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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Participation in Problem Solving

ppsolv

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
pps_01aIntegerRecommendedDuring the past 3 months, did you communicate (with your child's/with this student's parent) about his/her behavior?0;10=No;1=Yes
pps_01bIntegerRecommendedDuring the past 3 months, did you communicate (with your child's/with this student's parent) about his/her social skills?0;10=No;1=Yes
pps_01cIntegerRecommendedDuring the past 3 months, did you communicate (with your child's/with this student's parent) about his/her language?0;10=No;1=Yes
pps_01dIntegerRecommendedDuring the past 3 months, did you communicate (with your child's/with this student's parent) about his/her life skills (eg, eating, dressing, etc)?0;10=No;1=Yes
pps_02IntegerRecommendedDuring the past 3 months, did you work (with your child's/with this student's parent) to develop and use specific strategies to help your child with a problem?0;10=No;1=Yes
pps_03aIntegerRecommendedDuring the past 3 months, was there anyone (other than your child's teacher) who you talked to about your child's challenges?0;10=No;1=Yes
pps_03bString15RecommendedSpecified: who talked to child about challenges
pps_04aIntegerRecommendedDuring the past 3 months, was there anyone other than your child's teacher who helped you develop and use specific strategies to help your child with a problem? If yes, please specify who:0;10=No;1=Yes
pps_04bString15RecommendedSpecified: who talked to child about problems
pps_05IntegerRecommendedI defined a specific concern I have for the child.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_06IntegerRecommendedI gathered specific information (eg, homework finished, number of tantrums, etc) to help me understand how the child is doing.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_07IntegerRecommendedI set goals for the child.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_08IntegerRecommendedI identified specific things that can be changed to help the child.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_09IntegerRecommendedI developed and used specific strategies to help child with a problem.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_10IntegerRecommendedI gathered specific information to measure child's progress.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_11IntegerRecommendedI figured out what helps child and what does not.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
pps_12IntegerRecommendedI determined how to continue helping child make progress at home and school.1::61=Disagree Very Strongly; 2=Disagree; 3=Disagree Just a Little Bit; 4=Agree Just a Little Bit; 5= Agree; 6=Agree Very Strongly
version_formString100RecommendedForm used
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ppsolv01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.