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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Outcome Questionnaire

oq

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
oq_1IntegerRecommended1. I get along well with others0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_2IntegerRecommended2. I tire quickly0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_3IntegerRecommended3. I feel no interest in things0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_4IntegerRecommended4. I feel stressed at work/school.0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_5IntegerRecommended5. I blame myself for things0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_6IntegerRecommended6. I feel irritated0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_7IntegerRecommended7. I feel unhappy in my marriage/significant relationship0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_8IntegerRecommended8. I have thoughts of ending my life0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_9IntegerRecommended9. I feel weak0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_10IntegerRecommended10. I feel fearful.0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_11IntegerRecommended11. After heavy drinking, I need a drink the next morning to get going. (if you do not drink, mark "never")0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_12IntegerRecommended12. I find my work/school satisfying .0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_13IntegerRecommended13. I am a happy person0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_14IntegerRecommended14. I work/study too much0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_15IntegerRecommended15. I feel worthless0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_16IntegerRecommended16. I am concerned about family troubles0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_17IntegerRecommended17. I have an unfulfilling sex life0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_18IntegerRecommended18. I feel lonely0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_19IntegerRecommended19. I have frequent arguments0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_20IntegerRecommended20. I feel loved and wanted0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_21IntegerRecommended21. I enjoy my spare time0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_22IntegerRecommended22. I have difficulty concentrating0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_23IntegerRecommended23. I feel hopeless about the future0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_24IntegerRecommended24. I like myself0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_25IntegerRecommended25. Disturbing thoughts come into my mind that I cannot get rid of0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_26IntegerRecommended26. I feel annoyed by people who criticize my drinking (or drug use) (If not applicable, mark "never")0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_27IntegerRecommended27. I have an upset stomach0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_28IntegerRecommended28. I am not working/studying as well as I used to0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_29IntegerRecommended29. My heart pounds too much0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_30IntegerRecommended30. J have trouble getting along with friends and close acquaintances0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_31IntegerRecommended31. I am satisfied with my life0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_32IntegerRecommended32. I have trouble at work/school because of drinking or drug use (If not applicable, mark "never")0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_33IntegerRecommended33. I feel that something bad is going to happen0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_34IntegerRecommended34. I have sore muscles0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_35IntegerRecommended35. I feel afraid of open spaces, of driving, or being on buses, subways, and so forth.0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_36IntegerRecommended36. I feel nervous0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_37IntegerRecommended37. I feel my love relationships are full and complete0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_38IntegerRecommended38. I feel that I am not doing well at work/school.0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_39IntegerRecommended39. I have too many disagreements at work/school0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_40IntegerRecommended40. I feel something is wrong with my mind0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_41IntegerRecommended41. I have trouble falling asleep or staying asleep0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_42IntegerRecommended42. I feel blue0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_43IntegerRecommended43. I am satisfied with my relationships with others0::40=Always; 1=Frequently; 2=Sometimes; 3=Rarely; 4=Never
oq_44IntegerRecommended44. I feel angry enough at work/school to do something I might regret.0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_45IntegerRecommended45. I have headaches0::44=Always; 3=Frequently; 2=Sometimes; 1=Rarely; 0=Never
oq_sdIntegerRequiredSymptom Distress score
oq_irIntegerRequiredSocial-Role functioning score
oq_stFloatRequiredInterpersonal Relationships score
oq_totalIntegerRequiredOutcome Questionnaire total score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: oq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.