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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Parent Satisfaction Rating

parent_satisfy_rate

01

A Parent Satisfaction Rating form as defined by Sally Rogers' lab at UC, Davis

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldAddate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.ADagemos
interview_chrono_ageIntegerRecommendedInterview Chronological Age0 :: 1200
interview_adj_ageIntegerRecommendedInterview Adjusted Age0 :: 1200
genderString20RequiredSex of the subjectM;FM = Male; F = FemaleSEX
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
respondentString20RecommendedRespondent
Mother;Father;Both; Child; Other; Parent
ps1IntegerRecommendedHow easy was it for you to conduct ESDM intervention with your child? (Rate 1=not easy; 5=very easy)
ps2IntegerRecommendedHow much do you think the ESDM intervention helps your child use spontaneous speech? (5= very much)
ps3IntegerRecommendedHow easily is ESDM intervention incorporated into your daily routine?
ps4IntegerRecommendedHow much does this intervention affect the speed of learning spontaneous speech for your child?
ps5IntegerRecommendedOverall, my feelings about the ESDM intervention project are that I am:
ps6IntegerRecommendedMy feelings about my child's progress since beginning ESDM intervention are that my child has:
ps7IntegerRecommendedWould you recommend this intervention to other parents?
ps8IntegerRecommendedI feel that the paperwork is being done in a timely manner (data collection, binder updates)?
ps9IntegerRecommendedI feel that the program provided adequate training to the intervention staff working with us.
ps10IntegerRecommendedI feel that my questions and concerns are brought to the intervention staff's attention and are answ
ps11IntegerRecommendedIn terms of promptness and attendance, I feel that the intervention staff is:
ps12IntegerRecommendedIn dealing with my family, I feel that the intervention staff have acted: (professionally?)
ps13IntegerRecommendedIn dealing with my family, I feel that the intervention staff have acted:(respectfully?)
ps14IntegerRecommendedI feel that the intervention staff have a warm and caring attitude toward my family.
ps15aIntegerRecommendedWas the time commitment a barrier to your participation in this program?
ps15acString100RecommendedNotes (regarding the time commitment of the program)
ps15bIntegerRecommendedWas scheduling a barrier to your participation in this program?
ps15bcString100RecommendedNotes (regarding scheduling of the program)
ps15cIntegerRecommendedWere associated costs a barrier to your participation in this program?
ps15ccString100RecommendedNotes (regarding associated costs of the program)
ps15dIntegerRecommendedWere the needs of an older child with autism a barrier to your participation in this program?
ps15dcString100RecommendedNotes (reagrding the needs of an older child with autism)
ps15eIntegerRecommendedwell matched to my own style of interacting with and parenting my child
ps15ecString100RecommendedNotes (regarding matching to parent's style of interaction with child)
ps15fsString100RecommendedOther, specify (barrier to your participation in the program)
ps15fIntegerRecommendedOther (barrier to your participation in the program)
ps15fcString100RecommendedNotes (regarding other barriers to program participation)
ps15gsString100RecommendedOther #2, specify (barrier to your participation in the program)
ps15gIntegerRecommendedOther #2 (barrier to your participation in the program)
ps15gcString100RecommendedNotes (regarding other barriers to program participation)
ps16String255RecommendedAre there any other comments or concerns about you or your child's participation in Early Steps Stud
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: parent_satisfy_rate01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.