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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

Description
Value Range
Notes
Data Structures with shared data
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Fidelity to Treatment and Shared Decision-Making

tf

01

Download Definition as
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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectnewid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
tf1aIntegerRecommendedHelp you practice how to handle real life situations you care about1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1bIntegerRecommendedHelp you get along better with your friends1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1cIntegerRecommendedHelp you talk with your family about your thoughts and feelings1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1dIntegerRecommendedTalk with you about how you would like your family or other important people in your life involved with your treatment1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1eIntegerRecommendedTalk with you about how your family or other important people in your life could help support you in reaching your goals1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1fIntegerRecommendedTalk with you about any concerns you might have about your use of drugs or alcohol1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1gIntegerRecommendedPay attention to your preferences regarding a job and or school1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1hIntegerRecommendedHelp you to get or keep a job or go to or stay in school1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1iIntegerRecommendedGo with you to your job or school1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1jIntegerRecommendedHelp you figure out your finances, including getting any benefits you may beentitled to1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1kIntegerRecommendedTalk with you about whether you have had thoughts of harming or killing yourself1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1lIntegerRecommendedHelp you make a plan to stay safe1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf1mIntegerRecommendedRespond as quickly as you wanted1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf2IntegerRecommendedWhen you and your team have talked about your treatment, how much did you feel that decisions about your treatment were joint decisions between you and your team?1::41 = Not at all;2 = A little;3 = A moderate Amount;4 =A lot
tf3IntegerRecommendedHave you met with your team psychiatrist since last interview0;10=No; 1=Yes
tf4IntegerRecommendedHow often does the topic of medication side effects come up1::41 = Not at all;2 = At a few of our meetings;3 = At about half of our meetings;4 = At most or every meeting
tf5IntegerRecommendedHow often does your psychiatrist involve you in decision about what medications to take1::41 = Not at all;2 = At a few of our meetings;3 = At about half of our meetings;4 = At most or every meeting
tf_omnibusFloatRecommendedOmnibus sum scoreMean of TF1A,TF1B,TF1C,TF1D,TF1E,TF1G,TF1H,TF1K,TF2;
tf_familyFloatRecommendedTreatment Fidelity about Family Involvement: scoreMean of TF1C,TF1D,TF1E
tf_workFloatRecommendedTreatment Fidelity about the IPS SpecialistMean of TF1G,TF1H
tf_psychiatricsFloatRecommendedShared Decision Making with the PsychiatristMean of TF4,TF5
tf_sharedIntegerRecommendedShared decision makingTF2
tf_rcFloatRecommendedTreatment Fidelity about Recovery CoachMean of TF1A,TF1B
siteString100RecommendedSiteStudy Site
days_baselineIntegerRecommendedDays since baselinetfdays
visitString50RecommendedVisit nameCharacter description of each type of visittimept
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: tf01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.