|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
hispanic |
Integer |
|
Recommended |
Is subject of Hispanic, Latino, or Spanish origin? |
0; 1; 999
|
0 = No; 1 = Yes; 999= missing
|
|
Query
|
race |
String |
30
|
Required |
Race of study subject |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
|
|
|
Query
|
cg1_relationship |
String |
100
|
Recommended |
Caregiver/Parent 1's Relationship to Participant |
|
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
|
|
Query
|
cg2_relationship |
String |
100
|
Recommended |
Caregiver/Parent 2's Relationship to Participant |
|
Parent;Step-parent;Foster parent;Grandparent;Other family member;Other; Biological Mother; Biological Father; Biological Parent; Adoptive Parent; Adoptive/Foster Parent; I do not wish to disclose; Step-father; Step-mother
|
|
Query
|
cg_relation_status |
String |
50
|
Recommended |
Caregiver's relationship status |
married; widowed;separated;widowed, remarried;divorced, neither remarried;unmarried;divorced, both remarried;other;divorced, one remarried; living as though married; divorced
|
|
|
|
cg_relation_status_specify |
String |
50
|
Recommended |
Caregiver's relationship status other, specify |
|
|
|
Query
|
liveswith |
String |
100
|
Recommended |
child lives with |
|
|
|
|
liveswithother |
String |
50
|
Recommended |
Child lives with other, specify |
|
|
|
Query
|
household_physical_custody |
String |
50
|
Recommended |
Physical Custody situation if mother and father are divorced or separated |
Joint;Mother has sole custody;Father has sole custody
|
|
|
Query
|
num_in_house_kids |
Integer |
|
Recommended |
Number of Individuals in Household Children |
|
|
|
Query
|
child1_age |
String |
100
|
Recommended |
Other Child in Household 1 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child1_gender |
String |
10
|
Recommended |
Other Child in Household 1 Gender |
Male;Female;Other
|
|
|
Query
|
child1_education |
String |
100
|
Recommended |
Other Child in Household 1 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child1_handedness |
String |
100
|
Recommended |
Other Child in Household 1 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child1_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 1 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
Query
|
child2_age |
String |
100
|
Recommended |
Other Child in Household 2 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child2_gender |
String |
10
|
Recommended |
Other Child in Household 2 Gender |
Male;Female;Other
|
|
|
Query
|
child2_education |
String |
100
|
Recommended |
Other Child in Household 2 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child2_handedness |
String |
100
|
Recommended |
Other Child in Household 2 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child2_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 2 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
Query
|
child3_age |
String |
100
|
Recommended |
Other Child in Household 3 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child3_gender |
String |
10
|
Recommended |
Other Child in Household 3 Gender |
Male;Female;Other
|
|
|
Query
|
child3_education |
String |
100
|
Recommended |
Other Child in Household 3 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child3_handedness |
String |
100
|
Recommended |
Other Child in Household 3 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child3_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 3 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
Query
|
child4_age |
String |
100
|
Recommended |
Other Child in Household 4 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child4_gender |
String |
10
|
Recommended |
Other Child in Household 4 Gender |
Male;Female;Other
|
|
|
Query
|
child4_education |
String |
100
|
Recommended |
Other Child in Household 4 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child4_handedness |
String |
100
|
Recommended |
Other Child in Household 4 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child4_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 4 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
Query
|
child5_age |
String |
100
|
Recommended |
Other Child in Household 5 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child5_gender |
String |
10
|
Recommended |
Other Child in Household 5 Gender |
Male;Female;Other
|
|
|
Query
|
child5_education |
String |
100
|
Recommended |
Other Child in Household 5 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child5_handedness |
String |
100
|
Recommended |
Other Child in Household 5 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child5_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 5 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
|
child6_age |
String |
100
|
Recommended |
Other Child in Household 6 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child6_gender |
String |
10
|
Recommended |
Other Child in Household 6 Gender |
Male;Female;Other
|
|
|
Query
|
child6_education |
String |
100
|
Recommended |
Other Child in Household 6 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child6_handedness |
String |
100
|
Recommended |
Other Child in Household 6 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child6_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 6 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
|
child7_age |
String |
100
|
Recommended |
Other Child in Household 7 Age |
|
0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ years
|
|
Query
|
child7_gender |
String |
10
|
Recommended |
Other Child in Household 7 Gender |
Male;Female
|
|
|
Query
|
child7_education |
String |
100
|
Recommended |
Other Child in Household 7 School Level |
Pre-school;Elementary;Jr high/middle;High school;Post-HS
|
|
|
Query
|
child7_handedness |
String |
100
|
Recommended |
Other Child in Household 7 Handedness |
Left-handed;Right-handed
|
|
|
Query
|
child7_proband_relationship |
String |
100
|
Recommended |
Other Child in Household 7 Relationship to Participant |
Sibling;Half-sibling;Other relative;Not related
|
|
|
Query
|
chi_living |
Integer |
|
Recommended |
child living arrangement |
1::3
|
1 = At home; 2 = In an institution; 3 = Other
|
|
|
chi_living_other |
String |
255
|
Recommended |
child living arrangement_other |
|
Other living arrangement
|
|
Query
|
cg1_education |
String |
100
|
Recommended |
Caregiver/Prent 1's Highest Level of Education |
|
Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School
|
|
Query
|
cg2_education |
String |
100
|
Recommended |
Caregiver/Parent 2's Highest Level of Education |
|
Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School
|
|
|
cg1_occupation |
String |
100
|
Recommended |
Caregiver/Parent 1's Occupation |
|
|
|
|
cg2_occupation |
String |
100
|
Recommended |
Caregiver/Parent 2's Occupation |
|
|
|
Query
|
cg_totalincome |
Integer |
|
Recommended |
total combined family income |
1::7
|
1 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000
|
|
Query
|
milestone_age_mo_smile |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: smiled |
|
|
|
Query
|
milestone_age_mo_satup |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: sat up without support |
|
|
|
Query
|
milestone_age_mo_crawl |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: crawled |
|
|
|
Query
|
milestone_age_mo_solidfood |
Float |
|
Recommended |
Age in which the participant accomplished the following milestone in months: started solid foods |
|
|
|
Query
|
milestone_age_mo_words |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: used words |
|
|
|
Query
|
milestone_age_mo_stopbottle |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: gave up bottle |
|
|
|
Query
|
milestone_age_mo_toilettrain |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: was toilet trained |
|
|
|
Query
|
milestone_age_mo_walkalone |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: walked alone |
|
|
|
Query
|
milestone_age_mo_fedselfspoon |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: fed self with a spoon |
|
|
|
Query
|
toilet_train_day |
Integer |
|
Recommended |
8. Acquisition of bladder control: daytime |
0 :: 600; 993;994;995;996;997;998;999
|
993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
|
|
Query
|
toilet_train_night |
Integer |
|
Recommended |
9. Acquisition of bladder control: nighttime |
0 :: 120;993;994;995;996;997;998;999
|
993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked
|
|
Query
|
milestone_age_mo_word_sent |
Integer |
|
Recommended |
Age in which the participant accomplished the following milestone in months: combined words in short sentences |
|
|
|
|
cllinical_diagnosis |
String |
100
|
Recommended |
clinical diagnosis |
|
Autism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; None
|
|
Query
|
diag_ageatdiag |
Integer |
|
Recommended |
Age at diagnosis(in months) |
|
|
|
Query
|
lang_use |
Integer |
|
Recommended |
Please estimate your child's use of language |
0::3
|
0 = Does not yet use single words; 1 = Uses 1 to 5 words daily; 2 = 2-3 word combinations daily; 3 = Full sentences daily
|
|
Query
|
child_education |
Integer |
|
Recommended |
Current educational or other placement |
0::7
|
0 = At home; 1 = Day care; 2 = Nursery/preschool; 3 = Kindergarten; 4 = School; 5 = Day program; 6 = Independent job; 7 = Supported job
|
|
Query
|
chi_school |
Integer |
|
Recommended |
Highest grade of school child has completed / What is the highest level of education your child has completed? |
1::22
|
1 = Preschool; 2 = Kindergarten; 3 = 1st grade; 4 = 2nd grade; 5 = 3rd grade; 6 = 4th grade; 7 = 5th grade; 8 = 6th grade; 9 = 7th grade; 10 = 8th grade; 11 = 9th grade; 12 = 10th grade; 13 = 11th grade; 14 = 12th grade; 15 = High school graduate / Other; 16 = GED; 17 = Some college credite but less than 1 year; 18 = One or more years of college at a 2-year program, no degree; 19 = Two years of college at a 4-year program, no degree; 20 = Three years or more of college at a 4-year, no degree; 21 = Associates degree; 22 = Bachelors degree
|
|
|
job_detail |
String |
255
|
Recommended |
Please indicate type of program/job and amount of hours per week. |
|
|
|
|
class_detail |
String |
255
|
Recommended |
Any special type of classes or extra support provided? Specify |
|
|
|
|
medication1_name |
String |
500
|
Recommended |
Name first medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication1_current |
String |
10
|
Required |
First medication currently taking? |
|
999=NA/missing
|
|
Query
|
medication1_past |
String |
10
|
Recommended |
First medication took in the past? |
|
|
|
Query
|
medication1_frequency |
String |
120
|
Recommended |
First medication frequency |
|
|
|
|
medication1_dosage |
String |
150
|
Recommended |
First medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication1_time |
Integer |
|
Recommended |
How long has first medication been taken? months |
|
|
|
|
medication2_name |
String |
500
|
Recommended |
Name second medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication2_current |
String |
10
|
Recommended |
second medication currently taking? |
|
|
|
Query
|
medication2_past |
String |
10
|
Recommended |
second medication took in the past? |
|
|
|
Query
|
medication2_frequency |
String |
50
|
Recommended |
Second medication frequency |
|
|
|
Query
|
medication2_dosage |
String |
100
|
Recommended |
Second medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication2_time |
Integer |
|
Recommended |
How long has second medication been taken? months |
|
|
|
Query
|
medication3_name |
String |
500
|
Recommended |
Name third medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication3_current |
String |
10
|
Recommended |
third medication currently taking? |
|
|
|
Query
|
medication3_past |
String |
10
|
Recommended |
third medication took in the past? |
|
|
|
Query
|
medication3_frequency |
String |
70
|
Recommended |
Third medication frequency |
|
|
|
Query
|
medication3_dosage |
String |
100
|
Recommended |
Third medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication3_time |
Integer |
|
Recommended |
How long has third medication been taken? months |
|
|
|
Query
|
medication4_name |
String |
500
|
Recommended |
Name fourth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication4_current |
String |
10
|
Recommended |
fourth medication currently taking? |
|
|
|
Query
|
medication4_past |
String |
10
|
Recommended |
fourth medication took in the past? |
|
|
|
Query
|
medication4_frequency |
String |
50
|
Recommended |
Fourth medication frequency |
|
|
|
Query
|
medication4_dosage |
String |
100
|
Recommended |
Fourth medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication4_time |
Integer |
|
Recommended |
How long has fourth medication been taken? months |
|
|
|
Query
|
medication5_name |
String |
500
|
Recommended |
Name fifth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication5_current |
String |
10
|
Recommended |
fifth medication currently taking? |
|
|
|
Query
|
medication5_past |
String |
10
|
Recommended |
fifth medication took in the past? |
|
|
|
Query
|
medication5_frequency |
String |
50
|
Recommended |
Fifth medication frequency |
|
|
|
Query
|
medication5_dosage |
String |
100
|
Recommended |
Fifth medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication5_time |
Integer |
|
Recommended |
How long has fifth medication been taken? months |
|
|
|
Query
|
medication6_name |
String |
500
|
Recommended |
Name sixth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication6_current |
String |
10
|
Recommended |
sixth medication currently taking? |
|
|
|
Query
|
medication6_past |
String |
10
|
Recommended |
sixth medication took in the past? |
|
|
|
Query
|
medication6_frequency |
String |
50
|
Recommended |
Sixth medication frequency |
|
|
|
Query
|
medication6_dosage |
String |
100
|
Recommended |
Sixth medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication6_time |
Integer |
|
Recommended |
How long has sixth medication been taken? months |
|
|
|
Query
|
medication7_name |
String |
500
|
Recommended |
Name seventh medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication7_current |
String |
10
|
Recommended |
seventh medication currently taking? |
|
|
|
Query
|
medication7_past |
String |
10
|
Recommended |
seventh medication took in the past? |
|
|
|
Query
|
medication7_frequency |
String |
50
|
Recommended |
Seventh medication frequency |
|
|
|
|
medication7_dosage |
String |
100
|
Recommended |
Seventh medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication7_time |
Integer |
|
Recommended |
How long has seventh medication been taken? months |
|
|
|
Query
|
medication8_name |
String |
500
|
Recommended |
Name eighth medication that the participant has taken |
|
0 = No medication; 999= Legitimately skipped
|
|
Query
|
medication8_current |
String |
10
|
Recommended |
eighth medication currently taking? |
|
|
|
Query
|
medication8_past |
String |
10
|
Recommended |
eighth medication took in the past? |
|
|
|
|
medication8_frequency |
String |
50
|
Recommended |
Eighth medication frequency |
|
|
|
|
medication8_dosage |
String |
100
|
Recommended |
Eighth medication dosage |
|
0 = No medication; 999 = Missing
|
|
Query
|
medication8_time |
Integer |
|
Recommended |
How long has eighth medication been taken? months |
|
|
|
Query
|
medication9_name |
String |
500
|
Recommended |
Name ninth medication that the participant has taken |
|
|
|
Query
|
medication9_current |
String |
10
|
Recommended |
ninth medication currently taking? |
|
|
|
Query
|
medication9_past |
String |
10
|
Recommended |
ninth medication took in the past? |
|
|
|
|
medication9_frequency |
String |
50
|
Recommended |
Ninth medication frequency |
|
|
|
|
medication9_dosage |
String |
100
|
Recommended |
Ninth medication dosage |
|
|
|
Query
|
medication9_time |
Integer |
|
Recommended |
How long has ninth medication been taken? months |
|
|
|
Query
|
medication10_name |
String |
100
|
Recommended |
Name tenth medication that the participant has taken |
|
|
|
Query
|
medication10_current |
String |
10
|
Recommended |
tenth medication currently taking? |
|
|
|
Query
|
medication10_past |
String |
10
|
Recommended |
tenth medication took in the past? |
|
|
|
|
medication10_frequency |
String |
50
|
Recommended |
Tenth medication frequency |
|
|
|
|
medication10_dosage |
String |
50
|
Recommended |
Tenth medication dosage |
|
|
|
Query
|
medication10_time |
Integer |
|
Recommended |
How long has tenth medication been taken? months |
|
|
|
Query
|
cg1_race |
String |
100
|
Recommended |
Race of the Caregiver/Parent 1 |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
|
|
|
Query
|
cg2_race |
String |
100
|
Recommended |
Race of the Caregiver/Parent 2 |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
|
|
|
Query
|
cg1_ethnicity |
String |
30
|
Recommended |
Caregiver/Parent 1's ethnicity |
Hispanic or Latino; Not Hispanic or Latino
|
|
|
Query
|
cg2_ethnicity |
String |
30
|
Recommended |
Caregiver/Parent 2's ethnicity |
Hispanic or Latino; Not Hispanic or Latino
|
|
|