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Description
Value Range
Notes
Data Structures with shared data
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Pediatric Quality of Life Scale

pqlq

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*guid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectpatid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldinterviewyear
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentpqlqt0
pqlq1_uIntegerRecommendedQuestion 1. Over the past week, how have things been with your health?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq2_uIntegerRecommendedQuestion 2. Over the past week, how have things been with your mood or feelings?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq3_uIntegerRecommendedQuestion 3. Over the past week, how have things been with school?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq4_uIntegerRecommendedQuestion 4. Over the past week, how have things been with helping out at home?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq5_uIntegerRecommendedQuestion 5. Over the past week, how have things been with getting along with friends?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq6_uIntegerRecommendedQuestion 6. Over the past week, how have things been with getting along with your family?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq7_uIntegerRecommendedQuestion 7. Over the past week, how have things been with play or free time?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq8_uIntegerRecommendedQuestion 8. Over the past week, how have things been with getting things done?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq9_uIntegerRecommendedQuestion 9. Over the past week, how have things been with your love life?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq10_uIntegerRecommendedQuestion 10. Over the past week, how have things been with having enough money?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq11_uIntegerRecommendedQuestion 11. Over the past week, how have things been with where you live?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq12_uIntegerRecommendedQuestion 12. Over the past week, how have things been with paying attention?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq13_uIntegerRecommendedQuestion 13. Over the past week, how have things been with your energy level?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq14_uIntegerRecommendedQuestion 14. Over the past week, how have things been with feelings about yourself?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq15_uIntegerRecommendedQuestion 15. Over the past week, how have things been Overall, how has your life been?1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq1IntegerRecommendedQuestion 1. Over the past week, how have things been with your health? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ1 is missing then PQLQ1 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq2IntegerRecommendedQuestion 2. Over the past week, how have things been with your mood or feelings? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ2 is missing then PQLQ2 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq3IntegerRecommendedQuestion 3. Over the past week, how have things been with school? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ3 is missing then PQLQ3 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq4IntegerRecommendedQuestion 4. Over the past week, how have things been with helping out at home? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ4 is missing then PQLQ4 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq5IntegerRecommendedQuestion 5. Over the past week, how have things been with getting along with friends? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ5 is missing then PQLQ5 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq6IntegerRecommendedQuestion 6. Over the past week, how have things been with getting along with your family? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ6 is missing then PQLQ6 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq7IntegerRecommendedQuestion 7. Over the past week, how have things been with play or free time? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ7 is missing then PQLQ7 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq8IntegerRecommendedQuestion 8. Over the past week, how have things been with getting things done? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ8 is missing then PQLQ8 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq9IntegerRecommendedQuestion 9. Over the past week, how have things been with your love life? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ9 is missing then PQLQ9 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq10IntegerRecommendedQuestion 10. Over the past week, how have things been with having enough money? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ10 is missing then PQLQ10 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq11IntegerRecommendedQuestion 11. Over the past week, how have things been with where you live? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ11 is missing then PQLQ11 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq12IntegerRecommendedQuestion 12. Over the past week, how have things been with paying attention? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ12 is missing then PQLQ12 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq13IntegerRecommendedQuestion 13. Over the past week, how have things been with your energy level? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ13 is missing then PQLQ13 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq14IntegerRecommendedQuestion 14. Over the past week, how have things been with feelings about yourself? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ14 is missing then PQLQ14 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlq15IntegerRecommendedQuestion 15. Over the past week, how have things been Overall, how has your life been? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ15 is missing then PQLQ15 = integer(median of non-missing PQLQ1_U through PQLQ15_U)1::51 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
pqlqtotIntegerRecommendedPQLQ Total Score using imputed values15::75Items included in score: PQLQ1 through PQLQ15
gf1IntegerRecommendedI feel tired0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gf2IntegerRecommendedI feel physically weak (not strong)0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gf3IntegerRecommendedI feel too tired to do things that I like to do0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gf4IntegerRecommendedI feel too tired to spend time with my friends0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gf5IntegerRecommendedI have trouble finishing things0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gf6IntegerRecommendedI have trouble starting things0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
srf_1IntegerRecommendedI sleep a lot0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf1
srf_2IntegerRecommendedIt is hard for me to sleep through the night0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf2
srf_3IntegerRecommendedI feel tired when I wake up in the morning0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf3
srf_4IntegerRecommendedI rest a lot0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf4
srf_5IntegerRecommendedI take a lot of naps0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf5
srf_6IntegerRecommendedI spend a lot of time in bed0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incompletesrf6
cf1IntegerRecommendedIt is hard for me to keep my attention on things0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
cf2IntegerRecommendedIt is hard for me to remember what people tell me0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
cf3IntegerRecommendedIt is hard for me to remember what I just heard0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
cf4IntegerRecommendedIt is hard for me to think quickly0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
cf5IntegerRecommendedI have trouble remembering what I was just thinking0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
cf6IntegerRecommendedI have trouble remembering more than one thing at a time0::4;-90 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
gftotIntegerRecommendedgeneral fatigue (problems with) total0::24;-9-9 = incomplete
srftotIntegerRecommendedsleep/rest fatigue (problems with)0::24;-9-9 = incomplete
cftotIntegerRecommendedcognitive fatigue (problems with)0::24;-9-9 = incomplete
pedsqltotIntegerRecommendedpedsql total0::72;-9-9 = incomplete
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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Distribution for DataStructure: pqlq01 and Element:
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