|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
case_id, patid, subject |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
histdate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
bslage |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
birthstate |
String |
2
|
Recommended |
State of Birth, Abbreviation |
|
|
|
Query
|
ethnicity |
String |
30
|
Recommended |
Ethnicity of participant |
|
|
ethnic_group |
Query
|
race |
String |
30
|
Recommended |
Race of study subject |
|
|
race1 |
Query
|
otherrace |
String |
100
|
Recommended |
specify other race |
|
The following questions are about you or the child's family.
|
otherspecify, racespc |
Query
|
family_lives |
String |
255
|
Recommended |
Members of family living in home |
|
|
|
Query
|
cg1_relationship |
String |
100
|
Recommended |
Caregiver/Parent 1's Relationship to Participant |
|
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
|
infrmnt1, relationship_parent1 |
|
cg1_relationship_specify |
String |
100
|
Recommended |
Caregiver/Parent 1's Relationship to Participant Other Specify |
|
|
relat_parent1_other |
Query
|
parent_1_lives |
Integer |
|
Recommended |
Parent 1 lives with child or deceased |
1::3
|
1=Yes; 2=No; 3=Deceased
|
|
Query
|
cg2_relationship |
String |
100
|
Recommended |
Caregiver/Parent 2's Relationship to Participant |
|
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
|
infrmnt2, relationship_parent2 |
Query
|
cg2_relationship_specify |
String |
100
|
Recommended |
Caregiver/Parent 2's Relationship to Participant Other Specify |
|
|
relat_parent2_other |
Query
|
parent_2_lives |
Integer |
|
Recommended |
Parent 2 lives with child or deceased |
1::3
|
1=Yes; 2=No; 3=Deceased
|
|
Query
|
demo_maritial_status |
Integer |
|
Recommended |
Marital Status: |
1 :: 7
|
1=Single/Never married; 2=Married or living with someone as if married; 3= Divorced or annulled; 4= Separated; 5=Widowed; 6=Other; 7= Remarried
|
parent_marital |
Query
|
demo_caregiver_edu |
Integer |
|
Recommended |
Caregiver's highest education |
1::8;97
|
1= Less than 7th grade ; 2= Junior High ; 3= Some High School ; 4= High School graduate ; 5= Special training after high school ; 6= Some college ; 7= College graduate ; 8= Graduate/professional training or above ; 97= Don't Know
|
parent_1_education |
Query
|
cg1_occupation |
String |
100
|
Recommended |
Caregiver/Parent 1's Occupation |
|
|
parent_1_occupation |
Query
|
parent_1_employment |
Integer |
|
Recommended |
Current employment status for parent 1 |
1::10
|
1=Employed - full time; 2=Retired;3=Employed - part time; 4=Unable to work/Disabled;5=Unemployed; 6=A full time student; 7=Other; 8 = Looking for work; 9 = Keeping house/raising children full-time; 10 = I do not wish to disclose
|
|
Query
|
p_p2educ |
Integer |
|
Recommended |
What is the last level of formal education your child's other biological parent completed? |
0::8;-99;88;77
|
0= No formal schooling ; 1= 7th grade or less ; 2= Junior high/middle school completed ; 3= Partial high school (at least one year) ; 4= High school graduate/GED ; 5= Partial college (at least one year) or specialized training ; 6= Junior college/associates degree (2 years) ; 7= Standard college or university graduation (4 years) ; 8= Graduate professional training, graduate degree ; -99= N/A ; 88= Missing ; 77= Refused
|
parent_2_education |
Query
|
cg2_occupation |
String |
100
|
Recommended |
Caregiver/Parent 2's Occupation |
|
|
parent_2_occupation |
Query
|
parent_2_employment |
Integer |
|
Recommended |
Current employment status for parent 2 |
1::10
|
1=Employed - full time; 2=Retired;3=Employed - part time; 4=Unable to work/Disabled;5=Unemployed; 6=A full time student; 7=Other; 8 = Looking for work; 9 = Keeping house/raising children full-time; 10 = I do not wish to disclose
|
|
Query
|
family_income |
String |
10
|
Recommended |
Ways family receives income |
|
1=Employment; 2=Social Security or SSI; 3=Unemployment compensation; 4=Aid to Families with Dependent Children (AFDC); 5=WIC or Women Infants and Children; 6=Disability (workman-s comp); 7=Child support or alimony; 8=MI Bridges (or other equivalent food assistance program); 9=Investments or Rent; 10=Regular income from estate or trust
|
|
Query
|
headtraumalostconsciousness |
String |
5
|
Recommended |
Head trauma loss of consciousness |
|
|
head_trauma, medhist_headinjury |
|
midihist_035a |
String |
250
|
Recommended |
Head Injury describe |
|
|
head_trauma_describe |
Query
|
cfmh_chd_seizure |
Integer |
|
Recommended |
Does (did) the Child have Seizure Disorder/Epilepsy? |
1;0;999; -7
|
0 = No; 1 = Yes; ; -7=Refused; 999=NA/NK
|
seizure_disorder |
|
rev_headseizuredetail |
String |
500
|
Recommended |
Details of the seizure history and/or type(s) |
|
|
seizure_describe |
Query
|
neuro_dis |
Integer |
|
Recommended |
Neurologic Disorder (Brain, Spinal Cord, Peripheral Nerves) |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
medhist_neurodis, neurologic_disorder |
|
midihist_017a |
String |
250
|
Recommended |
Neurologic Disorder describe |
|
|
neuro_disorder_desc |
Query
|
cfmh_chd_sleepdis |
Integer |
|
Recommended |
Does (did) the Child have a Sleep Disorder? |
1;0
|
0 = No; 1 = Yes
|
sleep_disorder |
|
cfmh_chd_sleepdis_cmt |
String |
255
|
Recommended |
Specify type of sleep disorder child has |
|
|
sleep_disorder_desc |
Query
|
endoc |
Integer |
|
Recommended |
Endocrine Disorder (Thyroid gland, Adrenal glands, etc.) |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
endocrine_disorder |
|
mhx016b |
String |
250
|
Recommended |
If YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Endocrine disorder |
|
|
endocrine_describe |
Query
|
cardio_disorder |
Integer |
|
Recommended |
Cardiovascular Disorder (Heart, Vessels) |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
cardio_disease, diseaseh |
|
mhx003b_1 |
String |
250
|
Recommended |
Explain Cardiovascular disorder history |
|
|
cardio_describe |
Query
|
cgi02gasdiag |
Integer |
|
Recommended |
Has any gastrointestinal diagnosis been given? |
0;1; 9
|
1 = Yes; 0 = No; 9 = Unknown
|
gastro_disorder |
|
cgi02gasdiagspec |
String |
250
|
Recommended |
Specify gastrointestinal diagnosis |
|
|
gastro_describe |
Query
|
muscul |
Integer |
|
Recommended |
Musculoskeletal Disorder (Muscles, Joints, Spine) |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
musculo_disorder |
|
midihist_016a |
String |
250
|
Recommended |
Musculoskeletal Disorder describe |
|
|
musculo_describe |
Query
|
mhf_10 |
Integer |
|
Recommended |
Checks if condition is ongoing - skin |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
skin_disorder |
Query
|
mhf_09 |
String |
250
|
Recommended |
Checks condition for Skin |
|
|
skin_describe |
Query
|
past_illness |
Integer |
|
Recommended |
History of past medical illness |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
|
Query
|
past_illness_desc |
String |
500
|
Recommended |
If history past medical illness, description |
|
|
|
Query
|
sigilln |
Integer |
|
Recommended |
significant medical illness |
0;1;-7;9
|
0=No; 1=Yes; -7=Refused; 9=NK
|
current_illness |
Query
|
mdga20a |
String |
150
|
Recommended |
Medical Illness 1 |
|
|
current_describe |
Query
|
elig_27 |
Integer |
|
Recommended |
Clinically abnormal lab results |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
abnormal_lab |
|
abnormal_describe |
String |
500
|
Recommended |
If any abnromal lab findings, description |
|
|
|
Query
|
current_psych_med |
Integer |
|
Recommended |
Current psychiatric medications |
1;2
|
1=Yes; 2=No;
|
|
Query
|
past_psych_med |
Integer |
|
Recommended |
Past psychiatric medications |
1;2
|
1=Yes; 2=No;
|
|
|
medication1_name |
String |
500
|
Recommended |
Name first medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
psychmed1 |
|
medication1_dosage |
String |
150
|
Recommended |
First medication dosage |
|
0 = No medication; 999 = Missing
|
psychmed1_dose |
Query
|
psychmed1_currpast |
Integer |
|
Recommended |
Medication 1 current or past |
1;2
|
1=Current; 2=Past
|
|
|
psychmed1_date |
Date |
|
Recommended |
Medication 1; if past, date last used |
|
|
|
|
medication2_name |
String |
500
|
Recommended |
Name second medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
psychmed2 |
|
medication2_dosage |
String |
100
|
Recommended |
Second medication dosage |
|
0 = No medication; 999 = Missing
|
psychmed2_dose |
Query
|
psychmed2_currpast |
Integer |
|
Recommended |
Medication 2 current or past |
1;2
|
1=Current; 2=Past
|
|
|
psychmed2_date |
Date |
|
Recommended |
Medication 2; if past, date last used |
|
|
|
|
medication3_name |
String |
500
|
Recommended |
Name third medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
psychmed3 |
|
medication3_dosage |
String |
100
|
Recommended |
Third medication dosage |
|
0 = No medication; 999 = Missing
|
psychmed3_dose |
Query
|
psychmed3_currpast |
Integer |
|
Recommended |
Medication 3 current or past |
1;2
|
1=Current; 2=Past
|
|
|
psychmed3_date |
Date |
|
Recommended |
Medication 3; if past, date last used |
|
|
|
|
medication4_name |
String |
500
|
Recommended |
Name fourth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
psychmed4 |
|
medication4_dosage |
String |
100
|
Recommended |
Fourth medication dosage |
|
0 = No medication; 999 = Missing
|
psychmed4_dose |
Query
|
psychmed4_currpast |
Integer |
|
Recommended |
Medication 4 current or past |
1;2
|
1=Current; 2=Past
|
|
|
psychmed4_date |
Date |
|
Recommended |
Medication 4; if past, date last used |
|
|
|
|
medication5_name |
String |
500
|
Recommended |
Name fifth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
psychmed5 |
|
medication5_dosage |
String |
100
|
Recommended |
Fifth medication dosage |
|
0 = No medication; 999 = Missing
|
psychmed5_dose |
Query
|
psychmed5_currpast |
Integer |
|
Recommended |
Medication 5 current or past |
1;2
|
1=Current; 2=Past
|
|
|
psychmed5_date |
Date |
|
Recommended |
Medication 5; if past, date last used |
|
|
|
Query
|
nonpsychmeds |
Integer |
|
Recommended |
Current non-psychotropic medications |
1;2
|
1=Yes; 2=No;
|
|
Query
|
nonpsychmed1 |
String |
100
|
Recommended |
Name of non-psychotropic medicaion 1 |
|
|
|
Query
|
nonpsychmed1_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 1 |
|
|
|
Query
|
nonpsychmed1_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 1 |
|
|
|
Query
|
nonpsychmed2 |
String |
50
|
Recommended |
Name of non-psychotropic medicaion 2 |
|
|
|
Query
|
nonpsychmed2_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 2 |
|
|
|
Query
|
nonpsychmed2_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 2 |
|
|
|
|
nonpsychmed3 |
String |
50
|
Recommended |
Name of non-psychotropic medicaion 3 |
|
|
|
|
nonpsychmed3_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 3 |
|
|
|
|
nonpsychmed3_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 3 |
|
|
|
|
nonpsychmed4 |
String |
50
|
Recommended |
Name of non-psychotropic medicaion 4 |
|
|
|
|
nonpsychmed4_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 4 |
|
|
|
|
nonpsychmed4_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 4 |
|
|
|
|
nonpsychmed5 |
String |
50
|
Recommended |
Name of non-psychotropic medicaion 5 |
|
|
|
|
nonpsychmed5_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 5 |
|
|
|
|
nonpsychmed5_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 5 |
|
|
|
|
nonpsychmed6 |
String |
50
|
Recommended |
Name of non-psychotropic medicaion 6 |
|
|
|
|
nonpsychmed6_dose |
String |
30
|
Recommended |
Dose of non-psychotropic medication 6 |
|
|
|
|
nonpsychmed6_indication |
String |
200
|
Recommended |
Indication of non-psychotropic medication 6 |
|
|
|
Query
|
surg_surgtype1 |
String |
255
|
Recommended |
TYPE OF SURGERY 1 |
|
|
surgery1 |
|
surgerydatedd1_1 |
Date |
|
Recommended |
Date surgery 1 |
|
|
surgery1_date |
|
surg_surgtype2 |
String |
255
|
Recommended |
TYPE OF SURGERY 2 |
|
|
surgery2 |
|
surgerydatedd2_1 |
Date |
|
Recommended |
Surgery Date 2 |
|
|
surgery2_date |
|
surg_surgtype3 |
String |
255
|
Recommended |
TYPE OF SURGERY 3 |
|
|
surgery3 |
|
surgerydatedd3_1 |
Date |
|
Recommended |
Surgery Date 3 |
|
|
surgery3_date |
|
surgerydatedd4_1 |
Date |
|
Recommended |
Surgery Date 4 |
|
|
surgery4_date |
Query
|
smoke_current |
Integer |
|
Recommended |
Is the child a current smoker |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
smoke |
Query
|
smoke_current_packs |
Float |
|
Recommended |
how many packs per day if yes? |
0::10
|
|
|
|
surq_2d |
String |
20
|
Recommended |
When did you have your last cigarette TIME |
|
24 hour clock
|
smoke_current_time |
Query
|
smoke_past |
Integer |
|
Recommended |
Child ever smoked? |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
snoke_past |
Query
|
smoke_past_startage |
Integer |
|
Recommended |
if yes, age when regular smoking began |
5::17
|
|
|
Query
|
smoke_past_endage |
Integer |
|
Recommended |
If yes, age when child last smoked |
5::17
|
|
|
Query
|
smoke_past_packs |
Integer |
|
Recommended |
Estimated number of packs per day |
0::10
|
|
|
Query
|
nicotine |
Integer |
|
Recommended |
Does the child use nicotine |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
medhist_smoker |
|
nicotine_describe |
String |
100
|
Recommended |
If uses nicotine, description |
|
|
|
Query
|
caffeine |
Integer |
|
Recommended |
Does the child consume caffeinated beverages regularly |
0;1;9
|
1 = Yes; 0 = No; 9 = Unknown
|
|
Query
|
caffeine_type |
String |
100
|
Recommended |
caffeinated beverages. how much (type and amount) |
|
|
|
Query
|
surq_11d |
String |
20
|
Recommended |
When was the last time you consumed a caffeinated drink TIME |
|
24 hour clock
|
caffeine_time |
Query
|
incpeople3 |
Integer |
|
Recommended |
How many people lived on this income over 65 years of age? |
|
|
|
Query
|
severe_react |
Integer |
|
Recommended |
Have you ever had any severe allergic reaction? |
0;1
|
0 = No; 1 = Yes
|
medhist_allergy, react |
Query
|
livkidney |
Integer |
|
Recommended |
Liver or kidney disease? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
deepvein |
Integer |
|
Recommended |
Deep vein thrombosis/clot? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
abuterinegrow |
Integer |
|
Recommended |
Abnormal uterine growth? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
embolclot |
Integer |
|
Recommended |
Pulmonary embolism or blood clot? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
gallbladpanc |
Integer |
|
Recommended |
Inflamed gall bladder or pancreatitis? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
pelviclesion |
Integer |
|
Recommended |
Pelvic lesion or ovarian enlargement? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
climpro |
Integer |
|
Recommended |
Sensitive to Climara(estradiol/estrogen) or Prometrium(progesterone)? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
psychotrop |
Integer |
|
Recommended |
Use psychotropic medication? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
hormonalprep |
Integer |
|
Recommended |
Use hormonal preparations? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
antiinflam |
Integer |
|
Recommended |
Use anti-inflammatory agents? |
0;1
|
0 = No; 1 = Yes
|
|
|
surg_surgtype4 |
String |
255
|
Recommended |
Type of surgery 4 |
|
|
|
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
|
Query
|
cfmh_othr_cancer |
Integer |
|
Recommended |
Cancer |
1;0
|
0 = No; 1 = Yes
|
medhist_cancer |
Query
|
thyroid |
Integer |
|
Recommended |
Thyroid disease |
1;0;-7
|
0=No; 1=Yes;-7=Refused
|
medhist_thyroid |
Query
|
daily_diary_8 |
Integer |
|
Recommended |
Do you have asthma? |
0;1
|
0=No; 1=Yes
|
medhist_asthma |
Query
|
medhx_2g |
Integer |
|
Recommended |
Has she/he ever been to a doctor for any of these things… Diabetes Diabetes |
1 ; 0
|
1 = Yes; 0 = No
|
medhist_diabetes |
|
medhx21a |
String |
100
|
Recommended |
If yes, please describe problems with diabetes: |
|
|
medhist_diabetes_text |
|
medhistory_26b_txt |
String |
250
|
Recommended |
Description of glasses or contacts |
|
|
medhist_glasses_contacts_text |
Query
|
clrblind |
Integer |
|
Recommended |
Is the participant colorblind |
0;1
|
0=No; 1=Yes
|
medhist_colorblind |
|
medhistory_25_txt |
String |
250
|
Recommended |
Description of colorblindness |
|
|
medhist_colorblind_text |
Query
|
cfmh_chd_hearingimp |
Integer |
|
Recommended |
Does the patient have a hearing impairment? |
1;0
|
0 = No; 1 = Yes
|
medhist_auditoryprob |
|
w1_m_cu_hrng_det |
String |
200
|
Recommended |
health at interview - problem hearing details |
|
|
medhist_auditoryprob_text |
Query
|
cmedhx38 |
Integer |
|
Recommended |
Any other medical problems? |
0;1;-9
|
0=No; 1=Yes; -9 = missing/not reported
|
medhist_othermed |
Query
|
cmedhx18 |
Integer |
|
Recommended |
Are any current medications taken regularly? |
0;1
|
0 = No;1 = Yes
|
meds_current |
Query
|
cmedhx19 |
Integer |
|
Recommended |
Are there any past medications which were taken regularly? |
0;1
|
0 = No;1 = Yes
|
meds_past |
|
strconheartdis |
String |
5
|
Recommended |
Does the child/patient have heart disease? |
|
Ref=refused; 999=NA/NK/missing
|
medhist_heartcond |
|
phne_sc_18 |
String |
5
|
Recommended |
11. Do you wear glasses or contact lenses? |
|
|
medhist_glasses_contacts |
|
visionproblemdetail |
String |
300
|
Recommended |
Details of the vision problem |
|
|
medhist_visualprob_text |
|
scq_37_sp |
String |
300
|
Recommended |
Specify any other medical condition |
|
|
medhist_othermed_text |
|
current_medication |
String |
300
|
Recommended |
subject's current medications |
|
|
meds_current_text |
|
past_medication |
String |
300
|
Recommended |
what are subjects past medications |
|
|
meds_past_text |
Query
|
medhist_liverkidgi |
Integer |
|
Recommended |
(A: Do you) (P: Does your child) have liver, kidney or GI problems? |
0;1
|
0=no; 1=yes
|
|
Query
|
medhist_bloodpressure |
Integer |
|
Recommended |
(A: Do you) (P: Does your child) have a history of blood pressure? |
0;1
|
0=no; 1=yes
|
|
Query
|
medhist_limbprob |
Integer |
|
Recommended |
(A: Do you) (P: Does your child) have problems with the use of any limbs? |
0;1
|
0=no; 1=yes
|
|
Query
|
seq1b_1 |
Integer |
|
Recommended |
Has a health or education professoinal told you that your child has any of the following conditions? : Blindness or another visual impairment not corrected with glasses |
|
2= No;1= Yes ; -99= N/A ; 77= Refused ; 88= Missing
|
medhist_visualprob |
|
allergies |
String |
300
|
Recommended |
allergies |
|
|
medhist_allergy_text |