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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Parent Demographics Form

pardemogr

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.pre_demo3
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldpre_demo1, t2_demo1
genderString20RequiredSex of the subjectM;FM = Male; F = Femalepre_demo2
relationshipIntegerRecommendedRelationship of respondent to individual
1::84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nannypr_demo1, t2_demo2
respond_detail_oth_specString255RecommendedRespondent detailspr_demo1a, t2_demo2a
resp_ageIntegerRecommendedRespondent's age0::1200In monthspr_demo2
resp_raceString150RecommendedRespondent's raceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedpr_demo3
parent_et_spString50RecommendedSpecify ethnicitypr_demo3a
resp_ethnicityString30RecommendedRespondent's ethnicityHispanic or Latino;Not Hispanic or Latino;Unknown or not reportedpr_demo4
resp_educationIntegerRecommendedRespondent's education1::91 = Less than 8th grade; 2 = 9th-11th grade; 3 = High school or GED; 4 = Trade or vocational; 5 = Associate's degree or 2 years; 6 = Courses towards college; 7 = Bachelor's degree; 8 = Master's degree; 9 = Professional degree (MD, PhD, JD)pr_demo5
pr_demo6IntegerRecommendedWhat is your employment status?1::61=Working a full time paid job; 2=Working a part time paid job; 3=Full time student; 4= Part time student; 5=Not currently working; 6=Other
pr_demo7String100RecommendedWhat is your employment status. Please describe:
resp_occupationString255RecommendedRespondent's occupationpr_demo8
pr_demo9IntegerRecommendedWhat is your current household income?1::91= $20000 or less ; 2= $20001-$40000 ; 3= $40000-$60000 ; 4= $60000-$80000 ; 5= $80001-$100000 ; 6= $100001-$125000 ; 7= $125001-$150000 ; 8= $150001-$200000 ; 9= $200001 or higher
pr_demo10IntegerRecommendedWhat is your marital status?0::60= Never Married; 1= Living with a partner; 2= Married to adolescent/young adult's biological parent; 3= Married but not to the biological parent of the adolescent/young adult with ASD; 4= Separated; 5= Divored; 6= Widowed
pr_demo11IntegerRecommendedDoes your adolescent/young adult have any siblings?0;10=NO; 1=Yes
demo_siblingscountIntegerRecommendedNumber of siblings888 = not applicable; 999 = missingpr_demo11a
ques_age1IntegerRecommendedAge -Sibling 1(in months)0 :: 1200pr_demo11b
pr_demo11cString50RecommendedDoes this sibling have any diagnoses? If so= please list any diagnoses
ques_age2IntegerRecommendedAge -Sibling 2(in months)0 :: 1200pr_demo11d
pr_demo11eString50RecommendedDoes this sibling have any diagnoses? If so= please list any diagnoses
ques_age3IntegerRecommendedAge -Sibling 3(in months)0 :: 1200pr_demo11f
pr_demo11gString50RecommendedDoes this sibling have any diagnoses? If so= please list any diagnoses
ques_age4IntegerRecommendedAge -Sibling 4(in months)0 :: 1200pr_demo11h
pr_demo11iString50RecommendedDoes this sibling have any diagnoses? If so= please list any diagnoses
ques_age5IntegerRecommendedAge -Sibling 5(in months)0 :: 1200pr_demo11j
pr_demo11kString50RecommendedDoes this sibling have any diagnoses? If so= please list any diagnoses
spouse_ageIntegerRecommendedSpouse's age0::1200In monthspr_demo12
partraceIntegerRecommendedPartner or spouses race1::81=American Indian/Alaska Native; 2= Asian; 3= Native Hawaiian or Other Pacific Islander 4=Hispanic; 5=Black or African American; 6=White; 7=More than one race; 8=Unknown or not reportedpr_demo13
partner_resp_relationshipString100RecommendedRespondent's partner/spouse relationship to child1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = Otherpr_demo15
partethnIntegerRecommendedPartner or spouses ethnicity1::31=Hispanic; 2=Non-Hispanic; 3=Prefer not to respondpr_demo14
pr_demo14aString50RecommendedPlease specify partner's ethnicity
demo_partner_eduString100RecommendedSpouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
pr_demo16
pr_demo17IntegerRecommendedSpouse or partner's employment status:1::61=Working a full time paid job; 2=Working a part time paid job; 3=Full time student; 4= Part time student; 5=Not currently working; 6=Other
demo_partner_occupationString100RecommendedSpouse/partner Occupationpr_demo18
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedpre_demo4
ch_raceString55RecommendedChild's/study subject Race specifypre_demo4a
ethnicityString30RecommendedEthnicity of participantHispanic or Latino; Not Hispanic or Latino; Unknownpre_demo5
pre_demo7IntegerRecommendedType of Residence1::31=City(large urban area); 2=2 Town(small urban area); 3= Rural Community
pre_demo8IntegerRecommendedCurrent Residence1::161=with parent; 2=With his/her siblings; 3=With other relatives; 4=Alone in own home or apartment independantly(no staff); 5=Alone in own home or apartment with support(regular oversight by staff and/or family, but less than 100% supervision); 6= Home or apartment shared with another person(s)(no staff); 7= Home or apartment shared with another person(s); 8=Foster Home; 9= Group home or fully-staffed apartment with 100% supervision; 10=College Dorm; 11=Residential school for students(younger than 22 years of age) with disabilities; 12=Treatment setting other than a residential school; 13= Public or private institution; 14= Congregate Care; 15=Nursing home; 16= In some other living situationt2_demo3a
pre_demo8aString50RecommendedCurrent Residence. Please specifyt2_demo3a_b
pre_demo8bIntegerRecommendedCurrent Residence. Specify # of beds:t2_demo3a_c
pre_demo8cString50RecommendedPlease specify # of bedt2_demo3a_d
t2_demo3IntegerRecommendedDoes your son or daughter live in the same residence as he/she did at our last visit?0;10=No; 1=Yes
t2_demo3bString25RecommendedWhen did your son or daughter move to his/her current residence?
t2_demo3cString100RecommendedCould you describe why he or she moved from the residence in which he or she was living during the summer?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: pardemogr01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.