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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Neurodevelopmental Phenotype

52 Shared Subjects

Neurologic and developmental phenotype as defined by the laboratory of Dr. Christopher A. Walsh at Boston Children's Hospital
Clinical Assessments
Med History
07/10/2012
chb_medical_history01
07/17/2012
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query race String 30 Required Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query ethnicity String 30 Required Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query phenotype String 200 Required Phenotype/diagnosis for the subject
proband_subjectkey GUID Recommended Proband's NDAR GUID. Proband=child with Autism or other condition, which is a Study primary intererest group NDAR*
Query rel_to_proband String 25 Recommended The relationship of this individual to the Proband Proband; Self; Mother; Father; Sibling; Other; Nonbiological mother; Nonbiological father
Query consanguinity String 10 Recommended The parents of this individual are consanguinous TRUE;FALSE;UNKNOWN
Query consanguinity_details String 200 Recommended Description of parental consanguinous relationship
Query asd_yes_no String 10 Required Has the subject been diagnosed with Autism Spectrum Disorder?
TRUE;FALSE;UNKNOWN;NK
NK = Not known
Query asd_details String 200 Recommended Details of ASD diagnosis
Query dd_yes_no String 10 Recommended Has the subject been diagnosed with Developmental Disorder?
TRUE;FALSE;UNKNOWN;NK
NK = Not known
Query dd_details String 200 Recommended Details of DD diagnosis
Query attentiondisorder Integer Recommended Does (did) the subject have Attention Deficit Disorder +/- Hyperactivity?
0;1;2
0 = No/False; 1 = Yes/True; 2 = Unknown
Query dsmiv_asd String 10 Required This individual meets DSMIV criteria for autistic disorder TRUE;FALSE;UNKNOWN
Query iq_test String 10 Required This individual has had an IQ test TRUE;FALSE;UNKNOWN; REFUSED
Query iqtestname String 255 Recommended Name of IQ test given to participant
Query iq Integer Conditional iq_test == 'true' || iq_test == 'TRUE' IQ score as defined by the completion of an appropriate assessement
Query otherdevelopmentaltest Integer Recommended Has any other developmental test been done?
0;1;2
0 = No/False; 1 = Yes/True; 2 = Unknown
Query developmentaltestdetails String 200 Recommended Details of other developmental tests developmental_test_details
Query rev_headseizure String 50 Required Seizures Yes; No; NK; NS NK= Not known; NS = Not sure
rev_headseizuredetail String 500 Recommended Details of the seizure history and/or type(s)
Query microcephaly String 10 Recommended This individual has a head circumference smaller than 2 standard deviations below the mean for gender and age TRUE; FALSE; UNKNOWN
Query macrocephaly String 10 Recommended This individual has a head circumference larger than 2 standard deviations above the mean for gender and age TRUE; FALSE; UNKNOWN
Query head_circumference_details String 255 Recommended Details of head circumference
Query hearingloss Integer Required Hearing Loss: Does (did) the subject have Hearing loss?
0;1;2;999
0 = No/False; 1 = Yes/True; 2 = Unknown
hearinglossdetail String 200 Recommended Details of the hearing loss
Query visionproblems Integer Recommended Vision: Does (did) the subject have Vision/eye problems?
0;1;2
0 = No/False; 1 = Yes/True; 2 = Unknown
Query visionproblemdetail String 300 Recommended Details of the vision problem vision_problem_details
Query neurologic_problem_other String 10 Recommended This individual been diagnosed with another neurologic problem(s) TRUE;FALSE;UNKNOWN
Query neurologic_problem_details String 200 Recommended Details of the other neurologic problem(s)
Query eegtest String 10 Recommended Did the subject take a EEG exam?
TRUE;FALSE;UNKNOWN;NK
NK = Not known
eeg_result String 255 Recommended Details of EEG result(s)
Query ctscanofbrain String 10 Recommended Did the subject take a CT scan of brain?
TRUE;FALSE;UNKNOWN;NK
NK = Not known
ct_head_result String 255 Recommended Details of the head CT result(s)
Query mribrainscan String 10 Recommended Did the subject take an MRI scan of brain?
TRUE;FALSE;UNKNOWN;NK
NK = Not known
Query mri_brain_result String 255 Recommended Details of the brain MRI result(s)
Query other_phenotype_details String 255 Recommended Details of other phenotype(s)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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