|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
catieid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
hui01 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to see well enough to read ordinary newsprint without glasses or contact lenses? |
0::4
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui02 |
Integer |
|
Recommended |
Has subject been able to see well enough to read ordinary newsprint with glasses or contact lenses? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know/Didn't wear glasses or contac; 3 = Refused
|
|
Query
|
hui03 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to see at all? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui04 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to see well enough to recognize a friend on the other side of the street without glasses or contact lenses? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui05 |
Integer |
|
Recommended |
Has subject been able to see well enough to recognize a friend on the other side of the street with glasses or contact lenses? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui06 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to hear what is said in a group conversation with at least three other people without a hearing aid? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui07 |
Integer |
|
Recommended |
Has subject been able to hear what is said in a group conversation with at least three other people without a hearing aid? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
|
|
Query
|
hui08 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to hear at all? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui09 |
Integer |
|
Recommended |
During the past two weeks, has subject been able to hear what is said in a group conversation with one other person in a quiet room without a hearing aid? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui10 |
Integer |
|
Recommended |
Has the subject been able to hear what is said in a conversion with one other person in a quiet room with a hearing aid? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
|
|
Query
|
hui11 |
Integer |
|
Recommended |
During the past two weeks, has the subject been able to be understood completely when speaking his/her own language with people who do not know the subject? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui12 |
Integer |
|
Recommended |
Has the subject been able to be understood partially when speaking with people who do not know the subject? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui13 |
Integer |
|
Recommended |
During the past two weeks, has the suubject been able to be understood completely when speaking with people who know the subject? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui14 |
Integer |
|
Recommended |
Has the subject been able to be understood partially when speaking with people the subject well? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui15 |
Integer |
|
Recommended |
During the past two weeks, has the subject been able to speak at all? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui16 |
Integer |
|
Recommended |
During the past two weeks, has the subject been able to bend, lift, jump and run without difficulty and without help or equipment of any kind? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui17 |
Integer |
|
Recommended |
Has the subject been able to walk around the neighborhood without difficulty and without help or equipment of any kind? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui18 |
Integer |
|
Recommended |
Has the subject been able to walk around the neighborhood with difficulty but without help or equipment of any kind? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui19 |
Integer |
|
Recommended |
During the past two weeks, has the subject been able to walk at all? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui20 |
Integer |
|
Recommended |
Has the subject needed mechanical support, such as braces or a cane or crutches, to be able to walk around the neighborhood? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui21 |
Integer |
|
Recommended |
Has the subject needed the help of another person to walk? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui22 |
Integer |
|
Recommended |
Has the subject needed a cheelchair to get around the neighborhood? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui23 |
Integer |
|
Recommended |
Has the subject needed the help of another person to get around in the wheelchair? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui24 |
Integer |
|
Recommended |
During the past two weeks, has the subject had the full use of both hands and ten fingers? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui25 |
Integer |
|
Recommended |
Has the subject needed the help of another person because of limitations in the use of his/her hands or fingers? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui26 |
Integer |
|
Recommended |
Has the subject needed the help of another person with some tasks, most tasks, or all tasks? |
1::5
|
1 = Some tasks; 2 = Don't Know; 3 = Refused; 4 = Most tasks; 5 = All tasks
|
|
Query
|
hui27 |
Integer |
|
Recommended |
Has the subject needed special equipment, for example special tools to help with dressing or eating, because of limitations in the use of his/her hands or fingers? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui28 |
Integer |
|
Recommended |
During the past two weeks, has the subject been able to eat, bathe, dress and use the toilet without difficulty? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui29 |
Integer |
|
Recommended |
has the subject needed the help of another person to eat, bathe, dress, and use the toilet? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui30 |
Integer |
|
Recommended |
Has the subject needed special equipment or tools to eat, bathe, dress or use the toilet? |
0::3
|
0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui31 |
Integer |
|
Recommended |
During the past two weeks, has the subject been feeling happy or unhappy? |
0::3
|
0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui32 |
Integer |
|
Recommended |
Would you describe subject as having felt: |
1::4
|
1 = Happy interested in life, or; 2 = Don't Know; 3 = Refused; 4 = Somewhat happy
|
|
Query
|
hui33 |
Integer |
|
Recommended |
Would you describe subject as having felt: |
1::5
|
1 = Somewhat unhappy; 2 = Don't Know; 3 = Refused; 4 = Very unhappy; 5 = So unhappy that life is not worthwhile
|
|
Query
|
hui34 |
Integer |
|
Recommended |
During the past two weeks, did subject ever feel fretful, angry, irritable, anxious, or depressed? |
0::3
|
0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui35 |
Integer |
|
Recommended |
How often did the subject feel fretful, angry, irritable, anxious or depressed? |
1::6
|
1=Rarely; 2= Don't Know; 3=Refused; 4=Occasionally; 5=Often; 6=Almost always
|
|
Query
|
hui36 |
Integer |
|
Recommended |
During the past two weeks did the subject feel extremely fretful, angry, irritable, anxious or depressed, to the point of needing professional help? |
0::3
|
0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui37 |
Integer |
|
Recommended |
How would you describe the subject's ability to remember things, during the past two weeks: |
1::6
|
1=Able to remember most things; 2=Don't Know; 3=Refused; 4=Somewhat forgetful; 5=Very forgetful; 6=Unable to remember anything at all
|
|
Query
|
hui38 |
Integer |
|
Recommended |
How would you describe the subject's ability to think and solve day-to-day problems, during the past two weeks: |
1::7
|
1 = Able to think clearly and solve problems; 2 = Don't Know; 3 = Refused;
4 = Had a little difficulty; 5 = Had some difficulty; 6 = Had a great deal of difficulty; 7 =Unable to think or solve problems
|
|
Query
|
hui39 |
Integer |
|
Recommended |
Has the subject had any trouble with pain or discomfort, during the past two weeks? |
0::3
|
0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
|
|
Query
|
hui40 |
Integer |
|
Recommended |
How many of the subject's activities, during the past two weeks, were limited by pain or discomfort? |
1::7
|
1 = None; 2 = Don't Know; 3 = Refused; 4 = A few; 5 = Some; 6 = Most; 7 = All
|
|
Query
|
hui41 |
Integer |
|
Recommended |
Overall, how would you rate the subject's health during the past two weeks? |
1::7
|
1 = Excellent; 2 = Don't Know; 3 = Refused; 4 = Very good; 5 = Good; 6 = Fair; 7 = Poor
|
|
Query
|
vision |
Integer |
|
Recommended |
Vision Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_vision |
Float |
|
Recommended |
Vision Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_vision_s |
Float |
|
Recommended |
Hearling Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_hearing |
Float |
|
Recommended |
Hearing Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_hear_s |
Float |
|
Recommended |
Speech Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_speech |
Float |
|
Recommended |
Speech Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_speech_s |
Float |
|
Recommended |
Ambulation Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_ambul |
Float |
|
Recommended |
Ambulation Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_ambul_s |
Float |
|
Recommended |
Dexterity Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_dexter |
Float |
|
Recommended |
Dexterity Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_dexter_s |
Float |
|
Recommended |
Emotion Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_emotion |
Float |
|
Recommended |
Emotional Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_emotn_s |
Float |
|
Recommended |
Cognition Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_cognit |
Float |
|
Recommended |
Cognition Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_cognit_s |
Float |
|
Recommended |
Pain Level |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_pain |
Float |
|
Recommended |
Pain Utility Score |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_pain_s |
Float |
|
Recommended |
HUI Comprehensive Health Status |
|
Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
|
|
Query
|
hui_ts |
Float |
|
Recommended |
Total score |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
visitid |
Integer |
|
Recommended |
MetaTrial Visit ID |
|
System variable: unique code for each type of visit -use to merge files
|
|
|
eq5d5l_1 |
Integer |
|
Recommended |
Mobility |
0::4; 999
|
0 = I have no problems in walking about; 1 = I have slight problems in walking about; 2 = I have moderate problems in walking about; 3 = I have severe problems in walking about; 4 = I am unable to walk about; 999 = Missing
|
|
|
eq5d5l_2 |
Integer |
|
Recommended |
Self-Care |
0::4; 999
|
0 = I have no problems in washing or dressing myself; 1 = I have slight problems washing or dressing myself; 2 = I have moderate problems washing or dressing myself; 3 = I have severe problems washing or dressing myself; 4 = I am unable to wash or dress myself; 999 = Missing
|
|
|
eq5d5l_3 |
Integer |
|
Recommended |
Usual Activities (e.g. work, study, housework, family or leisure activities) |
0::4; 999
|
0 = I have no problems doing my usual activities; 1 = I have slight problems doing my usual activities; 2 = I have moderate problems doing my usual activities; 3 = I have severe problems doing my usual activities; 4 = I am unable to do my usual activities; 999 = Missing
|
|
|
eq5d5l_4 |
Integer |
|
Recommended |
Pain/Discomfort |
0::4; 999
|
0 = I have no pain or discomfort; 1 = I have slight pain or discomfort; 2 = I have moderate pain or discomfort; 3 = I have severe pain or discomfort; 4 = I have extreme pain or discomfort; 999 = Missing
|
|
|
eq5d5l_5 |
Integer |
|
Recommended |
Anxiety/Depression |
0::4; 999
|
0 = I am not anxious or depressed; 1 = I am slightly anxious or depressed; 2 = I am moderately anxious or depressed; 3 = I am severely anxious or depressed; 4 = I am extremely anxious or depressed; 999 = Missing
|
|
|
eq5d5l_6 |
Integer |
|
Recommended |
We would like to know how good or bad your health is TODAY. This scale is numbered from 0 to 100. 100 means the best health you can imagine. 0 means the worst health you can imagine. |
0::100; 999
|
|
|