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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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Developmental Assessment of Children from Spanish Speaking Families Phone Screening



Developmental Assessment of Children from Spanish Speaking Families Phone Screening

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotes
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
genderString20RequiredSex of the subjectM;FM = Male; F = Female
study_infoString250RecommendedHow did you learn about study
brochureIntegerRecommendedDid you receive a brochure with information about the study0;10=No; 1=Yes
bio_parentIntegerRecommendedAre you a biological parent to the child0;1; -99; 88; 770=No; 1=Yes; -99= N/A ; 88= Missing ; 77= Refused
early_dev_parentIntegerRecommendedHave you been a parent to the child during his/her early development between the ages of 0 and 4.0;10=No; 1=Yes
ethnic_groupString255RecommendedEthnic group
lang_raisedString150RecommendedWhat language were you raised with?
spoken_langIntegerRecommendedAre you more comfortable speaking1::31=more comfortable speaking Spanish than English; 2=equally comfortable speaking Spanish and English; 3=more comfortable speaking English than Spanish
span_levelIntegerRecommendedHow well do you feel you speak Spanish1::41=poor; 2=fair; 3=good; 4= excellent
child_ageIntegerRecommendedhow old is your child; months0 :: 1200
livewithIntegerRecommendedDoes this child currently live with you?0;10=No; 1=Yes
devassIntegerRecommendedHas your child had a developmental assessment by a doctor or psychologist, for example at the uic family clinics?0::20 = No; 1-Yes; 2= Don't know
primary_diagnosisString200RecommendedPrimary diagnosis of subject
aut_diagIntegerRequiredAutism-related diagnosis1::4;9991 = Autism; 2 = Autism Spectrum Disorder; 3 = Asperger syndrome; 4 = PDD-NOS
diag_ageatdiagIntegerRecommendedAge at diagnosis(in months)
0 :: 1200
diagnosis_autism_madebyString100RecommendedIf the participant has been diagnosed with autism, who gave this diagnosis?
mr_diagnosisIntegerRecommendedMental Retardation: Formal diagnosis0;1;-7;-8;-90 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
mrdiag_madebyString100RecommendedWhere did you receive the diagnosis. Intellectual Disability/Mental Retardation
mrdiag_ageIntegerRecommendedHow old was your child when he/she received the diagnosis? Intellectual Disability/Mental Retardation
cfmh_chd_devdelayIntegerRecommendedDoes (did) the Child have a Developmental Delay?1;00 = No; 1 = Yes
dddiag_madebyString100RecommendedWhere did you receive the diagnosis. Developmental Delay
dddiag_ageIntegerRecommendedHow old was your child when he/she received the diagnosis? Developmental Delay
ds_diagIntegerRecommendedDown Syndrome diagnosis0;10=No; 1=Yes
dsdiag_madebyString100RecommendedWhere did you receive the diagnosis. Down Syndrome
dsdiag_ageIntegerRecommendedHow old was your child when he/she received the diagnosis? Down Syndrome
cfmh_chd_cerpalsyIntegerRequiredHas she/he ever been to a doctor for any of these things…Cerebral Palsy /Parálisis Cerebral1;0;9990 = No; 1 = Yes //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.
cpdiag_madebyString100RecommendedWhere did you receive the diagnosis. Cerebral Palsy
cpdiag_ageIntegerRecommendedHow old was your child when he/she received the diagnosis? Cerebral Palsy
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: span_phone01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.