|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
Query
|
admin_change |
Integer |
|
Recommended |
Change to administration |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
cdi_social_raw |
Integer |
|
Recommended |
Development - Social - Raw Score |
|
|
|
Query
|
cdi_social_equiv_age |
Integer |
|
Recommended |
Development - Social - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_social_chron_age |
Integer |
|
Recommended |
Development - Social - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_social_quotient |
Integer |
|
Recommended |
Development - Social - Development Quotient |
|
|
|
Query
|
cdi_selfhelp_raw |
Integer |
|
Recommended |
Development - Self-Help - Raw Score |
|
|
|
Query
|
cdi_selfhelp_equiv_age |
Integer |
|
Recommended |
Development - Self-Help - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_selfhelp_chron_age |
Integer |
|
Recommended |
Development - Self-Help - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_selfhelp_quotient |
Integer |
|
Recommended |
Development - Self-Help - Development Quotient |
|
|
|
Query
|
cdi_gross_raw |
Integer |
|
Recommended |
Development - Gross Motor - Raw Score |
|
|
|
Query
|
cdi_gross_equiv_age |
Integer |
|
Recommended |
Development - Gross Motor - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_gross_chron_age |
Integer |
|
Recommended |
Development - Gross Motor - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_gross_quotient |
Integer |
|
Recommended |
Development - Gross Motor - Development Quotient |
|
|
|
Query
|
cdi_fine_raw |
Integer |
|
Recommended |
Development - Fine Motor - Raw Score |
|
|
|
Query
|
cdi_fine_equiv_age |
Integer |
|
Recommended |
Development - Fine Motor - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_fine_chron_age |
Integer |
|
Recommended |
Development - Fine Motor - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_fine_quotient |
Integer |
|
Recommended |
Development - Fine Motor - Development Quotient |
|
|
|
Query
|
cdi_express_raw |
Integer |
|
Recommended |
Development - Expressive Language - Raw Score |
|
|
|
Query
|
cdi_express_equiv_age |
Integer |
|
Recommended |
Development - Expressive Language - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_express_chron_age |
Integer |
|
Recommended |
Development - Expressive Language - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_express_quotient |
Integer |
|
Recommended |
Development - Expressive Language - Development Quotient |
|
|
|
Query
|
cdi_lang_raw |
Integer |
|
Recommended |
Development - Language Comprehension - Raw Score |
|
|
|
Query
|
cdi_lang_equiv_age |
Integer |
|
Recommended |
Development - Language Comprehension - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_lang_chron_age |
Integer |
|
Recommended |
Development - Language Comprehension - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_lang_quotient |
Integer |
|
Recommended |
Development - Language Comprehension - Development Quotient |
|
|
|
Query
|
cdi_letter_raw |
Integer |
|
Recommended |
Development - Letters - Raw Score |
|
|
|
Query
|
cdi_letter_equiv_age |
Integer |
|
Recommended |
Development - Letters - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_letter_chron_age |
Integer |
|
Recommended |
Development - Letters - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_letter_quotient |
Integer |
|
Recommended |
Development - Letters - Development Quotient |
|
|
|
Query
|
cdi_number_raw |
Integer |
|
Recommended |
Development - Numbers - Raw Score |
|
|
|
Query
|
cdi_number_equiv_age |
Integer |
|
Recommended |
Development - Numbers - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_number_chron_age |
Integer |
|
Recommended |
Development - Numbers - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_number_quotient |
Integer |
|
Recommended |
Development - Numbers - Development Quotient |
|
|
|
Query
|
cdi_gen_raw |
Integer |
|
Recommended |
Development - Social - Raw Score |
|
|
|
Query
|
cdi_gen_equiv_age |
Integer |
|
Recommended |
Development - Social - Equivalent Age |
0 :: 1200
|
|
|
Query
|
cdi_gen_chron_age |
Integer |
|
Recommended |
Development - Social - Chronological Age |
0 :: 1200
|
|
|
Query
|
cdi_gen_quotient |
Integer |
|
Recommended |
Development - Social - Development Quotient |
|
|
|
|
cdbs008 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He cannot feed himself a cracker or a cookie. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs009 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not take an interest in other children (watch, smile, or go to them). |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs010 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He cannot drink out of a regular cup (no lid) without spilling. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs011 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not recognize any letters or numbers. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs012 |
Integer |
|
Recommended |
Who would you advise your friend to talk to about these concerns? Circle the 3 most important people. Person 1 |
1::11
|
1 = Doctor; 2 = Teacher; 3 = Church; 4 = Family member; 5 = WIC staff member; 6 = Childcare provider; 7 = Spouse or partner; 8 = Other parents; 9 = Nobody; 10 = I didn''t have any concerns; 11 = Other
|
|
|
cdbs013 |
Integer |
|
Recommended |
Who would you advise your friend to talk to about these concerns? Circle the 3 most important people. Person 2 |
1::11
|
1 = Doctor; 2 = Teacher; 3 = Church; 4 = Family member; 5 = WIC staff member; 6 = Childcare provider; 7 = Spouse or partner; 8 = Other parents; 9 = Nobody; 10 = I didn''t have any concerns; 11 = Other
|
|
|
cdbs014 |
Integer |
|
Recommended |
Who would you advise your friend to talk to about these concerns? Circle the 3 most important people. Person 3 |
1::11
|
1 = Doctor; 2 = Teacher; 3 = Church; 4 = Family member; 5 = WIC staff member; 6 = Childcare provider; 7 = Spouse or partner; 8 = Other parents; 9 = Nobody; 10 = I didn''t have any concerns; 11 = Other
|
|
|
cdbs015 |
String |
20
|
Recommended |
Who would you advise your friend to talk to about these concerns? Circle the 3 most important people. Other. |
|
Only fill out if cdbs012 = 11 or cbds013 = 11 or cbds014 = 11.
|
|
|
cdbs016 |
Integer |
|
Recommended |
Have you ever shared a concern about your child's development with WIC staff? |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs017 |
String |
20
|
Recommended |
Have you ever shared a concern about your child's development with WIC staff? Yes. What was your concern? |
|
Only fill out if cdbs016 = 1. Redact any PHI or PII.
|
|
|
cdbs018 |
String |
20
|
Recommended |
Have you ever shared a concern about your child's development with WIC staff? Yes. What was your concern? [Open-ended response]. What did WIC staff say about your concern? |
|
Only fill out if cdbs016 = 1. Redact any PHI or PII.
|
|
|
cdbs019 |
Integer |
|
Recommended |
How much do you know about these conditions in children? ADHD (Attention Deficit Hyperactivity Disorder) |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs020 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Mental Retardation or Intellectual Disability |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs021 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Autism or Autism Spectrum Disorder |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs022 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Rett Syndrome |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs023 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Cleft Lip or Palate |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs024 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Cerebral Palsy |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs025 |
Integer |
|
Recommended |
How much do you know about these conditions in children? Down Syndrome |
0::3
|
0 = Never heard of it; 1 = Heard of it but don''t know much about it; 2 = Know a little about it; 3 = Know a lot about it
|
|
|
cdbs026 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. ADHD (Attention Deficit Hyperactivity Disorder) |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs027 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Mental Retardation or Intellectual Disability |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs001 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? The child does not walk well. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs028 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Autism or Autism Spectrum Disorder |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs029 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Rett Syndrome |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs002 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not use one finger to point to show interest in something. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs030 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Cleft Lip or Palate |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs031 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Cerebral Palsy |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs032 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. Down Syndrome |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs033 |
Integer |
|
Recommended |
Do you have a friend or family member with any of these conditions? Put an X in the square for all that apply. None of the above |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs034 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People think that having a [disabled child] is something to be ashamed of. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs035 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People are uncomfortable around [disabled children]. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs036 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People don't know very much about [disabled children]. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs037 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People think that some disabilities in children are a result of bad parenting or lack of discipline. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs038 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People want to learn about disabilities in children. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs003 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not talk at all. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs040 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People want to help [disabled children]. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs041 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs042 |
Integer |
|
Recommended |
Are you of Hispanic or Latino origin or descent? |
0::2
|
0 = No; 1 = Yes; 2 = Refused/Unknown
|
|
|
cdbs043 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: White |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs044 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: Asian |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs045 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: Black/African American |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs046 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: Pacific Islander |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs047 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: American Indian/Alaska Native |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs048 |
Integer |
|
Recommended |
Please circle one or more of the following categories to describe your race: Other |
0;1
|
0 = Not circled; 1 = Circled
|
|
|
cdbs049 |
String |
20
|
Recommended |
Please circle one or more of the following categories to describe your race: Other: ___ |
|
Only fill out if cdbs048 = 1.
|
|
|
cdbs004 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He is not potty trained. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs050 |
Integer |
|
Recommended |
How well do you speak English? |
0::3
|
0 = Not at all; 1 = Not well; 2 = Well; 3 = Very well
|
|
|
cdbs051 |
Integer |
|
Recommended |
How many years of schooling or education have you been able to complete? |
1::5
|
1 = 8th grade or less; 2 = 9th-12th grade (high school) without diploma, or current high school student; 3 = High school graduate or GED completed; 4 = Some college credit but no degree; 5 = Associate Degree; 6 = Bachelor''s Degree or higher
|
|
|
cdbs052 |
Integer |
|
Recommended |
Have you lived in the United States your whole life? |
0;1
|
0 = No; 1 = Yes
|
|
|
cdbs053 |
Integer |
|
Recommended |
How many years have you lived in the United States? |
|
Only fill out if cdbs052 = 1.
|
|
|
cdbs054 |
String |
100
|
Recommended |
Please let us know any other comments or ideas you have about child development. |
|
Redact any PHI or PII.
|
|
|
cdbs039 |
Integer |
|
Recommended |
These questions are about the views that people in your community have about children with physical or developmental disabilities. Tell us how well each statement describes your community. People say [disabled children] are stupid, crazy, lazy, or other hurtful words. |
0::3
|
0 = Definitely no; 1 = Somewhat no; 2 = Somewhat yes; 3 = Definitely yes
|
|
|
cdbs005 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He cannot pick up a small object, like a raisin or a Cheerio, with the tips of his thumb and fingers. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs006 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not like to share toys with other children his age. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|
|
cdbs007 |
Integer |
|
Recommended |
Imagine your friend's son just turned two years old. Your friend tells you she has concerns about her son and is wondering if you agree. Would you be Concerned or Not very concerned about the following? He does not respond to his name when his mom calls. |
0;1
|
0 = No. Not very concerned; 1 = Yes. Concerned
|
|