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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Female Reproductive Lifecycle and Hormones Questionnaire

rlhq

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjectid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldvisit_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
session_idString20Recommendedsession ID/screening ID
saps_ad8String30RecommendedForm nameform_name
siteString100RecommendedSiteStudy Sitesite_uid
visitString50RecommendedVisit nameCharacter description of each type of visitvisit_name
completedIntegerRecommendedChecks if form is completed0::20=No; 1=Yes; 2=Yes, losttstst
rlhqyrIntegerRecommendedRLHQ Module III Year
rlhqmthIntegerRecommendedRLHQ Module III Month
rlhqdayIntegerRecommendedRLHQ Module III Date of Month
rlhqntsString250RecommendedNotes about premenstrual/menstrual symptoms
rlhq1q1IntegerRecommendedPatient's status is childbearing potential1;21=Yes; 2=No
rlhq11nIntegerRecommendedIf no, please chack appropriate option1::41=Status post hhysterectomy (ovary sparing/bilateral oophorectomy); 2=Bilateral tubal ligation; 3=Post menopausal (last menses at least one year prior to screening); 4=Other
rlhq11spString250RecommendedOther specify
rlhqcntrString250RecommendedPlease document form of contraception
rlhq1q2IntegerRecommendedPlease check the appropriate menopause status1::41=Premenopausal; 2=Perimenopausal; 3=Post menopausal non surgical (more than 12 months); 4=Post menopausal surgical
mnpsageIntegerRecommendedAge of menopause (Years)
dtoosrgDateRecommendedDate of oophorectomy surgery
rlhqocIntegerRecommendedRLHQ Module 1 Question 3 Oral Contraceptive
rlhqptchIntegerRecommendedRLHQ Module 1 Question 3 Patch
rlhqhiudIntegerRecommendedRLHQ Module 1 Question 3 Hormonal IUD
rlhqdepoIntegerRecommendedRLHQ Module 1 Question 3 Depo-contraceptive
rlhqhrmnIntegerRecommendedRLHQ Module 1 Question 3 Hormonal therapy
rlhqcrmIntegerRecommendedRLHQ Module 1 Question 3 vaginal creams
rlhqrngIntegerRecommendedRLHQ Module 1 Question 3 Rings
rlhqadrgIntegerRecommendedRLHQ Module 1 Question 3 Androgens
rlhqothIntegerRecommendedRLHQ Module 1 Question 3 Other
rlhq13spString250RecommendedRLHQ Module 1 Question 3 Other specify textbox
meau_01dIntegerRecommendedIf yes, have you been experiencing any hot flashes in the past month?0;10=No; 1=Yesrlhq1q4
rlhq1q5IntegerRecommendedIf yes, do hot flashes interfere with sleep?1;21=Yes; 2=No
mnstrdtDateRecommendedDate of Last Menstrual Periodrlhq1q6
mencycleIntegerRecommendedtype of menstrual cycle1::31=Regular; 2=Irregular; 3=Not occurred for 3 monthsrlhq1q6a
fmc4aIntegerRecommendedIf history of menstruation, days between start of each menstrual period (regular cycle)[Caution: Beware of extreme outliers]rlhq1q6b
permenIntegerRecommendedPremenstrual exacerbation1;0;-70=No; 1=Yes;-7=Refusedrlhq1q6c
rlhq2q1IntegerRecommendedCurrent use of ORAL contraceptive pills?1;21=Yes; 2=No
rlhq21dtDateRecommendedDate contraceptive started
rlhq21nmString100RecommendedName of contraceptive
rlhq21scIntegerRecommendedSchedule of contraceptive1;21=Monthly bleed; 2=Third month bleed/ continuous
rlhq21dcDateRecommendedDate of last contraceptive dose change
rlhq21fpDateRecommendedDate of first day of current pill pack
rlhq2q2IntegerRecommendedCurrent use of other hormonal birth control such as NuvaRing, Contraceptive Patch, or Depo Provera1;21=Yes; 2=No
rlhq22dtDateRecommendedDate other birth control started
rlhq22nmString50RecommendedOther birth control name
rlhq22dsString50RecommendedOther birth control dose
rlhq22dcDateRecommendedDate of last birth control dose change
rlhq22lpDateRecommendedDate of last Ring/Patch placement/injection
q25_intrauterine_deviceIntegerRecommendedPresence of: Intrauterine Device0;10 = No; 1 = Yesrlhq2q3
rlhq23dpDateRecommendedDate placed
rlhq23tpIntegerRecommendedType of IUD1;21=Copper IUD; 2=Mirena / Progesterone IUD
rlhq2q4IntegerRecommendedCurrent use of testosterone, DHEA, or methyltestosterone?1;21=Yes; 2=No
rlhq24dtDateRecommendedDate treatment started
rlhq24nmString50RecommendedTreatment name
rlhq24dsString50RecommendedTreatment dose
rlhq24dcDateRecommendedDate of last treatment dose change
rlhq2q5IntegerRecommendedCurrent use of thyroid hormone augmentation?1;21=Yes; 2=No
rlhq25dtDateRecommendedDate hormones started
rlhq25nmString50RecommendedThyroid treatment name
rlhq25dsString50RecommendedThyroid treatment dose
rlhq25dcDateRecommendedDate of last thyroid treatment dose change
date_updatedDateRecommendedDate record updatededit_date
commentsString4,000RecommendedComments about assessmentefirstlan
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: rlhq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.