|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
version_form |
String |
121
|
Required |
Form used/assessment name |
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t4rp_1 |
String |
100
|
Recommended |
How did Texting 4 Relapse Prevention help you understand your illness better? |
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t4rp_2 |
String |
100
|
Recommended |
How do you think Texting 4 Relapse Prevention helped you keep track of your symptoms better? |
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t4rp_3 |
String |
100
|
Recommended |
How did the program affect your daily life? |
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t4rp_4 |
String |
100
|
Recommended |
What parts of the program did you find most interesting or fun? |
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t4rp_5 |
String |
100
|
Recommended |
What things can we change to make Texting 4 Relapse Prevention better in the future? |
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t4rp_6 |
String |
100
|
Recommended |
What parts of Texting 4 Relapse Prevention were confusing or hard to use? |
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t4rp_7 |
String |
100
|
Recommended |
What did you like best about Texting 4 Relapse Prevention? |
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t4rp_8 |
String |
100
|
Recommended |
What did you like the least about Texting 4 Relapse Prevention? |
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t4rp_9 |
String |
100
|
Recommended |
When, if ever, did you find it hard to read the messages? |
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t4rp_10 |
String |
100
|
Recommended |
When, if ever, was hard to reply to the messages? |
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t4rp_11 |
String |
100
|
Recommended |
As a provider, how did Texting 4 Relapse Prevention affect your clinical work? |
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t4rp_12 |
String |
100
|
Recommended |
Did your patients give you any feedback about the program that you think would be helpful for us to know? |
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t4rp_13 |
String |
100
|
Recommended |
What, if any, negative consequences did the intervention have for the patient? |
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t4rp_14 |
String |
100
|
Recommended |
How can we improve Texting 4 Relapse Prevention? |
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t4rp_15 |
String |
100
|
Recommended |
Lastly, if Texting 4 Relapse Prevention were rolled out in clinics in the area, how useful do you think it would be in improving clinical care? |
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Query
|
t4rp_16 |
Integer |
|
Recommended |
P. I like the Texting 4 Relapse Prevention program. C. My patients liked the Texting 4 Relapse Prevention program. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a1 |
Query
|
t4rp_17 |
Integer |
|
Recommended |
P. The suggestions the program sent me to help with my symptoms were useful for me. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a2 |
Query
|
t4rp_18 |
Integer |
|
Recommended |
P. The text messages helped me notice when my symptoms were getting worse faster than I used to before I started the program; C. Texting 4 Relapse Prevention helped my patients better identify when their symptoms got worse earlier than they usually do. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a3 |
Query
|
t4rp_19 |
Integer |
|
Recommended |
P. Texting 4 Relapse Prevention made it easier to contact my provider when my symptoms got worse; C. The automated system made it easier for me to quickly follow-up with my patients if needed. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a4 |
Query
|
t4rp_20 |
Integer |
|
Recommended |
P. I found the text messages annoying. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a5 |
Query
|
t4rp_21 |
Integer |
|
Recommended |
P. The text messages were easy to understand; C. My patients were sometimes confused by the program messages. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a6 |
Query
|
t4rp_22 |
Integer |
|
Recommended |
P. The text messages that asked me to reply were easy to answer. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a7 |
Query
|
t4rp_23 |
Integer |
|
Recommended |
P. The text messages were positive and helped me feel supported; C. The intervention helped my patients feel supported. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a8 |
Query
|
t4rp_24 |
Integer |
|
Recommended |
P. Texting 4 Relapse Prevention got in the way of my daily activities. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a9 |
Query
|
t4rp_25 |
Integer |
|
Recommended |
P. Texting 4 Relapse Prevention sent me too many text messages every day. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a10 |
Query
|
t4rp_26 |
Integer |
|
Recommended |
P. If Texting for Relapse Prevention was offered again, I would sign up for it. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a11 |
Query
|
t4rp_27 |
Integer |
|
Recommended |
P. I would recommend the Texting 4 Relapse Prevention program to other patients who have a similar illness as I do; C. I would recommend Texting 4 Relapse Prevention to other clinicians who have patients with schizophrenia or SAD. |
1::5
|
1=strongly disagree; 5=strongly agree
|
pas_a12 |
Query
|
t4rp_28 |
Integer |
|
Recommended |
C. As a clinician, I liked the Texting 4 Relapse Prevention program. |
1::5
|
1=strongly disagree; 5=strongly agree
|
|
Query
|
t4rp_29 |
Integer |
|
Recommended |
C. I would be unlikely to use this intervention with my patients if it were made available in my clinic. |
1::5
|
1=strongly disagree; 5=strongly agree
|
|
Query
|
t4rp_30 |
Integer |
|
Recommended |
C. The automated system made it easier for me to monitor my patients. |
1::5
|
1=strongly disagree; 5=strongly agree
|
|
Query
|
t4rp_31 |
Integer |
|
Recommended |
C. The intervention helped my patients better monitor their own symptoms of schizophrenia or schizoaffective disorder. |
1::5
|
1=strongly disagree; 5=strongly agree
|
|
Query
|
t4rp_32 |
Integer |
|
Recommended |
C. The program didn't really help my patient's improve their coping skills related to symptom management. |
1::5
|
1=strongly disagree; 5=strongly agree
|
|
Query
|
t4rp_33 |
Integer |
|
Recommended |
Acceptability score |
12::60
|
|
pat_acc_scale |
Query
|
t4rp_34 |
Integer |
|
Recommended |
(Patient estimate) How many messages did you receive from the Texting 4 Relapse Prevention program yesterday? |
|
|
pes1 |
Query
|
t4rp_35 |
Integer |
|
Recommended |
(Patient estimate) How many messages did you send to the program yesterday? |
|
|
pes2 |
Query
|
t4rp_36 |
Integer |
|
Recommended |
(Patient estimate) How many messages did you receive from the program in the last 7 days? Your best guess is fine. |
|
|
pes3 |
Query
|
t4rp_37 |
Integer |
|
Recommended |
(Patient estimate) How many messages did you send to the program in the last 7 days? Your best guess is fine. |
|
|
pes4 |
Query
|
t4rp_38 |
Integer |
|
Recommended |
(Patient estimate) In general, how often did you read the program messages in the past 7 days? |
1::5
|
1=Never (0 messages in the past week); 2=Rarely (1-5 messages); 3=Sometimes (6-14 messages); 4=Often (15 - 27messages); 5=always (28 messages)
|
pes5 |
Query
|
t4rp_39 |
Integer |
|
Recommended |
(Program count) Messages sent previous day: |
|
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|
Query
|
t4rp_40 |
Integer |
|
Recommended |
(Program count) Messages received previous day: |
|
|
|
Query
|
t4rp_41 |
Integer |
|
Recommended |
(Program count) Messages sent previous week (7 days): |
|
|
|
Query
|
t4rp_42 |
Integer |
|
Recommended |
(Program count) Messages received previous week (7 days): |
|
|
|
|
t4rp_ydx |
String |
10
|
Recommended |
years since psychiatric diagnosis |
|
|
|
Query
|
psych_hosp_total |
Integer |
|
Recommended |
Total number of psychiatric hospitalizations |
|
|
|
|
t4rp_txt |
String |
10
|
Recommended |
text messaging tenure |
|
|
|
|
t4rp_cell |
String |
10
|
Recommended |
length of time with current cell phone number |
|
|
|
Query
|
t4rp_sent |
Float |
|
Recommended |
average number of text messages sent each day |
|
|
|
Query
|
t4rp_rec |
Float |
|
Recommended |
average number of text messages received each day |
|
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
txt_engagement |
Integer |
|
Recommended |
Percentage of participant engagement with text messaging |
0::100
|
Percentage
|
|
|
call_time |
Integer |
|
Recommended |
Duration of the initial phone call with health coach |
|
Minutes, rounded to the nearest minute
|
|
|
message_count |
Integer |
|
Recommended |
Number of messages sent with health coach |
|
|
|
|
app_techniques |
Integer |
|
Recommended |
Number of techniques completed within the app |
|
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|