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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
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Notes
Data Structures with shared data
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Clinical Trial: Personal Data

pd

01

Clinical Trial: Personal Data

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
contactString1,000RequiredContact
das1msString75RequiredMarital status
group_trIntegerRequiredtreatment or control group1::31=neurocognitive rehab; 2=Control therapy; 3=control no treatment group
procyIntegerRequiredprocyclidine levels at time 1
in_trialIntegerRequiredtrial0::20= not in completed trial; 1=in trial; 2=some time 2 data otherwise stolen
includeIntegerRequiredin the trial0::20=dropped out; 1=in trial but data stolen; 2=in trial no data stolen
include2IntegerRequiredinclusion in trial0;10=no data available; 1=included
educatFloatRequiredNumber of years in formal education999=Unknown/Missing
startdatIntegerRequiredStart date of therapy
enddatIntegerRequiredStart date of therapy
folldatIntegerRequiredFollow up dates ( 6 months )
clozapinIntegerRequiredClozapine dose and other atypical dose
drugsIntegerRequireddaily dose1::31=typical antipsychotics; 2=atypical; 3=clozapine
medicIntegerRequiredmedications
clchanIntegerRequiredClinical change between time 1 and time 2 eg. relapse- admission, major drug changes or change in diagnosis.0::40=No significant change; 1=Relapse leading to hospital admission; 2=Major change in medic' eg. Clozaril trial or great increases; 3=Change in diagnosis; 4=Major Life event
ntcareIntegerRequiredPersonal details. Q.5a. Present night care1::91=Hospital/hospital hostel; 2=Hostel (as part of psychiatry service); 3=Group home; 4=none; 5=Independent council property; 6=With family; 7=Other; 9=Don't know
daycareIntegerRequiredPersonal details: Q5b. present day care1::6;91=hospital or hospital/hostel as inpatient; 2=Day hospital; 3=day centre; 4=sheltered work; 5=group home; 6=none; 9=don't know
supervIntegerRequiredPersonal details: Q5c. other supervision1::3;91=out-patients; 2=other intermittent supervision e.g. social worker; 3=both out-patients and other intermittent supervision; 9=none known
lengthaIntegerRequiredPersonal details: length of stay in present night care in months
lengthbIntegerRequiredPersonal details: Length of stay in present day care in months
lengthcIntegerRequiredPersonal details: length of time receiving current extra supervision in months
admissIntegerRequiredPersonal details. Time since first admission1::41=1 year; 2=1 - 5 years; 3=5 - 10 years; 4=more than 10 years
admresIntegerRequiredPersonal details. Time since first admission to any residential service1::41=1 year; 2=1 - 5 years; 3=5 - 10 years; 4=more than 10 years
countryIntegerRequiredPersonal details. Country of origin1::61=UK; 2=West Indies; 3=India and Asia; 4=Africa; 5=Other European; 6=Other
presaccIntegerRequiredPersonal details. Present accommodation1::51=Living with spouse/cohabitant; 2=Living with parent or other relative; 3=Living alone or sharing a flat/house; 4=Living alone in lodgings (where some meals/laundry are prov); 5=supervised hostel or recepion centre
peakachIntegerRequiredPersonal details.Peak achievement1::41=Living with spouse/cohab or living alone or sharing flat/house; 2=Living alone in lodgings (with some meals/laundry provided); 3=Supervised hostel or reception centre; 4=never lived independently
kidsIntegerRequiredPersonal details. Number of biological children
peakjobIntegerRequiredPersonal details.peak job status1::51=none (includes house-wife with no domestic responsibilities); 2=unskilled; 3=semi-skilled; 4=skilled; 5=housewife with domestic responsibility (e.g. young children)
lengthemIntegerRequiredPersonal details. length of previous employment1::41=none; 2=1 job less than 3 months; 3=1+jobs less than 3 months; 4=1+ jobs more than 3 months
improve_aIntegerRequiredamount of improvement
improve_catIntegerRequiredcategorical variable of improvment at
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: pd01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.