|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
lab_interview_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
lab_interview_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
ius1 |
Integer |
|
Recommended |
Uncertainty stops me from having a firm opinion |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_1, iusc_child_1, iusc_parent_1 |
Query
|
ius2 |
Integer |
|
Recommended |
Being uncertain means that a person is disorganized |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_2, iusc_child_2, iusc_parent_2 |
Query
|
ius3 |
Integer |
|
Recommended |
Uncertainty makes life intolerable. |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_3, iusc_child_3, iusc_parent_3 |
Query
|
ius4 |
Integer |
|
Recommended |
It is unfair not having any guarantees in life |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_4, iusc_child_4, iusc_parent_4 |
Query
|
ius5 |
Integer |
|
Recommended |
My mind can't be relaxed if I don't know what will happen tomorrow |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_5, iusc_child_5, iusc_parent_5 |
Query
|
ius6 |
Integer |
|
Recommended |
Uncertainty makes me uneasy, anxious, or stressed |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_6, iusc_child_6, iusc_parent_6 |
Query
|
ius7 |
Integer |
|
Recommended |
Unforeseen events upset me greatly |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_1, ius1_1, ius2_1, ius_7, iusc_child_7, iusc_parent_7, iusf_1 |
Query
|
ius8 |
Integer |
|
Recommended |
It frustrates me not having all the information I need |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_2, ius1_2, ius2_2, ius_8, iusc_child_8, iusc_parent_8, iusf_2 |
Query
|
ius9 |
Integer |
|
Recommended |
Uncertainty keeps me from living a full life. |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_3, ius1_3, ius2_3, ius_9, iusc_child_9, iusc_parent_9, iusf_3 |
Query
|
ius10 |
Integer |
|
Recommended |
One should always look ahead so as to avoid surprises |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_4, ius1_4, ius2_4, ius_10, iusc_child_10, iusc_parent_10, iusf_4 |
Query
|
ius11 |
Integer |
|
Recommended |
A small unforeseen event can spoil everything, even with the best of planning |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_5, ius1_5, ius2_5, ius_11, iusc_child_11, iusc_parent_11, iusf_5 |
Query
|
ius12 |
Integer |
|
Recommended |
When it's time to act, uncertainty paralyses me |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_6, ius1_6, ius2_6, ius_12, iusc_child_12, iusc_parent_12, iusf_6 |
Query
|
ius13 |
Integer |
|
Recommended |
Being uncertain means that I am not first rate |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_13, iusc_child_13, iusc_parent_13 |
Query
|
ius14 |
Integer |
|
Recommended |
When I am uncertain, I can't go forward |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_14, iusc_child_14, iusc_parent_14 |
Query
|
ius15 |
Integer |
|
Recommended |
When I am uncertain I can't function very well |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_7, ius1_7, ius2_7, ius_15, iusc_child_15, iusc_parent_15, iusf_7 |
Query
|
ius16 |
Integer |
|
Recommended |
Unlike me, others always seem to know where they are going with their lives |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_16, iusc_child_16, iusc_parent_16 |
Query
|
ius17 |
Integer |
|
Recommended |
Uncertainty makes me vulnerable, unhappy, or sad |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_17, iusc_child_17, iusc_parent_17 |
Query
|
ius18 |
Integer |
|
Recommended |
I always want to know what the future has in store for me |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_8, ius1_8, ius2_8, ius_18, iusc_child_18, iusc_parent_18, iusf_8 |
Query
|
ius19 |
Integer |
|
Recommended |
I can't stand being taken by surprise |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_9, ius1_9, ius2_9, ius_19, iusc_child_19, iusc_parent_19, iusf_9 |
Query
|
ius20 |
Integer |
|
Recommended |
The smallest doubt can't stop me from acting |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_10, ius1_10, ius2_10, iusc_child_20, iusc_parent_20 |
Query
|
ius21 |
Integer |
|
Recommended |
I should be able to organize everything in advance |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_11, ius1_11, ius2_11, ius_21, iusc_child_21, iusc_parent_21, iusf_11 |
Query
|
ius22 |
Integer |
|
Recommended |
Being uncertain means that I lack confidence |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_22, iusc_child_22, iusc_parent_22 |
Query
|
ius23 |
Integer |
|
Recommended |
I think it is unfair that other people seem sure about their future |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_23, iusc_child_23, iusc_parent_23 |
Query
|
ius24 |
Integer |
|
Recommended |
Uncertainty keeps me from sleeping soundly |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_24, iusc_child_24, iusc_parent_24 |
Query
|
ius25 |
Integer |
|
Recommended |
I must get away from all uncertain situations |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius00_12, ius1_12, ius2_12, ius_25, iusc_child_25, iusc_parent_25, iusf_12 |
Query
|
ius26 |
Integer |
|
Recommended |
The ambiguities in life stress me |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_26, iusc_child_26, iusc_parent_26 |
Query
|
ius27 |
Integer |
|
Recommended |
I can't stand being undecided about my future. |
1::5; -9
|
1=Not at all characteristics of me; 5=Characteristics of me; -9=incomplete
|
ius_27, iusc_child_27, iusc_parent_27 |
Query
|
ius_sum |
Integer |
|
Recommended |
Sum Score for Intolerance of Uncertainty Scale |
|
|
|
Query
|
ius_pas |
Integer |
|
Recommended |
Prospective Anxiety Subscale (sum of items- ius: 7,8,10,11,18,19,21) |
|
|
|
Query
|
ius_ias |
Integer |
|
Recommended |
Inhibitory Anxiety Subscale (sum of items- ius: 9,12,15,20,25) |
|
|
|
Query
|
ius_shorttot |
Integer |
|
Recommended |
Total Score of IUS-12 (Short-Form) |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
pax_timepoint |
Query
|
ius_20 |
Integer |
|
Recommended |
The smallest doubt can stop me from acting |
1::5
|
1 = not at all characteristic of me; 3 = somewhat characteristic of me; 5 = entirely characteristic of me
|
iusf_10 |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
Query
|
ius_factor1 |
Integer |
|
Recommended |
Uncertainty has negative behavioral and self-referent implications |
|
|
|
Query
|
ius_factor2 |
Integer |
|
Recommended |
Uncertainty is unfair and spoils everything |
|
|
|
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
|
|
ius7_7 |
Integer |
|
Recommended |
Unexpected events upset me greatly. |
1::7
|
1= Strongly disagree; 2= Disagree; 3= Somewhat disagree; 4= Neutral; 5= Somewhat Agree; 6= Agree; 7= Strongly agree
|
|
|
ius15_7 |
Integer |
|
Recommended |
When I am uncertain I can�t function very well. |
1::7
|
1= Strongly disagree; 2= Disagree; 3= Somewhat disagree; 4= Neutral; 5= Somewhat Agree; 6= Agree; 7= Strongly agree
|
|
|
iusc_3 |
Integer |
|
Recommended |
Not knowing what will happen in the future makes life hard. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_4 |
Integer |
|
Recommended |
It's not fair that we can't predict the future. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_5 |
Integer |
|
Recommended |
I can't relax if I don't know what will happen tomorrow. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_6 |
Integer |
|
Recommended |
Not knowing what will happen in the future makes me uneasy, anxious, or stressed. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_7 |
Integer |
|
Recommended |
Surprise events upset me greatly. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_8 |
Integer |
|
Recommended |
It frustrates me not to have all of the information I need. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_9 |
Integer |
|
Recommended |
Not knowing what could happen keeps me from enjoying life. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_10 |
Integer |
|
Recommended |
One should always think ahead to avoid surprises. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_11 |
Integer |
|
Recommended |
Plans can be ruined by things you didn't think would happen. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_12 |
Integer |
|
Recommended |
When it is time to do things, not knowing what could happen keeps me from acting. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_13 |
Integer |
|
Recommended |
Being unsure of things means that I am not great. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_14 |
Integer |
|
Recommended |
When I am not sure of something I can't go forward. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_15 |
Integer |
|
Recommended |
When I am not sure of something I can't work very well. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_16 |
Integer |
|
Recommended |
Other kids have less doubts than I do. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_17 |
Integer |
|
Recommended |
Not knowing what will happen makes me unhappy or sad. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_18 |
Integer |
|
Recommended |
I always want to know what will happen to me in the future. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_19 |
Integer |
|
Recommended |
I don't like being taken by surprise. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_20 |
Integer |
|
Recommended |
The smallest doubt can stop me from doing things. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_21 |
Integer |
|
Recommended |
I should be able to prepare for everything in advance. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_22 |
Integer |
|
Recommended |
Being unclear about things means that I am not confident. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_23 |
Integer |
|
Recommended |
It's not fair that other kids are more sure of things. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_24 |
Integer |
|
Recommended |
Not knowing what can happen keeps me from sleeping well. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_25 |
Integer |
|
Recommended |
I must get away from all situations where I don't know what will happen. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_26 |
Integer |
|
Recommended |
Things that are unclear stress me out. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_27 |
Integer |
|
Recommended |
I don't like being undecided about the future. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_total |
Integer |
|
Recommended |
IUS-C Total Score |
27 :: 135
|
|
|
|
iusc_1 |
Integer |
|
Recommended |
Doubts stop me from having strong opinions. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
iusc_2 |
Integer |
|
Recommended |
Being unsure means that a person is mixed-up. |
1 :: 5
|
1 = Not at all characteristic of me; 2 = A little characteristic of me; 3 = Somewhat characteristic of me; 4 = Very characteristic of me; 5 = Entirely characteristic of me
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|