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Dependence Scale

417 Shared Subjects

N/A
Clinical Assessments
Questionnaire
05/28/2015
dpnd01
03/22/2023
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query dep02 Integer Recommended Does the patient need reminders or advice to manage chores, do shopping, cooking, play games, or handle money? 0;1;2 0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
Query dep03 Integer Recommended Does the patient need help to remember important things such as appointments, recent events, or names of family or friends? 0;1;2 0 = No; 1 = Occasionally at least once a month; 2 = Frequently at least once a week
Query dep04 Integer Recommended Does the patient need frequent (at least once a month) help finding misplaced objects, keeping appointments, or maintaining health or safety (locking doors, taking medication)? 0;1 0=No; 1=Yes
Query dep05 Integer Recommended Does the patient need household chore done for them? 0;1 0=No; 1=Yes
Query dep06 Integer Recommended Does the patient need to be watched or kept company when awake? 0;1 0=No; 1=Yes
Query dep07 Integer Recommended Does the patient need to be escorted when outside 0;1 0=No; 1=Yes
Query dep08 Integer Recommended Does the patient need to be accompanied when bathing or eating 0;1 0=No; 1=Yes
Query dep09 Integer Recommended Does the patient have to be dressed, washed and groomed? 0;1 0=No; 1=Yes
Query dep10 Integer Recommended Does the patient have to be taken to toilet regularly to avoid incontinence 0;1 0=No; 1=Yes
Query dep11 Integer Recommended Does the patient have to be fed? 0;1 0=No; 1=Yes
Query dep12 Integer Recommended Does the patient need to be turned, moved or transferred? 0;1 0=No; 1=Yes
Query dep13 Integer Recommended Does the patient wear a diaper or a catheter? 0;1 0=No; 1=Yes
Query dep14 Integer Recommended Does the patient need to be tube fed? 0;1 0=No; 1=Yes
Query dep15 Integer Recommended Equivalent Institutional Care 1;2;3 1 = Limited home care; 2 = Adult home; 3 = Health-related facility
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query dependnce Integer Recommended Dependence level 0;1;2;3;4;5 0 = Level 0; 1 = Level 1; 2 = Level 2; 3 = Level 3; 4 = Level 4; 5 = Level 5; A patient may meet the criteria for more than one level. If this is the case, we have assigned the highest level the patient meets. For example, if a patient meets the criteria for both Levels 4 and 5, assign DEPNDNCE = 5.
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base_dep Float Recommended Baseline Dependence Level Score at Phase 1 baseline
Query c_dep Float Recommended Change from Baseline in Dependence Level Change from Phase 1 baseline
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.