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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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Description
Value Range
Notes
Data Structures with shared data
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NIH Toolbox Emotion Domain - Fear Surveys

tlbx_fearanx

01

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Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
genderString20RequiredSex of the subjectM;FM = Male; F = Female
primary_languageString255RecommendedSubject's Primary Language
nih_pinString25RecommendedPIN number assigned by the NIH Toolbox
version_formString100RecommendedForm used
pedrepanx50IntegerRecommendedIn the past 7 days I worried when I was at home1::51=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
pedrepanx51IntegerRecommendedIn the past 7 days I got scared really easily1::51=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
pedproxanx29IntegerRecommendedPlease indicate how often or true the behavior is of your child. Worries about things in the future.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx31IntegerRecommendedPlease indicate how often or true the behavior is of your child. Worries about past behavior.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx32IntegerRecommendedPlease indicate how often or true the behavior is of your child. Worries about doing better at things.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx35IntegerRecommendedPlease indicate how often or true the behavior is of your child. Is self-conscious or easily embarrassed.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx36IntegerRecommendedPlease indicate how often or true the behavior is of your child. Needs to be told over and over that things are okay.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx37IntegerRecommendedPlease indicate how often or true the behavior is of your child. Is nervous, high strung or tense.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx38IntegerRecommendedPlease indicate how often or true the behavior is of your child. Worries that something bad will happen to people he/she is close to.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx39IntegerRecommendedPlease indicate how often or true the behavior is of your child. Worries about being separated from loved ones.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx40IntegerRecommendedPlease indicate how often or true the behavior is of your child. Avoids school to stay home.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx43IntegerRecommendedPlease indicate how often or true the behavior is of your child. Has nightmares about being abandoned.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx44IntegerRecommendedPlease indicate how often or true the behavior is of your child. Complains of feeling sick before separating from those he/she is close to.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx45IntegerRecommendedPlease indicate how often or true the behavior is of your child. Is overly upset when leaving someone he/she is close to.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
pedproxanx47IntegerRecommendedPlease indicate how often or true the behavior is of your child. Is afraid of being away from home.0::20=Never or not true; 1=Sometimes or somewhat true; 2=Often or very true
nih_tlbx_rawscoreFloatRequiredRawScore
nih_tlbx_thetaFloatRequiredThetafear8_17, fearaffect18_85, fearoveranxprox3_7, fearprox8_12, fearsepanxprox3_7, fearsomatarous18_85
nih_tlbx_tscoreFloatRequiredT-score0::200
nih_tlbx_seFloatRequiredStandard Error
nih_tlbx_agegencscFloatRequiredAge-Gender-Corrected T-score0::200
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: tlbx_fearanx01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.