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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Value Range
Data Structures with shared data
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Parent Academic Management Scale



Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectrecord_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
version_formString100RequiredForm used
respondIntegerRecommendedRespondent1::4;9991 = Parent; 2 = Teacher; 3=Self; 4= Other; 999 = Not available
respond_detailIntegerRecommendedRespondent detail1::8;9991 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
pams_1IntegerRecommendedUse an academic contract or daily rewards program to reward academic habits0::5Number of days per week the activity takes place
pams_2IntegerRecommendedCommunicate with the child's teachers0::5Number of days per week the activity takes place
pams_3IntegerRecommendedHelp your child organize school materials0::5Number of days per week the activity takes place
pams_4IntegerRecommendedCheck to see if your child wrote in a daily planner0::5Number of days per week the activity takes place
pams_5IntegerRecommendedCheck the grade portal0::5Number of days per week the activity takes place
pams_6IntegerRecommendedHelp your child plan out what to do during homework time0::5Number of days per week the activity takes place
pams_7IntegerRecommendedHelp your child do his/her homework0::5Number of days per week the activity takes place
pams_8IntegerRecommendedHelp your child study for an upcoming test0::5Number of days per week the activity takes place
pams_9IntegerRecommendedCheck to see if your child had taken notes in class0::5Number of days per week the activity takes place
pams_10IntegerRecommendedMonitor whether your child was studying or doing homework when he/she was supposed to be0::5Number of days per week the activity takes place
pams_11IntegerRecommendedUse a calendar to help your child plan for an upcoming project0::5Number of days per week the activity takes place
pams_12IntegerRecommendedCheck your child's homework for errors0::5Number of days per week the activity takes place
pams_13IntegerRecommendedMake a checklist or to-do list with your child0::5Number of days per week the activity takes place
pams_14IntegerRecommendedProvide a reward for completing school work, homework, or other academic tasks0::5Number of days per week the activity takes place
pams_15IntegerRecommendedRestrict privileges for failing to do school work, homework, or other academic tasks0::5Number of days per week the activity takes place
pams_16IntegerRecommendedDo some of your child's homework for him/her0::5Number of days per week the activity takes place
time_hrString20RecommendedIn an average week (7 days), I usually spend about ______ hours in activities related to my son/daughter's academics (please give an exact estimate, not a range). Example responses: 6 (for six hours); 0.5 (for 1/2 an hour); 0 (for zero hours); 20 (for 20 hours).Number of hours per week the activity takes place
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: pams01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.