Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Enter the email address associated with your existing NDA Account and click Continue Linking Process.

If you do not have an existing NDA account, click Go Back.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Pubertal Development Scale

11,026 Shared Subjects

Pubertal Development Scale
Clinical Assessments
Phys Characteristics
02/18/2014
pds01
04/17/2024
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project case_id, child_id, clinical_barcode, subject
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY bl_visit_date, chrpds_interview_date, pds_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. bslage, ch_age, pubc1, pubp1
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported ch_sex, dev_scales_gender, gender, pds_sex_y, pubertal_sex_p, sex
Query respond Integer Required Respondent 1::7;999 1 = Parent; 2 = Teacher; 3=Self; 4= Other; 5= Significant other; 6 = Parent 1; 7 = Parent 2; 999 = Not available pds_respondent, respondent, who
Query pds_1 Integer Recommended C.Would you say that your growth in height has not yet begun to spurt, has barely started, is definitely underway, or does growth seem completed. P.How would you say your child's growth in height has developed?
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing afh, amh, chrpds_pds_1_p, pds1, pds_1_p, pds_1_pv, pds_cv_1_boy, pds_cv_1_girl, pds_growth, pds_ht2_y, pds_p_1, pds_pr_1, pds_q1, pds_sub_1, peterson_fem_height, peterson_male_height, pfh, pmh, pubc2, puberty_1, pubp2, pufe_001t, puma_001t
Query pds_2 Integer Recommended C.And how about the growth of body hair? Would you say that your body hair has not yet started growing, has barely started growing, is definitely underway, or does growth seem completed? (if asked, body hair = underarm or pubic hair). P. How wouold you say that your child's body hair has developed? (if asked, body hair = underarm or pubic hair)
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing afbh, ambh, chrpds_pds_2_p, pds2, pds_2_p, pds_2_pv, pds_3b, pds_3g, pds_bdyhair_y, pds_cv_2_boy, pds_cv_2_girl, pds_hair, pds_p_2, pds_pr_2, pds_q2, pds_sub_2, peterson_fem_bodyhair, peterson_male_bodyhair, pfbh, pmbh, pubc3, puberty_2, pubp3, pufe_002t, puma_002t
Query pds_3 Integer Recommended C. Have you noticed any skin changes, such as pimples or acne? Would you say that you have not yet started to get acne, have barely started to get acne, acne is definitely underway, or that you have finished getting acne?. P.Have you noticed your child is experiencing any skin changes, such as pimples or acne...
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing afs, ams, chrpds_pds_3_p, pds3, pds_3_p, pds_3_pv, pds_cv_3_boy, pds_cv_3_girl, pds_p_3, pds_pr_3, pds_q3, pds_skin, pds_skin2_y, pds_sub_3, peterson_fem_skin, peterson_male_skin, pfs, pms, pubc4, puberty_3, pubp4, pufe_003t, puma_003t
Query pds_4 Integer Recommended (for boys only) C. Have you noticed a deepening of your voice? Would you say that your voice has not yet started to deepen, has barely started to deepen, deepening is definitely underway, or deepening is complete?. P. Have you noticed your son's voice deepening?
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing amv, chrpds_pds_m4_p, pds4ba, pds4m, pds_4_pv, pds_4b, pds_cv_4_boy, pds_m4_p, pds_m4_y, pds_p_b4, pds_pr_4, pds_qm4a, pds_sub_b4, pds_voice, pdsb_2, peterson_male_voice, pmv, pubc5, puberty_boys4, pubp5, puma_004t
Query pds_5 Integer Recommended ( for boys only) C. Have you begun to grow hair on your face? Would you say you have not yet started to grow hair on your face, barely started to grow hair on your face, hair on your face is definitely underway, or hair growth on your face is complete?. P. Has your child begun to grow hair on his face?
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing amfh, chrpds_pds_m5_p, pds4bb, pds5m, pds_4b, pds_5_pv, pds_cv_5_boy, pds_fahair, pds_m5_p, pds_m5_y, pds_p_b5, pds_pr_5, pds_qm4b, pds_sub_b5, pdsb_1, peterson_male_face_hair, pmfh, pubc6, puberty_boys5, pubp6, puma_005t
Query pds_6 Integer Recommended (for girls only) C. Have your breasts begun to grow? Would you say that you have not yet started to grow breasts, barely started to grow breasts, breasts are definitely underway, or breast growth is complete? P. Have your daughter's breasts begun to grow?
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing afb, chrpds_pds_f4_p, pds4f, pds4g, pds_4g, pds_6_pv, pds_breast, pds_cv_4_girl, pds_f4_2_y, pds_f4_p, pds_p_g4, pds_pr_6, pds_qf4, pds_sub_g4, peterson_fem_breasts, pfb, pubc7, puberty_girls4, pubp7, pufe_004t
Query pds_7 Integer Recommended ( for girls only) C. Have you begun to get your period? Would you say that you have not yet started to get your period, have barely started to get your period, or that your period is definitely underway? P. Has your daughter begun to get her period?
1::5; -99; 77; 88
1= Not begun; 2 =Yes (barely); 3= Yes (definitely); 4= Development complete; 5= Don't know; -99= N/A ; 77= Refused ; 88= Missing chrpds_pds_f5b_p, pds_6g, pds_f5_y, pds_f5b_p, pds_pr_7, pds_sub_g5a, pubc8, puberty_girls5a, pubp8
Query pds_boy_rs Integer Conditional sex == 'm' Total raw score for boys sum of pds_2, pds_4, pds_5; 999=Missing male_score, pds_cv_boy_rs, pds_pv_boy_rs
Query pds_girl_rs Integer Conditional sex == 'f' Total raw score for girls sum of pds_2, pds_7, pds_7; 999=Missing female_score, pds_cv_girl_rs, pds_pv_girl_rs
respondent_other_specify String 50 Recommended Respondent: Other (specify)
Query pds_7_pv Integer Recommended 7. (for girls only) Do you think your daughters development is any earlier or later than most girls her age? 1::5; 999 1=much earlier; 2=somewhat earlier; 3=about the same; 4=somewhat later; 5=much later afd, pds_5g, pds_cv_5_girl, pds_fphdev, peterson_fem_development, pfd
Query pds_9_pv Integer Recommended 9. (for girls only) If yes, how old was she when she started to menstruate? 1::9; 999 1= she was less than 10; 2= she was 10; 3= she was 10.5; 4= she was 11; 5= she was 11.5; 6= she was 12; 7= she was 12.5; 8= she was 13; 9= she was 13.5 or more puberty_girls5b
Query pds_pv_boy_tanner Integer Recommended Category score 1=Prepubertal; 2= early pubertal; 3=midpubertal; 4=late pubertal; 5=postpubertal). Scores determined by using the following criteria by totaling the raw score: Prepubertal=3; Early pubertal= 4 or 5, no 3 point responses; Midpubertal=6-8, no 4 point responses; Late pubertal=9-11; Postpubertal=12. pds_cv_boy_tanner, pubertyfemale_totalscore
Query pds_pv_girl_tanner Integer Recommended Category score 1=Prepubertal; 2= early pubertal; 3=midpubertal; 4=late pubertal; 5=postpubertal). Scores determined by using the following criteria by totaling the raw score: Prepubertal=2, no menstruation; Early pubertal= 3, no menstruation; Midpubertal= >3, no menstruation; Late pubertal= less than and equal to 7, with menstruation; Postpubertal=8, with menstruation. pds_cv_girl_tanner, pubertymale_totalscore
Query pds_8_pv Integer Recommended (for girls only) Has your child begun to get her period?
1::2; 999
1= Yes; 2= No afmc, pds_p_g5a, pdsg_2a, pfmc
Query pds_cv_6_girl Integer Recommended Have you begun to get your period? 0::9 0= No; 1= yes, I was 13.5 or more; 2= yes, I was 13; 3= yes, I was 12.5; 4= yes, I was 12; 5= yes, I was 11.5; 6= yes, I was 11; 7= yes, I was 10.5; 8= yes, I was 10; 9= when I was less than 10 pds_6g
dsmvers String 10 Recommended version/name of assessment
Query pstatus Integer Recommended Pubertal status - Unisex 0::2 0=Under 10; 1=Prepubertal; 2=Pubertal
site String 101 Recommended Site Study Site site_no
Query trt_grp String 10 Recommended Treatment Group Assignment 1;1AO;1CT;2; 3;4;5;6;7;8;9;10;11;12; O; P; CCA; GCT; TCT; TAU; CGC; ESDM; NA; EG 1=Group 1 first 8 weeks; 2=Group 2; 3=Group 3; 4 =active; 5=sham; 6=none; 7=ESDM High intensity; 8=ESDM Low intensity; 9=EIBI High intensity; 10=EIBI Low intensity; ESDM = Early Start Denver Model; EIBI = Early and Intensive Behavioral Intervention; 11 = Navigator; 12 = Care manager; 13=Waitlist Control; 14=Treatment; 1AO=Group 1 8 week add on; 1CT=Group 1 8 week cross taper; O=Oxytocin; P=Placebo; CCA=Community Control Arm; GCT=Generalized Cognitive Training; TCT=Targeted Cognitive Training; TAU=Treatment as Usual; CGC = Computer Games Control; NA=not assigned to treatment group; EG= Experimental Group
Query days_baseline Integer Recommended Days since baseline bsldays
Query etype String 10 Recommended Rating Period BSL;WK1;WK2;WK3;WK4;WK5;WK6;WK7;WK8;WK9;WK10;WK11;WK12;WK13;WK14;WK15;WK16 BSL=Baseline; WK1-WK16=Weeks 1-16
respond_detail_oth_spec String 255 Recommended Respondent details informnt
Query relationship Integer Recommended Relationship of respondent to individual
1::94;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker infrmnt2
Query pds5 Integer Recommended How many of your friends have Taken some money at home that did not belong to them, like from their mother's purse or from their parents' dresser? 0::3 0=None of them; 1=One of them; 2=Some of them; 3=All of them
Query pds6g Integer Recommended Girls only : Have you begun to menstruate?
0;1;99
0=No; 1=Yes; 99 = Refused pds5f, pds_qf10a, peterson_fem_menstruate, pufe_005t
Query pds6gyr Integer Recommended Girls only : If you answered YES, how old were you when you first menstruated (years)? -900 = Missing; -300 = N/A afmcage_1_text, chrpds_pds_f6_p, pds5f_firstperiod, pds_6.1g, pds_f6_p, pds_f6_y, pds_qf10b, peterson_fem_yesmenstruate_yrs, pfmcage_1_text
Query pds6gmo Integer Recommended Girls only : If you answered YES, how old were you when you first menstruated (months)? afmcage_2_text, pfmcage_2_text
Query pds6g_d Integer Recommended Girls only : Have not begun to menstruate? 0;1 0=No; 1=Yes pds_menst
Query pds_n Integer Recommended Number of present PDS scoring items
Query pds_sum Integer Recommended Total PDS Score pds_pr_score, pds_sub_score
Query pds_ave Float Recommended Average PDS Score
Query visit String 60 Recommended Visit name eventname, stais_visit, timepoint
Query visday Integer Recommended Number of days from study baseline to date of visit
Query pds_7b_pv Integer Recommended Do you think your/your child's development is any earlier or later than most boys/girls your/his/her age? 1::5; 999 1=much earlier; 2=somewhat earlier; 3=about the same; 4=somewhat later; 5=much later amd, pds_6b, pds_mphdev, pds_sub_10, peterson_male_development, pmd
Query imputation Integer Recommended Indicator noting imputed data set number 1::20
labsample29 String 10 Recommended Date of last menstrual period NA=if male or pre-puberty mendate, menstrualcycle1_p
Query pufe_008t Integer Recommended How would you rate your weight currently? 1::7 1 = 1 (Underweight), 2 = 2, 3 = 3, 4 = 4 (Just about Right), 5 = 5, 6 = 6, 7 = (Overweight) puma_008t
Query pufe_005at Integer Recommended (Female only) What was the month and year of your first menstruation? pds_menst_years
Query pufe_005bt Integer Recommended (Female only) How many days does your menstrual cycle usually last? menstrualcycle2_p
Query pufe_005ct Integer Recommended (Female only) How regular is your cycle? 1::4 1 = Very regular, 2 = Pretty regular, 3 = Very irregular, 4 - Not sure yet
Query height_std Float Recommended Height - Standard Unit -1 = Not known; 999 = Missing pds_ch_ft, pds_ch_in, pds_height_ft, pds_q6, pufe_006t, puma_006t
Query weight_std Float Recommended Weight - Standard Unit -1 = Not known; 999 = Missing pds_ch_wgt, pds_q8, pds_weight, pufe_007t, puma_007t
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query pds_pr_stage Integer Recommended PDS Pubertal Stage 1::5 1=pre-pubertal; 2=early puberty; 3=mid puberty; 4=late puberty; 5=post pubertal
Query q19_a3 Integer Recommended Tanner Stage 1 :: 5 1=pre puberty, 2=early puberty, 3=mid puberty, 4=late puberty, 5=post puberty ch_tanner_dev_clinician, tanner_pr_stage
Query visit_num Integer Recommended Visit number 1::3 1=Baseline, 2=12 Month, 3=24 Month
Query accult_select_language Integer Recommended Test given in Spanish? ¿Español? 0 ; 1 0 = No; 1 = Yes pds_select_language___1
Query pds_f6_y_dk Integer Recommended how old were you when you started to menstruate? Don't know 999; 777 999 = I Don't know; 777=refuse to answer pds_f6_p_dk, pdsg_2c, pdsg_2d
Query menstrualcycle2_y_dk Integer Recommended On average, how many days are there between the first day of your period and the first day of your next period? (e.g., 30 days). Don't know 999; 777 999 = Don't know; 777= refuse to answer menstrualcycle2_p_dk
Query menstrualcycle3_y Integer Recommended Is your menstrual cycle regular? 0::3 1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrualcycle3_p
Query usingbc Integer Recommended currently using birth control 0;1;-7 0=No; 1=Yes; -7=Refused
Query menstrualcycle5_y Integer Recommended Do you experience premenstrual symptoms, such as irritability, fatigue, etc., which start before a period and stop within a few days of bleeding?
1 :: 4; 777; 999
1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrualcycle5_p, pds_p_mss_premenstrual, pds_sub_mss_premenstrual
Query menstrualcycle6_y Integer Recommended Do your premenstrual symptoms interfere with your/her relationships with family and friends, productivity, and/or social life activities?
1 :: 4; 777; 999
1 = Not at all; 2 = Mild; 3 = Moderate; 4 = Severe; 777 = Decline to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. menstrualcycle6_p, pds_p_mss_relation, pds_sub_mss_relation
Query pds_q7 Float Recommended About how much have you grown in the past six months? *Growth in inches
Query pds_q9 Float Recommended How much weight have you gained in the past six months? *Weight in pounds
Query pds_q10 Float Recommended How much weight have you lost in the past six months? *Weight in pounds
Query neuro_q8_height_cm Float Recommended Physical/Neurological Examination Question 8 Measured Height in Centimeters pds_height_now_2
Query q19_a1a Integer Recommended Height: Feet 2 :: 9; -5::-2;-9::-7;-999 Number of feet; -2= Not collected at this time point; -3= Historical missing; -4= Not collected; -5=item seen but not answered; if missing, please use -7, -8, -9; -999=data not submitted (incomplete) pds_height_now_3
Query q19_a1b Integer Recommended Height: Inches 0 :: 85; -7; -8; -9 Round to the nearest ¼ in. Field should not be left blank. If missing, please use -7,-8, -9. afhinches_1_text, amhinches_1_text, pds_height_now_4, pfhinches_1_text, pmhinches_1_text
Query neuro_q10_weight_kg Float Recommended Physical/Neurological Examination Question 10 Measured Weight in Kilograms pds_weight_now_1
anthroweight1lb String 30 Recommended Make sure shoes and unnecessary layers of clothes (jackets or hats) have been removed before taking weight measurement.) 1. Okay, make sure you empty your pockets for this next measurement. Please stand completely still in the center of the scale with your feet close together, your hands at your side, and your head looking straight ahead. Please stay as still as possible while I measure your weight. (OBTAIN & RECORD WEIGHT #1 (in lbs)) WEIGHT #1 (measured to the nearest 0.1 pounds) afw_1_text, amw_1_text, pds_weight_now_2, pfw_1_text, pmw_1_text
Query aut_prebasic_health Integer Recommended In general, how would you rate your health? 1::5 1= Poor; 2 = Fair; 3 = Good; 4 = Very good; 5 = Excellent pds_generalhealth
Query pds_height_now_1 Float Recommended How tall are you now? Specify in Meters
timept Integer Recommended Time Point 888 = not applicable; 999 = missing
pubertyg_19 Integer Recommended 19. The pictures below show different stages of how the breasts grow. A girl can go through each of the five stages shown. Please look at each of the pictures, and read the sentences. Choose the number that is closest to your state of growth. 1::5; -9999 1= The nipple is raised a little in this stage. The rest of the breast is still flat; 2= This is the breast bud stage. In this stage the nipple is raised more than in stage 1. The breast is a small mound. The areola is larger than in stage 1; 3= The areola and the breast are both larger than in stage 2. The areola does not stick out away from the breast.; 4= The areola and the nipple make up a mound that sticks up above the shape of the breast. (Note: this stage may not happen at all. Some girls develop from stage 3 to stage 5, with no stage 4; 5= This is the mature adult stage. The breasts are fully developed. Only the nipple sticks out in this stage. The areola has moved back in the general shape of the breast; -9999= Do not wish to answer pubertal_p_fb, pubertal_sub_fb
gynecological_hist_6 Integer Recommended Are your/your child's menstrual cycles regular now? In other words, is the onset of each period generally predictable within 5 days?
0;1
0 = No; 1 = Yes pds_p_mss_regular, pds_sub_mss_regular
menstrualcycle4_y Integer Recommended Are you currently using hormonal birth control (eg. the pill, hormone patch, hormone injection)?
1 ; 0 ; 2 ; 3
1 = Yes; 0 = No; 2 = Don't know; 3 = Refuse to answer; The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. pds_p_mss_bcontrol, pds_sub_mss_bcontrol
menstrualcycle2_y Float 30 Recommended On average, how many days are there between the first day of your/your child's period and the first day of your/her next period? (e.g., 30 days) 17 :: 50 If you don't know, please choose "don't know" in what follows below. pds_p_mss_average, pds_sub_mss_average
scq_24_a Integer Recommended Has a doctor ever told you that you have-Any other endocrine or hormone problem
0;1
0 = No;1 = Yes mstrl_p1c, mstrl_sub1c
midihist_029a String 250 Recommended Underactive thyroid (for instance, Hashimoto's thyroiditis) describe mstrl_p1a, mstrl_sub1a
midihist_030a String 250 Recommended Overactive thyroid (for instance, Grave's disease) describe mstrl_p1b, mstrl_sub1b
cirsg_13_endocrine_condn String 200 Recommended Describe Endocrine/metabolic and breast condition mstrl_sub1c_age
hypoage String 50 Recommended age diagnosed hypothyroidism mstrl_p1a_age, mstrl_sub1a_age
hyperage String 50 Recommended age diagnosed hyperthyroidism mstrl_p1b_age, mstrl_sub1b_age
menstrualcycle1_y String 30 Recommended What was the date of the first day of your/your child's last period? The following questions are about the history of your menstrual cycle. If you do not remember specific details, just try to answer as best you can. pds_p_mss_last, pds_sub_mss_last
pubertyg_15 String 100 Recommended 15. When was your/your child's first period? pds_p_mss_date, pds_sub_mss_date
pubertyb_18 Integer Recommended 18. The pictures below show different amounts of male pubic hair. A boy goes through each of the 5 stages as shown. Please look at each picture, and read the sentences. Choose the number of the picture that is closest to your stage of pubic hair growth. 1::5; -9999 1= There is no pubic hair at all; 2= There is a little soft= long= lightly colored hair. Most of the hair is at the base of the penis. This hair may be straight or a little curly; 3= The hair is darker in this stage. It is more curled. It has spread out and thinly covers a bigger area; 4= The hair is now as dark and curly as that of an adult man. The area that the hair covers is not as big as that of an adult man. The hair has not spread out to the legs; 5= The hair has spread out to the legs. The hair is like that of an adult man. It covers the same area as that of an adult man.; -9999= Do not wish to answer pubertal_p_mh, pubertal_sub_mh
pubertyg_20 Integer Recommended 20. The pictures below show different amounts of female pubic hair. A girl goes through each of the five stages shown. Please look at each picture, and read the sentences. Choose the number of the picture that is closest to the amount of pubic hair you have. 1::5; -9999 1= There is no pubic hair; 2= There is a little long, lightly colored hair. This may be straight or a little curly; 3= The hair is darker in this stage. It is coarser and more curled. It has spread out and thinly covers a bigger area; 4= The hair is now as dark, curly, and coarse as that of an adult woman. However, the area that the hair covers is not as large as that of an adult woman. The hair has not spread out to the legs; 5= The hair is now like that of an adult woman. It also covers the same area as that of the adult woman. The hair usually forms a triangular pattern as it spreads out to the legs.; -9999= Do not wish to answer pubertal_p_fp, pubertal_sub_fp
pubertyb_17 Integer Recommended 17. The pictures below show stages of growth of the testes, scrotum, and penis. A boy goes through each of the 5 stages as shown. Please look at each picture, and read the sentences. Choose the number of the picture that is closest to your stage of growth. 1::5; -9999 1= The testes, scrotum, and penis are about the same size and shape as they were when you were a child; 2= The testes and scrotum are bigger. The skin of the scrotum has changed. The scrotum, the sac holding the testes, has gotten lower.; 3= The penis has grown in length. The testes and scrotum have grown and dropped lower than in picture 2.; 4= The penis has gotten even bigger. It is wider. The glans (the head of the penis) is bigger. The scrotum is darker than before. It is bigger because the testes are bigger.; 5= The penis, scrotum, and testes are the shape of that of an adult man; -9999= Do not wish to answer pubertal_p_mp, pubertal_sub_mp
pds_2b String 50 Recommended How would you describe yourself physically? pds_2g
pds_2_1b Integer Recommended Describe your weight 1::6 1=Very skinny (thin); 2=Somewhat skinny (thin); 3=Average weight; 4=Somewhat overweight; 5=Very overweight; 6=Refuse pds_2.1b, pds_2_1g
pds_2_2b Integer Recommended your height for someone your age 1::6 1=Very short; 2=Somewhat short; 3=Average height; 4=Somewhat tall; 5=Very tall; 6=Refuse pds_2.2b, pds_2_2g
pds_5b Integer Recommended How do you see yourself compared to other boys/girls your age? Would you say that you: 1::4 1=Look younger than most boys/girls your age; 2=Look about average compared to other boys/girls your age; 3=Look older than most boys/girls your age; 4=Refuse pds_5g
mhx016b String 250 Recommended If YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Endocrine disorder mstrl_p1c_age
resp_source Integer Recommended Respondent Source 1::6 1= subject; 2= parent; 3= clinician; 4= teacher; 5= trainer; 6= fidelity reviewer source
comqother String 255 Recommended Respondent - Other (text)
fmc2_d Integer Recommended Days Since Last Menstrual Period pds_sincelastperiod
pregnant Integer Recommended Patient is currently pregnant 0::2;-7; 999 0=No; 1=Yes;2=DK;-7= Refused; 999=Legimately skipped pds_pregnant
visit_year Integer Recommended Year of visit
pdsm_1 Integer Recommended Would you say your growth in height...
0::3;5;999
0 = Has not yet begun to spurt or grow really fast; 1 = Has barely started; 2 = Has definitely started; 3 = Seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_male_1
pdsm_2 Integer Recommended And how about the growth of body hair? (Body hair means underarm and pubic hair) Would you say that your body hair has...
0::3;5;999
0 = Has not yet started growing; 1 = Has barely started growing; 2 = Is definitely underway; 3 = Seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_male_2
pdsm_3 Integer Recommended What about skin changes, especially pimples?
0::3;5;999
0 = Has not yet started showing changes; 1 = Have barely started showing changes; 2 = Skin changes are definitely underway; 3 = Skin changes seem completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_male_3
pdsm_4 Integer Recommended Have you noticed a deepening of your voice?
0::3;5;999
0 = Has not yet started changing; 1 = Has barely started showing any changes; 2 = Voice change is definitely underway; 3 = Voice change seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_male_4
pdsm_5 Integer Recommended Have you begun to grow hair on your face?
0::3;5;999
0 = Have not yet started growing facial hair; 1 = Have barely started growing facial hair; 2 = Facial hair growth is definitely underway; 3 = Facial hair growth seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_male_5
pdsm_6 Integer Recommended Do you think your development is any earlier or later than most other boys your age?
0::6;999
0 = Much earlier; 1 = Somewhat earlier; 2 = About the same; 4 = Somewhat later; 5 = Much later; 6= I do not know; 999 = N/A or Prefer Not to Answer pds_male_6
pdsf_1 Integer Recommended Would you say your growth in height...
0::3;5;999
0 = Has not yet begun to spurt or grow really fast; 1 = Has barely started; 2 = Has definitely started; 3 = Seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_female_1
pdsf_2 Integer Recommended And how about the growth of body hair? (Body hair means underarm and pubic hair) Would you say that your body hair has...
0::3;5;999
0 = Has not yet started growing; 1 = Has barely started growing; 2 = Is definitely underway; 3 = Seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_female_2
pdsf_3 Integer Recommended What about skin changes, especially pimples?
0::3;5;999
0 = Has not yet started showing changes; 1 = Have barely started showing changes; 2 = Skin changes are definitely underway; 3 = Skin changes seem completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_female_3
pdsf_4 Integer Recommended Have your breasts begun to grow?
0::3;5;999
0 = Have not yet started growing; 1 = Have barely started changing; 2 = Breast growth is definitely underway; 3 = Breast growth seems completed; 5= I do not know; 999 = N/A or Prefer Not to Answer pds_female_4
pdsf_5 Integer Recommended Do you think your development is any earlier or later than most other girls your age?
0::6;999
0 = Much earlier; 1 = Somewhat earlier; 2 = About the same; 4 = Somewhat later; 5 = Much later; 6= I do not know; 999 = N/A or Prefer Not to Answer pds_female_5
pdsf_6 Integer Recommended Have you begun to menstruate or get your period? 0;1;999 0 = No; 1 = Yes; 999 = N/A or Prefer Not to Answer pds_female_6
pdsf_7 Integer Recommended How old were you when you first menstruated or got your period? pds_female_6a
teen_timepoint Integer Recommended Time point 1::3 1 = Teen's approximately 13 years old; 2 = Teen's approximately 14 years old; 3 = Teen's approximately 15 years old
pds_wetdream Integer Recommended As best you can remember,?have you had?a wet dream (that is,?your first ejaculation during sleep)? 0;1 0 = No; 1 = Yes
pds_wetdreamage Integer Recommended As best you can remember, how old were you when you had your first wet dream (that is, your first ejaculation during sleep)? 0::1260 (in months)
pds_firstbra Integer Recommended Have you bought your first bra? 0::5 0 = Has not happened; 1 = Happened much earlier than my friends; 2 = Happened somewhat earlier than my friends; 3 = Happened the same as my friends; 4 = Happened somewhat later than my friends; 5 = Happened much later than my friends
ampscz_missing Integer Recommended Please click if this form is missing all of its data 0;1 0 = Not clicked; 1 = Clicked chrpds_missing
ampscz_missing_spec Integer Recommended Please specify the reason for missing data on this form 0::6 0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit chrpds_missing_spec
ampscz_entry_date Date Recommended Date of Data Entry MM/DD/YYYY chrpds_entry_date
chrpds_pds_4_p Integer Recommended Intructions: Only fill up this questionnaire if you are aged 18 or under. The following questions are about changes that may be happening to your body. These changes normally happen to different young people at different ages. Since they may have something to do with your sleep patterns, do your best to answer carefully. If you do not understand a question or do not know the answer, just mark 'I don't know'. 4. Is your body going through pubertal changes associated with the male or female sex? 1::3;-900;-300 1 = Male; 2 = Female; 3 = I don't know; -9 = Missing
sex_choice Integer Recommended This scale will ask about your pubertal development. Should you fill out the male or the female version of this form? 1;2 1= Male; 2= Female
chrpds_total_score_female_sex Integer Recommended Pubertal developmental scale: total score (female) 5::20;-900;-300 -900 = Missing; -300 = N/A; if female: chrpds_pds_1_p + chrpds_pds_2_p + chrpds_pds_3_p + chrpds_pds_f4_p + chrpds_pds_f5b_p, if male or age > 18: -300
chrpds_total_score_male_sex Integer Recommended Pubertal developmental scale: total score (male) 5::20;-900;-300 -900 = Missing; -300 = N/A; if male: chrpds_pds_1_p + chrpds_pds_2_p + chrpds_pds_3_p + chrpds_pds_m4_p + chrpds_pds_m5_p, if female or age > 18: -300
pds_underarm Integer Recommended Body hair underarm 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_pubic Integer Recommended Body hair pubic 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_cat Integer Recommended Total of items used for puberty categorization (pubic hair, voice, facial hair)
male_puberty_cat Integer Recommended Categorical puberty stage (using voice, facial hair, underarm hair, pubic hair) - Male 1::5 1 = Prepubertal; 2 = Early Puberty; 3 = Mid-pubertal; 4 = Late Puberty; 5 = Post-pubertal
female_puberty_cat Integer Recommended Categorical puberty stage (using voice, facial hair, underarm hair, pubic hair) - Female 1::5 1 = Prepubertal; 2 = Early Puberty; 3 = Mid-pubertal; 4 = Late Puberty; 5 = Post-pubertal
male_pds_tot Integer Recommended Continuous pubertal development score (using voice, facial hair, underarm hair, pubic hair) - Male
female_pds_tot Integer Recommended Continuous pubertal development score (using voice, facial hair, underarm hair, pubic hair) - Female
pds_dev Integer Recommended Early/late development 1::5 1 = Much earlier; 2 = Somewhat earlier; 3 = About the same; 4 = Somewhat later; 5 = Much later
pds_pa_voice Integer Recommended One year ago deepening of voice 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_pa_height Integer Recommended One year ago growth 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_pa_facialhair Integer Recommended One year ago growth of hair on face 1::4 1 = Not yet started; 2 = Barely started; 3 = Has enough to shave; 4 = Grows as fast as it ever will
pds_pa_bodyhair Integer Recommended One year ago body hair 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_pa_skinchanges Integer Recommended One year ago skin changes (especially pimples) 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_firstofsecondtolastperiod Date Recommended Date of start of second to last period MM/DD/YYYY
pds_pa_breasts Integer Recommended One year ago breast development 1::4 1 = Not yet started; 2 = Barely started; 3 = Definitely underway; 4 = Seems completed
pds_pa_dev Integer Recommended One year ago early/late development 1::5 1 = Much earlier; 2 = Somewhat earlier; 3 = About the same; 4 = Somewhat later; 5 = Much later
pds_daycycle Integer Recommended Day in cycle at assessment
pds_cyclelength Integer Recommended Length of previous cycle in days
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Additional Information
Training Privacy Policy Disclaimer Contact Us
External Resources
Accessibility FOIA OIG HHS Vulnerability Disclosure
NIH Logo HHS Logo USA Gov Logo
c725efb98f608e6bc0136950f08b0c3af2bde994