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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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ONRC Health Questionnaire



ONRC Health Questionnaire

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
q01_learnIntegerRecommendedHow did you learn about the research project?1::81 = Random phone screen; 2 = Radio or TV; 3 = Newspaper; 4 = Flyer; 5 = Friend or Colleague; 6 = School Recruitment; 7 = Hosital Affiliate; 8 = Other
height_metFloatRecommendedHeight - Metric Unitq10_height
weight_metFloatRecommendedWeight - Metric Unitq11_weight
R = Right; L = Left; B = Bothq12_hand
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 10 = No; 1 = Yesq13_hispanic
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedq14_race
spoken_engIntegerRecommendedAre you fluent in spoken English?0;10 = No; 1 = Yesspoken_eng
written_engIntegerRecommendedAre you fluent in written English?0;10 = No; 1 = Yesq16_written_eng
eng_firstIntegerRecommendedIs English your first language?0;10 = No; 1 = Yesq17_eng_first
lang_raisedString150RecommendedWhat language were you raised with?q18_lang_raised
lang_schoolString150RecommendedWhat language were you schooled in?q19_lang_school
sec_langIntegerRecommendedAre you fluent in a second language?0;10 = No; 1 = Yesq20_sec_lang
oth_langString150RecommendedWhat other languages are you fluent in?q21_oth_lang
age_other_langIntegerRecommendedAt what age did you start learning the other languages?q22_age_other_lang
marriedIntegerRecommendedAre you married?1::61 = Married/Common Law; 2 = Never Married; 3 = Married and Seperated ;4 = Divorced or Annulled; 5 = Widowed; 6=Living with someone as though marriedq23_married
times_marrIntegerRecommendedHow many times have you married?q24_times_marr
marr_endIntegerRecommendedWhen did the marriages end?q25_marr_end
have_childrenIntegerRecommendedDo you have children?0;10 = No; 1 = Yesq26_children
kids_numIntegerRecommendedHow many?q27_kid_num
mental_illIntegerRecommendedDo you have a family history of mental illness?0;10 = No; 1 = Yesq28_mental_ill
mental_who_illString150RecommendedWho and how are they related?q29_who_ill
mentalt_diagString150RecommendedWhat is the diagnosis?q30_what_diag
mental_whenString150RecommendedWhen were they diagnosed?q31_when_diag
educationIntegerRecommendedHow much education have you completed?5::205 = Less Than 5 grade; 6 = 6 grade;7 = 7 grade; 8 = 8 grade; 9 = 9grade; 10 = 10 grade; 11 = 11 grade; 12 = 12 grade;13 = Some college, but no degree;14 = Technical Degree;15 = Associates Degree;16 = More than two years, but no degree;17 = Bachelor's Degree;18 = Some graduate level coursework;19 = Master's Degree;20 = Ph.D. or M.D.q32_edu
school_repeatIntegerRecommendedDid you repeat any years in school?0;10 = No; 1 = Yesq33_repeat
repeat_gradesString150RecommendedWhat grades?q34_grades
grad_high_schoolIntegerRecommendedDid you graduate high school?0;10 = No; 1 = Yesq35_high_school
gedIntegerRecommendedDid you receive a GED0;10 = No; 1 = Yesq36_ged
collegeString150RecommendedIf you did not complete a college program in which you were enrolled, what was the reason?q38_college
resp_occupationString255RecommendedRespondent's occupationq39_occupation
work_always_doneIntegerRecommendedHave you always done this type of work?0;10 = No; 1 = Yesq40_always_done
work_whyString150RecommendedIf no, why is that?q41_why
kind_workString150RecommendedIf no, what kind of work have you done?q42_kind_work
work_nowIntegerRecommendedAre you working now?0::60 = Unemployed; 1 = Employed; 2 = Retired; 3 = Not in the labor force; 4 = Full-time Student; 5 = Physical Disability; 6 = Mental Disabilityq43_work_now
long_employString150RecommendedIf yes, how long have you been with this employer?q44_long_employ
why_leaveString150RecommendedIf less than 6 months at this employer, why did you leave your last job?q45_why_leave
longest_jobString150RecommendedLength of the longest full time job that lasted more than one year?q46_longest_job
num_jobsIntegerRecommendedHow many full time jobs have you had that lasted one year or more?q47_num_jobs
overnightIntegerRecommendedDo you work overnight shifts?0;10 = No; 1 = Yesq48_overnight
average_sleepIntegerRecommendedHow much sleep do you average per night?q49_sleep
heart_disIntegerRequiredHeart disease, high blood pressure, blood disease, or mitro valve prolapse1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq50_heart_dis
hay_allergiesIntegerRecommendedAllergies including hay fever1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq51_allergies
adv_reactionIntegerRecommendedHave you ever had any adverse or bad reaction to any medication1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq52_reaction
lung_disIntegerRequiredLung disease, including asthma, chronic bronchitis, emphysema, or sleep apnea1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq53_lung_dis
stomach_disIntegerRequiredStomach disease, including ulcers, chronic indigestion, intestinal disease, gall bladder, or liver disease, hepatitis, or jaundice1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq54_stomach_dis
lymph_disIntegerRecommendedDisease of lymph glands, thyroid, adrenal gland, or kidney or bladder disease.1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq55_lymph_dis
bone_disIntegerRecommendedBone, joint, skin, or muscle disease1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq56_bone_dis
diabetesIntegerRequiredDiabetes, or problems with blood sugar levels, if so are you insulin dependant1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq57_diabetes
problem_earIntegerRecommendedAny ear, nose, or throat problem1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq58_ear
problem_eyeIntegerRecommendedAny eye problems including color blindness1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq59_eye
genital_disIntegerRequiredDisease of the gential organs or prostate gland; occurrence of a sexual trasmitted infection, or a positive HIV test1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq60_genital_dis
neurologicalIntegerRecommendedNeurological disease, head injury, seizures, strokes, or a transient ischemic attack1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq61_neurological
migraneIntegerRecommendedReccurent/Severe migrane headache1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq62_migrane
eating_disIntegerRecommendedEating disorders, including binging, purging, excessive dieting1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq63_eating_dis
cancerIntegerRecommendedTumor or cancer1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq64_cancer
psych_hospIntegerRequiredPsychiatric hospitalization or counseling, therapy, or treatment for an emotional or psychological problem (including substance abuse/dependence)1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq65_psych_hosp
add_diagIntegerRequiredHave you ever been diagnosed with ADD or ADHD1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq66_ADD
other_disIntegerRecommendedAny other disorders not mentioned1::41 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care nowq67_other_dis
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: onrc_health01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.