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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Family Assessment Scale

294 Shared Subjects

N/A
Clinical Assessments
Quality of Life
03/23/2016
famburd01
11/02/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name
Query monthsbl Float Recommended Actual number of months from Baseline
Query days_baseline Integer Recommended Days since baseline
Query fas001 Integer Recommended Had financial problems 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas002 Integer Recommended Missed days at work/school 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas003 Integer Recommended Difficulty concentrating on activities 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas004 Integer Recommended Had to change personal plans, e.g., new job or vacation 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas005 Integer Recommended Cut back on leisure time 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas006 Integer Recommended Household routine was upset 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas007 Integer Recommended Had less time to spend with friends 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas008 Integer Recommended Neglected needs of family members 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas009 Integer Recommended Experienced family frictions or arguments 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas010 Integer Recommended Experiened frictions with neighbors/friends/other relatives 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas011 Integer Recommended Embarrassed by behavior of relative 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas012 Integer Recommended Felt guilty about failure to help someone 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas013 Integer Recommended Felt guilty about causing a problem for relative 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas014 Integer Recommended Resented relative for making demands 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas015 Integer Recommended Felt trapped by caregiver rols 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas016 Integer Recommended Was upset by change in behavior of relative 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas017 Integer Recommended Worried that behavior with relative might make illness worse 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas018 Integer Recommended Worried about what future holds for relative 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas019 Integer Recommended Upset by the stigma of the illness 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas020 Integer Recommended Has relative provided help with chores, meals, shopping, transportation? 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas021 Integer Recommended Has relative provided financial assistance? 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas022 Integer Recommended Has relative given companionship and emotional support? 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query fas023 Integer Recommended Has relative provided other kinds of help? 1::4; 9 1=Not at all; 2=A little; 3=Some; 4=A lot; 9=Not applicable;
Query f1dists Float Recommended Disrupted Activities Total Score
Query f1distsx Float Recommended Disrupted Activities Mean Score
Query f2perts Float Recommended Personal Distress Total Score
Query f2pertsx Float Recommended Personal Distress Mean Score
Query f3gltts Integer Recommended Guilt Total Score
Query f3glttsx Float Recommended Guilt Mean Score
Query f4timts Integer Recommended Time Perspective Total Score
Query f4timtsx Float Recommended Time Perspective Mean Score
Query f5worts Integer Recommended Worry Total Score
Query f5wortsx Float Recommended Worry Mean Score
Query fburdts Float Recommended Full-Scale Total Score
Query fburdtsx Float Recommended Full-Scale Mean Score
ba_8_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you neglected other family members'' needs? (Bikos of (in nem) in sik wan, aw fa yu don nor bin bisin bot oda fambul dem problem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_9_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you experienced family frictions and arguments? (Bikos of (in nem) in sik wan, aw fa yu don bin get fambul cham mot or palava)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_10_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you experienced friction with neighbors, friends, or relatives outside the home? (Bikos of (in nem) in sik wan, aw fa yu don bin get cham mot wit neba, padi dem or fambul dem way nor day na ose wit yu)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_11_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you became embarrassed because of (NAME''S) behavior? (Bikos of (in nem) in sik wan, aw fa yu don bin day shem bikos of di way aw (in nem) bin day biyev)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_12_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you felt guilty because you were not doing enough to help? (Bikos of (in nem) in sik wan, aw fa yu don bin day fil gilti bikos yu nor bin day ep beteh)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_13_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you felt guilty because you felt responsible for causing (NAME''S) problem? (Bikos of (in nem) in sik wan, aw fa yu don bin day fil gilti bikos yu bin fil say na yu koz (in nem) in problem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_14_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you resented (NAME) because s/he made too many demands on you? (Bikos of (in nem) in sik wan, aw fa yu don nor bin lek (in nem) bikos e bin day aks yu for do boku tin dem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_15_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you felt trapped by your caregiving role? (Bikos of (in nem) in sik wan, aw fa yu don fil say den don trap yu for jes day sorport dis posin)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_16_c Integer Recommended In the past six months, because of (name''s illness), to what extent were you upset about how much (NAME) had changed from his or her former self? (Bikos of (in nem) in sik wan, aw fa yu don bin vex bot aw (in nem) bin don chenj from aw e bin day)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_17_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you worried about how your behavior with (NAME) might make the illness worse? (Bikos of (in nem) in sik wan, aw fa yu don bin day wondri bot aw di way yu day biyev to (in nem) go mek in problem wors)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_18_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you worried about what the future holds for (NAME)? (Bikos of (in nem) in sik wan, aw fa yu don bin day wondri bot waytin tumara go tan lek for (in nem))? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_19_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you found the stigma or the illness upsetting? (Bikos of (in nem) in sik wan, aw fa yu don vex bot di kain way aw pipul den day tok bot di problem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_1_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you, had financial problems? (Bikos of (in nem) in sik wan, aw fa yu don get moni problem dem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_2_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you missed days at work (or school)? (Bikos of (in nem) in sik wan, aw fa yu don absent fo som days dem na wokin ples (or skul))? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_3_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you found it difficult to concentrate on your own activities? (Bikos of (in nem) in sik wan, aw fa yu don fen am at for pay atenshon pan yu yone biznes)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_4_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you had to change your personal plans like taking a new job, or going on a vacation? (Bikos of (in nem) in sik wan, aw fa yu don bin get for chenj yu yone plan dem lek for tek niu wok or for go oliday)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_5_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you cut down on leisure time? (Bikos of (in nem) in sik wan, aw fa yu don ridius pan yu tem for enjoy)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_6_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you found the household routine was upset? (Bikos of (in nem) in sik wan, aw fa yu don fen awt say di tin dem way fo du na ose bin get fo amborg)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
ba_7_c Integer Recommended In the past six months, because of (name''s illness), to what extent have you had less time to spend with friends? (Bikos of (in nem) in sik wan, aw fa yu don bin get small tem for day wit pad idem)? 1::4;998;999 1 = Not at all (E nor kin bi); 2 = A little (Smal smal); 3 = Quite a bit (Somtem); 4 = A lot (Boku tem); 998 = Don''t know (Ar nor no); 999 = No answer (Nor ansa)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
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  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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