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Description
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Data Structures with shared data
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PCP Knowledge and Practices Survey

pcpkps

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
pcpkps_01IntegerRecommendedMethod to identify childern under 3 years of age "at risk" for developmental problems: Clinical assessment without the use of a screening instrument/checklist0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_02IntegerRecommendedMethod to identify childern under 3 years of age "at risk" for developmental problems: Informal checklist filled out by parents0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_03IntegerRecommendedMethod to identify childern under 3 years of age "at risk" for developmental problems: Informal checklist completed by staff or provider0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_04IntegerRecommendedMethod to identify childern under 3 years of age "at risk" for developmental problems: Formal screening using a validated tool such as the PEDS or Ages and Stages Questionnaire/ASQ0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_05String50RecommendedSpecify Formal Screening validation tool
pcpkps_06IntegerRecommendedMethod to identify childern under 3 years of age "at risk" for developmental problems: Other method for monitoring development0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_07String50RecommendedSpecify other method for monitoring development
pcpkps_08IntegerRecommendedUse stardardized, validated developmental screening tools Routinely for all children at well child visits0;10=No; 1=Yes
pcpkps_09IntegerRecommendedUse stardardized, validated developmental screening tools Months for all children at well child visits9;18;24;30;36
pcpkps_10IntegerRecommendedUse stardardized, validated developmental screening tools Routinely for children who have older siblings with autism0;10=No; 1=Yes
pcpkps_11IntegerRecommendedUse stardardized, validated developmental screening tools Months for children who have older siblings with autism9;18;24;30;36
pcpkps_12IntegerRecommendedUse stardardized, validated developmental screening tools When parents raise concerns about development0;10=No; 1=Yes
pcpkps_13IntegerRecommendedUse stardardized, validated developmental screening tools When you have concerns about development0;10=No; 1=Yes
pcpkps_14IntegerRecommendedUse stardardized, validated developmental screening tools Other0;10=No; 1=Yes
pcpkps_15String50RecommendedUse stardardized, validated developmental screening tools Other Specified
pcpkps_16IntegerRecommendedHow often do you use a validated autism-specific screening tool (e.g., M-CHAT)0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_17String50RecommendedSpecify autism-specific screening tool
pcpkps_18IntegerRecommendedUse autism-specific screening tool: Routinely for all children at well child visits0;10=No; 1=Yes
pcpkps_19IntegerRecommendedUse autism-specific screening tool: Months for all children at well child visits9;18;24;30;36
pcpkps_20IntegerRecommendedUse autism-specific screening tool: When parents raise concerns about autism0;10=No; 1=Yes
pcpkps_21IntegerRecommendedUse autism-specific screening tool: When you have concerns about autism0;10=No; 1=Yes
pcpkps_22IntegerRecommendedUse autism-specific screening tool: Other0;10=No; 1=Yes
pcpkps_23String50RecommendedUse autism-specific screening tool: Specify Other
pcpkps_24FloatRecommendedPercent of your 18-month-old patients receive the M-CHAT
pcpkps_25IntegerRecommendedHow often do your 18-month-old patients who screen positive on the M-CHAT receive the M-CHAT follow-up interview0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_26IntegerRecommendedIf a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child for a diagnostic evaluation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_27IntegerRecommendedIf a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child for a diagnostic evaluation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_28IntegerRecommendedIf a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child for a diagnostic evaluation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_29IntegerRecommendedIf a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_30IntegerRecommendedIf a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_31IntegerRecommendedIf a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to the state-funded Early Intervention program in your county?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_32IntegerRecommendedIf a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to another health care provider for consultation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_33IntegerRecommendedIf a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to another health care provider for consultation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_34IntegerRecommendedIf a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to another health care provider for consultation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_35IntegerRecommendedIf a child screened positive of the M-CHAT at 18 monthshow often would you Immediately refer the child to another health care provider for treatment?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_36IntegerRecommendedIf a child screened positive of the M-CHAT at 24 monthshow often would you Immediately refer the child to another health care provider for treatment?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_37IntegerRecommendedIf a child screened positive of the M-CHAT at 30 monthshow often would you Immediately refer the child to another health care provider for treatment?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_38IntegerRecommendedIf a child screened positive of the M-CHAT at 18 monthshow often would you Wait and repeat the screening at a subsequent visit?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_39IntegerRecommendedIf a child screened positive of the M-CHAT at 24 monthshow often would you Wait and repeat the screening at a subsequent visit?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_40IntegerRecommendedIf a child screened positive of the M-CHAT at 30 monthshow often would you Wait and repeat the screening at a subsequent visit?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_41IntegerRecommendedImplementing validated autism-specific screening tool barrier : Cost to practice0::2;9990=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_42IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of familiarity with screening tools0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_43IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of time0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_44IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of adequate reimbursement0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_45IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of staff0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_46IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of adequate sensitivity/specificity of screening tools0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_47IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of comfort talking to parents about autism concerns0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_48IntegerRecommendedImplementing validated autism-specific screening tool barrier : Lack of community resources for diagnosis and/or treatment0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_49IntegerRecommendedImplementing validated autism-specific screening tool barrier : Family language and/or cultural differences0=Not a barrier; 1=Moderate barrier; 2= Major barrier; 999=N/A
pcpkps_50String50RecommendedImplementing validated autism-specific screening tool barrier : Specify Family language and/or cultural differences
pcpkps_51IntegerRecommendedWhat is the average age you would become concerned about the presence of autism?
pcpkps_52IntegerRecommendedWhat is the youngest age you would become concerned about the presence of autism?
pcpkps_53IntegerRecommendedWhat is the average age you would initiate a conversation about autism concerns with a parent?
pcpkps_54IntegerRecommendedWhat is the youngest age you would initiate a conversation about autism concerns with a parent?
pcpkps_55IntegerRecommendedWhat is the average age you would refer a child for a diagnostic evaluation for autism?
pcpkps_56IntegerRecommendedWhat is the youngest age you would refer a child for a diagnostic evaluation for autism?
pcpkps_57IntegerRecommendedHow often do you refer children under age 3 who are showing signs of autism for a diagnostic evaluation?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_58IntegerRecommendedHow often do you refer children under age 3 who are showing signs of autism to the state-funded Early Intervention Program in your county?0::2;9990=Rarely/Never; 1=Sometimes; 2=Always/Almost Always; 999=N/A
pcpkps_59String50RecommendedSpcify state-funded early intervention program
pcpkps_60IntegerRecommendedWhen referrals are made, how often do you receive feedback form the Early Intervention Program0::4;9990=less than 25 percent; 1=25-49 percent; 2=50-74 percent; 3=75-99 percent; 4=100 percent; 999=N/A
pcpkps_61IntegerRecommendedHow knowledgeable do you feel about recognizing the signs of autism in children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_62IntegerRecommendedHow knowledgeable do you feel about selecting and using autism screening tools for children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_63IntegerRecommendedHow comfortable do you feel discussing autism concerns with parents for children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_64IntegerRecommendedHow comfortable do you feel making an autism diagnosis in children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_65IntegerRecommendedHow knowledgeable do you feel about the diagnostic assessment resources in your community for children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_66IntegerRecommendedHow knowledgeable do you feel about the Early Intervention resources in your community for children under 3 years old?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_67IntegerRecommendedHow important do you feel it is to provide autism-specialized intervention to children under age 3 who demonstrate signs of autism?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_68IntegerRecommendedHow important do you feel it is to provide autism-specialized intervention to children under age 3 with diagnosed autism?1::4;9991=Not at all; 4=Extremely; 999=N/A
pcpkps_69IntegerRecommendedDid child receive development screen0;1;9990=No; 1=Yes; 999=N/A
pcpkps_70String50RecommendedDevelopment screen specified
pcpkps_71IntegerRecommendedDevelopment Screen Passed or Failed0;1;9990=Failed; 1=Passed; 999=N/A
pcpkps_72IntegerRecommendedDid child receive ASD screen0;1;9990=No; 1=Yes; 999=N/A
pcpkps_73String50RecommendedASD screen specified
pcpkps_74IntegerRecommendedASD Screen Passed or Failed0;1;9990=Failed; 1=Passed; 999=N/A
pcpkps_75IntegerRecommendedReferrals Made0;1;9990=No; 1=Yes; 999=N/A
pcpkps_76String100RecommendedReferral Speicified
pcpkps_77IntegerRecommendedASD Risk factor: Parent ASD concern0;1;9990=No; 1=Yes; 999=N/A
pcpkps_78IntegerRecommendedASD Risk factor: PCP ASD concern0;1;9990=No; 1=Yes; 999=N/A
pcpkps_79IntegerRecommendedASD Risk factor: Screening failure0;1;9990=No; 1=Yes; 999=N/A
pcpkps_80IntegerRecommendedASD Risk factor: Older sibling with ASD0;1;9990=No; 1=Yes; 999=N/A
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: pcpkps01 and Element:
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