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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Family Quality of Life Assessment

270 Shared Subjects

Family Quality of Life Assessment
Clinical Assessments
Quality of Life
10/04/2012
famqol01
07/13/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY cg_interview_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. cg_Months_Difference
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported chi_gen, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data cg_comments_misc
Query cg_enjoytime Integer Recommended My family enjoys spending time together. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q55
Query cg_talkopen Integer Recommended My family members talk openly with each other. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q56
Query cg_solveprob Integer Recommended Our family solves problems together. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q57
Query cg_support Integer Recommended My family members support each other to accomplish goals. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q58
Query cg_showlove Integer Recommended My family members show that they love and care for each other. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q59
Query cg_updown Integer Recommended My family is able to handle life’s ups and downs. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q60
Query cg_help_indep Integer Recommended My family members help the children learn to be independent. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q61
Query cg_help_scl Integer Recommended My family members help the children with schoolwork and activities. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q62
Query cg_getalong Integer Recommended My family members teach the children how to get along with others. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q63
Query cg_gdchoice Integer Recommended Adults in our family teach the children to make good decisions. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q64
Query cg_otherppl Integer Recommended Adults in my family know other people in the children’s lives (friends, teachers, etc.). Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q65
Query cg_indiv_need Integer Recommended Adults in my family have time to take care of the individual needs of every child. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q66
Query cg_spt_stress Integer Recommended My family has the support we need to relieve stress. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q67
Query cg_othershelp Integer Recommended My family members have friends or others who provide support. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q68
Query cg_ownint Integer Recommended My family members have some time to pursue our own interests. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q69
Query cg_specneeds Integer Recommended My family has outside help available to us to take care of special needs of all family members. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q70
Query cg_transp Integer Recommended My family members have transportation to get to the places they need to be. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q71
Query cg_dental Integer Recommended My family gets dental care when needed. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q72
Query cg_medical Integer Recommended My family gets medical care when needed. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q73
Query cg_expenses Integer Recommended My family has a way to take care of our expenses. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q74
Query cg_safe Integer Recommended My family feels safe at home, work, school, and in our neighborhood. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q75
Query cg_mem_schsup Integer Recommended My family member with a disability has support to accomplish goals at school or at workplace. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q76
Query cg_mem_homsup Integer Recommended My family member with a disability has support to accomplish goals at home. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q77
Query cg_mem_frisup Integer Recommended My family member with a disability has support to make friends. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q78
Query cg_prov_rel Integer Recommended My family has good relationships with the service providers who provide services and support to our family member with a disability. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q79
famq08 Integer Recommended My family members teach the children how to get along with others. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq09 Integer Recommended My family members have some time to pursue our own interests. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq10 Integer Recommended Our family solves problems together. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq11 Integer Recommended My family members support each other to accomplish goals. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq12 Integer Recommended My family members show that they love and care for each other. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq13 Integer Recommended My family has outside help available to us to take care of special needs of all family members. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq14 Integer Recommended Adults in our family teach the children to make good decisions. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq15 Integer Recommended My family gets medical care when needed. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq16 Integer Recommended My family has a way to take care of our expenses. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq17 Integer Recommended Adults in my family know other people in the children?s lives (friends, teachers, etc.). Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq18 Integer Recommended My family is able to handle life?s ups and downs. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq19 Integer Recommended Adults in my family have time to take care of the individual needs of every child. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq20 Integer Recommended My family gets dental care when needed. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq21 Integer Recommended My family feels safe at home, work, school, and in our neighborhood. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq22 Integer Recommended My family member with a disability has support to accomplish goals at school or at workplace. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq23 Integer Recommended My family member with a disability has support to accomplish goals at home. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq24 Integer Recommended My family member with a disability has support to make friends. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq25 Integer Recommended My family has good relationships with the service providers who provide services and support to our family member with a disability. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq01 Integer Recommended My family enjoys spending time together. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq02 Integer Recommended My family members help the children learn to be independent. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq03 Integer Recommended My family has the support we need to relieve stress. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq04 Integer Recommended My family members have friends or others who provide support. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq05 Integer Recommended My family members help the children with schoolwork and activities. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq06 Integer Recommended My family members have transportation to get to the places they need to be. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq07 Integer Recommended My family members talk openly with each other. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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