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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Advocacy Behaviors Form

107 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/30/2017
adbf01
01/25/2024
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01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query sixmo_advbeh_agenc Integer Recommended Searched the internet to find agencies and/or services to meet your child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_par Integer Recommended Talked with other parents about agencies and/or services to meet your child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_asp Integer Recommended Called adult service provider agencies to ask about eligibility and services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_train Integer Recommended Attended trainings about adult services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_docum Integer Recommended put into writing) your advocacy/communication with agencies and professionals? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_asked Integer Recommended Asked questions to professionals about services/eligbility? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_phone Integer Recommended Talked with other parents (over the phone) about agencies and/or services to meet their child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_inpers Integer Recommended Talked with other parents in person about agencies and/or services to meet their child's needs? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_facil Integer Recommended Facilitated trainings or support groups for other families about adult services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_review Integer Recommended Reviewed the records of another family to help them determine which services they are eligible for? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_comm Integer Recommended Helped another family communicate with agencies and professionals? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_visit Integer Recommended Visited the office or held meetings with legislators about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_letters Integer Recommended Written letters to legislators about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_media Integer Recommended Tried to get media attention (e.g., newspaper, television, radio) about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_leader Integer Recommended Taken on leadership roles in national, state, or local agencies related to disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
Query sixmo_advbeh_present Integer Recommended Presented at state or national conferences about disability services? 1::5 1=Not at all; 2=A little; 3=Sometimes; 4=Often; 5=Very often
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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