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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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PTSD Checklist - Civilian

pclc

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectaid
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldlec_date
genderString20RequiredSex of the subjectM;FM = Male; F = Female
pclc_1IntegerRecommendedRepeated, disturbing memories, thoughts, or images of a stressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec19, pcl1
pclc_2IntegerRecommendedRepeated, disturbing dreams of a stressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec20, pcl2
pclc_3IntegerRecommendedSuddenly acting or feeling as if a stressful experience were happening again (as if you were reliving it)1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec21, pcl3
pclc_4IntegerRecommendedFeeling very upset when something reminded you of a stressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec22, pcl4
pclc_5IntegerRecommendedHaving physical reactions (e.g., heart pounding, trouble breathing, sweating) when something reminded you of astressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec23, pcl5
pclc_6IntegerRecommendedAvoiding thinking about or talking about a stressful experience from the past or avoiding having feelings relatedto it1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec24, pcl6
pclc_7IntegerRecommendedAvoiding activities or situations because they reminded you of a stressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec25, pcl7
pclc_8IntegerRecommendedTrouble remembering important parts of a stressful experience from the past1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec26, pcl8
pclc_9IntegerRecommendedLoss of interest in activities that you used to enjoy1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec30, pcl9
pclc_10IntegerRecommendedFeeling distant or cut off from other people1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec31, pcl10
pclc_11IntegerRecommendedFeeling emotionally numb or being unable to have loving feelings for those close to you1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec32, pcl11
pclc_12IntegerRecommendedFeeling as if your future will somehow be cut short1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelypcl12
pclc_13IntegerRecommendedTrouble falling or staying asleep1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec38, pcl13
pclc_14IntegerRecommendedFeeling irritable or having angry outbursts1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec33, pcl14
pclc_15IntegerRecommendedHaving difficulty concentrating1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec37, pcl15
pclc_16IntegerRecommendedBeing "super-alert" or watchful or on guard1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec35, pcl16
pclc_17IntegerRecommendedFeeling jumpy or easily startled1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec36, pcl17
pclc_totalIntegerRequiredPCL-C total scorepclc
siteString100RecommendedSiteStudy Siteasite
clinicidIntegerRecommendedClinic IDaclinic
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
visitString50RecommendedVisit nameCharacter description of each type of visitwave
days_baselineIntegerRecommendedDays since baselinelof
ipclcIntegerRecommendedImputed PCLC0;1(Post Traumatic Stress Disorder CheckList � Civilian Version with substitution for missing data)
rmtmpclcIntegerRecommendedChange Score PCLC0;11:less than 34
r40mpclcIntegerRecommended40 percent or more reduction from PCLC0;1(IF (MOSTDISTRESSING_AD=2) THEN DO; IF (PCLCt2 >.) THEN RMTMPCLCt2=0; IF (.< PCLCt2 <= 34) THEN RMTMPCLCt2=1; IF (PCLCt1>=0 & PCLCt2>=0) THEN DO; R40MPCLCt2=0; IF (RMTMPCLCt2=1) THEN R40MPCLCt2=1; ELSE IF (PCLCt2 <= (0.60 * PCLCt1)) THEN R40MPCLCt2=1; END; END;)
pclc_17aIntegerRecommendedHaving strong negative beliefs about yourself, other people, or the world (for example, having thoughts such as: I am bad, there is something seriously wrong with me, no one can be trusted, the word is completely dangerous)?1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec27
pclc_18IntegerRecommendedBlaming yourself or someone else for the stressful experience or what happened after it?1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec28
pclc_19IntegerRecommendedHaving strong negative feelings such as fear, horror, anger, guilt, or shame?1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremelylec29
tesi_c_100String100RecommendedWhat was the worst thing that happened?lec18
version_formString100RecommendedForm used
lec34IntegerRecommendedTaking too many risks or doing things that could cause you harm in the past month?1::51=not at all; 2= a little bit; 3=moderately; 4=quite a bit; 5= extremely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: pclc01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.