|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
newid, patid, pid, record_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
client_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
asstyp |
Integer |
|
Recommended |
Assessment type |
1::20
|
1=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
|
|
Query
|
stage |
Integer |
|
Recommended |
Study stage |
|
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
|
|
Query
|
bsit0 |
Float |
|
Recommended |
Weeks from Time 0/baseline to assessment |
|
|
csqat0, csqpt0 |
Query
|
dsmvers |
String |
10
|
Recommended |
version/name of assessment |
|
|
|
Query
|
csqa1 |
Integer |
|
Recommended |
Question 1: The interest and concern that my doctor has shown for me/my child has been: |
1::7
|
1 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superior
|
csqp1 |
Query
|
csqa2 |
Integer |
|
Recommended |
Question 2: Thinking about the quality of care, how well has your/your child doctor been in treating you/your child? |
1::7
|
1 = Poor 2 = Fair 3 = Slightly Below Average 4 = Average 5 = Slightly Above Average 6 = High 7 = Superior
|
csqp2 |
Query
|
csqa3 |
Integer |
|
Recommended |
Question 3: How hard was it to do the questionnaires and interviews for the study? |
1::7
|
1 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easy
|
csqp3 |
Query
|
csqa4 |
Integer |
|
Recommended |
Question 4: How hard was it to do the tasks the therapist/doctor asked you to do? |
1::7
|
1 = Very Hard 2 = Hard 3 = A Little Hard 4 = Neutral 5 = Slightly Easy 6 = Easy 7 = Very Easy
|
csqp4 |
Query
|
csqp5 |
Integer |
|
Recommended |
Question 5: The length or duration of the treatment program that my child received was: |
1::7
|
1 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Long
|
|
Query
|
csqa5a |
Integer |
|
Recommended |
Question 5a: Were the individual treatment sessions: |
1::7
|
1 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Long
|
csqp7 |
Query
|
csqa5b |
Integer |
|
Recommended |
Question 5b: Was the total length of the treatment you received: |
1::7
|
1 = Much Too Short 2 = Too Short 3 = Slightly Too Short 4 = Appropriate 5 = Slightly Too Long 6 = Too Long 7 = Much Too Long
|
csqp6 |
Query
|
csqa6 |
Integer |
|
Recommended |
Question 6: Do you think other patients who are depressed should get this treatment? |
1::7
|
1 = Definitely Not 2 = Probably Not 3 = Maybe Not 4 = Neutral 5 = Maybe 6 = Probably 7 = Definitely
|
csqp8 |
Query
|
csqa7 |
Integer |
|
Recommended |
Question 7: How happy are you with the treatment you/your child received? |
1::7
|
1 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happy
|
csqp9 |
Query
|
csqa8 |
Integer |
|
Recommended |
Question 8: The problems that made me/my child want to start treatment are now: |
1::7
|
1 = Much Worse 2 = Worse 3 = Slightly Worse 4 = The Same 5 = A Little Better 6 = Better 7 = A Lot Better
|
csqp10 |
Query
|
csqa9 |
Integer |
|
Recommended |
Question 9: How happy are you with how much treatment helped you/your child? |
1::7
|
1 = Very Unhappy 2 = Unhappy 3 = Slightly Unhappy 4 = Neutral 5 = Slightly Happy 6 = Happy 7 = Very Happy
|
csqp11 |
Query
|
csqa10 |
Integer |
|
Recommended |
Question 10: Before starting treatment, the way I thought about my future/my child future was: |
1::7
|
1 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positive
|
csqp12 |
Query
|
csqa11 |
Integer |
|
Recommended |
Question 11: Now, the way I think about my future/my child future is: |
1::7
|
1 = Very Negative 2 = Negative 3 = Slightly Negative 4 = Neutral 5 = Slightly Positive 6 = Positive 7 = Very Positive
|
csqp13 |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
timept |
Query
|
visday |
Integer |
|
Recommended |
Number of days from study baseline to date of visit |
|
|
csdays, daypsq |
Query
|
truncvis |
Integer |
|
Recommended |
Truncated Visit Number |
|
Created variable: provides a numeric visit number for all visits, including unscheduled and end of phase
|
|
Query
|
psq1 |
Integer |
|
Recommended |
C: How would you rate the quality of care you have received? P: How would you rate the quality of care your child has received? |
1::4
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent
|
csq8_01, end_6, eos_1 |
Query
|
psq2 |
Integer |
|
Recommended |
C: Did you get the kind of help you wanted? P: Did you get the kind of help you wanted for your child? |
1::4
|
1 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely;
|
csq8_02, end_7, eos_2 |
Query
|
psq3 |
Integer |
|
Recommended |
C: To what extent has the program met your needs? P: To what extent has the program met your child's needs? |
1::4
|
1 = None of my (child's) needs have been met; 2 = Only a few of my (child's) needs have been met; 3 = Most of my (child's) needs have been met; 4 = Almost all of my (child's) needs have been met
|
cs1, csq8_03, end_8, eos_3 |
Query
|
psq4 |
Integer |
|
Recommended |
C: If a friend were in need of similar help, would you recommend the program to him her? P: If a friend's child were in need of similar help, would you recommend the program to him her? |
1::4
|
1 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely
|
csq8_04, end_9, eos_4 |
Query
|
psq5 |
Integer |
|
Recommended |
C: How satisfied are you with the amount of help you have received? P: How satisfied are you with the amount of help your child has received? |
1::4
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied
|
csq8_05, end_10, eos_5 |
Query
|
psq6 |
Integer |
|
Recommended |
C: Has the help you have received helped you to deal more effectively with your problems? P: Has the help your child received helped your child to deal more effectively with his her problems? |
1::4
|
1 = No, they seemed to make things worse; 2 = No, they really didn't help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great deal
|
csq8_06, end_11, eos_6 |
Query
|
psq7 |
Integer |
|
Recommended |
C: In an overall, general sense, how satisfied are you with the help you have received? P: In an overall, general sense, how satisfied are you with the help your child has received? |
1::4
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied
|
cs2, csq8_07, csq_2, end_12, eos_7 |
Query
|
psq8 |
Integer |
|
Recommended |
C: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program? |
1::4
|
1 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely
|
cs3, csq8_08, end_13, eos_8 |
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
|
|
respondent_other |
String |
50
|
Recommended |
FIGS Y1: Respondent other than mother or father |
|
|
|
Query
|
respondent_other_specify |
String |
50
|
Recommended |
Respondent: Other (specify) |
|
|
|
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
meancs |
Float |
|
Recommended |
Mean of Consumer Satisfaction |
|
|
|
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
assigned_counselor, client_interviewer |
Query
|
icfwoths |
String |
250
|
Recommended |
Reason ICF Withdrawn: Other text |
|
|
withdraw_reason |
Query
|
i_group |
String |
3
|
Recommended |
Treatment Assignment |
|
TAU = Treatment As Usual; SPI = Suicide Prevention Intervention
|
condition |
Query
|
withdrawal |
Integer |
|
Recommended |
Withdrawal by participant post-randomization |
1::3
|
1 = stopped treatment but continued assessments & chart reviews ; 2 = stopped assessments but continued chart reviews ; 3 = stopped assessments and chart reviews
|
|
Query
|
withdrawn_type |
String |
10
|
Recommended |
Has the participant withdrawn post-randomization from assessments? Chart review? Treatment? |
|
1 = assessments; 2 = chart review; 3 = treatment
|
withdrawn |
Query
|
spi_session |
Integer |
|
Recommended |
If withdrawn from study: immediate treatment history |
1;2
|
1 = Received in-jail session; 2 = Received at least ONE post-release SPI session
|
|
Query
|
withdrawn___1 |
Integer |
|
Recommended |
Has the participant withdrawn post-randomization from: Assessments? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
withdrawn___2 |
Integer |
|
Recommended |
Has the participant withdrawn post-randomization from: Chart Review? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
withdrawn___3 |
Integer |
|
Recommended |
Has the participant withdrawn post-randomization from: Treatment? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
satis1 |
Integer |
|
Recommended |
Please rate how helpful you think the FER Assistant is for you personally |
1::10
|
1 = Not at all helpful; 5 = Somewhat helpful; 10 = Very helpful
|
|
Query
|
satis2 |
Integer |
|
Recommended |
Did you learn anything during the intervention? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
satis2_describe |
String |
200
|
Recommended |
If you have learned from the intervention, then briefly describe |
|
|
|
Query
|
satis3 |
Integer |
|
Recommended |
How easy was it to interact with the FER Assistant? |
1::10
|
1 = Not easy/Very hard; 5 = A little easy; 10 = Very easy
|
|
Query
|
satis4 |
Integer |
|
Recommended |
How fun or enjoyable was your experience with the FER Assistant? |
1::10
|
1 = Not at all fun; 5 = Somewhat fun; 10 = Very fun
|
|
Query
|
satis5_helpful |
String |
500
|
Recommended |
Please write down anything that you found especially useful or helpful from the program |
|
|
|
Query
|
satis5_unhelpful |
String |
500
|
Recommended |
Please write down anything that you found especially unhelpful from the program |
|
|
|
Query
|
satis5_recommend |
String |
500
|
Recommended |
To improve the FER Assistant, I would recommend [please let us know if there is anything we should change or do more/less of] |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
csq8_comments, csq_comments |
|
dode |
String |
10
|
Recommended |
Date of Data Entry |
|
|
client_entered |
Query
|
csq01 |
Integer |
|
Recommended |
To what extent has the study therapist met your needs? |
1::4
|
1 = None of my needs have been met ; 2 = Some of my needs have been met ; 3 = Most of my needs have been met ; 4 = Almost all of my needs have been met
|
csq_1 |
Query
|
csq03 |
Integer |
|
Recommended |
If you were to seek help again, would you come back to the study therapist you are currently seeing? |
1::4
|
1 = No, Definitely not ; 2 = No, I don't think so ; 3 = Yes, I think so ; 4 = Yes, Definitely
|
csq_3 |
Query
|
intent_1 |
Integer |
|
Recommended |
How likely is it that you will attend the next assessment session? |
0::10
|
0=Not at all;1-3=Mildly;4-6=Moderately;7-9=Markedly;10=Extremely
|
|
Query
|
csq04 |
Integer |
|
Recommended |
If a friend were in need of similar help, would you recommend your therapist to him or her? |
1::4
|
1 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely
|
|
Query
|
casq_1 |
Integer |
|
Recommended |
The MAIN problems that I wanted help with have improved. / Parent: The MAIN problems that I wanted my child treated for have improved |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_2 |
Integer |
|
Recommended |
OTHER problems that I had before coming here for therapy have improved. / Parent: OTHER problems that my child had have improved |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_3 |
Integer |
|
Recommended |
I am happy with what I have learned and my progress in therapy. / Parent: I am happy with my child's progress in treatment |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_4 |
Integer |
|
Recommended |
My treatment has improved other parts of my life (e.g. family relationships, my relationships with my friends, my own mood). / Parent: My child's treatment has improved other parts of my life (e.g., family relationships, my own mood) |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_5 |
Integer |
|
Recommended |
I know what to do if my problems get worse or bother me again. / Parent: I know what to do if my child's problems get worse or come back again |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_6 |
Integer |
|
Recommended |
My therapist has explained what we are doing in counseling. / Parent: My child's therapist has explained Trauma Focused Cognitive Behavioral Therapy to me. |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_7 |
Integer |
|
Recommended |
I understand how Trauma-Focused Cognitive Behavioral Therapy works. / Parent: I understand how Trauma Focused Cognitive Behavioral Therapy works |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_8 |
Integer |
|
Recommended |
My parents have been included in counseling. They talk with the therapist and have sessions with me. / Parent: I have felt included in my child's treatment. |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_9 |
Integer |
|
Recommended |
My therapist has listened to my thoughts, worries, and concerns. / Parent: My therapist has listened to my thoughts and concerns about my child. |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_10 |
Integer |
|
Recommended |
My therapist knows how to help me. / Parent: My child's therapist knows how to help my child. |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_11 |
Integer |
|
Recommended |
If a friend needed the same kind of help, I would tell them to come here. / Parent: I would recommend this treatment to a friend who had a child in the same situtation. |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
Query
|
casq_12 |
Integer |
|
Recommended |
Overall, I am happy with the therapy I got here. / Parent: Overall, I am satisfied with my child's treatment |
1::5
|
1 = Very much false; 2 = Mostly false; 3 = Both true & false; 4 = Mostly true; 5 = Very much true
|
|
|
casq_13 |
String |
300
|
Recommended |
What were the MOST HELPFUL parts of your therapy? / Parent: What were the MOST HELPFUL parts of your child's treatment? |
|
|
|
|
casq_14 |
String |
100
|
Recommended |
What were the parts of counseling you liked the LEAST? / Parent: What were the LEAST HELPFUL parts of your child's treatment? |
|
|
|
|
casq_15 |
String |
300
|
Recommended |
How could we make the counseling experience better? Please list your suggestions/thoughts: / Parent: Do you have any suggestions about improving this treatment? If so, please describe. |
|
|
|
|
eos_11 |
Integer |
|
Recommended |
Did you complete a safety plan with a SPIRIT study counselor either in jail or over the phone as part of the study? |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_12 |
Integer |
|
Recommended |
Have you used substances since you started the SPIRIT study?
Note: RA can use information from the AUDIT/DUDIT to complete this question. |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_13 |
Integer |
|
Recommended |
During times when you were drunk or high, did you remember that you had a safety plan? |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_14 |
Integer |
|
Recommended |
During times when you were drunk or high, did you use your safety plan? |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_15 |
String |
300
|
Recommended |
If you used your safety plan during times when you were drunk or high, how did you use it? |
|
|
|
|
eos_16 |
String |
300
|
Recommended |
If you did not use your safety plan during times when you were drunk or high, why didn't you use it? |
|
|
|
|
eos_17 |
Integer |
|
Recommended |
When you were not intoxicated on drugs or alcohol, did you remember that you had a safety plan? |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_18 |
Integer |
|
Recommended |
Did you use your safety plan when you were not intoxicated? |
0;1
|
0 = No; 1 = Yes
|
|
|
eos_19 |
String |
300
|
Recommended |
If you used your safety plan when you were not intoxicated, how did you use it? |
|
|
|
|
eos_20 |
String |
300
|
Recommended |
If you did not use your safety plan when you were not intoxicated, why didn't you use it? |
|
|
|
|
ref_child_id |
String |
50
|
Recommended |
Referencing Child ID how it is defined in lab/project |
|
|
|