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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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PROMIS Social Isolation

prsi

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldasrsdate
genderString20RequiredSex of the subjectM;FM = Male; F = Female
cares23xIntegerRecommendedI find that friends or relatives have difficulty talking with me about my health1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
iso_caps1IntegerRecommendedI feel isolated even when I am not alone1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
iso_caps2IntegerRecommendedI feel that people avoid talking to me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
iso_caps3IntegerRecommendedI feel detached from other people1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
iso_caps9IntegerRecommendedI feel like a stranger to those around me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
scsc2x3IntegerRecommendedPeople get the wrong idea about my situation1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
scsc3x2IntegerRecommendedI feel that some of my friends avoid me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
ss10xIntegerRecommendedI feel that some of my family members avoid me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
ucla11x2IntegerRecommendedI feel left out1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwayssoc254
ucla13x3IntegerRecommendedI feel that people barely know me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
ucla14x2IntegerRecommendedI feel isolated from others1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
ucla18x2IntegerRecommendedI feel that people are around me but not with me1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
ucla7x2IntegerRecommendedI feel that I am no longer close to anyone1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwayssoc255
ucla8x3IntegerRecommendedI feel that I am alone in my interests and ideas1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
soil_rsIntegerRequiredSocial Isolation raw scorelon_score
soil_tsFloatRequiredSocial Isolation T scorelon_t_score
soil_seFloatRequiredSocial Isolation standard errorlon_se_score
nih_pinString25RecommendedPIN number assigned by the NIH Toolbox
soc252IntegerRecommendedIn the past month, please describe how often� I feel that I have nobody to talk to.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
soc253IntegerRecommendedIn the past month, please describe how often: I feel alone and apart from others.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwaysasrs4a
soc258IntegerRecommendedIn the past month, please describe how often� I feel that I don't have any friends.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
soc259IntegerRecommendedIn the past month, please descrbe how often� I feel that there is no one I can go to when I need help.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwaysasrs4b
soc260IntegerRecommendedIn the past month, please describe how often: I feel alone.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwaysasrs4d
soc261IntegerRecommendedIn the past month, please describe how often: I feel lonely.1::51=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Alwaysasrs4e
nih_tlbx_thetaFloatRecommendedThetalon_theta_score, loneliness8_17
soc252_thetaFloatRecommendedsoc252 Theta
soc252_tscoreFloatRecommendedsoc252 T Score
soc252_seFloatRecommendedsoc252 SE
soc253_thetaFloatRecommendedsoc253 Theta
soc253_tscoreFloatRecommendedsoc253 T Score
soc253_seFloatRecommendedsoc253 SE
soc254IntegerRecommendedIn the past month, please descrbe how often I feel left out.1::51= Never, 2= Rarely, 3= Sometimes, 4= Usually, 5= Always
soc254_thetaFloatRecommendedsoc254 Theta
soc254_tscoreFloatRecommendedsoc254 T Score
soc254_seFloatRecommendedsoc254 SE
soc258_thetaFloatRecommendedsoc258 Theta
soc258_tscoreFloatRecommendedsoc258 T Score
soc258_seFloatRecommendedsoc258 SE
soc259_thetaFloatRecommendedsoc259 Theta
soc259_tscoreFloatRecommendedsoc259 T Score
soc259_seFloatRecommendedsoc259 SE
soc260_thetaFloatRecommendedsoc260 Theta
soc260_tscoreFloatRecommendedsoc260 T Score
soc260_seFloatRecommendedsoc260 SE
soc261_thetaFloatRecommendedsoc261 Theta
soc261_tscoreFloatRecommendedsoc261 T Score
soc261_seFloatRecommendedsoc261 SE
aescodeIntegerRecommendedStaff code number of person completing this formasrsra
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datanotes
asrs4cIntegerRecommendedPast Month: Loneliness: I feel that I am no longer close to anyone1::51 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Always
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: prsi01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.