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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Patient Health Questionnaire

phq

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
phq_1IntegerRecommendedLittle interest or pleasure in doing things0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq1, phq9a
phq_2IntegerRecommendedFeeling down, depressed, or hopeless0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq2, phq9b
phq_3IntegerRecommendedTrouble falling or staying asleep, or sleeping too much0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq3, phq9c
phq_4IntegerRecommendedFeeling tired or having little energy0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq4
phq_5IntegerRecommendedPoor appetite or overeating0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq5
phq_6IntegerRecommendedFeeling bad about yourself or that you are a failure or have let yourself or your family down0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq6
phq_7IntegerRecommendedTrouble concentrating on things, such as reading the newspaper or watching television0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq7
phq_8IntegerRecommendedMoving or speaking so slowly that other people could have noticed. Or the opposite being so fidgety or restless that you have been moving around a lot more than usual0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq8
phq_9IntegerRecommendedThoughts that you would be better off dead, or of hurting yourself0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lotphq9
phq_10IntegerRecommendedIf you circled any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people0::20=Not bothered at all; 1=Bothered a little; 2=Bothered a lot
phqscoreIntegerRecommendedTotal Score PHQ0::24phq_1+phq_2+phq_3+phq_4+phq_5+phq_6+phq_7+phq_8; greater than or equal to 10 consistent with current depressionlw_phq8score
siteString100RecommendedSiteStudy Siteasite, siteid
clinicidIntegerRecommendedClinic IDaclinic
ran002IntegerRecommendedWas the subject randomized?0::3; -90=No; 1=Yes; -9=unknown; 2=No meds; 3=No community carerand
days_baselineIntegerRecommendedDays since baselinelof, lof_mini, los_mini
suicidalityharmself_scaleIntegerRecommendedOn a scale of 1 to 7, what is your intent to harm yourself right now1::7; -11=lower; 7=high
phq9aflIntegerRecommendedTriggers Intent to Harm flag on-1::1
suicidalitycontrolimpulseIntegerRecommendedDo you believe you could control your impulses?0;1;-10=No; 1=Yes
phqFloatRecommendedSum Of PHQ 1-9(Patient Health Questionnaire) 1-9
iphqIntegerRecommendedImputed Phq0;1;-1(Patient Health Questionnaire) 1-9
xphqFloatRecommendedSum of PHQ 1-8(Patient Health Questionnaire) 1-8
ixphqIntegerRecommendedImputed Sum of (Patient Health Questionnaire) 1-80;1;-1(Patient Health Questionnaire) 1-8
intervIntegerRecommendedIntervention Status0;11=ITV, intervention; 0=TAU, treatment as usual
version_formString100RecommendedForm used
weekFloatRecommendedWeek in level/study99=week 10-week 14
phq_v8_1IntegerRecommendedOver the past week, how often have you felt little interest or pleasure in doing things?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every dayinterest, lw_phq8_1
phq_v8_2IntegerRecommendedOver the past week, how often have you bothered by feeling down, depressed, or hopeless?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every daydepressed, lw_phq8_2
phq_v8_3IntegerRecommendedOver the past week, how often have you bothered by trouble falling or staying asleep, or sleeping too much?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every daylw_phq8_3, sleeping
phq_v8_4IntegerRecommendedOver the past week, how often have you bothered by feeling tired or having little energy?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every daylw_phq8_4, tired
phq_v8_5IntegerRecommendedOver the past week, how often have you bothered by a poor appetite or overeating?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every dayappetite, lw_phq8_5
phq_v8_6IntegerRecommendedOver the past week, how often have you bothered by feeling bad about yourself- or that you are a failure or have let yourself or your family down?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every dayfailure, lw_phq8_6
phq_v8_7IntegerRecommendedOver the past week, how often have you bothered by trouble concentrating on things, such as reading the newspaper or watching the television?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every dayconcentrating, lw_phq8_7, lw_phq8_8
phq_v8_8IntegerRecommendedOver the past week, how often have you bothered by moving or speaking so slowly that other people could have noticed? Or the opposite- being so fidgety or restless that you have been moving around a lot more than usual?0::30=Not at all; 1=Several Days; 2=More than half the days; 3=Nearly every daymoving
subject_descriptionString4,000RecommendedSubject related information (e.g the affection, phenotype, disease information, etc.).
phq_v9_9IntegerRecommendedThoughts that you would be better off dead or of hurting yourself in some way.0::30= Not at all; 1= Several days; 2= More than half the days; 3= Nearly every daythought
phq_9_totalIntegerRecommendedPHQ-9 ScoreTotal of all PHQ-9 items
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: phq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.