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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Data Structures with shared data
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IAN Sibling without ASD



Sibling without autism spectrum disorder (ASD) measures as defined by the Interactive Autism Network (IAN)

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*null
ianlangdelaydxIntegerRecommendedlang_delay_Dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#lang_delay_Dxlang_delay_Dx
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age_in_years
ianspecialedeverIntegerRecommendedspecial_ed_ever, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#special_ed_everspecial_ed_ever
ianspeechtherapyeverIntegerRecommendedspeech_therapy_ever, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#speech_therapy_everspeech_therapy_ever
ianspecialedcurrIntegerRecommendedspecial_ed_curr, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#special_ed_currspecial_ed_curr
ianpreviousresearchasdIntegerRecommendedprevious_research_ASD, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#previous_research_ASDprevious_research_ASD
ianpreviousresearchanyIntegerRecommendedprevious_research_Any, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=55#previous_research_Anyprevious_research_Any
ianianresearchidString10RecommendedIAN_Research_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#IAN_Research_idIAN_Research_id
ianrecordnumberIntegerRecommendedrecord_number, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#record_numberrecord_number
iandonotdeleteFloatRecommendedDO_NOT_DELETE, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#DO_NOT_DELETEDO_NOT_DELETE
ianformcompletedIntegerRecommendedform_completed, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#form_completedform_completed
ianscientificversionString20Recommendedscientific_version, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#scientific_versionscientific_version
ianyearofassessmentIntegerRecommendedyear_of_assessment, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#year_of_assessmentyear_of_assessment
ianinformantidString10Recommendedinformant_id, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=101#informant_idinformant_id
ianwalkageapprxIntegerRecommendedwalk_age_apprx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#walk_age_apprxwalk_age_apprx
ianwalkageFloatRecommendedwalk_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#walk_agewalk_age
iantalkageapprxIntegerRecommendedtalk_age_apprx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#talk_age_apprxtalk_age_apprx
iantalkageFloatRecommendedtalk_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#talk_agetalk_age
ianagemngflspeachIntegerRecommendedage_mngfl_speach, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#age_mngfl_speachage_mngfl_speach
iantoilettrainedageIntegerRecommendedtoilet_trained_age, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#toilet_trained_agetoilet_trained_age
ianpreglengthIntegerRecommendedpreg_length, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#preg_lengthpreg_length
ianbirthtypeIntegerRecommendedbirth_type, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_typebirth_type
ianbirthorderIntegerRecommendedbirth_order, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_orderbirth_order
ianbirthweightFloatRecommendedbirth_weight, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#birth_weightbirth_weight
ianfragilexdxIntegerRecommendedfragile_x_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#fragile_x_dxfragile_x_dx
iantuberoussclerosisdxIntegerRecommendedTuberous_Sclerosis_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Tuberous_Sclerosis_dxTuberous_Sclerosis_dx
ianseizuresepilepsydxIntegerRecommendedSeizures_Epilepsy_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Seizures_Epilepsy_dxSeizures_Epilepsy_dx
ianmentalretardationdxIntegerRecommendedMental_Retardation_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Mental_Retardation_dxMental_Retardation_dx
ianmotordelayIntegerRecommendedMotor_Delay, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Motor_DelayMotor_Delay
iancpdxIntegerRecommendedCP_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#CP_dxCP_dx
iandepressiondxIntegerRecommendedDepression_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Depression_dxDepression_dx
ianbipolardisorderIntegerRecommendedBipolar_Disorder, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Bipolar_DisorderBipolar_Disorder
ianadhddxIntegerRecommendedADHD_dx, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#ADHD_dxADHD_dx
iananxietydisorderIntegerRecommendedAnxiety_Disorder, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#Anxiety_DisorderAnxiety_Disorder
ianschizophreniaIntegerRecommendedSchizophrenia, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#SchizophreniaSchizophrenia
ianschooltypeIntegerRecommendedschool_type, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#school_typeschool_type
ianschoolgradeIntegerRecommendedschool_grade, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#school_gradeschool_grade
ianspecialedcodecurrIntegerRecommendedspecial_ed_code_curr, see IAN CodeBook for details.http://dashboard.ianexchange.org/DataExplorer.aspx?FDID=47#special_ed_code_currspecial_ed_code_curr
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: siblingwithoutasd02 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.