRecommendedNumber of Individuals in Household Children
d2_4IntegerConditionalnum_in_house_kids >= 2Did any of these other children have any disability, developmental delay, or other special needs?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
d2_4oString100Conditionald2_4 == '1'Specify
briefscreen_respondent_age_yrsIntegerRecommendedage of Respondent in years
d4IntegerRecommendedWere you married, widowed, divorced, separated, never married, or living with a partner?1::6; 99; 771=married; 2=widowed; 3=divorced; 4=separated; 5=never married; 6=living with a partner; 99=Don't know; 77=Refused
d5IntegerRecommendedDid you have a disability, special health care need, or other condition?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
d5oString150Conditionald5 == '1'Specify type of disability, health care need or condition
d6IntegerRecommendedHow would you describe your general health at that time? Would you say it was1::5; 99; 771=Excellent; 2=very good; 3=good; 4= fair; 5=poor; 99=Don't know; 77=Refused
d7String15RecommendedThinking back to what you were doing at the time you were first concerned, which of these best describes what you were doing? Were you working then, not working, looking for work, retired, a stay-at-home parent, a student, or something else?1=working; 2=temporarily laid off, sick leave, maternity leave; 3=unemployed - looking for work; 4=unemployed - not looking for work; 5=retired; 6=disabled - permanently or temporarily; 7=full time stay at home parent; 8=student; 9=other; 99=Don't know; 77=Refused
d7oString100Conditionald7 == '9'Specify other
d8IntegerRecommendedAt the age when you were having first concerns about child, what was the highest year or grade you had finished in school?1::11; 99; 7799=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other
d8oString50Conditionald8 == '11'Specify other
annual_fam_incomeString25RecommendedFamily annual income1. Under $10 000;2. $10 000-$29 000;3. $30 000-$49 000;4. $50 000-$74 999;5. $75 000-$99 999;6. $100 000-$149 999;7. $150 000 and above; 8. Refused
ad1IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Sometimes families see a professional who suspects the child might have autism but is not yet ready to give an official diagnosis of an autism spectrum disorder. Did this ever happen to you?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
ad1aIntegerConditionalad1 == 1Who said this?1::51=Child care provider; 2=Teacher or school staff; 3=Clergy or staff at a place of worship; 4=Pediatrician or health care provider; 5=other
ad6IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1I am going to read you a list of types of professionals and providers. What type of professional or provider gave this first autism diagnosis?1::10; 99; 77; 99899=Don't know; 77=Refused; 1=Pediatrician; 2=Primary care doctor =; 3=Developmental pediatrician; 4=Psychiatrist; 5=Clinical psychologist; 6=Neurologist; 7=Team of health professionals; 8=Team of professionals from the early intervention program; 9=Team of professionals in a school system; 10=Other; 998=Not applicable/No official diagnosis
ad6oString200Conditionalad6 == '10'Specify other
ad7IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Where did that professional or provider work?1::4; 99; 77; 99899=Don't know; 77=Refused; 1=Public school system; 2=Health care system =; 3= Early intervention program; 4=Other; 998=Not applicable/No official diagnosis
ad8IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Approximately how many times have you visited professionals about childs language, relating, behavior, or development (before diagnosis)?1::4; 99; 77; 99899=Don't know; 77=Refused; 1=None; 2=1-2; 3=3-5; 4=6 or more; 998=Not applicable/No official diagnosis
ad11_1IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Thinking about this professional or the team of professionals, did they do any of the following during the process of assessing/diagnosed your child?Listen carefully to your concerns?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad11_2IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Thinking about this professional or the team of professionals, did they do any of the following during the process of assessing/diagnosed your child? Spend enough time with you?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad11_3IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Thinking about this professional or the team of professionals, did they do any of the following during the process of assessing/diagnosed your child? Welcome your thoughts, concerns, and questions?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad11_4IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Thinking about this professional or the team of professionals, did they do any of the following during the process of assessing/diagnosed your child? Respect your choices and opinions?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad11_6IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Thinking about this professional or the team of professionals, did they do any of the following during the process of assessing/diagnosed your child? Help you figure out what your next steps would be to get help for child?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_1IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Wait time to get an appointment?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_2IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Cost of the evaluation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_3IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Availability of an evaluation in your area?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_4IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Poor quality of the evaluation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_5IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Scheduling conflicts?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_6IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Transportation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_7IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Insurance problems?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_8IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Finding time to attend the appointment?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_9IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Language Barriers?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_10IntegerConditionaldiagnosed == 1 && ad2 == 1 || diagnosed === 0 && ad == 1Were any of the following a problem with getting your child assessed/diagnosed? Misunderstandings that may have resulted from cultural differences between you and the clinician0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad12_11String100Conditionaldiagnosed == '1' && ad2 == '1' || diagnosed === '0' && ad == '1'Other problems?
s1IntegerRecommendedHas your child ever received special services for any developmental delays?0;10=No; 1=Yes
s2_1String25Conditionals1 == '1'After the age when you were having first concerns about your child, where did child first start getting special services to meet his/her needs99=Don't know; 77=Refused; 1=Home; 2=Childcare; 3=Regular School; 4=Special School; 5=Medical Clinic; 6=Other clinic; 7=Other setting; 998= Not Applicable/No Special Services
s2_1aIntegerConditionals1 == 1How old was he/she when these special services first began? Months
s3String25Conditionals1 == '1'What kind of special services did he/she first receive?1=behaviour intervention or modification; 2=speech or language therapy; 3=occupational therapy; 4=special education; 5=early intervention; 6=special diet/herbal supplement/vitamin therapy; 7=other; 99= Don¿t know; 77=Refused; 998=Not Applicable/No Special Services
s3oString200Conditionals3 == '7'Specify other
s3_1String25Conditionals1 == '1'Where did child receive those services?1= public school system =; 2= health care system =; 3=early intervention program =; 4=other; 998= Not Applicable/No Special Services; 99=Don't know; 77=Refused
s3_1oString100Conditionals3_1 == '4'Specify other
s4IntegerConditionals1 == 1Around this time when special services were beginning, were you ever told that child was not eligible for special services or were you denied services?0;1; 99; 77; 9980=No; 1=Yes; 99=Don't know; 77=Refused; 998= Not Applicable/No Special Services
s5_1IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Wait time to get an appointment?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_2IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Cost of services?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_3IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Availability of services in your area?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_4IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Poor quality of the evaluation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_5IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Scheduling conflicts?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_6IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Transportation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_7IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Insurance problems?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_8IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Finding time to attend appointments?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_9IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Language Barriers?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_10IntegerConditionals1 == 1Were any of the following a problem in getting to or dealing with the first special services? Misunderstandings that may have resulted from cultural differences between you and the clinician0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s5_11String300Conditionals1 == '1'Other problems?
ei1IntegerConditionals1 === 0 || s3 != '5' && s3_1 != '3'At any time before child was 3 years old, did he/she receive services from a program called Early Intervention Services, sometimes called Birth-to-Three services?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
ei1aIntegerConditionalei1 === 0Did you ever seek Early Intervention services?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
ei1bIntegerConditionalei1a == 1Were you ever told that childwas not eligible for Early Intervention Services?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
ei2IntegerConditionalei1 == 1How old was CHILD when he/she first began receiving Early Intervention Services? Months
ei3_1IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Wait time to get an appointment?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_2IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Cost of services?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_3IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Availability of services in your area?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_4IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Poor quality of the evaluation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_5IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Scheduling conflicts?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_6IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Transportation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_7IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Insurance problems?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_8IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Finding time to attend appointments?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_9IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Language Barriers?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_10IntegerConditionalei1a == 1 || ei1 == 1Were any of the following a problem in getting to or dealing with Early Intervention services? Misunderstandings that may have resulted from cultural differences between you and the clinician0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ei3_11String100Conditionalei1a == '1' || ei1 == '1'Other problems?
sped1IntegerConditionals3 != 4 && interview_age >=36Has child ever received services from a program called Special Education?0;1; 99; 77; 9980=No; 1=Yes; 99=Don't know; 77=Refused; 998=n/a
sped1aIntegerConditionalsped1 === 0Did you ever seek Special Education services?0;1; 99; 77; 9980=No; 1=Yes; 99=Don't know; 77=Refused; 998=n/a
sped1bIntegerConditionalsped1a == 1Were you ever told that child was not eligible for Special Education Services?0;1; 99; 77; 9980=No; 1=Yes; 99=Don't know; 77=Refused; 998=n/a
sped2IntegerConditionalsped1 == 1How old was child when he/she first began receiving school Special Educational Services? Months999=NA/NK/missing
sped3_1IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Wait time to get an appointment?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_2IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Cost of services?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_3IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Availability of services in your area?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_4IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Poor quality of the evaluation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_5IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Scheduling conflicts?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_6IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Transportation?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_7IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Insurance problems?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_8IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Finding time to attend appointments?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_9IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Language Barriers?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_10IntegerConditionalsped1a == 1 || sped1 == 1Were any of the following a problem in getting special education services? Misunderstandings that may have resulted from cultural differences between you and the clinician0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
sped3_11String500Conditionalsped1a == '1' || sped1 == '1'Other problems?
oc1IntegerRecommendedHas your child received any other official diagnoses?/ Did child receive any other official diagnoses before you were told that he/she had autism?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
oc2String25Conditionaloc1 == '1'What diagnoses were those?1 = developmental delays; 2= hearing loss; 3 = ADD/ADHD; 4= learning disability; 5=MR/ID; 6= seizures/seisure disorder/epilepsy; 7= behavioral disorder, conduct disorder, ODD; 8= anxiety disorder; 9=depression; 10=OCD; 11= other; 88= No other diagnosis; 77=refused; 99 = don't know
gss1_1IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? WIC the Women, Infants, and Children nutrition program0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_2IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? Head Start, a federally funded preschool program0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_3IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? Food stamps0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_4IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? Medicaid health insurance0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_5IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? S-CHIP health insurance, also known as the State Childrens Health Insurance Program0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_6IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? Information and referral help from 2-1-1 or another phone helpline for information about your childs development, services, or autism0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
gss1_7IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did your child or family ever get any of the following kinds of help or services? Public housing or Section 8 rental assistance0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od1String25Conditionaldiagnosed == '1' || diagnosed ==='0' && ad== '1'During this time period, what kinds of things were the most helpful to you in getting help for child?1= other parents/ parent group; 2= child care provider; 3= early intervention program providers; 4= preschool/ early childhood programproviders includes special education; 5= school staff (elementary level and above); 6= professional service provider, therapist; 7= doctor or health care provider; 8= advocacy organization; 9= family members; 10= online, web; 11= newsletters, magazines; 12= trainings, workshops, conferences; 13= other; 99= don¿t know; 77= refused
od1oString150Conditionalod1 == '13'Specify other
od2IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Did you ever have any difficulties or delays because you had trouble getting the information you needed?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od3String400Conditionaldiagnosed == '1' || diagnosed ==='0' && ad== '1'What kinds of things got in the way of your learning about autism and getting help for child?
od4IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1During this time period, did anyone ever tell you to visit a doctor or a health care provider to get a medical diagnosis of autism?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od5IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1How much trust did you have in the advice you heard from doctors or health care providers about your child?1::51=Strong trust; 2=Some trust; 3=Neutral; 4=Some distrust; 5=Strong distrust
od5_1IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Were there certain types of providers that you felt you were able to trust more than others?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od5_1aIntegerConditionalod5_1 == 1Let's start with the doctor or healthcare provider that you trusted the most. How much trust did you have in him/her?1::5; 9991=Strong trust; 2=Some trust; 3=Neutral; 4=Some distrust; 5=Strong distrust; 999=NA/NK/missing
od5_1bString100Conditionalod5_1 == '1'What type of healthcare provider was he/she?999=NA/NK/missing
od5_1cIntegerConditionalod5_1 == 1What type of professional or provider gave this first autism diagnosis?1::51=Strong trust; 2=Some trust; 3=Neutral; 4=Some distrust; 5=Strong distrust; 999=NA/NK/missing
od5_1dString100Conditionalod5_1 == '1'What type of healthcare provider was he/she?999=NA/NK/missing
od7_1IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You went through a divorce or major separation0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_2IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You got married or moved in with a new partner0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_3IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You experienced the birth or adoption of another child0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_4IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? A close family member died0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_5IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You had a major illness, accident, or injury that required staying in a hospital0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_6IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You lost a job0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_6aIntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You changed jobs0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_7IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You experienced being arrested0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_8IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You were the victim or witness in a violent crime0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_9IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You experienced major problems with owing money: credit card debt or loan default0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_10IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You experienced major problems paying for health care for anyone in your family0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_11IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? Another child of yours was diagnosed with a serious disability or health condition0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_12IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? Another child of yours was diagnosed with a serious disability or health condition0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_13IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You or other family members stopped working because of childs special needs0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_14IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about the time between when you were first concerned and when child either got a diagnosis or started services, did following happen to you? You or other family members cut down on the hours you worked because of childs special needs0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_15IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking again about the time between when you were first concerned and when child either got a diagnosis or started services, did any of the following things happen to you? You moved to a new home0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
od7_16String500Conditionaldiagnosed == '1' || diagnosed ==='0' && ad== '1'Other
od8IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1Thinking about all the efforts you made to find help for your child, how easy or difficult was it to find the help you needed?1::5; 77; 991=Very easy; 2=Somewhat easy; 3=Neutral; 4=Somewhat difficult; 5=Very difficult; 99=don't know; 77= refused
od9IntegerConditionaldiagnosed == 1 || diagnosed ===0 && ad== 1How often have you shared with other people this story about finding help for your child?1::51=Very often; 2=Somewhat often; 3=Neutral; 4=Not very often; 5=Almost never
post1IntegerRecommendedHow easy or difficulty was it for you to remember information about the past events that we asked about?1::51=Very easy; 2=Somewhat easy; 3=Neutral; 4=Somewhat difficult; 5=Very difficult
hc1aIntegerRecommendedWhat best describes your relationship status to the biological father of child?1::7; 771=Married; 2=Widowed; 3=Divorced; 4=Separated; 5=Never Married; 6=Living with Partner as though married; 7=Other; 77=Refused to answer
hc1aoString100Conditionalhc1a == '7'Specify other
hc1bIntegerRecommendedWhat best describes your current marital status?1::7; 771=Married; 2=Widowed; 3=Divorced; 4=Separated; 5=Never Married; 6=Living with Partner as though married; 7=Other; 77=Refused to answer
hc1boString100Conditionalhc1b == '7'Specify other
et2aIntegerRecommendedHighest Level of Education Achieved. Biological mother1::12; 99; 7799=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GED
et2aoString50Conditionalet2a == '11'Specify other
et2bIntegerRecommendedHighest Level of Education Achieved. Biological father1::12; 99; 7799=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GED
et2boString100Conditionalet2b == '11'Specify other
oesaIntegerRecommendedWhat is your current employment status. Biological mother1::9; 99; 771=working; 2=temporarily laid off, sick leave, maternity leave; 3=unemployed - looking for work; 4=unemployed - not looking for work; 5=retired; 6=disabled - permanently or temporarily; 7=full time stay at home parent; 8=student; 9=other; 99=Don't know; 77=Refused
oesaoString50Conditionaloesa == '9'Specify other
oesbIntegerRecommendedWhat is your current employment status. Biological father1::9; 99; 771=working; 2=temporarily laid off, sick leave, maternity leave; 3=unemployed - looking for work; 4=unemployed - not looking for work; 5=retired; 6=disabled - permanently or temporarily; 7=full time stay at home parent; 8=student; 9=other; 99=Don't know; 77=Refused
oesboString50Conditionaloesb == '9'Specify other
hf4_1IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Temporary Assistance Program (TANF)0;10=No; 1=Yes
hf4_2IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Food Stamps Program0;10=No; 1=Yes
hf4_3IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Women, Infants, Children (WIC) Program0;10=No; 1=Yes
hf4_4IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following DFS or Division of Child and Family Services (DCFS)?0;10=No; 1=Yes
hf4_5IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following SSI (Supplemental Security income)?0;10=No; 1=Yes
hf4_6IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following SSI (Supplemental Security income)?0;10=No; 1=Yes
hf4_7IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Disability Pension0;10=No; 1=Yes
hf4_8IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Alimony0;10=No; 1=Yes
hf4_9IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Child Support0;10=No; 1=Yes
hf4_10IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Workers Compensation0;10=No; 1=Yes
hf4_11IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Dividends from Stocks or mutual funds0;10=No; 1=Yes
hf4_12IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Net Rental income from property, royalties, or trusts0;10=No; 1=Yes
hf4_13IntegerRecommendedOver the past year, have you or anyone living in your household, received any of the following Veterans (VA) payments0;10=No; 1=Yes
hf4_14String100RecommendedSpecify other
hf5IntegerRecommendedPlease indicate which category best describes your total household family income (income from all family members) from all sources, before taxes (GROSS INCOME), in the past 12 months.1::16; 771=$5,000 or less; 2=$5,001 - $10,000; 3=$10,001 - $15,000; 4=$15,001 - $20,000; 5=$20,001 - $25,000; 6=$25,001- $30,000; 7=$30,001 - $35,000; 8=$35,001 - $40,000; 9=$40,001 - $45,000; 10=$45,001 - $50,000; 11=$50,001 - $55,000; 12=$55,001 - $60,000; 13=$60,001 - $65,000; 14= 65,001 - $70,000; 15=$70,001 - $75,000; 16=More than $75,000; 77=Rather not say
hf7IntegerRecommendedDoes anyone who lives outside of your household help pay your household bill?0;10=No; 1=Yes
post2IntegerRecommendedHow would you rate the reliability of the information this parent provided?1::51=Highly reliable; 2=Somewhat reliable; 3=Neutral; 4=Somewhat unreliable; 5=Highly unreliable
post3IntegerRecommendedHow would you rate the accuracy of the information this parent provided?1::51=Highly accurate; 2=Somewhat accurate; 3=Neutral; 4=Somewhat inaccurate; 5=Highly inaccurate
adiq4String150RecommendedOnset age in months as perceived with hindsightearlydev_hind
adiq86IntegerRecommendedWas abnormality clearly evident by 36 months0;10=No; 1=Yesgenbehav_ageabn
mpq3String500RecommendedDo you remember where you had a party or special event to celebrate that year's birthday?
a1_ad1a_oString300Conditionalad1a == '5'Specify other person suspected diagnosis
ad12_11_oString300Conditionalad12_11 == '1'Specify other problems
s2_1oString150Conditionals2_1 == '6' || s2_1 == '7'Spcify other services
s2_2IntegerConditionals1 == 1What year did services begin999=NA/NK/missing
oc2_oString100Conditionaloc2 == '11'Specify other diagnoses
hf6IntegerRecommendedOn average how much money do you send/give to family and friends per month who are not living with you
age_concernIntegerRecommendedAge of first developmental concern (months)0 :: 1200mpq4
fc4_oString255Conditionalfc4 == '6'Which one of these did you share your concerns with first. Specify other
ad7_oString100Conditionalad7 == '4'Where did that professional or provider work. Specify other
respond_detail_oth_specString255Conditionalrelationship == '90'Respondent detailsrespond_o
relationshipString255RecommendedRelationship of respondent to individual
1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;17;18;19;20;21;22;23;24;25;26;27;28;29;30;31;32;33;34;35;36;37;38;39;40;41;42;43;44;45;46;47;48;49;50;51;52;53;54;55;56;57;58;59;60;61;62;63;64;65;66;67;68;69;70;71;72;73;74;75;76;77;78;79;80;81;82;83;84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male
adIntegerConditionaldiagnosed === 0Non-Dx: Has a professional ever assessed your child for a diagnosis of autism, autism spectrum disorder, PDD-NOS, or Asperger's?1;2; 99; 771=Yes; 2=No; 99=Don't know; 77=Refused
adaIntegerConditionaldiagnosed === 0 && ad == 1Non-Dx: Approximately how old was your child when he/she was first assessed for an autism spectrum disorder?0 :: 400
ad2IntegerConditionaldiagnosed == 1Has a professional ever given child a diagnosis of autism, autism spectrum disorder, autistic disorder, PDD-NOS, or Asperger's?0;1; 99; 770=No; 1=Yes; 99=Don't know; 77=Refused
ad3IntegerConditionaldiagnosed == 1 && ad2 == 1When a professional or provider first officially said child had autism, what was the specific diagnosis?1::5; 99; 77; 99899=Don't know; 77=Refused; 1=autistic disorder; 2= autism or ASD; 3=Asperger's disorder; 4=PDD-NOS; 5=other; 998=Not applicable/No official diagnosis
ad3oString100Conditionaldiagnosed == '1' && ad3 == '5'Specify other
ad4IntegerConditionaldiagnosed == 1 && ad2 == 1Approximately how old was child when he/she received this first official diagnosis of an autism spectrum disorder? Months999=NA/NK/missing
ad9IntegerConditionaldiagnosed == 1 && ad2 == 1How satisfied were you that the diagnosis was correct once you got it?1::5; 99; 77; 99899=Don't know; 77=Refused; 1=Very satisfied; 2=Somewhat satisfied; 3=Neutral; 4=Somewhat unsatisfied; 5=Very unsatisfied; 998=Not applicable/No official diagnosis
ad11_5IntegerConditionalad2 == 1 && diagnosed ==1Thinking about this professional or the team of professionals, did they do any of the following during the process of getting a diagnosis? Give you printed information to help you learn more about autism?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
ad11_7IntegerConditionalad2 == 1 && diagnosed ==1Thinking about this professional or the team of professionals, did they do any of the following during the process of getting a diagnosis? Help you connect to a support organization that helps families deal with autism?0;1; 99; 77; 90=No; 1=Yes; 99=Don't know; 77=Refused; 9=n/a
s2_3IntegerConditionals1 == 1Did these first services begin before or after you were told that child has autism?1;2; 99; 77; 9981=Services began before the diagnosis of autism; 2=Services began after the diagnosis of autism; 99= Don¿t know; 77=Refused; 998=Not Applicable/No Special Services
od6IntegerConditionaldiagnosed == 1Before child had a diagnosis of autism, how concerned were you about child having a label like autism?1::5; 9991=Very concerned; 2=Somewhat concerned; 3=Neutral; 4=Somewhat unconcerned; 5=Very unconcerned; 999=NA/NK/missing
diagnosedIntegerRequiredWas the individual officialy diagnosed with ASD or is it suspected to have ASD?0;10=Supected ASD ; 1=Diagnosed ASD
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Distribution for DataStructure: odyssey01 and Element:
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