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MacArthur Competency Assessment

1,719 Shared Subjects

MacArthur Competency Assessment
Clinical Assessments
Questionnaire
05/07/2014
maccomp01
12/16/2022
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project CATIEID, subjid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query visit String 60 Recommended Visit name
Query truncvis Integer Recommended Truncated Visit Number Created variable: provides a numeric visit number for all visits, including unscheduled and end of phase
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
Query visday Integer Recommended Number of days from study baseline to date of visit
protocol String 50 Recommended Protocol [Study] name
Query mat0 Integer Recommended Not done because patient has a guardian. 0;1 0=No;1=Yes
Query matu1a Integer Recommended Understanding-1a. Purpose of project 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat1
Query matu1b Integer Recommended Understanding-1b. Duration of study 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat2
Query matu1c Integer Recommended Understanding-1c. Daily medication 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat3
Query matu1d Integer Recommended Understanding-1d. Monthly interviews 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat4
Query matu2 Integer Recommended Understanding-2. Research study 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat5
Query matu3a Integer Recommended Understanding-3a. Random assignment 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat6
Query matu3b Integer Recommended Understanding-3b. Double blind 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat7
Query matu3c Integer Recommended Understanding-3c. Medication changes 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat8
Query matu4a Integer Recommended Understanding-4a. Societal benefit 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat9
Query matu4b Integer Recommended Understanding-4b. Personal benefit 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat10
Query matu4c Integer Recommended Understanding-4c.Risk of getting ineffective medicine 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat11
Query matu4d Integer Recommended Understanding-4d. Side effects 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat12
Query matu5 Integer Recommended Understanding-5. Rights to withdraw/receive ordinary care 0::2 2 =Subject recalls the content of the item and offers a fairly clear version of it. A verbatim repetition of the interviewer's description is not required; in fact, paraphrase in the subject's own words is preferred; 1 = Subject shows some recollection of the item content, but describes it in a way that renders understanding uncertain, even after the clinician has made efforts to obtain clarification from the subject; 0=Subject (a) does not recall the content of the item; or (b) describes it in a way that is clearly inaccurate; or (c) describes it in a way that seriously distorts its meaning, even after the clinician has made efforts to obtain clarification from the patient; or offers a response that is unrelated to the question or unintelligible. maccat13
Query matu6 Integer Recommended Understanding total MATS1A, MATS2A, MATS3A, maccat_understanding
Query mata1 Integer Recommended Appreciation -1. Goal of recruitment is not to optimize subject's care or well-being 0::2 2 =Subject acknowledges that he or she is being recruited for a valid reason unrelated to potential personal benefit from being in the study; 1=Subject acknowledges being recruited for reasons both related to and unrelated to potential personal benefit. OR Subject maintains he or she is being recruited for a reason related only to potential personal benefit, but has a plausible explanation for why this is the case; 0 = Subject maintains he or she is being recruited for a reason related only to potential personal benefit, but does not have a plausible explanation for why this is the case. OR Subject offers response that is unrelated to the question or unintelligible maccat14
Query mata2 Integer Recommended Appreciation -2. Research methods take precedence over individualized care 0::2 2 = Subject provides response consistent with the idea that the research protocol, not personal needs, will determine the experimental condition to which he/she will be assigned; 1 = Subject is uncertain whether the research protocol or personal needs will determine the experimental condition to which he/she will be assigned. OR Subject believes that personal needs will determine assignment to experimental conditions, but has a plausible explanation for why this might be the case; 0 = Subject believes personal needs will determine assignment to experimental conditions, but does not have a plausible explanation for why this would be the case. OR Subject offers a response that is unrelated to the question or unintelligible maccat15
Query mata3 Integer Recommended Appreciation -3. Ability to decline or withdraw participation 0::2 2 = Subject acknowledges that failure to participate or later withdrawal will not adversely affect him/her (in particular, in the context of a treatment setting, that subject can continue to receive ordinary care-assuming that this is the case); 1 = Subject is uncertain whether failure to participate or later withdrawal will adversely affect him/her OR Subject believes failure to participate or later withdrawal will adversely affect him/her and has a plausible explanation for why this is the case; 0 = Subject believes failure to participate or later withdrawal will adversely affect him/her and does not have a plausible explanation for why this is the case. OR Subject offers response that is unrelated to the question or unintelligible. maccat16
Query mata4 Integer Recommended Appreciation total MATS1B, MATS2B, MATS3B, maccat_appreciation
Query matr1 Integer Recommended Reasoning -1. Consequential reasoning 0::2 2 = Subject mentions at least two specific consequences when explaining the choice. The consequences may be related to only one or both alternatives; 1 = Subject mentions only one specific consequence when explaining the choice; 0 = Subject mentions no specific consequences when explaining the choice, even after being asked directly whether there were any more specific reasons why that choice seems best. maccat17
Query matr2 Integer Recommended Reasoning -2. Comparative reasoning 0::2 2= Subject offers at least one statement that is a comparison of the two options. The statement should include at least one specific difference; 1= Subject makes comparison statement, but does not include a statement of a specific consequence; 0= Subject makes no comparative statements maccat18
Query matr3 Integer Recommended Reasoning -3. Generating consequences 0::2 2 =Subject must give at least two reasonable consequences; 1= Subject gives only one reasonable consequence; 0= Subject gives no reasonable consequences, even with adequate encouragement maccat19
Query matr4 Integer Recommended Reasoning -4. Logical consistency of final choice 0::2 2= Subject's final choice (in Expressing a Choice) follows logically from the subject's own reasoning, as explained by the subject in response to the three previous subparts; 1= It is not clear whether the choice follows logically from the subject's own reasoning; 0= Subject's choice clearly does not follow logically from subject's own reasoning. maccat21
Query matr5 Integer Recommended Reasoning total MATS1C, MATS2C, MATS3C, maccat_reasoning
Query matc1 Integer Recommended Choice-1. Expressing a choice 0::2 2= Subject states a choice; 1 =Subject states more than one choice, seems ambivalent; 0 =Subject does not state a choice. maccat20
Query matc2 Integer Recommended Choice total MATS1D, MATS2D, MATS3D
Query mats1e Integer Recommended Is this the final administration? (visit 1) 0;1 0=No;1=Yes
Query mats2e Integer Recommended Is this the final administration (visit 2) 0;1 0=No;1=Yes
Query mats3e Integer Recommended Is this the final administration? (visit 3) 0;1 0=No;1=Yes
Query maccattot Integer Recommended MacCAT Total Score
Query study_id Integer Recommended Study ID number 46=Acute Phase; 47=Stabilization Phase
Query week Float Recommended Week in level/study 99=week 10-week 14 intid
site String 101 Recommended Site Study Site
baseline_score Float Recommended Percentage of baseline competency assessment score 0::100
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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