|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
newid, subjectid, subjectnumber |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
chrpas_interview_date, chrpreiq_interview_date, datacollecteddate, pas_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
sitenumber |
|
visit_name |
String |
20
|
Recommended |
session ID/screening ID |
|
|
visitnumber |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
timept, visitlabel |
Query
|
subjecttype |
String |
20
|
Recommended |
Subject Type |
Control;Prodromal; Enhanced; Non-Enhanced
|
|
|
Query
|
pmod_child1 |
Integer |
|
Recommended |
Childhood (age under 11): Sociability and withdrawal |
|
0=Not withdrawn; 2=Mild withdrawal; 4=Moderately withdrawn; 6=Unrelated to others, withdrawn and isolated, avoids contacts; 9=NA; -900 = Missing
|
chrpas_pmod_child1, pas_c1, pasa1 |
Query
|
pmod_child2 |
Integer |
|
Recommended |
Childhood (age under 11): Peer relationships |
|
0=Many friends (+5), close relationships with several; 1=2-5 friends; 2=Close relationships with a few friends (1 or 2), causal friendships with others; 3=Only causal friends; 4=Deviant/unusual friendship patterns; 6=Social isolate, no friends; 9=NA; -900 = Missing
|
chrpas_pmod_child2, pas_c2, pasa2 |
Query
|
pmod_child3 |
Integer |
|
Recommended |
Childhood (age under 11): Scholastic performance |
|
0=Excellent student (straight A's); 1=A's and B's; 2=Good student (B's); 3=Average student (B's and C's); 4=Fair student (C's); 5=D's-Failing some classes; 6=Failing all classes; 9=NA
|
chrpas_pmod_child3, pas_c3, pasa3 |
Query
|
pmod_child4 |
Integer |
|
Recommended |
Childhood (age under 11): Adaptation to school |
|
0=Good adaption, enjoys school, no or rare discipline problems, has friends at school, likes most teachers; 1=Likes school, few discipline problems; 2=Fair adaption, occasional discipline problems, not very interested in school; 3=Sometimes truant;4=Poor adaption, dislikes school, frequent truancy, frequent discipline problem; 5=Expelled from school; 6=Refuses to have anything to do with school- delinquency or vandalism directed against school; 9=NA; -900 = Missing
|
chrpas_pmod_child4, pas_c4, pasa4 |
Query
|
pmod_child_sum |
Integer |
|
Recommended |
Childhood: Sum |
0::24
|
|
|
Query
|
pmod_child_sub |
Float |
|
Recommended |
Childhood subtotal = ((questions 1+2+3+4)/24) |
|
-900 = Missing; -300 = N/A
|
chrpas_childhood_subtotal, ctotalpasa, pas_ctotal |
Query
|
pmod_adol_early1 |
Integer |
|
Recommended |
Adolescence Early (ages 12-15): Sociability and withdrawal |
|
0=Not withdrawn; 2=Mild withdrawal; 4=Moderately withdrawn; 6=Unrelated to others, withdrawn and isolated, avoids contacts; 9=NA; -900 = Missing
|
chrpas_pmod_adol_early1, pas1_1a, pas_ea1, pasb1 |
Query
|
pmod_adol_early2 |
Integer |
|
Recommended |
Adolescence Early (ages 12-15): Peer relationships |
|
0=Many friends (+5), close relationships with several; 1=2-5 friends; 2=Close relationships with a few friends (1 or 2), causal friendships with others; 3=Only causal friends; 4=Deviant/unusual friendship patterns; 6=Social isolate, no friends; 9=NA; -900 = Missing
|
chrpas_pmod_adol_early2, pas1_2a, pas_ea2, pasb2 |
Query
|
pmod_adol_early3 |
Integer |
|
Recommended |
Adolescence Early (ages 12-15): Scholastic performance |
|
0=Excellent student (straight A's); 1=A's and B's; 2=Good student (B's); 3=Average student (B's and C's); 4=Fair student (C's); 5=D's-Failing some classes; 6=Failing all classes; 9=NA
|
chrpas_pmod_adol_early3, pas2_1a, pas_ea3, pasb3 |
Query
|
pmod_adol_early4 |
Integer |
|
Recommended |
Adolescence Early (ages 12-15): Adaptation to school |
|
0=Good adaption, enjoys school, no or rare discipline problems, has friends at school, likes most teachers; 1=Likes school, few discipline problems; 2=Fair adaption, occasional discipline problems, not very interested in school; 3=Sometimes truant;4=Poor adaption, dislikes school, frequent truancy, frequent discipline problem; 5=Expelled from school; 6=Refuses to have anything to do with school- delinquency or vandalism directed against school; 9=NA; -900 = Missing
|
chrpas_pmod_adol_early4, pas2_2a, pas_ea4, pasb4 |
Query
|
pmod_adol_early5 |
Integer |
|
Recommended |
Adolescence Early (ages 12-15): Social-sexual aspect of life |
|
0=Started dating, showed a 'healthy interest' in the opposite sex, may have 'gone steady,' may include some sexual activity; 1=Attachment and interest in others, may be same-sex attachments, may be a member of a group, interested in the opposite sex, although may not have close, emotional relationship with someone of the opposite sex, 'crushes' and flirtations;2=Consistent deep interest in same-sex attachments with restricted or no interest in the opposite sex; 3=Casual same-sex attachments with inadequate attempts at relationships with the opposite sex. Casual contacts with both sexes; 4=Casual contacts with the same sex, no interest in the opposite sex; 5=A loner, no or rare contacts with either boys or girls; 6=Antisocial, avoids and avoided by peers; 9 = NA; -900 = Missing
|
chrpas_pmod_adol_early5, pas3_1, pas_ea5, pasb5 |
Query
|
pmod_adol_earlysum |
Integer |
|
Recommended |
Adolescence Early: Sum |
0::30
|
|
|
Query
|
pmod_adol_earlysub |
Float |
|
Recommended |
Adolescence Early: subtotal = ((questions 1+2+3+4+5)/30) |
|
-900 = Missing; -300 = N/A
|
chrpas_early_adolescence_subtotal, ctotalpasb, earlyadolescent_score, pas_eatotal |
Query
|
pmod_adol_late1 |
Integer |
|
Recommended |
Adolescence Late (ages 16-18): Sociability and withdrawal |
|
0=Not withdrawn; 2=Mild withdrawal; 4=Moderately withdrawn; 6=Unrelated to others, withdrawn and isolated, avoids contacts; 9=NA; -900 = Missing
|
chrpas_pmod_adol_late1, pas1_1b, pas_la1, pasc1 |
Query
|
pmod_adol_late2 |
Integer |
|
Recommended |
Adolescence Late (ages 16-18): Peer relationships |
|
0=Many friends (+5), close relationships with several; 1=2-5 friends; 2=Close relationships with a few friends (1 or 2), causal friendships with others; 3=Only causal friends; 4=Deviant/unusual friendship patterns; 6=Social isolate, no friends; 9=NA; -900 = Missing
|
chrpas_pmod_adol_late2, pas1_2b, pas_la2, pasc2 |
Query
|
pmod_adol_late3 |
Integer |
|
Recommended |
Adolescence Late (ages 16-18): Scholastic performance |
|
0=Excellent student (straight A's); 1=A's and B's; 2=Good student (B's); 3=Average student (B's and C's); 4=Fair student (C's); 5=D's-Failing some classes; 6=Failing all classes; 9=NA
|
chrpas_pmod_adol_late3, pas2_1b, pas_la3, pasc3 |
Query
|
pmod_adol_late4 |
Integer |
|
Recommended |
Adolescence Late (ages 16-18): Adaptation to school |
|
0=Good adaption, enjoys school, no or rare discipline problems, has friends at school, likes most teachers; 1=Likes school, few discipline problems; 2=Fair adaption, occasional discipline problems, not very interested in school; 3=Sometimes truant;4=Poor adaption, dislikes school, frequent truancy, frequent discipline problem; 5=Expelled from school; 6=Refuses to have anything to do with school- delinquency or vandalism directed against school; 9=NA; -900 = Missing
|
chrpas_pmod_adol_late4, pas2_2b, pas_la4, pasc4 |
Query
|
pmod_adol_late5 |
Integer |
|
Recommended |
Adolescence Late (ages 16-18): Social-sexual aspect of life |
|
0=Always showed a 'healthy interest' in the opposite sex, dating, has gone 'steady,' has engaged in some sexual activity; 1= Dated regularly; 2=Always mixed closely with boys and girls; 3=Consistent deep interest in same-sex attachments with restricted or no interest in the opposite sex; 4= Casual same-sex attachments with inadequate attempts at adjustment to going out with the opposite sex. Casual contacts with both sexes; 5=Casual contacts with the same sex, with a lack of interest in the opposite sex. Occasional contacts with the opposite sex; 6=No desire to be with boys and girls, never went out with the opposite sex.; 9 = NA; -900 = Missing
|
chrpas_pmod_adol_late5, pas3_2, pas_la5, pasc5 |
Query
|
pmod_adol_latesum |
Integer |
|
Recommended |
Adolescence Late: Sum |
|
|
|
Query
|
pmod_adol_latesub |
Float |
|
Recommended |
Adolescence Late: subtotal = ((questions 1+2+3+4+5)/30) |
|
-900 = Missing; -300 = N/A
|
chrpas_late_adolescence_subtotal, ctotalpasc, lateadolescent_score, pas_latotal |
Query
|
pmod_adult1 |
Integer |
|
Recommended |
Adult (age 19+): Sociability and withdrawal |
|
0=Not withdrawn; 2=Mild withdrawal; 4=Moderately withdrawn; 6=Unrelated to others, withdrawn and isolated, avoids contacts; 9=NA; -900 = Missing
|
chrpas_pmod_adult1, pas1_1c, pas_a1, pasd1 |
Query
|
pmod_adult2 |
Integer |
|
Recommended |
Adult (age 19+): Peer relationships |
|
0=Many friends (+5), close relationships with several; 1=2-5 friends; 2=Close relationships with a few friends (1 or 2), causal friendships with others; 3=Only causal friends; 4=Deviant/unusual friendship patterns; 6=Social isolate, no friends; 9=NA; -900 = Missing
|
chrpas_pmod_adult2, pas1_2c, pas_a2, pasd2 |
Query
|
pmod_adult3a |
Integer |
|
Recommended |
A. Adult (age 19+): Married presently or formerly |
|
0=Married, only one marriage, adequate sexual relations; 1=Currently married with low sexual drive and/or Married more than one time, currently remarried; 2=Married or divorce and remarried, chronically inadequate sex life and/or Married and separated or divorced without remarriage, but maintained a home in one marriage for at least 3 years; 3=Same as above but divorce occurred over 3 years ago and while married maintained a home for less than 3 years; 9 = NA; -900 = Missing
|
chrpas_pmod_adult3v1, pas3_3a, pas_adultsexualv1 |
Query
|
pmod_adult3b |
Integer |
|
Recommended |
B. Adult (age 19+): Never Married, over 30 |
2::6;9
|
2=Has been engaged one or more times or has had a long-term relationship; 3=Long-term relationship lasting over 6 months but less than 2 years; 4=Brief or short-term dating experiences; 5=Sexual or social relationships rare; 6=Minimal sexual or social interest, isolated; 9=NA
|
pas3_3b, pas_adultsexualv2 |
Query
|
pmod_adult3c |
Integer |
|
Recommended |
C. Adult (age 19+): Never Married, age 19-29 |
|
0=Has had at least one long-term love affair or engagement; 1=Has dated actively, no long-term relationships; 3=Brief or short-term dating experiences; 4=Casual sexual or social relationships; 5=Sexual and/or social relationships rare; 6=Minimal sexual or social interest, isolated; 9 = NA; -900 = Missing
|
chrpas_pmod_adult3v3, pas3_3c, pas_adultsexualv3 |
Query
|
pmod_adult3 |
Integer |
|
Recommended |
Adult: Aspects of adult social sexual-life (only score one --A, B, or C) |
0::6;9
|
Transcribe only one score from A, B, or C
|
pasd3 |
Query
|
pmod_adult_sum |
Integer |
|
Recommended |
Adult: sum |
|
|
pas_a3 |
Query
|
pmod_adult_sub |
Float |
|
Recommended |
Adult: subtotal =((questions 1+2+3)/18) |
|
-900 = Missing; -300 = N/A
|
adult_score, chrpas_adulthood_subtotal, ctotalpasd, pas_atotal |
Query
|
pmod_total |
Float |
|
Recommended |
Premorbid Total =((Subtotal of completed items/number of completed items)) |
|
|
ctotalpastotal, general_score |
Query
|
dataquality |
Integer |
|
Recommended |
Data quality |
0::5
|
0=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
|
|
Query
|
elig_inclusion_check |
Integer |
|
Recommended |
Checks for a pass/fail on Elig for Inclusion |
0::3
|
0=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
|
|
Query
|
pas4_1 |
Integer |
|
Recommended |
GENERAL: Education |
0::6
|
0 = Grad college;1 = Some college;2 = Grad HS;4 = Grade 8th grade;6 = < or equal to 5th grade"}
|
pas_g1 |
Query
|
pas4_2 |
Integer |
|
Recommended |
GENERAL: Before becoming ill, work or school |
0::6
|
0 = All the time;2 = Half the time;4 = 25% time;6 = Never
|
|
Query
|
pas4_3 |
Integer |
|
Recommended |
GENERAL: Change in school or work performance occurred |
0::6
|
0 = Abruptly;2 = Within 3 mos;4 = Within 6 mos;6 = Imperceptibly
|
|
Query
|
pas4_4 |
Integer |
|
Recommended |
GENERAL: Frequency of job change/interruption in school attendance |
0::6
|
0 = Same job/school;2 = 2-3 interruptions;4 = 8 mos - 1 yr;6 = < 2 weeks
|
|
Query
|
pas4_5 |
Integer |
|
Recommended |
GENERAL: Establishment of independence |
0::6
|
0 = Success;2 = Pay parents;4 = Parents pay;6 = No attempt
|
pas_g5 |
Query
|
pas4_6 |
Integer |
|
Recommended |
GENERAL: Global Assessment of highest level of functioning achieved in patients life |
0::6
|
0 = Full function;2 = Prob in 1 area;4 = Min success;6 = No function
|
pas_g6 |
Query
|
pas4_7 |
Integer |
|
Recommended |
GENERAL: Social-Personal Adjustment at highest level of functioning achieved in patients life |
0::6
|
0 = Leader;1 = Active/interested;2 = Nominal;3 = Few friends;4 = No friends;5 = Seclusive;6 = Asocial/ antisocial
|
pas_g7 |
Query
|
pas4_8 |
Integer |
|
Recommended |
GENERAL: Degree of interest in life at highest level of functioning achieved in patients life |
0::6
|
0 = Keen;2 = Moderate;4 = Mild;6 = Withdrawn
|
pas_g8 |
Query
|
pas4_9 |
Integer |
|
Recommended |
GENERAL: Energy Level at highest level of functioning achieved in patients life |
0::6
|
0 = Strong;2 = Adequate;4 = Inadequate;6 = Passive
|
pas_g9 |
Query
|
pas1score |
Integer |
|
Recommended |
RELIABILITY: Social Functioning |
1::3
|
1 = Good;2 = Fair;3 = Unreliable
|
|
Query
|
pas2score |
Integer |
|
Recommended |
RELIABILITY: School Functioning |
1::3
|
1 = Good;2 = Fair;3 = Unreliable
|
|
Query
|
pas3score |
Integer |
|
Recommended |
RELIABILITY: Social-Sexual Functioning |
1::3
|
1 = Good;2 = Fair;3 = Unreliable
|
|
Query
|
pas4score |
Integer |
|
Recommended |
RELIABILITY: General |
1::3
|
1 = Good;2 = Fair;3 = Unreliable
|
|
Query
|
daysbaseline |
Integer |
|
Recommended |
|
|
|
paswtardays |
Query
|
rate_age |
Integer |
|
Recommended |
Rating up to age ___ (participant's functioning up to 6 months before the age of onset) |
|
|
|
Query
|
pas_adultsexualstatus |
Integer |
|
Recommended |
Is the participant now or ever been married? |
0::2
|
0= Yes; 1= Never married and over 30 years old; 2= Never married, age 19-29 years old
|
|
Query
|
pas_g2 |
Integer |
|
Recommended |
Employment and school during a period of 6 months to 3 years before the onset of first episode |
0::6
|
|
|
Query
|
pas_g3 |
Integer |
|
Recommended |
Change in work or school performance within a period of 1 year or up to 6 months before onset of first episode |
0::6
|
|
|
Query
|
pas_g4 |
Integer |
|
Recommended |
Job or school change during a period of 3 years to 6 months before the onset of first episode |
0::6
|
|
|
Query
|
pas_scoringage |
Integer |
|
Recommended |
What is the section which is equivalent to 1 year prior to the age of onset? |
0::3
|
0= Childhood (ages 6-11); 1= Early Adolescence (ages 12-15); 2= Late Adolescence (ages 16-18) 3= Adulthood (19 and above)
|
|
Query
|
pas_gtotal |
Integer |
|
Recommended |
General Total |
|
|
|
Query
|
pas_totalavgscorec |
Float |
|
Recommended |
Total Average Score Childhood |
|
|
|
Query
|
pas_totalavgscoreea |
Float |
|
Recommended |
Total Average Score Early Adolescence |
|
|
|
Query
|
pas_totalavgscorela |
Float |
|
Recommended |
Total Average Score Late Adolescence |
|
|
|
Query
|
pas_totalavgscorea |
Float |
|
Recommended |
Total Average Score Adulthood |
|
|
|
Query
|
pas_totalaverageall |
Float |
|
Recommended |
Total Score |
|
|
|
Query
|
assessment_complete |
Integer |
|
Recommended |
Complete? |
0::2
|
0=Incomplete; 1=Unverified; 2=Complete
|
|
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
ampscz_missing |
Integer |
|
Recommended |
Please click if this form is missing all of its data |
0;1
|
0 = Not clicked; 1 = Clicked
|
chrpas_missing, chrpreiq_missing |
|
ampscz_missing_spec |
Integer |
|
Recommended |
Please specify the reason for missing data on this form |
0::6
|
0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit
|
chrpas_missing_spec, chrpreiq_missing_spec |
|
ampscz_entry_date |
Date |
|
Recommended |
Date of Data Entry |
|
MM/DD/YYYY
|
chrpas_entry_date, chrpreiq_entry_date |
|
chrpreiq_reading_task |
Integer |
|
Recommended |
Which reading task was administered? |
1::5;-900;-300
|
1 = WRAT5; 2 = Dutch NART; 3 = Danish NART; 4 = French NART; 5 = Spanish TAP; -900 = Missing; -300 = N/A
|
|
|
chrpreiq_total_raw |
Integer |
|
Recommended |
Total raw score |
|
-900 = Missing; -300 = N/A
|
|
|
chrpreiq_standard_score |
Integer |
|
Recommended |
Standardized score (estimated premorbid IQ) |
|
-900 = Missing; -300 = N/A
|
|
|
chrpas_total_score_only_chldhd |
Float |
|
Recommended |
PAS: Only Childhood |
|
-900 = Missing; -300 = N/A; chrpas_childhood_subtotal
|
chrpas_total_score_only_childhood |
|
chrpas_total_upto_early_adoles |
Float |
|
Recommended |
PAS: Up to early adolescence |
|
-900 = Missing; -300 = N/A; (chrpas_childhood_subtotal + chrpas_early_adolescence_subtotal)/2
|
chrpas_total_score_upto_early_adolescence |
|
chrpas_total_upto_late_adoles |
Float |
|
Recommended |
PAS: Up to late adolescence |
|
-900 = Missing; -300 = N/A; (chrpas_childhood_subtotal + chrpas_early_adolescence_subtotal + chrpas_late_adolescence_subtotal)/3
|
chrpas_total_score_upto_late_adolescence |
|
chrpas_total_upto_adulthood |
Float |
|
Recommended |
PAS: Up to Adulthood |
|
-900 = Missing; -300 = N/A; (chrpas_childhood_subtotal + chrpas_early_adolescence_subtotal + chrpas_late_adolescence_subtotal + chr_adulthood_subtotal)/4
|
chrpas_total_score_upto_adulthood |