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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Patient-Rated Inventory of Side Effects

prise

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
levelString10RecommendedTreatment level
days_baselineIntegerRecommendedDays since baselinedate
vis_typeIntegerRecommendedVisit type0::21=Phone; 0=doctor's office; 2=No, not phone interviewphone
weekFloatRecommendedWeek in level/study99=week 10-week 14
lang_visitIntegerRecommendedLanguage during visit0;11=Spanish; 0=Englishspanish
gdiarIntegerRecommendedGI: Diarrhea0;10=No; 1=Yes
gcnstIntegerRecommendedGI: Constipation0;10=No; 1=Yes
gdmthIntegerRecommendedGI: Dry mouth0;10=No; 1=Yes
gnoneIntegerRecommendedGI: No symptoms in this category0;10=No; 1=Yes
gnseaIntegerRecommendedGI: Nausea/vomiting0;10=No; 1=Yes
gstroIntegerRecommendedGastrointestinal0::20=Neither; 1=Tolerable; 2=Distressing
htplpIntegerRecommendedHeart: Palpitations0;10=No; 1=Yes
htdzyIntegerRecommendedHeart: Dizziness on standing0;10=No; 1=Yes
htchsIntegerRecommendedHeart: Chest pain0;10=No; 1=Yes
htnoneIntegerRecommendedHeart: No symptoms in this category0;10=No; 1=Yes
heart_prsIntegerRecommendedHeart0::20=Neither; 1=Tolerable; 2=Distressing
skrshIntegerRecommendedSkin: Rash0;10=No; 1=Yes
skpspIntegerRecommendedSkin: Increased perspiration0;10=No; 1=Yes
skichIntegerRecommendedSkin: Itching0;10=No; 1=Yes
sknoneIntegerRecommendedSkin: No symptoms in this category0;10=No; 1=Yes
skdryIntegerRecommendedSkin: Dry skin0;10=No; 1=Yes
nvhedIntegerRecommendedCNS: Headache0;10=No; 1=Yes
nvtrmIntegerRecommendedCNS: Tremors0;10=No; 1=Yes
nvcrdIntegerRecommendedCNS: Poor coordination0;10=No; 1=Yes
nvnoneIntegerRecommendedCNS: No symptoms in this category0;10=No; 1=Yes
nvdzyIntegerRecommendedCNS: Dizziness0;10=No; 1=Yes
nrvsyIntegerRecommendedCentral nervous system0::20=Neither; 1=Tolerable; 2=Distressing
eyvsnIntegerRecommendedEye/Ear: Blurred vision0;10=No; 1=Yes
earngIntegerRecommendedEye/Ear: Ringing in ears0;10=No; 1=Yes
enoneIntegerRecommendedEye/Ear: No symptoms in this category0;10=No; 1=Yes
eyearIntegerRecommendedEyes/ears0::20=Neither; 1=Tolerable; 2=Distressing
urdifIntegerRecommendedGen/Urin: Difficulty urinating0;10=No; 1=Yes
urpnIntegerRecommendedGen/Urin: Painful urination0;10=No; 1=Yes
urmnsIntegerRecommendedGen/Urin: Menstrual irregularity0;10=No; 1=Yes
urfrqIntegerRecommendedGen/Urin: Frequent urination0;10=No; 1=Yes
urnoneIntegerRecommendedGen/Urin: No symptoms in this category0;10=No; 1=Yes
genur_prsIntegerRecommendedGenital/urinary0::20=Neither; 1=Tolerable; 2=Distressing
sldifIntegerRecommendedSleep: Difficulty sleeping0;10=No; 1=Yes
slnoneIntegerRecommendedSleep: No symptoms in this category0;10=No; 1=Yes
slmchIntegerRecommendedSleep: Sleeping too much0;10=No; 1=Yes
sleepIntegerRecommendedSleep0::20=Neither; 1=Tolerable; 2=Distressing
sxlsIntegerRecommendedSexual: Loss of sexual desire0;10=No; 1=Yesxls
sxorgIntegerRecommendedSexual: Trouble achieving orgasm0;10=No; 1=Yes
sxercIntegerRecommendedSexual: Trouble with erections0;10=No; 1=Yes
sxnoneIntegerRecommendedSexual: No symptoms in this category0;10=No; 1=Yes
sex_prsIntegerRecommendedSexual functioning0::2; -70=Neither; 1=Tolerable; 2=Distressing; -7=refused
oaxtyIntegerRecommendedOther Symptom: Anxiety0;10=No; 1=Yes
octrtIntegerRecommendedOther Symptom: Poor concentration0;10=No; 1=Yes
omalIntegerRecommendedOther Symptom: General malaise0;10=No; 1=Yes
orslsIntegerRecommendedOther Symptom: Restlessness0;10=No; 1=Yes
oftgeIntegerRecommendedOther Symptom: Fatigue0;10=No; 1=Yes
odegyIntegerRecommendedOther Symptom: Decreased energy0;10=No; 1=Yes
ononeIntegerRecommendedOther Symptom: No symptoms in this category0;10=No; 1=Yes
other_prsIntegerRecommendedIf you had any symptoms over the last week how bad was your worst symptom?0::20=Neither; 1=Tolerable; 2=Distressing
skin_cIntegerRecommendedSkin0::20=Neither; 1=Tolerable; 2=Distressingskin
phaseIntegerRecommendedPhase9 =follow up
siteString100RecommendedSiteStudy Sitesiteid
oothIntegerRecommendedOther Symptom: Other0;10=No; 1=Yes
monthsblFloatRecommendedActual number of months from Baseline
visitString50RecommendedVisit nameCharacter description of each type of visit
saldrIntegerRecommendedHaving too much saliva or drooling0;10=No,1=Yes
appfIntegerRecommendedIncrease in your appetite for food0;10=No,1=Yes
weigIntegerRecommendedWeight gain0;10=No,1=Yes
weilIntegerRecommendedWeight loss0;10=No,1=Yes
shakIntegerRecommendedShaking0;10=No,1=Yes
stiffIntegerRecommendedFeeling stiff or rigid0;10=No,1=Yes
droddIntegerRecommendedFeeling drowsy during the day0;10=No,1=Yes
osexIntegerRecommendedOther problems with sex0;10=No,1=Yes
pbreaIntegerRecommendedProblems with your breasts such as swelling or discharge0;10=No,1=Yes
imspIntegerRecommendedImpaired sexual performance0;10=No,1=Yes
sedationIntegerRecommendedSide Effects: Sedation0;10=No,1=Yes
epsIntegerRecommendedSide Effects: Extrapyramidal0;10=No,1=Yes
anticholseIntegerRecommendedSide Effects: Anticholinergic0;10=No,1=Yes
incappwtIntegerRecommendedSide Effects: Increased Appetite/Weight0;10=No,1=Yes
probwsexIntegerRecommendedSide Effects: Problems with Sex0;10=No,1=Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: prise01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.