|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
catieid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
visitid |
Integer |
|
Recommended |
MetaTrial Visit ID |
|
System variable: unique code for each type of visit -use to merge files
|
|
Query
|
dep02 |
Integer |
|
Recommended |
Does the patient need reminders or advice to
manage chores, do shopping, cooking, play
games, or handle money? |
0;1;2
|
0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
|
|
Query
|
dep03 |
Integer |
|
Recommended |
Does the patient need help to remember
important things such as appointments,
recent events, or names of family or friends? |
0;1;2
|
0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
|
|
Query
|
dep04 |
Integer |
|
Recommended |
Does the patient need frequent (at least once a month) help finding misplaced objects,
keeping appointments, or maintaining health
or safety (locking doors, taking medication)? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep05 |
Integer |
|
Recommended |
Does the patient need household chore done for them? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep06 |
Integer |
|
Recommended |
Does the patient need to be watched or kept company when awake? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep07 |
Integer |
|
Recommended |
Does the patient need to be escorted when outside |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep08 |
Integer |
|
Recommended |
Does the patient need to be accompanied when bathing or eating |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep09 |
Integer |
|
Recommended |
Does the patient have to be dressed, washed and groomed? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep10 |
Integer |
|
Recommended |
Does the patient have to be taken to toilet regularly to avoid incontinence |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep11 |
Integer |
|
Recommended |
Does the patient have to be fed? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep12 |
Integer |
|
Recommended |
Does the patient need to be turned, moved or transferred? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep13 |
Integer |
|
Recommended |
Does the patient wear a diaper or a catheter? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep14 |
Integer |
|
Recommended |
Does the patient need to be tube fed? |
0;1
|
0=No; 1=Yes
|
|
Query
|
dep15 |
Integer |
|
Recommended |
Equivalent Institutional Care |
1;2;3
|
1 = Limited home care; 2 = Adult home; 3 = Health-related facility
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
Query
|
dependnce |
Integer |
|
Recommended |
Dependence level |
0;1;2;3;4;5
|
0 = Level 0; 1 = Level 1; 2 = Level 2; 3 = Level 3; 4 = Level 4; 5 = Level 5; A patient may meet the criteria for more than one level. If this is the case, we have assigned the highest level the patient meets. For example, if a patient meets the criteria for both Levels 4 and 5, assign DEPNDNCE = 5.
|
|
Query
|
base1 |
Integer |
|
Recommended |
Flag Baseline Phase 1/1A Visit |
|
1=Yes for all records meeting this criteria
|
|
Query
|
last1 |
Integer |
|
Recommended |
Flag Last Phase 1/1A Visit |
|
1=Yes for all records meeting this criteria
|
|
Query
|
base_dep |
Float |
|
Recommended |
Baseline Dependence Level |
|
Score at Phase 1 baseline
|
|
Query
|
c_dep |
Float |
|
Recommended |
Change from Baseline in Dependence Level |
|
Change from Phase 1 baseline
|
|
Query
|
phase_ct |
String |
20
|
Recommended |
Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. |
Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
|
|
|