|
subjectkey |
GUID |
|
Required |
|
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
|
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
|
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
|
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
|
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
stereot_behav_q1 |
Integer |
|
Recommended |
|
Avoids establishing eye contact (i.e., looks away when eye contact is made). |
0::3;9
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed; 9 = N/A
|
|
Query
|
stereot_behav_q2 |
Integer |
|
Recommended |
|
Stares at hands, objects, or items in the environment for at least 5 seconds. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q3 |
Integer |
|
Recommended |
|
Rapidly flicks fingers or hands in front of eyes for periods of 5 seconds or more. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q4 |
Integer |
|
Recommended |
|
Eats specific foods and refuses to eat what most people will usually eat. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q5 |
Integer |
|
Recommended |
|
Licks inedible objects (e.g., person's hand, toys, books, etc.). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q6 |
Integer |
|
Recommended |
|
Smells or sniffs objects (e.g., toys, person's hand, hair, etc.). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q7 |
Integer |
|
Recommended |
|
Whirls, turns in circles. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q8 |
Integer |
|
Recommended |
|
Spins objects not designed for spinning (e.g., saucers, cups, glasses, etc.). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q9 |
Integer |
|
Recommended |
|
Rocks back and forth while seated or standing. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q10 |
Integer |
|
Recommended |
|
Makes rapid lunging, darting movement when moving from place to place. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q11 |
Integer |
|
Recommended |
|
Prances (walks on tiptoes) when moving or while standing in place. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q12 |
Integer |
|
Recommended |
|
Flaps hands or fingers in front of face or at sides. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q13 |
Integer |
|
Recommended |
|
Makeschigh-pitched sounds (e.g., eee-eee-eee-eee) or other vocalizations for self-stimulation. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_q14 |
Integer |
|
Recommended |
|
Slaps, hits, or bites self or in other ways attempts to injure self. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
stereot_behav_rawscore |
Integer |
|
Required |
|
Stereotyped Behaviors Total |
0::42
|
|
|
|
communication_general |
String |
50
|
Required |
|
How does this person communicate? |
Talks; Signs; Doesnt Talk or Sign
|
|
|
Query
|
communication_q15 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Repeats (echoes) words verbally or with signs. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q16 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Repeats words out of context (repeats words heard at an earlier time e.g., repeats words heard more than 1 minute earlier). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q17 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Repeats words or phrases over and over. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q18 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Speaks (or signs) with flat affect or with dysrhythmic patterns. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q19 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Responds inappropriately to simple commands (e.g., sit down, stand up, etc.). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q20 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Looks away or avoids looking at speaker when name is called. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q21 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Avoids asking for things he or she wants. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q22 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Fails to initiate conversations with peers or adults. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q23 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Uses "yes" and "no" inappropriately. Says "yes" when asked if he or she wants an aversive stimulus or says "no" when asked if he or she wants a favorite toy or treat. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q24 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Uses pronouns inappropriately (refers to self as he, you, she, etc.). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q25 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Uses the word "I" inappropriately (does not say "I" to refer to self). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q26 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Repeats unintelligible sounds (babbles) over and over. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q27 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Uses gestures instead of speech or signs to obtain objects. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_q28 |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Inappropriately answers questions about a statement or brief story. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
communication_rawscore |
Integer |
|
Conditional |
communication_general != 'Doesnt Talk or Sign' |
Communication Total |
0::45
|
|
|
Query
|
social_interact_q29 |
Integer |
|
Recommended |
|
Avoids eye contact (looks away when someone looks at him- or her). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q30 |
Integer |
|
Recommended |
|
Stares or looks unhappy or unexcited when praised, humored, or entertained. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q31 |
Integer |
|
Recommended |
|
Resists physical contact from others (doesn't seem to like hugs, pats, being held, or other close contact). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q32 |
Integer |
|
Recommended |
|
Non-imitative of other people when playing. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q33 |
Integer |
|
Recommended |
|
In group situations the person withdraws or remains aloof or standoffish. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q34 |
Integer |
|
Recommended |
|
Behaves in an unreasonably fearful, frightened manner. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q35 |
Integer |
|
Recommended |
|
Is unaffectionate doesn't give affectionate responses (e.g., hugs and kisses). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q36 |
Integer |
|
Recommended |
|
Looks through people (i.e., shows no recognition that a person is present). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q37 |
Integer |
|
Recommended |
|
Laughs, giggles, cries inappropriately. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q38 |
Integer |
|
Recommended |
|
Uses toys or objects inappropriately (e.g., spins cars, takes toys apart). |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q39 |
Integer |
|
Recommended |
|
Does certain thing repetitively, ritualistically. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q40 |
Integer |
|
Recommended |
|
Becomes upset when routines are changed. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q41 |
Integer |
|
Recommended |
|
Responds negatively or with temper tantrums when given commands, requests, or directions. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_q42 |
Integer |
|
Recommended |
|
Lines up objects in precise, orderly fashion and becomes upset when the order is disturbed. |
0::3
|
0 = Never observed; 1 = Seldom observed; 2 = Sometimes observed; 3 = Frequently observed
|
|
Query
|
social_interact_rawscore |
Integer |
|
Required |
|
Social Interaction Total |
0::42
|
|
|
|
dev_disturb_q43 |
String |
20
|
Recommended |
|
Did the child sit up, stand, and walk in that sequence? |
|
|
|
|
dev_disturb_q44 |
String |
20
|
Recommended |
|
Did the child walk within the first 15 months of life? |
|
|
|
|
dev_disturb_q45 |
String |
20
|
Recommended |
|
Did the child develop a skill (e.g., walking) and then regress (e.g., stop walking and return to crawling)? |
|
|
|
|
dev_disturb_q46 |
String |
20
|
Recommended |
|
Did the child spend a great amount of time rocking when awake (i.e., did the child rock for 5 minutes or more, several times a day)? |
|
|
|
|
dev_disturb_q47 |
String |
20
|
Recommended |
|
Did the child exhibit or was the child diagnosed as having any developmental delays before 36 months? |
|
|
|
|
dev_disturb_q48 |
String |
20
|
Recommended |
|
Did the child reach out or prepare to be picked up when the parent attempted to lift the child? |
|
|
|
|
dev_disturb_q49 |
String |
20
|
Recommended |
|
Did the child smile at parents or siblings when played with? |
|
|
|
|
dev_disturb_q50 |
String |
20
|
Recommended |
|
Did the child cry when approached by unfamiliar persons during the first year? |
|
|
|
|
dev_disturb_q51 |
String |
20
|
Recommended |
|
Did the child imitate another person before age 3 (e.g., played pat-a-cake, peek-a-boo, made imitative sounds, etc.)? |
|
|
|
|
dev_disturb_q52 |
String |
20
|
Recommended |
|
Did the child show pleasure when hugged, held, or caressed during the first 36 months? |
|
|
|
|
dev_disturb_q53 |
String |
20
|
Recommended |
|
Did the child use speech to communicate within the first 36 months? |
|
|
|
|
dev_disturb_q54 |
String |
20
|
Recommended |
|
Did the child appear to be deaf to some sounds but hear others? |
|
|
|
|
dev_disturb_q55 |
String |
20
|
Recommended |
|
Did the child follow simple commands (e.g., stand up, sit down, come here, etc.)? |
|
|
|
|
dev_disturb_q56 |
String |
20
|
Recommended |
|
Did the child remember things (e.g., where a favorite toy or object was kept or what happened in certain places, such as visits to the doctor)? |
|
|
|
Query
|
dev_disturb_rawscore |
Integer |
|
Required |
|
Developmental Disturbances Total |
1::14
|
|
|
Query
|
key_questions_q1 |
Integer |
|
Recommended |
|
At what age did the behavior first occur? Age in months |
|
|
|
|
key_questions_q2 |
String |
100
|
Recommended |
|
Does the behavior occur in all settings? |
|
|
|
|
key_questions_q3 |
String |
100
|
Recommended |
|
Could the behavior be the result of another handicapping condition? |
|
|
|
|
key_questions_q3a |
String |
100
|
Recommended |
|
If so, what condition(s)? |
|
|
|
|
key_questions_q3b |
String |
100
|
Recommended |
|
Have any evaluations been done to rule out the other condition? |
|
|
|
|
key_questions_q3c |
String |
100
|
Recommended |
|
What evaluations? |
|
|
|
|
key_questions_q4 |
String |
100
|
Recommended |
|
Who has evaluated the person and what were the results? |
|
|
|
|
key_questions_q5 |
String |
100
|
Recommended |
|
What assessment/evaluations have been done? |
|
|
|
|
key_questions_q6 |
String |
100
|
Recommended |
|
Are disturbances noted in all four areas of the definition for autism? |
|
|
|
|
key_questions_q7 |
String |
100
|
Recommended |
|
What areas of disturbance are most affected? |
|
|
|
|
key_questions_q7a |
String |
100
|
Recommended |
|
What are the symptoms? |
|
|
|
|
key_questions_q8 |
String |
100
|
Recommended |
|
How severe are the symptoms? |
|
|
|
|
key_questions_q8a |
String |
100
|
Recommended |
|
How do the symptoms interfere with normal functioning? |
|
|
|
|
key_questions_q9 |
String |
100
|
Recommended |
|
What information needs to be collected? |
|
|
|
|
key_questions_q9a |
String |
100
|
Recommended |
|
Who can supply the information? |
|
|
|
|
key_questions_q10 |
String |
100
|
Recommended |
|
What resources are available for further evaluation? |
|
|
|
|
comments |
String |
4,000
|
Recommended |
|
Comments about assessment |
|
|
|
Query
|
stereot_behav_ss |
Integer |
|
Required |
|
Stereotyped Behaviors. Standard Score |
1::20
|
|
|
Query
|
communication_ss |
Integer |
|
Required |
|
Communication. Standard Score |
1::20;999
|
999 = Missing value
|
|
Query
|
social_interact_ss |
Integer |
|
Required |
|
Social Interaction. Standard Score |
1::20
|
|
|
Query
|
dev_disturb_ss |
Integer |
|
Required |
|
Developmental. Standard Score |
1::20
|
|
|
Query
|
stereot_behav_perc |
Float |
|
Recommended |
|
Stereotyped Behaviors. Percentile |
|
|
|
Query
|
communication_perc |
Float |
|
Recommended |
|
Communication. Percentile |
|
|
|
Query
|
social_interact_perc |
Float |
|
Recommended |
|
Social Interaction. Percentile |
|
|
|
Query
|
dev_disturb_perc |
Float |
|
Recommended |
|
Developmental. Percentile |
|
|
|
Query
|
sum_ss |
Integer |
|
Required |
|
Sum of Standard Scores |
|
|
|
Query
|
aut_quotient_ss |
Integer |
|
Required |
|
Autism Quotient. Standard Score |
0::200
|
|
|
Query
|
aut_quotient_perc |
Float |
|
Recommended |
|
Autism Quotient. Percentile |
|
|
|