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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Quality of Life

3,528 Shared Subjects

Quality of Life
Clinical Assessments
Quality of Life
05/08/2014
qol01
03/18/2024
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project CATIEID, bid, id, newid, record_id, subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY qls_doa
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_months, dema1
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported dema2, gender
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query visit String 60 Recommended Visit name assessment_number, timept
Query truncvis Integer Recommended Truncated Visit Number Created variable: provides a numeric visit number for all visits, including unscheduled and end of phase
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
Query visday Integer Recommended Number of days from study baseline to date of visit qlrdidays
Query qol01a Integer Recommended Currently live with parent 0;1 1=yes; 0=no
Query qol01b Integer Recommended Currently live with a spouse/girlfriend/boyfriend 0;1 1=yes; 0=no
Query qol01c Integer Recommended Currently live with a sibling 0;1 1=yes; 0=no
Query qol01d Integer Recommended Currently live with a son or daughter 0;1 1=yes; 0=no
Query qol01e Integer Recommended Currently live with other relatives 0;1 1=yes; 0=no
Query qol01f Integer Recommended Currently live with other people not related and not friends 0;1 1=yes; 0=no
Query qol01g Integer Recommended Lives alone 0;1 1=yes; 0=no
Query qol02 Integer Recommended 2. Intimate relationship with household members 0::6; 9 0 =Virtually no intimacy; 2=Only sparse and intermittent intimate interactions; 4=Some consistent intimate interactions but reduced in extent or intensity; or intimacy only present erratically; 6=Adequate involvement in intimate relations with household members or immediate family; 9=Score here if lives alone and no immediate family nearby house_relat, qls1_household
Query qol03 Integer Recommended 3. Intimate relationships 0::6 0=Virtually Absent; 2=Only sparse intermittent relations; 4=Some consistent intimate relations but reduced in number or intensity; or intimacy only present erratically; 6=Adequate involvement with intimate relationships with more than one other person outside_relat, qls2_friends
Query qol04 Integer Recommended 4. Active acquaintances 0::6 0=Virtually absent; 2=Few active acquaintances and only infrequent contact;4=Some ongoing active acquaintances but reduced contact and limited shared activity;6=Adequate involvement with active acquaintances active_aquaint, qls3_acquaintances
Query qol05 Integer Recommended 5. Level of social activity 0::6 0=Virtually absent; 2=Occasional social activity but lack of regular pattern of such activity, or limited only to activity with immediate family or members of household; 4=Some regular social activity but reduced in frequency or diversity; 6=Adequate level of regular social activity qls4_social_activity, social_activity
Query qol06 Integer Recommended 6. Involved social network 0::6 0=Virtually absent; 2=Minimal in number or degree of involvement, and/or limited to immediate family; 4=Presence of some involved social network but reduced in number or degree of involvement;6=Adequate involved social network in both extent and in degree of involvement qls5_social_network, social_network
Query qol07 Integer Recommended 7. Social initiatives 0::6 0=Social activity almost completely dependent on initiatives of others; 2=Occasional social initiative, but social life significantly impoverished due to his/her pattern of social passivity, or initiative limited to immediate family; 4=Evidence of some reduction of social initiative, but with only minimal adverse consequences on his/her social activity; 6=Adequate social initiative qls6_social_initiatives, social_initiative
Query qol08 Integer Recommended 8. Social withdrawal 0::6 0=Active avoidance of virtually all social contact; 2=Tolerates that social contact required for meeting other needs, but very little social contact for its own sake, or lack of withdrawal only with immediate family; 4=Some satisfying and enjoyable social engagement, but reduced due to avoidance; 6=No evidence of significant social withdrawal qls7_social_withdrawal, social_wthdrwl
Query qol09 Integer Recommended 9. Sociosexual relations 0::6 0 =No interest in opposite sex, or active avoidance; 2=Some limited contact with opposite sex but superficial with avoidance of intimacy; or sexual activity as just physical release without emotional involvement; or relationships marked by severe and chronic disruption, dissatisfaction, or affective chaos; 4=Relationships with some intimacy and emotional investment, predominantly satisfying, and perhaps some sexual expression or physical signs of affection; 6=Usually has satisfying relationships, emotionally rich and intimate and appropriate sexual expression and physical signs of expression qls8_social_relations, sexual_relat
Query qol10 Integer Recommended 10. Extent of occupational role function 0::6 0=Virtually no role functioning; 2=Less than halftime; 4=Halftime or more, but less than full-time; 6=Full time or more occup_relat, qls9_extent
Query qol11 Integer Recommended 11. Level of accomplishment 0::6 0=Attempting no role function or performing at level so poor as to imminently threaten the ability to continue in that role; 2=Functioning just well enough to keep position with very low level of accomplishment; 4=Generally adequate functioning; 6=Very good functioning with evidence of new or progressive accomplishments and/or very good functioning in some areas accomplish, qls10_adequacy
Query qol12 Integer Recommended 12. Degree of underemployment 0::6 0=Almost complete failure to actualize potentials; 2=Significant underemployment of abilities or unemployed but looking for work actively; 4=Somewhat below the person's capacity; 6=Role functioning commensurate with person¿s abilities and opportunities qls11_underemployment, underemploy
Query qol13 Integer Recommended 13. Satisfaction with occupational funct 0::6; 9 0 =Pervasive unhappiness and dissatisfaction with occupational role;2=Little or no definite evidence of unhappiness or dissatisfaction, but role does not provide any positive pleasure or fulfillment. Perhaps boredom is evident; 4=Little or no discontent and some limited pleasure in work; 6=Rather consistent sense of fulfillment and satisfaction, perhaps in spite of some limited complaints; 9=Not applicable if patient not involved in any occupational role functioning job_satisf, qls12_satisfaction
Query qol14 Integer Recommended 14. Sense of purpose 0::6 0=No plans, or plans are bizarre, delusional, or grossly unrealistic; 2=Has plans, but they are vague, somewhat unrealistic, poorly integrated with one another, or of little consequence to the person's life; 4=Realistic and concise plans for next year or so but little integration into long-range life plan; 6=Realistic, concise, and integrated plans, both short- and long-range purpose, qls13_sense_of_purpose
Query qol15 Integer Recommended 15. Degree of motivation 0::6 0= Lack of motivation significantly interferes with basic routine; 2=Able to meet basic maintenance demands of life, but lack of motivation significantly impairs any progress or new accomplishments; 4=Able to meet routine demands of life and some new accomplishment, but lack of motivation results in significant under-achievement in some areas; 6=No evidence of significant lack of motivation motivation, qls14_motivation
Query qol16 Integer Recommended 16. Curiosity 0::6 0 =Very little curiosity or interest in new topics or events; 2=Some sporadic curiosity, but not pursued in thought or action; 4=Some curiosity and time spent thinking about topics or interest and some actual effort to learn more about them; 6=Curiosity about a number of topics and effort to learn more about some of them such as reading, asking questions, and planned observation curiosity, qls15_curiosity
Query qol17 Integer Recommended 17. Anhedonia 0::6 0=Nearly complete inability to experience pleasure or humor; 2=Some sporadic and limited experiences of pleasure or humor but a predominant lacking of these capacities; 4=Some regular experiences of pleasure and humor but reduced in extent and intensity; 6=No evidence of anhedonia or can be explained completely by concurrent depression or anxiety anhedonia, qls16_anhedonia
Query qol18 Integer Recommended 18. Time utilization 0::6 0=Spends the vast majority of his/her day in aimless activity; 2=Spends about half of his/her days in aimless activity; 4=Some excessive aimless inactivity but less than half his/her day; 6=No excessive aimless inactivity beyond the normal amount required for relaxation qls17_timeutilisation, time_utility
Query qol19 Integer Recommended 19. Commonplace objects 0::6 0=Absence of nearly all commonplace objects (0 items); 2=Major deficit of commonplace objects (3-4 items); 4=Moderate deficit (7-8 items); 6=Little or no deficit (11-12 items) common_obj, qls18_objects
Query qol20 Integer Recommended 20. Commonplace activities 0::6 0=Absence of nearly all activities ( 0 items); 2=Major deficit (3-4 items); 4=Moderate deficit (7-8 items); 6=Little or no deficit (11-12 items) common_act, qls19_activities
Query qol21 Integer Recommended 21. Capacity for empathy 0::6 0=Shows no capacity to consider the views and feelings of others; 2=Shows little capacity to consider the views and feelings of others; 4=He/she can consider other people¿s views and feelings but tends to be caught up in his/her own world; 6=He/she spontaneously considers the other person¿s situation in most instances, can intuit the other person¿s affective responses, and uses this knowledge to adjust his own responses empathy, qls20_empathy
Query qol22 Integer Recommended 22. Capacity for engagement and interact 0::6 0=Interviewer feels virtually ignored with essentially no sense of engagement, with very little reactivity; 2=Very limited engagement; 4=Engagement somewhat limited or present erratically; 6=Consistently good engagement and reactivity interv_rapport, qls21_interaction
Query qol23a Integer Recommended 23a. Shopping 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol23b Integer Recommended 23b. Go to restaurant/coffee shop 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol23c Integer Recommended 23c. Prepare meal 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol23d Integer Recommended 23d. Hobby 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol24a Integer Recommended 24a. Wash two or more times 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol24b Integer Recommended 24b. Clean room/apartment 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol24c Integer Recommended 24c. Do own laundry 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol24d Integer Recommended 24d. Help with chores 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol25a Integer Recommended 25a. Spend time with one or more family 0::3 0 = At least once a day; 1 = At least once a week; 2 = At least once;3 = Not at all
Query qol25b Integer Recommended 25b. Feel listened to 1::3 1 = Most of the time; 2 = Some; 3 = Hardly ever
Query qol25c Integer Recommended 25c. Close friends who are not family me 0;1 0=No; 1=Yes
Query qol25d Integer Recommended 25d. Do anything with these close friend 1::4 1 = At least once a day; 2 = At least once a week; 3 = At least once; 4 = Not at all
Query qol25e Integer Recommended 25e. Visit with someone not living with 1::4 1 = Once a day; 2 = Once a week; 3 = Once; 4 = Not at all
Query qol25f Integer Recommended 25f. Do something with another person that you planned ahead of time 1::4 1 = Once a day; 2 = Once a week; 3 = Once; 4 = Not at all
Query qol25g Integer Recommended 25g. Spend time with boyfriend/girlfriend 1::4 1 = Once a day; 2 = Once a week; 3 = Once; 4 = Not at all
Query qol25h Integer Recommended 25h. Someone who helps with mental treatment 0;1 0=No; 1=Yes fsta1
Query qol25ia Integer Recommended 25i. Who helps you? spouse/boyfriend/girlfriend 0;1 0=No; 1=Yes fsta1a
Query qol25ib Integer Recommended Who helps you? Parent/grandparent 0;1 0=No; 1=Yes fsta1b
Query qol25ic Integer Recommended Who helps you? Sibling 0;1 0=No; 1=Yes fsta1c
Query qol25id Integer Recommended Who helps you?Other relative 0;1 0=No; 1=Yes fsta1d
Query qol25ie Integer Recommended Who helps you? Friend 0;1 0=No; 1=Yes fsta1e
Query qol25if Integer Recommended Who helps you? Other 0;1 0=No; 1=Yes fsta1f
Query qol25ig Integer Recommended Who helps you? No one 0;1 0=No; 1=Yes
Query qol25j1 Integer Recommended 25j1. Remind you of appointments 0::2 0 = No; 1 = Yes; 2 = No opportunity fsta2a
Query qol25j2 Integer Recommended 25j2. Take you to appointments 0::2 0 = No; 1 = Yes; 2 = No opportunity fsta2b
Query qol25j3 Integer Recommended 25j3. Remind you to take medication 0::2 0 = No; 1 = Yes; 2 = No opportunity fsta2c
Query qol25j4 Integer Recommended 25j4. Give you medication to take 0::2 0 = No; 1 = Yes; 2 = No opportunity fsta2d
Query qol26a Integer Recommended 26a. Independent living 0;1 0=No; 1=Yes fsta3a
Query qol26aa Integer Recommended 26aa. Days fsta3a1
Query qol26b Integer Recommended 26b. Minimally structured residence 0;1 0=No; 1=Yes fsta3b
Query qol26ba Integer Recommended 26ba. Days fsta3b1
Query qol26c Integer Recommended 26c. Moderately restrictive residence 0;1 0=No; 1=Yes fsta3c
Query qol26ca Integer Recommended 26ca. Days fsta3c1
Query qol26d Integer Recommended 26d. Extremely restrictive residence 0;1 0=No; 1=Yes fsta3d
Query qol26da Integer Recommended 26da. Days fsta3d1
Query qol26e Integer Recommended 26e. Homeless 0;1 0=No; 1=Yes fsta3e
Query qol26ea Integer Recommended 26ea. Days fsta3e1
Query qol27a Integer Recommended 27a. Attend college full or part time 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol27b Integer Recommended 27b. Work on GED 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query qol27c Integer Recommended 27c. Formal worksite/vocational training 0::2; 9 0 = No; 1 = Yes; 2 = No opportunity; 9=missing
Query qol28a Integer Recommended 28a. Competitive vocational activity 0;1 0=No; 1=Yes
Query qol28b Integer Recommended 28b. Substantial vocational activity 0;1 0=No; 1=Yes
Query qol28c Integer Recommended 28c. Moderate vocational activity 0;1 0=No; 1=Yes fstafc
Query qol28d Integer Recommended 28d. Prevocational activity 0;1 0=No; 1=Yes fsta4d
Query qol28e Integer Recommended 28e. No vocational activity 0;1 0=No; 1=Yes fsta4e
Query qol29a Integer Recommended 29a. violent crime 0;1 0=No; 1=Yes fsta5a
Query qol29b Integer Recommended 29b. non-violent crime 0;1 0=No; 1=Yes fsta5b
Query qol29c Integer Recommended 29c. arrest or picked up for any crime 0;1 0=No; 1=Yes fsta5c
Query qol29d Integer Recommended 29d. spend any nights in jail 0;1 0=No; 1=Yes fsta5d
Query qol30a Integer Recommended 30a. food 0;1 0=No; 1=Yes
Query qol30b Integer Recommended 30b. clothing 0;1 0=No; 1=Yes
Query qol30c Integer Recommended 30c. housing 0;1 0=No; 1=Yes
Query qol30d Integer Recommended 30d. transportation 0;1 0=No; 1=Yes
Query qol31 Integer Recommended 31. How do you feel about your life in g 1::7 1 = Terrible; 2 = Unhappy; 3 = Mostly dissatisfied; 4 = Mixed; 5 = Mostly satisfied; 6 = Pleased;7 = Delighted fsta6, ql1
Query intr_rel Float Recommended Interpersonal Relations Subscale 20% missing data rule applied: Mean of QOL02 (QOL02 values of 9 are set to missing), QOL03, QOL04, QOL05, QOL06, QOL07, QOL08, QOL09 qls_factor_interpersonal
Query inst_rol Float Recommended Instrumental Role Subscale 20% missing data rule applied: Mean of QOL10, QOL11, QOL12, QOL13 (QOL13 values of 9 are set to missing) qls_factor_instrumental_role
Query intr_fou Float Recommended Intrapsychic Foundations Subscale 20% missing data rule applied: Mean of QOL14, QOL15, QOL16, QOL17, QOL18, QOL21, QOL22 qls_factor_intrapsychic
Query com_obj Float Recommended Common Objects and Activities Subscale 20% missing data rule applied: Mean of QOL19, QOL20 qls_factor_comm_obj_activities
Query qol_tot Float Recommended QOL Total Score by Mean of 21 items 20% missing data rule applied: Mean of QOL02_C, QOL03, QOL04, QOL05, QOL06, QOL07, QOL08, QOL09, QOL10, QOL11, QOL12, QOL13_C, QOL14, QOL15, QOL16, QOL17, QOL18, QOL19, QOL20, QOL21, QOL22 (QOL02 and QOL13 values of 9 are set to missing) overall_total, qls_total
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query b1_qol Float Recommended Phase 1 Baseline QOL Total Score value for assessment at phase-specific baseline; retained across all records for that assessment.
Query b1_qrel Float Recommended Phase 1 Baseline QOL Interpersonal Relation value for assessment at phase-specific baseline; retained across all records for that assessment.
Query b1_qins Float Recommended Phase 1 Baseline QOL Instrumental Role Score value for assessment at phase-specific baseline; retained across all records for that assessment.
Query b1_qpsy Float Recommended Phase 1 Baseline QOL Intrapsychic Foundation value for assessment at phase-specific baseline; retained across all records for that assessment.
Query b1_qobj Float Recommended Phase 1 Baseline QOL Common Objects and Activities value for assessment at phase-specific baseline; retained across all records for that assessment.
Query c1_qol Float Recommended Phase 1 CFB QOL Total Score Change from Phase 1/1A baseline
Query c1_qrel Float Recommended Phase 1 CFB QOL Interpersonal Relations Change from Phase 1/1A baseline
Query c1_qins Float Recommended Phase 1 CFB QOL Instrumental Role Score Change from Phase 1/1A baseline
Query c1_qpsy Float Recommended Phase 1 CFB QOL Intrapsychic Foundations Change from Phase 1/1A baseline
Query c1_qobj Float Recommended Phase 1 CFB QOL Common Objects and Activities Change from Phase 1/1A baseline
Query visitday Integer Recommended day of visit ftsa0b
Query fseqno Integer Recommended Sequence Number 0::999 The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
version_form String 121 Recommended Form used/assessment name vers
Query daysrz Integer Recommended days since randomization iwqa0b
Query bliwqlpf Float Recommended Baseline IWQOL Physical Function Score 0::100
Query iwql_pf Float Recommended IWQOL-Physical Function Score 0::100
Query chiwqlpf Float Recommended Change from baseline in IWQOL Physical Function Score -100::100
Query bliwqlse Float Recommended Baseline IWQOL Self Esteem Score 0::100
Query iwql_se Float Recommended IWQOL-Self Esteem Score 0::100
Query chiwqlse Float Recommended Change from baseline in IWQOL Self Esteem Score -100::100
Query bliwqlsl Float Recommended Baseline IWQOL Sexual Life Score 0::100
Query iwql_sl Float Recommended IWQOL-Sexual Life Score 0::100
Query chiwqlsl Float Recommended Change from baseline in IWQOL Sexual Life Score -100::100
Query bliwqlpd Float Recommended Baseline IWQOL Public Distress Score 0::100
Query iwql_pd Float Recommended IWQOL-Public Distress Score 0::100
Query chiwqlpd Float Recommended Change from baseline in IWQOL Public Distress Score -100::100
Query bliwqlwk Float Recommended Baseline IWQOL Work Score 0::100
Query iwql_wk Float Recommended IWQOL-Work Score 0::100
Query chiwqlwk Float Recommended Change from baseline in IWQOL Work Score -100::100
Query bliwqlt Float Recommended Baseline IWQOL Total Score 0::200
Query iwql_t Float Recommended IWQOL-Total Score 0::200
Query chiwqlt Float Recommended Change from baseline in IWQOL Total Score -200::200
Query iwqa1 Integer Recommended Because of my weight I have trouble picking up objects
Query iwqa2 Integer Recommended Because of my weight I have trouble tying my shoes 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa3 Integer Recommended Because of my weight I have difficulty getting up from chairs 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa4 Integer Recommended Because of my weight I have trouble using stairs 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa5 Integer Recommended Because of my weight I have difficulty putting on or taking off my clothing 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa6 Integer Recommended Because of my weight I have trouble with mobility 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa7 Integer Recommended Because of my weight I have trouble crossing my legs 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa8 Integer Recommended I feel short of breath with only mild exertion 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa9 Integer Recommended I am troubled by painful or stiff joints 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa10 Integer Recommended My ankles and lower legs are swollen at the end of the day 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa11 Integer Recommended I am worried about my health 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa12 Integer Recommended Because of my weight I am self-conscious 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa13 Integer Recommended Because of my weight my self-esteem is not what it could be 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa14 Integer Recommended Because of my weight I feel unsure of myself 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa15 Integer Recommended Because of my weight I don't like myself 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa16 Integer Recommended Because of my weight I am afraid of being rejected 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa17 Integer Recommended Because of my weight I avoid looking in mirrors or seeing myself in photographs 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa18 Integer Recommended Because of my weight I am embarrassed to be seen in public places 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa19 Integer Recommended Because of my weight I do not enjoy sexual activity 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa20 Integer Recommended Because of my weight I have little or no sexual desire 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa21 Integer Recommended Because of my weight I have difficulty with sexual performance 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa22 Integer Recommended Because of my weight I avoid sexual encounters whenever possible 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa23 Integer Recommended Because of my weight I experience ridicule, teasing, or unwanted attention 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa24 Integer Recommended Because of my weight I worry about fitting into seats in public places (e.g., theaters, restaurants, cars, or airplanes) 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa25 Integer Recommended Because of my weight I worry about fitting through aisles or turnstiles 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa26 Integer Recommended Because of my weight I worry about finding chairs that are strong enough to hold my weight 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa27 Integer Recommended Because of my weight I experience discrimination by others 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa28 Integer Recommended Because of my weight I have trouble getting things accomplished or meeting my responsibilities 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa29 Integer Recommended Because of my weight I am less productive than I could be 1::5 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa30 Integer Recommended Because of my weight I don't receive appropriate raises, promotions or recognition at work 0::5 0=N/A; 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query iwqa31 Integer Recommended Because of my weight I am afraid to go on job interviews 0::5 0=N/A; 1=Never True; 2=Rarely True; 3=Sometimes True; 4= Usually True; 5=Always True
Query week_psych Integer Recommended Week week
Query mpdat Float Recommended days from enrollment date
Query vis_type Integer Recommended Visit type 0::2 1=Phone/remote; 0=doctor's office/In person; 2=No, not phone interview phone
Query health1 Integer Recommended Importance of health 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query hlth_sat Integer Recommended Health satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query esteem Integer Recommended Importance of self-esteem 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query est_sat Integer Recommended Self-esteem satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query goal Integer Recommended Importance of goals and values 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query goal_sat Integer Recommended Goals and values satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query money Integer Recommended Importance of money 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query mon_sat Integer Recommended Money satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query work Integer Recommended Importance of work 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query work_sat Integer Recommended Work satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query play Integer Recommended Importance of play 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query play_sat Integer Recommended Play satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query learn Integer Recommended Importance of learning 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query lrn_sat Integer Recommended Learning satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query creat Integer Recommended Importance of creativity 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query cre_sat Integer Recommended Creativity satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query help1 Integer Recommended Importance of helping 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query help_sat Integer Recommended Helping satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query love Integer Recommended Importance of love 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query love_sat Integer Recommended Love satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query friends1 Integer Recommended Importance of friends 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query frnd_sat Integer Recommended Friends satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query children Integer Recommended Importance of children 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query chld_sat Integer Recommended Children satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query relativs Integer Recommended Importance of relatives 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query rel_sat Integer Recommended Relative satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query home Integer Recommended Importance of home 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query home_sat Integer Recommended Home satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query neighbor Integer Recommended Importance of neighborhood 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query nbr_sat Integer Recommended Neighborhood satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
Query commty Integer Recommended Importance of community 0;1;2 0=Not Important; 1=Important; 2=Extremely Important
Query comm_sat Integer Recommended Community satisfaction 0;1;2;3;4;5 0=Very Dissatisfied; 1=Somewhat Dissatisfied; 2=A Little Dissatisfied; 3=A Little Satisfied; 4=Somewhat Satisfied; 5=Very Satisfied
site String 101 Recommended Site Study Site
comments String 4,000 Recommended Comments about assessment qls_note
doa_futdt String 20 Recommended Future date entered (Assessment) qol_doa_futdt
dode String 10 Recommended Date of Data Entry qls_dode
dode_futdt String 20 Recommended Future date entered (Data Entry) qol_dode_futdt
Query form_completed Integer Recommended Was the form completed? 1::4 1=Yes; 2=No; 3=Unverified; 4 = N/A-Not in age range qls_form_complete
Query form_explain Integer Recommended Why was this form not completed? 86::99 99=Participant unable to complete due to cognitive impairment; 98=Participant unable to complete due to physical impairment; 97=Participant refused to begin/finish; 96=Participant completed but with less than best effort; 95=Participant unable to be contacted; 94=Participant deceased; 93=Participant withdrew consent; 92=Time constraints; 91=Rater forgot to administer; 90=Missed appointment; 89=Participant was terminated from study; 88=Other;87 = Not Done (reason unspecified); 86 = Not Applicable qls_explain
other_reason_nc String 100 Recommended Other reason form was not completed qls_other_reason_nc
Query assessment_complete Integer Recommended Complete? 0::2 0=Incomplete; 1=Unverified; 2=Complete qls_complete
protocol_summary String 2,000 Recommended Protocol summary qls_score
Query d1reltsx Float Recommended Interpersonal Relations Subscale Mean score
Query d2roltsx Float Recommended Instrumental Role Subscale Mean score
Query d3foutsx Float Recommended Intrapsychic Foundations Subscale Mean score
Query d4comtsx Float Recommended Common Objects and Activities Subscale Mean score
Query qlstsx Float Recommended Mean Total Score
Query a1reltsx Float Recommended Alternative Interpersonal Relations Subscale Mean score
Query a2roltsx Float Recommended Alternative Instrumental Role Subscale Mean score
Query a3foutsx Float Recommended Alternative Intrapsychic Foundations Subscale Mean score
Query a1relts Float Recommended Alternative Interpersonal Relations Subscale
Query a2rolts Float Recommended Alternative Instrumental Role Subscale
Query a3fouts Float Recommended Alternative Intrapsychic Foundations Subscale
Query days_baseline Integer Recommended Days since baseline
Query monthsbl Float Recommended Actual number of months from Baseline
treatment_name String 200 Recommended treatment name
Query rand_num Integer Recommended Randomization Number 0::2
Query ql_play Integer Recommended QOL 23c: leisure activities, play 0::2 0 = No; 1 = Yes; 2 = No opportunity
Query ql_vocnotapp Integer Recommended QOL 28f: work activity, not developmentally appropriate 0;1 0=No; 1=Yes
Query ql_mtravel Integer Recommended QOL 30d: finances, enough money for traveling around 0;1 0=No; 1=Yes
qlb2d String 100 Recommended If yes, list, in order, the places you have lived during the past year: Fourth Place
olh2 Integer Recommended In the past year, how many nights have you spent in jail? -4 :: -9 Number of Nights; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
rais1 Integer Recommended How many times in the past 30 days did you have to make a court appearance? -4 :: -9 Number of Times; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
rais2 Integer Recommended Are you currently on probation or parole? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
rais2a Integer Recommended If yes, how many times in the past month did you see your probation or parole officer? -4 :: -9 Number of Times; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
rais2b Integer Recommended When you see your probation or parole officer, how many minutes do you usually spend with him or her? -4 :: -9 Number of Minutes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh3a Integer Recommended In the past year, have you been a victim of any violent crimes such as assault, rape, mugging, or robbery? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh3b Integer Recommended In the past year, have you been a victim of any nonviolent crimes such as burglary, theft of your property or money, or being cheated? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh4a Integer Recommended How do you feel about how safe you are on the streets in your neighborhood? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh4b Integer Recommended How do you feel about how safe you are where you live? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh4c Integer Recommended How do you feel about the protection you have against being robbed or attacked? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb2e String 100 Recommended If yes, list, in order, the places you have lived during the past year: Fifth Place
oli1 Integer Recommended In general, would you say your health is excellent, very good, good, fair, or poor? 1 :: 5; -4 :: -9 1= Poor; 2= Fair; 3= Good; 4= Very Good; 5= Excellent; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
oli2a Integer Recommended How do you feel about your health in general? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
oli2b Integer Recommended How do you feel about your physical condition? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
oli2c Integer Recommended How do you feel about your emotional well-being? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
ola1 Integer Recommended How do you feel about your life as a whole? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb2f String 100 Recommended If yes, list, in order, the places you have lived during the past year: Sixth Place
qlb2g String 100 Recommended If yes, list, in order, the places you have lived during the past year: Seventh Place
qlb2h String 100 Recommended If yes, list, in order, the places you have lived during the past year: Eighth Place
qlb3 String 100 Recommended Which of these was your usual residence during the past year?
qlb4 Integer Recommended Just to be sure, what is the total number of different, non-hospital residences, that you have lived in during the past year? 0 :: 9; -4 :: -9 Number of Places; 9= 9 or more; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb5a Integer Recommended How do you feel about the living arrangements where you live? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb5b Integer Recommended How do you feel about the privacy you have there? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb5c Integer Recommended How do you feel about the idea of staying on where you currently live for a long time? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1a Integer Recommended Did you go for a walk? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1b Integer Recommended Did you go shopping? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1c Integer Recommended Did you go to a restaurant? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1d Integer Recommended Did you read a book, magazine, or newspaper? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1e Integer Recommended Did you go for a ride in a bus or car? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1f Integer Recommended Did you work on a hobby? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1g Integer Recommended Did you play a sport? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1h Integer Recommended Did you go to a park? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc1i Integer Recommended Did you go to a bar? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc2 Integer Recommended Overall, how well are you able to function now at home, social, school, and work settings? Would you say, excellent, very good, good, fair or poor? 1 :: 5; -4 :: -9 1= Poor; 2= Fair; 3= Good; 4= Very Good; 5= Excellent; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qla1 Integer Recommended How do you feel about your life as a whole? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc3a Integer Recommended How do you feel about the way you spend your spare time? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc3b Integer Recommended How do you feel about the chance you have to enjoy pleasant or beautiful things? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc3c Integer Recommended How do you feel about the amount of fun you have? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlc3d Integer Recommended How do you feel about the amount of relaxation in your life? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qld1 Integer Recommended In the past year, how often did you talk to a member of your family on the telephone? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qld2 Integer Recommended In the past year, how often did you get together with a member of your family? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qld3a Integer Recommended How do you feel about the way you and your family act toward each other? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qld3b Integer Recommended How do you feel about the way things are in general between you and your family? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle1a Integer Recommended About how often do you do things with a close friend? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle1b Integer Recommended About how often do you visit with someone who does not live with you? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb1 Integer Recommended What is your current living situation (or most recent, if in hospital less than 3 months)? 1 :: 17; -4 :: -9 1= Hospital; 2= Skilled nursing facility 24 hour nursing service; 3= Intermediate care facility, less than 24hr nursing; 4= Supervised group living (generally long term); 5= Transitional group home (halfway or quarter way); 6= Family foster care; 7= Cooperative apartment, supervised (staff on site); 8= Cooperative apartment, unsupervised (staff not on site); 9= Board and care home= (private proprietary home for adults, with program and supervision); 10= Boarding house (includes meals, no program or supervision); 11= Rooming or boarding house or hotel (includes single room occupancy, no meals are provided, cooking facilities may be available); 12= Private house or apartment, not with family/friends; 13= Private house or apartment, with family or friends; 14= Shelter; 15= Jail; 16= No current residence (including the streets, bus stations, missions, etc.); 17= Other (specify below); -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle1c Integer Recommended About how often do you telephone someone who does not live with you? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle1d Integer Recommended About how often do you do something with another person that you planned ahead of time? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle1e Integer Recommended About how often do you spend time with someone you consider more than a friend, like a spouse, a boyfriend, girlfriend, or significant other? 1 :: 5; -4 :: -9 1= Not in the past 6mons; 2= At least once in the past 6mons; 3= Once a month; 4= Once a week; 5= At least once a day; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle2a Integer Recommended How do you feel about the things you do with other people? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle2b Integer Recommended How do you feel about the amount of time you spend with other people? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle2c Integer Recommended How do you feel about the people you see socially? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qle2d Integer Recommended Now using a number, tell me how many people do you feel close to in your life? -4 :: -9 Number of People; ; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1a Integer Recommended In the past 30 days, have you had any financial support from the following sources? Earned Income 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1b Integer Recommended In the past 30 days, have you had any financial support from the following sources? Social Security Benefits (SSA) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1c Integer Recommended In the past 30 days, have you had any financial support from the following sources? Social Security Disability Income (SSDI) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb1a String 100 Recommended If other, for current living situation, please specify:
qlf1d Integer Recommended In the past 30 days, have you had any financial support from the following sources? Supplemental Security Income (SSI) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1e Integer Recommended In the past 30 days, have you had any financial support from the following sources? Armed Service connected disability payments 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1f Integer Recommended In the past 30 days, have you had any financial support from the following sources? Other Social Welfare benefits - state or county (general welfare, Aid to Families with Dependent Children (AFDC) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1g Integer Recommended In the past 30 days, have you had any financial support from the following sources? Vocational program (such as Comprehensive Employment and Training Act or CETA, Vocational Rehabilitation, sheltered workshop) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1h Integer Recommended In the past 30 days, have you had any financial support from the following sources? Unemployment compensation 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1i Integer Recommended In the past 30 days, have you had any financial support from the following sources? Retirement, investment or savings income 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1j Integer Recommended In the past 30 days, have you had any financial support from the following sources? Rent supplements (including HUD, Section 8 certificates, living programs receiving public assistance support) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1k Integer Recommended In the past 30 days, have you had any financial support from the following sources? Alimony and child support 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1l Integer Recommended In the past 30 days, have you had any financial support from the following sources? Food stamps 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1m Integer Recommended In the past 30 days, have you had any financial support from the following sources? Family and/or spouse contribution 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb2 Integer Recommended Have you lived anywhere else in the past year? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1n Integer Recommended In the past 30 days, have you had any financial support from the following sources? Other source(s), including illegal or under the table income (Specify below) 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf1n_a String 100 Recommended If other, for financial support, please specify:
qlf2a Float Recommended How much money did you receive during the past month from all of these sources? -4 :: -9 Money Amount; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf2b Integer Recommended Was this a usual month in terms of the amount of money you received? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf3 Float Recommended On the average, how much money did you have available to spend on yourself in the past month, not counting money for room and meals?
qlf4a Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Food? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf4b Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Clothing? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf4c Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Housing (i.e. rent)? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf4d Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Medical Care? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf4e Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Traveling around the city for things like shopping, medical appointments, or visiting friends and relatives? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlb2a String 100 Recommended If yes, list, in order, the places you have lived during the past year: First Place (current)
qlf4f Integer Recommended During the past 9 months, did you generally have enough money each month to cover: Social activities like movies or eating in restaurants? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf6a Integer Recommended How do you feel about the amount of money you get? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf6b Integer Recommended How do you feel about how comfortable and well-off you are financially? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qlf6c Integer Recommended How do you feel about the amount of money you have available to spend for fun? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
mm1 Integer Recommended Has a doctor or other healthcare professional ever told you that you have heart disease (HF, CAD, Valvular dz, A fib, etc.)? 0;1 0 = No; 1 = Yes
mm1a Integer Recommended How old were you when you were first told you had heart disease? (years)
mm1a_1 String 200 Recommended If other, for person who help you manage your money: please specify:
mm2 Integer Recommended Has a doctor or other healthcare professional ever told you that you have cancer [exclude Skin SCC and HIV malignancies (KS, B cell lymphoma, Cervical CA)]? 0;1 0 = No; 1 = Yes
mm3 Integer Recommended Has a doctor or other healthcare professional ever told you that you have lung disease (COPD/Emphysema, asthma, Chronic Bronchitis, pulmonary fibrosis, diffuse lung disease, pulmonary sarcoidosis, etc)? 0;1 0 = No; 1 = Yes
mm4 Integer Recommended Has a doctor or other healthcare professional ever told you that you had a stroke (cerebrovascular diseases)? 0;1 0 = No; 1 = Yes
qlb2b String 100 Recommended If yes, list, in order, the places you have lived during the past year: Second Place
mm5 Integer Recommended Has a doctor or other healthcare professional ever told you that you have diabetes? 0;1 0 = No; 1 = Yes
mm6 Integer Recommended Has a doctor or other healthcare professional ever told you that you have kidney disease (including ESRD, nephritis, nephrotic syndrome and nephrosis due to any cause)? 0;1 0 = No; 1 = Yes
mm6a Integer Recommended How old were you when you were first told you had kidney disease? (years)
olg1 Integer Recommended During a usual week, what do you do most of the time? 1 :: 7; -4 :: -9 1= Work at a job for pay; 2= Go to a structured day program; 3= Go to school; 4= Do volunteer work; 5= Keep house; 6= Nothing much; 7= Something Else (Specify); -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg1a String 200 Recommended If something else, please specify what you do most of the time:
olg_w30 Integer Recommended How many days out of the past 30 have you worked in a job for pay? -4 :: -9 Number of Days; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg2 Integer Recommended Are you currently working in a job for pay? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg2a Integer Recommended Have you worked during the past 9 months, that is since (DATE)? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg2c Integer Recommended Have you ever had paid employment? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg3 String 200 Recommended What kind of work do you/did you do? (specify)
qlb2c String 100 Recommended If yes, list, in order, the places you have lived during the past year: Third Place
olg3a Integer Recommended Is this/was this work full-time, part-time, casual, volunteer, more than one job, or other? 1 :: 6; -4 :: -9 1= Full Time; 2= Part Time; 3= Casual; 4= Volunteer; 5= More than one job; 6= Other; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg3a_1 String 100 Recommended If other, please specify other job:
olg3b Integer Recommended How many hours per week do you/did you usually work at your job? -4 :: -9 Number of Hours; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg3c Float Recommended How much do you/did you earn per hour at your job? -4 :: -9 Money Amount; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg4a Integer Recommended How do you/did you feel about your job? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg4b Integer Recommended How do you/did you feel about the people you work with? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg4c Integer Recommended How do you/did you feel about the amount you get paid? 1 :: 7; -4 :: -9 1= Terrible; 2= Unhappy; 3= Mostly Dissatisfied; 4= Mixed; 5= Mostly Satisfied; 6= Pleased; 7= Delighted; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg7 Integer Recommended Are you currently a student? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olg8 Integer Recommended During the past 9 months have you done any kind of volunteer work (such as working at a hospital or school)? 0;1; -4 :: -9 0= No; 1= Yes; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
olh1 Integer Recommended In the past year, how many times have you been arrested or picked-up for crimes? -4 :: -9 Number of Times; -4= Skipped Item; -5= Do Not Know; -6= Refuses to Answer; -7= Not Applicable; -8= Invalid Response; -9= Blank for another reason
qol_phys Integer Recommended In general, how would you rate your physical health at this time? 0::4 0= Poor; 1= Fair; 2= Good; 3= Very good; 4= Excellent
qol_ment Integer Recommended In general, how would you rate your mental health (such as your stress level, mood, and emotions) at this time? 0::4 0= Poor; 1= Fair; 2= Good; 3= Very good; 4= Excellent
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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