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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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Friendship Disclosure

ssds

01

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectlabid, patid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired fieldtestdate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.agemonths
genderString20RequiredSex of the subjectM;FM = Male; F = Female
siteString100RecommendedSiteStudy Site
studyString100RecommendedStudy
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
ssds_1IntegerRecommendedTo what extent do you share with your close friend about the following issues? Characteristics or behaviors you do not like about your parents1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_2IntegerRecommendedTo what extent do you share with your close friend about the following issues? Anxieties experienced in your family relationships.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_3IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings that you are not understood at home.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_4IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings about being criticized at home.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_5IntegerRecommendedTo what extent do you share with your close friend about the following issues? Arguments or disagreements with your parents1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_6IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings of being mistreated at home.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_7IntegerRecommendedTo what extent do you share with your close friend about the following issues? Opinions and feelings about your parents.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_8IntegerRecommendedTo what extent do you share with your close friend about the following issues? Being disappointed with your parents' behavior.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_9IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your disappointment about something your friend did.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_10IntegerRecommendedTo what extent do you share with your close friend about the following issues? Doubts you have about your relationship with your friend.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_11IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your expectations about your friend.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_12IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your feelings of jealousy towards your friend.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_13IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your feelings of jealousy towards other friends.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_14IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your feelings after being criticized by your friend.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_15IntegerRecommendedTo what extent do you share with your close friend about the following issues? Worries you have regarding your friend's expectations about you.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_16IntegerRecommendedTo what extent do you share with your close friend about the following issues? Worries about your appearance.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_17IntegerRecommendedTo what extent do you share with your close friend about the following issues? Expectations of future appearance.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_18IntegerRecommendedTo what extent do you share with your close friend about the following issues? Your illnesses and medical treatments.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_19IntegerRecommendedTo what extent do you share with your close friend about the following issues? Worries about future health problems.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_20IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings about your body weight.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_21IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings about your height.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_22IntegerRecommendedTo what extent do you share with your close friend about the following issues? Current medical problems.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_23IntegerRecommendedTo what extent do you share with your close friend about the following issues? Feelings about your face.1 :: 4; -99; 77; 88;1 = rarely; 2 = sometimes; 3 = often; 4 = almost always; -99= N/A; 77= Refused ; 88= Missing
ssds_famIntegerRecommendedDisclosure about family1 :: 32; 999999 = missing
ssds_friendIntegerRecommendedDisclosure about friendship1 :: 28; 999999 = missing
ssds_physIntegerRecommendedDisclosure about physical appearance1 :: 32; 999999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: ssds01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.