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PQ Demographics

pqdem

01

PQ Demographics

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldINTERVIEW_DATE_PQD, fdi_q2
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.INTERVIEW_AGE_PQD
genderString20RequiredSex of the subjectM;FM = Male; F = FemaleGENDERPQ, fdi_q4
relationshipIntegerRecommendedRelationship of respondent to individual
1::84; -999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 90= Other, specify; -999= Missing; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; ;62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ;68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/NannyPRELATION
respondent_other_specifyString50RecommendedRespondent: Other (specify)PREL_SP, fdi_q11a
ethnicityString30RecommendedEthnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
CHETHN, fdi_q6
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedCHRACE, fdi_q5
ch_raceString55RecommendedChild's/study subject Race specifyCHRACE_OTH, fdi_q5_other
sclgenderString15Recommendedrespondent's genderM;FM = Male; F = FemalePGENDERPQ
resp_ethnicityString30RecommendedRespondent's ethnicityHispanic or Latino;Not Hispanic or Latino;Unknown or not reportedPETHN, fdi_q14
resp_raceString150RecommendedRespondent's raceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedPRACE, fdi_q13
race_otherString100RecommendedRace of Respondent SpecifyPRACE_OTH, fdi_q13_other
resp_educationIntegerRecommendedRespondent's education1::91 = Less than 8th grade; 2 = 9th-11th grade; 3 = High school or GED; 4 = Trade or vocational; 5 = Associate's degree or 2 years; 6 = Courses towards college; 7 = Bachelor's degree; 8 = Master's degree; 9 = Professional degree (MD, PhD, JD)PED, fdi_q15
resp_occupationString255RecommendedRespondent's occupationOCCUP, fdi_q18, subjectwork
occup_fulljobIntegerRecommendedOccupation(choice=1: Working at a full-time paid job (35 or more hours a week))0;10=Unchecked; 1=Checkedfdi_q17___1
occup_partjobIntegerRecommendedOccupation(choice=2: Working at a part-time paid job (less than 35 hours a week))0;10=Unchecked; 1=Checkedfdi_q17___2
occup_fullstudIntegerRecommendedOccupation(choice=3: Full-time student (3 or more classes a semester))0;10=Unchecked; 1=Checkedfdi_q17___3
occup_partstudIntegerRecommendedOccupation(choice=4: Part-time student (1 or 2 classes a semester))0;10=Unchecked; 1=Checkedfdi_q17___4
occup_nojobIntegerRecommendedOccupation(choice=5: Not currently working)0;10=Unchecked; 1=Checkedfdi_q17___5
occup_occothIntegerRecommendedOccupation(choice=6: Other)0;10=Unchecked; 1=Checkedfdi_q17___6
occup_spString100RecommendedOccupation other. Please describe:fdi_q17a
num_in_house_adultsIntegerRecommendedNumber of Individuals in Household AdultsADINHOME
num_in_house_kidsIntegerRecommendedNumber of Individuals in Household ChildrenCHINHOME
demo_resp_statusIntegerRecommendedrespondent's marital status1 :: 111 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answerfdi_q16, marital
livewithIntegerRecommendedDoes this child currently live with you?0;10=No; 1=Yes
resarrIntegerRecommendedPlease specify residential arangement for child:1::41=Lives at home with parents; 2=Lives in residential setting including weekends; 3=Lives in residential setting excluding weekends; 4=Other
resarr_spString100RecommendedPlease specify:
spoken_engIntegerRecommendedAre you fluent in spoken English?0;10 = No; 1 = YesNATIVESPK
ccalanguageIntegerRecommendedIs English the main language spoken at home?0;1;-90 = No; 1 = Yes; -9 = Missing valueENGHOUSE, fdi_q29___1
language_specifyString255RecommendedLanguage in the home - Specify if other than standard englishOTHLANG
sibynIntegerRecommendedDoes this child have any siblings?0;10=No; 1=Yes
demo_siblingscountIntegerRecommendedNumber of siblings888 = not applicable; 999 = missingNUMSIBS, fdi_q8a
ques_sub1GUIDRecommendedGUID -Sibling 1
ques_gender1String50RecommendedGender -Sibling 1
M;F;T
M = Male; F = Female; T =TransgenderSIBGENDER1, fdi_q10_1c
sibling1_diagString20Recommendedsibling 1 diagnosisNone; ASD; Other/specifySIBDIAG1, fdi_q10_1d___3
ques_sub2GUIDRecommendedGUID -Sibling 2
ques_gender2String50RecommendedGender -Sibling 2
M;F
M = Male; F = FemaleSIBGENDER2, fdi_q10_2c
sibling2_diagString20Recommendedsibling 2 diagnosisNone; ASD; Other/specifySIBDIAG2, fdi_q10_2d___3
ques_sub3GUIDRecommendedGUID -Sibling 3
ques_gender3String50RecommendedGender -Sibling 3
M;F
M = Male; F = FemaleSIBGENDER3, fdi_q10_3c
sibling3_diagString20Recommendedsibling 3 diagnosisNone; ASD; Other/specifySIBDIAG3, fdi_q10_3d___3
ques_sub4GUIDRecommendedGUID -Sibling 4
ques_gender4String50RecommendedGender -Sibling 4
M;F
M = Male; F = FemaleSIBGENDER4, fdi_q10_4c
sibling4_diagString20Recommendedsibling 4 diagnosisNone; ASD; Other/specifySIBDIAG4, fdi_q10_4d___3
ques_sub5GUIDRecommendedGUID -Sibling 5
ques_gender5String50RecommendedGender -Sibling 5
M;F
M = Male; F = FemaleSIBGENDER5, fdi_q10_5c
sibling5_diagString20Recommendedsibling 5 diagnosisNone; ASD; Other/specifySIBDIAG5, fdi_q10_5d___3, fdi_q10_6d___1
ed_inclIntegerRecommended18. What is your childs current educational placement (choice=1: Inclusion Classroom)0;10=Unchecked; 1=Checked
ed_genedIntegerRecommended18. What is your childs current educational placement (choice=2: General Education Classroom)0;10=Unchecked; 1=Checked
ed_selfcontIntegerRecommended18. What is your childs current educational placement (choice=3: Self-Contained Classroom)0;10=Unchecked; 1=Checked
ed_outdistIntegerRecommended18. What is your childs current educational placement (choice=4: Out of District Placement (i.e. specialized placement, private setting))0;10=Unchecked; 1=Checked
ed_othIntegerRecommended18. What is your childs current educational placement (choice=5: Other (e.g., day program))0;10=Unchecked; 1=Checked
edothString100RecommendedPlease describe:
partliveIntegerRecommendedDo you have a spouse or partner who lives with you and your child?0;10=No; 1=Yesfdi_q21preq
partgenderIntegerRecommendedPartner or spouses gender1;21=Male; 2=Female
partner_resp_relationshipString100RecommendedRespondent's partner/spouse relationship to child1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = OtherPARTRELATION, fdi_q24
partrel_spString100RecommendedPlease specify: respondent's partner/spouse relationship to childfdi_q24_other
partethnIntegerRecommendedPartner or spouses ethnicity1::31=Hispanic; 2=Non-Hispanic; 3=Prefer not to respondfdi_q23
partraceIntegerRecommendedPartner or spouses race1::81=American Indian/Alaska Native; 2= Asian; 3= Native Hawaiian or Other Pacific Islander 4=Hispanic; 5=Black or African American; 6=White; 7=More than one race; 8=Unknown or not reportedPARTRACE_OTH, fdi_q22
otherraceString50Recommendedspecify other racefdi_q22_other
demo_partner_eduString100RecommendedSpouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
PARTED, fdi_q25
demo_partner_occupationString100RecommendedSpouse/partner OccupationPARTOCCUP, fdi_q27, spousework
part_fulljobIntegerRecommendedIs your partner(choice=1: Working at a full-time paid job (35 or more hours a week))0;10=Unchecked; 1=Checkedfdi_q26___1
part_partjobIntegerRecommendedIs your partner(choice=2: Working at a part-time paid job (less than 35 hours a week))0;10=Unchecked; 1=Checkedfdi_q26___2
part_fullstudIntegerRecommendedIs your partner(choice=3: Full-time student (3 or more classes a semester))0;10=Unchecked; 1=Checkedfdi_q26___3
part_partstudIntegerRecommendedIs your partner(choice=4: Part-time student (1 or 2 classes a semester))0;10=Unchecked; 1=Checkedfdi_q26___4
part_nojobIntegerRecommendedIs your partner(choice=5: Not currently working)0;10=Unchecked; 1=Checkedfdi_q26___5
part_occothIntegerRecommendedIs your partner(choice=6: Other)0;10=Unchecked; 1=Checkedfdi_q26___6
partoccup_spString100RecommendedPlease describe:
partner_involvemIntegerRecommendedHow involved is your partner in caring for your child0 :: 30 = Not at all involved; 1 = Somewhat involved; 2 = Very involved; 3 = Extremely involvedPARTINV, fdi_q28
income_btxIntegerRecommendedWhat is your approximate annual household income (before taxes)?1::71: Less than $20,000; 2: Between $20,000 and $49,999; 3: Between $50,000 and $99,999; 4: Between $100,000 and $149,999; 5: Between $150,000 and $200,000; 6: Over $200,000; 7: Prefer not to answerINCOME
agegroupIntegerRecommendedAge group0;10=Younger adults (<60); 1=Older adults (?60 years)
spouseindustryString100RecommendedSpouse's occupation: Industry or type of business
subjectindustryString100RecommendedSubject's occupation: Industry or type of business
educatFloatRecommendedNumber of years in formal education999=Unknown/Missingeducation
tx_codeIntegerRecommendedTreatment code0::30=Olanzapine + Sertraline Placebo; 1=Olanzapine + Sertraline; 2=Olanzapine + Sertraline + Lithium Placebo; 3=Olanzapine + Sertraline + Lithium
living_notesString50RecommendedLiving arrangements (specify)comments_live
eo4IntegerRecommendedAre you currently working at a job or business for pay0;10=No; 1=Yessubjectcurrentwork
evaluation_actual_daysIntegerRecommendedEvaluation days from baseline
hi_31a5IntegerRecommendedMedication 1 days from baseline startedmedstartdays
liveIntegerRecommendedLiving arrangements1::51 = Lives alone; 2 = Lives with Others; 3 = Senior Residence; 4 = Nursing home; 5 = Other
entry_statusIntegerRecommendedEntry status1::51 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Other
study_idIntegerRecommendedStudy ID number46=Acute Phase; 47=Stabilization Phase
weekFloatRecommendedWeek in level/study99=week 10-week 14intid
siteString100RecommendedSiteStudy Site
c_race_birString50RecommendedChild race, specified for more than one racefdi_q5b
cdiag_asdIntegerRecommendedChild current diagnosis: Autism Spectrum Disorder0;10=No; 1=Yesfdi_q7___1
cast39_otherIntegerRecommendedOther diagnosis (please specify)0; 10 = No; 1 = Yesfdi_q7___2
cdiag_noneIntegerRecommendedChild current diagnosis: none0;10=No; 1=Yesfdi_q7___3
cepispString500RecommendedCurrent diagnosis specifyfdi_q7a
fh13IntegerRecommendedBirth order0::13; 9999 = Missing valuefdi_q8
fdi_9IntegerRecommendednumber of biological siblings with an ASD diagnosis
ques_age1IntegerRecommendedAge -Sibling 1(in months)0 :: 1200fdi_q10_1b
demo_sib1_diagnosisString25RecommendedDiagnosis (if any) Sibling 1fdi_q10_1e
ques_age2IntegerRecommendedAge -Sibling 2(in months)0 :: 1200fdi_q10_2b
demo_sib2_diagnosisString25RecommendedDiagnosis (if any) Sibling 2fdi_q10_2e
ques_age3IntegerRecommendedAge -Sibling 3(in months)0 :: 1200fdi_q10_3b
demo_sib3_diagnosisString25RecommendedDiagnosis (if any) Sibling 3fdi_q10_3e
ques_age4IntegerRecommendedAge -Sibling 4(in months)0 :: 1200fdi_q10_4b
demo_sib4_diagnosisString25RecommendedDiagnosis (if any) Sibling 4fdi_q10_4e
ques_age5IntegerRecommendedAge -Sibling 5(in months)0 :: 1200fdi_q10_5b
demo_sib5_diagnosisString25RecommendedDiagnosis (if any) Sibling 5fdi_q10_5e
ques_age6IntegerRecommendedAge -Sibling 6(in months)0 :: 1200fdi_q10_6b
ques_gender6String50RecommendedGender -Sibling 6M;FM = Male; F = Femalefdi_q10_6c
demo_sib6_diagnosisString25RecommendedDiagnosis (if any) Sibling 6fdi_q10_6e
resp_relationshipIntegerRecommendedRespondent's relationship to child1 = Mother (biological); 2 = Stepmother; 3 = Adoptive mother; 4 = Grandmother; 5 = Foster mother; 6 = Other; 7 = Father (biological); 8 = Stepfather; 9 = Adoptive father; 10 = Grandfather; 11 = Foster fatherfdi_q11
resp_ageIntegerRecommendedRespondent's age0::1200In monthsfdi_q12a
fdi_q13_moreString20RecommendedDescribe more than one race: respondent
fdi_q19IntegerRecommendedHousehold income1 :: 131=$20,000 or less; 2=$20,001-$40,000; 3=$40,001-$60,000; 4=$60,001-$80,000; 5=$80,001-$100,000; 6=$100,001 - $125,000; 7=$125,001-$150,000; 8=$150,000-$200,000; 9=$200,000 or higher; 10=I don't know; 11=I prefer not to answer; 12 = $60,001 - $90,000;13 = More than $90,000
adults_householdIntegerRecommendedNumber adults in householdfdi_q20a
fdi_q20a_1___1IntegerRecommendedAdult in the house is parent0; 10=No; 1=Yes
fdi_q20a_1___2IntegerRecommendedAdult in the house is step-parent0; 10=No; 1=Yes
fdi_q20a_1___3IntegerRecommendedAdult in the house is adoptive parent0; 10=No; 1=Yes
fdi_q20a_1___4IntegerRecommendedAdult in the house is foster parent0; 10=No; 1=Yes
fdi_q20a_1___5IntegerRecommendedAdult in the house is grandparent0; 10=No; 1=Yes
fdi_q20a_1___6IntegerRecommendedAdult in the house is aunt/uncle0; 10=No; 1=Yes
fdi_q20a_1___7IntegerRecommendedAdult in the house is cousin0; 10=No; 1=Yes
fdi_q20a_1___8IntegerRecommendedAdult in the house is family friend0; 10=No; 1=Yes
fdi_q20a_1___9IntegerRecommendedAdult in the house is another relative0; 10=No; 1=Yes
fdi_q20a_2String25RecommendedDescribe other relative adult
fdi_q20bIntegerRecommendednumber of children living in the house
fdi_q20b_1___1IntegerRecommendedChild in the house is a sibling0; 10=No; 1=Yes
fdi_q20b_1___2IntegerRecommendedChild in the house is a step-sibling0; 10=No; 1=Yes
fdi_q20b_1___3IntegerRecommendedChild in the house is an adoptive sibling0; 10=No; 1=Yes
fdi_q20b_1___4IntegerRecommendedChild in the house is a cousin0; 10=No; 1=Yes
fdi_q20b_1___5IntegerRecommendedChild in the house is a family friend0; 10=No; 1=Yes
fdi_q20b_1___6IntegerRecommendedChild in the house is another relative0; 10=No; 1=Yes
fdi_q20b_2String150RecommendedDescribe other relative child
fdi_q21IntegerRecommendedSpouse/partner's age
fdi_q22_moreString25RecommendedDescribe more than one race:
employotrString50RecommendedEmployment situation other, specifyfdi_26a
fdi_q29___2IntegerRecommendedSpanish is spoken in the home0; 10=No; 1=Yes
nonenglishString20RecommendedNon-English language spoken at home0 = No; 1 = Yesfdi_q29___3
oth_langString150RecommendedWhat other languages are you fluent in?fdi_q29a
child_englishexposureIntegerRecommendedHow often do you and your spouse speak to your child in English1;2;31 = We always talk to him/her in English; 2 = We sometimes talk to him/her in English; 3 = We rarely talk to him/her in Englishfdi_q30
fdi_q31aIntegerRecommendedRespondent knows biological mother's birthdate0; 10=No; 1=Yes
fdi_q31bIntegerRecommendedRespondent knows biological mother's age0; 10=No; 1=Yes
ques_agebmIntegerRecommendedAge -Biological Mother(in months)0 :: 1200; -999-999 = Missing valuefdi_q31b2
bio_mother_raceString150RecommendedBiological Mother RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedfdi_q32
mother_other_raceString50RecommendedMother Other race (please specify):fdi_q32_other
p_race_birString50RecommendedMother race, specified for more than one racefdi_q32_more
bio_mother_ethnicityString50RecommendedBiological Mother EthnicityHispanic or Latino;Not Hispanic or Latino; No Answerfdi_q33
fdi_q34aIntegerRecommendedRespondent knows biological father's birthdate0; 10=No; 1=Yes
fdi_q34bIntegerRecommendedRespondent knows biological father's age0; 10=No; 1=Yes
ques_agebfIntegerRecommendedAge -Biological Father(in months)0 :: 1200; -999-999 = Missing valuefdi_q34b1
bio_father_raceString150RecommendedBiological Father RaceAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedfdi_q35
father_other_raceString20RecommendedFather Other race (please specify):fdi_q35_other
p2_race_birString50RecommendedFather race, specified for more than one race/biracialfdi_q35_more
bio_father_ethnicityString50RecommendedBiological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer)Hispanic or Latino; Not Hispanic or Latino; No Answerfdi_q36
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: pqdem01 and Element:
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