|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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|
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|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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|
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
dts_1 |
Integer |
|
Recommended |
Feeling distressed or upset is unbearable to me |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts01, dts1 |
Query
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dts_2 |
Integer |
|
Recommended |
When I feel distressed or upset, all I can think about it how bad I feel. |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts02, dts2 |
Query
|
dts_3 |
Integer |
|
Recommended |
I can't handle feeling distressed or upset |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dist_ups, dts03, dts3 |
Query
|
dts_4 |
Integer |
|
Recommended |
My feelings of distress or being upset are so intense that they completely take over |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts04, dts4 |
Query
|
dts_5 |
Integer |
|
Recommended |
There's nothing worse that feeling distressed or upset |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts05, dts5 |
Query
|
dts_6 |
Integer |
|
Recommended |
I can tolerate being distressed or upset as well as most people |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts06, dts7 |
Query
|
dts_7 |
Integer |
|
Recommended |
My feelings of distress or being upset are not acceptable. |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts07, dts8 |
Query
|
dts_8 |
Integer |
|
Recommended |
I'll do anything to avoid feeling distressed or upset |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts08, dts9, stop |
Query
|
dts_9 |
Integer |
|
Recommended |
Other people seem to be able to tolerate feeling distressed or upset better than I am |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts09, dts10, tolerate |
Query
|
dts_10 |
Integer |
|
Recommended |
Being distressed or upset is always a major ordeal for me |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts11, ordeal |
Query
|
dts_11 |
Integer |
|
Recommended |
I am ashamed of myself when I feel distressed or upset |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts12 |
Query
|
dts_12 |
Integer |
|
Recommended |
My feelings of distress or being upset scare me |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dist_scare, dts13 |
Query
|
dts_13 |
Integer |
|
Recommended |
I'll do anything to stop feeling distressed or upset |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts14 |
Query
|
dts_14 |
Integer |
|
Recommended |
When I feel distressed or upset, I must do something about it immediately |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
dts15 |
Query
|
dts_15 |
Integer |
|
Recommended |
When I feel distressed or upset, I cannot help but concentrate of how bad the distress actually feels |
1 :: 5 ; 444; 555; 777; 888; 999
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree; 444 = Do not wish to respond ;999 = No Answer ; 888 = Skipped ; 777 = Condition Skipped ; 555 = Missing
|
concentrate, dts16 |
Query
|
dts_tol |
Float |
|
Recommended |
Tolerance = mean of items 1, 3 and 5 |
|
|
|
Query
|
dts_abs |
Float |
|
Recommended |
Absorption = mean of items 2, 4, and 15 |
|
|
|
Query
|
dts_app |
Float |
|
Recommended |
Appraisal = mean of items 6 (reverse scored), 7, 9, 10, 11, and 12 |
|
|
|
Query
|
dts_reg |
Float |
|
Recommended |
Regulation = mean of items 8, 13, and 14 |
|
|
|
Query
|
dts_tot |
Float |
|
Recommended |
DTS total = mean of tolerance, absorption, appraisal, and regulation subscale scores |
|
999= Not all questions answered
|
|
|
free_of_feelings |
Integer |
|
Recommended |
I must be free of disturbing feelings as quickly as possible; I can't bear if they continue. |
0::4
|
0= Describes Me Very Little; 1= A Little; 2= Some; 3= Much; 4= Describes me Very Much
|
|
|
situations |
Integer |
|
Recommended |
I can't stand situations where I might feel upset. |
0::4
|
0= Describes Me Very Little; 1= A Little; 2= Some; 3= Much; 4= Describes me Very Much
|
|
|
bear |
Integer |
|
Recommended |
I can't bear disturbing feelings. |
0::4
|
0= Describes Me Very Little; 1= A Little; 2= Some; 3= Much; 4= Describes me Very Much
|
|
|
asi16 |
Integer |
|
Recommended |
It scares me when I am nervous. |
0::4;999
|
0 = Very little; 1 = A little; 2 = Some; 3 = Much; 4 = Or very much; 999 = Prefer not to answer/Left blank
|
nerv_scare |
|
time__point01 |
Integer |
|
Recommended |
Timepoint |
1::6
|
1 = Screening; 2 = Baseline; 3 = Mid-way; 4 = One Month; 5 = Three Months; 6 = Final
|
|
|
devs_8 |
Integer |
|
Recommended |
8. If at the beginning of the treatment you knew as much about the intervention as you do now, how inclined would you have been in still participating? |
1::9
|
1 = None at all; 5 = Somewhat inclined; 9 = Very inclined
|
|
|
devs_9 |
Integer |
|
Recommended |
9. How likely are you to recommend this type of treatment to someone with similar problems? |
1::9
|
1 = None at all; 5 = Somewhat likely; 9 = Very likely
|
|
|
devs_score |
Integer |
|
Recommended |
Score |
10::90
|
|
|
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
devs_1 |
Integer |
|
Recommended |
1. How much distress did you experience during the first assessment session? |
1::9
|
1 = None at all; 5 = Somewhat distressed; 9 = Very distressed
|
|
|
devs_2 |
Integer |
|
Recommended |
2. How much distress did you experience during the first treatment session? |
1::9
|
1 = None at all; 5 = Somewhat distressed; 9 = Very distressed
|
|
|
devs_3 |
Integer |
|
Recommended |
3. On leaving the first treatment session, how much distress did you experience for the next few hours? |
1::9
|
1 = None at all; 5 = Somewhat distressed; 9 = Very distressed
|
|
|
devs_4 |
Integer |
|
Recommended |
4. How anxious were you about returning to the second treatment session? |
1::9
|
1 = None at all; 5 = Somewhat anxious; 9 = Very distressed
|
|
|
devs_5 |
Integer |
|
Recommended |
5. Overall, how intrusive did you find the whole intervention? |
1::9
|
1 = None at all; 5 = Somewhat intrusive; 9 = Very intrusive
|
|
|
devs_6 |
Integer |
|
Recommended |
6. Overall, how distressing did you find the whole intervention? |
1::9
|
1 = None at all; 5 = Somewhat distressing; 9 = Very distressed
|
|
|
devs_7 |
Integer |
|
Recommended |
7. Overall, how exhausting did you find the whole intervention? |
1::9
|
1 = None at all; 5 = Somewhat exhausting; 9 = Very exhausting
|
|
|
devs_10 |
Integer |
|
Recommended |
10. Do you believe that you received value for your time and money? |
1::9
|
1 = None at all; 5 = Somewhat; 9 = Very much so
|
|
|
dts6 |
Integer |
|
Recommended |
My feelings of distress or being upset are just an acceptable part of life. |
1::5
|
1 = Strongly agree; 2 = Mildly agree; 3 = Agree and disagree equally; 4 = Mildly disagree; 5 = Strongly disagree
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
dts_total_score |
Integer |
|
Recommended |
Distress Tolerance Scale - Total sum |
0::75;999
|
Sum of total dts_1 - dts_15; 999= Not all questions answered
|
|
|
custom_src_id |
String |
30
|
Recommended |
Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.) |
|
|
|
|
devs_10_post |
Integer |
|
Recommended |
Do you believe you received value for your time? |
1::9
|
1 = None at all; 5 = Somewhat; 9 = Very much so
|
|