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Background History Form

156 Shared Subjects

Background History Form.
Clinical Assessments
Demographics
11/21/2012
back_hist01
11/21/2012
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query hispanic Integer Recommended Is subject of Hispanic, Latino, or Spanish origin? 0; 1; 999 0 = No; 1 = Yes; 999= missing
Query race String 30 Required Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query cg1_relationship String 100 Recommended Caregiver/Parent 1's Relationship to Participant Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
Query cg2_relationship String 100 Recommended Caregiver/Parent 2's Relationship to Participant Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
Query cg_relation_status String 50 Recommended Caregiver's relationship status married; widowed;separated;widowed, remarried;divorced, neither remarried;unmarried;divorced, both remarried;other;divorced, one remarried; living as though married; divorced
cg_relation_status_specify String 50 Recommended Caregiver's relationship status other, specify
Query liveswith String 100 Recommended child lives with
Both biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Other
liveswithother String 50 Recommended Child lives with other, specify
Query household_physical_custody String 50 Recommended Physical Custody situation if mother and father are divorced or separated Joint;Mother has sole custody;Father has sole custody
Query num_in_house_kids Integer Recommended Number of Individuals in Household Children
Query child1_age String 100 Recommended Other Child in Household 1 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child1_gender String 10 Recommended Other Child in Household 1 Gender Male;Female;Other
Query child1_education String 100 Recommended Other Child in Household 1 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child1_handedness String 100 Recommended Other Child in Household 1 Handedness Left-handed;Right-handed
Query child1_proband_relationship String 100 Recommended Other Child in Household 1 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
Query child2_age String 100 Recommended Other Child in Household 2 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child2_gender String 10 Recommended Other Child in Household 2 Gender Male;Female;Other
Query child2_education String 100 Recommended Other Child in Household 2 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child2_handedness String 100 Recommended Other Child in Household 2 Handedness Left-handed;Right-handed
Query child2_proband_relationship String 100 Recommended Other Child in Household 2 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
Query child3_age String 100 Recommended Other Child in Household 3 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child3_gender String 10 Recommended Other Child in Household 3 Gender Male;Female;Other
Query child3_education String 100 Recommended Other Child in Household 3 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child3_handedness String 100 Recommended Other Child in Household 3 Handedness Left-handed;Right-handed
Query child3_proband_relationship String 100 Recommended Other Child in Household 3 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
Query child4_age String 100 Recommended Other Child in Household 4 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child4_gender String 10 Recommended Other Child in Household 4 Gender Male;Female;Other
Query child4_education String 100 Recommended Other Child in Household 4 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child4_handedness String 100 Recommended Other Child in Household 4 Handedness Left-handed;Right-handed
Query child4_proband_relationship String 100 Recommended Other Child in Household 4 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
Query child5_age String 100 Recommended Other Child in Household 5 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child5_gender String 10 Recommended Other Child in Household 5 Gender Male;Female;Other
Query child5_education String 100 Recommended Other Child in Household 5 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child5_handedness String 100 Recommended Other Child in Household 5 Handedness Left-handed;Right-handed
Query child5_proband_relationship String 100 Recommended Other Child in Household 5 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
child6_age String 100 Recommended Other Child in Household 6 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child6_gender String 10 Recommended Other Child in Household 6 Gender Male;Female;Other
Query child6_education String 100 Recommended Other Child in Household 6 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child6_handedness String 100 Recommended Other Child in Household 6 Handedness Left-handed;Right-handed
Query child6_proband_relationship String 100 Recommended Other Child in Household 6 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
child7_age String 100 Recommended Other Child in Household 7 Age 0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
Query child7_gender String 10 Recommended Other Child in Household 7 Gender Male;Female
Query child7_education String 100 Recommended Other Child in Household 7 School Level Pre-school;Elementary;Jr high/middle;High school;Post-HS
Query child7_handedness String 100 Recommended Other Child in Household 7 Handedness Left-handed;Right-handed
Query child7_proband_relationship String 100 Recommended Other Child in Household 7 Relationship to Participant Sibling;Half-sibling;Other relative;Not related
Query chi_living Integer Recommended child living arrangement 1::3 1 = At home; 2 = In an institution; 3 = Other
chi_living_other String 255 Recommended child living arrangement_other Other living arrangement
Query cg1_education String 100 Recommended Caregiver/Prent 1's Highest Level of Education Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School
Query cg2_education String 100 Recommended Caregiver/Parent 2's Highest Level of Education Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School
cg1_occupation String 100 Recommended Caregiver/Parent 1's Occupation
cg2_occupation String 100 Recommended Caregiver/Parent 2's Occupation
Query cg_totalincome Integer Recommended total combined family income 1::7 1 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000
Query milestone_age_mo_smile Integer Recommended Age in which the participant accomplished the following milestone in months: smiled
Query milestone_age_mo_satup Integer Recommended Age in which the participant accomplished the following milestone in months: sat up without support
Query milestone_age_mo_crawl Integer Recommended Age in which the participant accomplished the following milestone in months: crawled
Query milestone_age_mo_solidfood Float Recommended Age in which the participant accomplished the following milestone in months: started solid foods
Query milestone_age_mo_words Integer Recommended Age in which the participant accomplished the following milestone in months: used words
Query milestone_age_mo_stopbottle Integer Recommended Age in which the participant accomplished the following milestone in months: gave up bottle
Query milestone_age_mo_toilettrain Integer Recommended Age in which the participant accomplished the following milestone in months: was toilet trained
Query milestone_age_mo_walkalone Integer Recommended Age in which the participant accomplished the following milestone in months: walked alone
Query milestone_age_mo_fedselfspoon Integer Recommended Age in which the participant accomplished the following milestone in months: fed self with a spoon
Query toilet_train_day Integer Recommended 8. Acquisition of bladder control: daytime 0 :: 600; 993;994;995;996;997;998;999 993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
Query toilet_train_night Integer Recommended 9. Acquisition of bladder control: nighttime 0 :: 120;993;994;995;996;997;998;999 993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
Query milestone_age_mo_word_sent Integer Recommended Age in which the participant accomplished the following milestone in months: combined words in short sentences
cllinical_diagnosis String 100 Recommended clinical diagnosis Autism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; None
Query diag_ageatdiag Integer Recommended Age at diagnosis(in months)
0 :: 1200
Query lang_use Integer Recommended Please estimate your child's use of language 0::3 0 = Does not yet use single words; 1 = Uses 1 to 5 words daily; 2 = 2-3 word combinations daily; 3 = Full sentences daily
Query child_education Integer Recommended Current educational or other placement 0::7 0 = At home; 1 = Day care; 2 = Nursery/preschool; 3 = Kindergarten; 4 = School; 5 = Day program; 6 = Independent job; 7 = Supported job
Query chi_school Integer Recommended Highest grade of school child has completed / What is the highest level of education your child has completed? 1::22 1 = Preschool; 2 = Kindergarten; 3 = 1st grade; 4 = 2nd grade; 5 = 3rd grade; 6 = 4th grade; 7 = 5th grade; 8 = 6th grade; 9 = 7th grade; 10 = 8th grade; 11 = 9th grade; 12 = 10th grade; 13 = 11th grade; 14 = 12th grade; 15 = High school graduate / Other; 16 = GED; 17 = Some college credite but less than 1 year; 18 = One or more years of college at a 2-year program, no degree; 19 = Two years of college at a 4-year program, no degree; 20 = Three years or more of college at a 4-year, no degree; 21 = Associates degree; 22 = Bachelors degree
job_detail String 255 Recommended Please indicate type of program/job and amount of hours per week.
class_detail String 255 Recommended Any special type of classes or extra support provided? Specify
medication1_name String 500 Recommended Name first medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication1_current String 10 Required First medication currently taking?
Yes;No;999
999=NA/missing
Query medication1_past String 10 Recommended First medication took in the past?
Yes;No
Query medication1_frequency String 120 Recommended First medication frequency
medication1_dosage String 150 Recommended First medication dosage 0 = No medication; 999 = Missing
Query medication1_time Integer Recommended How long has first medication been taken? months
medication2_name String 500 Recommended Name second medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication2_current String 10 Recommended second medication currently taking?
Yes;No
Query medication2_past String 10 Recommended second medication took in the past?
Yes;No
Query medication2_frequency String 50 Recommended Second medication frequency
Query medication2_dosage String 100 Recommended Second medication dosage 0 = No medication; 999 = Missing
Query medication2_time Integer Recommended How long has second medication been taken? months
Query medication3_name String 500 Recommended Name third medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication3_current String 10 Recommended third medication currently taking?
Yes;No
Query medication3_past String 10 Recommended third medication took in the past?
Yes;No
Query medication3_frequency String 70 Recommended Third medication frequency
Query medication3_dosage String 100 Recommended Third medication dosage 0 = No medication; 999 = Missing
Query medication3_time Integer Recommended How long has third medication been taken? months
Query medication4_name String 500 Recommended Name fourth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication4_current String 10 Recommended fourth medication currently taking?
Yes;No
Query medication4_past String 10 Recommended fourth medication took in the past?
Yes;No
Query medication4_frequency String 50 Recommended Fourth medication frequency
Query medication4_dosage String 100 Recommended Fourth medication dosage 0 = No medication; 999 = Missing
Query medication4_time Integer Recommended How long has fourth medication been taken? months
Query medication5_name String 500 Recommended Name fifth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication5_current String 10 Recommended fifth medication currently taking?
Yes;No
Query medication5_past String 10 Recommended fifth medication took in the past?
Yes;No
Query medication5_frequency String 50 Recommended Fifth medication frequency
Query medication5_dosage String 100 Recommended Fifth medication dosage 0 = No medication; 999 = Missing
Query medication5_time Integer Recommended How long has fifth medication been taken? months
Query medication6_name String 500 Recommended Name sixth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication6_current String 10 Recommended sixth medication currently taking?
Yes;No
Query medication6_past String 10 Recommended sixth medication took in the past?
Yes;No
Query medication6_frequency String 50 Recommended Sixth medication frequency
Query medication6_dosage String 100 Recommended Sixth medication dosage 0 = No medication; 999 = Missing
Query medication6_time Integer Recommended How long has sixth medication been taken? months
Query medication7_name String 500 Recommended Name seventh medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication7_current String 10 Recommended seventh medication currently taking?
Yes;No
Query medication7_past String 10 Recommended seventh medication took in the past?
Yes;No
Query medication7_frequency String 50 Recommended Seventh medication frequency
medication7_dosage String 100 Recommended Seventh medication dosage 0 = No medication; 999 = Missing
Query medication7_time Integer Recommended How long has seventh medication been taken? months
Query medication8_name String 500 Recommended Name eighth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication8_current String 10 Recommended eighth medication currently taking?
Yes;No
Query medication8_past String 10 Recommended eighth medication took in the past?
Yes;No
medication8_frequency String 50 Recommended Eighth medication frequency
medication8_dosage String 100 Recommended Eighth medication dosage 0 = No medication; 999 = Missing
Query medication8_time Integer Recommended How long has eighth medication been taken? months
Query medication9_name String 500 Recommended Name ninth medication that the participant has taken
Query medication9_current String 10 Recommended ninth medication currently taking?
Yes;No
Query medication9_past String 10 Recommended ninth medication took in the past?
Yes;No
medication9_frequency String 50 Recommended Ninth medication frequency
medication9_dosage String 100 Recommended Ninth medication dosage
Query medication9_time Integer Recommended How long has ninth medication been taken? months
Query medication10_name String 100 Recommended Name tenth medication that the participant has taken
Query medication10_current String 10 Recommended tenth medication currently taking?
Yes;No
Query medication10_past String 10 Recommended tenth medication took in the past?
Yes;No
medication10_frequency String 50 Recommended Tenth medication frequency
medication10_dosage String 50 Recommended Tenth medication dosage
Query medication10_time Integer Recommended How long has tenth medication been taken? months
Query cg1_race String 100 Recommended Race of the Caregiver/Parent 1 American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query cg2_race String 100 Recommended Race of the Caregiver/Parent 2 American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query cg1_ethnicity String 30 Recommended Caregiver/Parent 1's ethnicity Hispanic or Latino; Not Hispanic or Latino
Query cg2_ethnicity String 30 Recommended Caregiver/Parent 2's ethnicity Hispanic or Latino; Not Hispanic or Latino
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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