|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
nimhid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
ptid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
testdate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
sradhd_finaldetail |
Integer |
|
Recommended |
How often do you have trouble wrapping up the final details of a project, once the challenging parts have been done? |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
asrs1, asrs_q_1, month6_putofflastminute, pasrs1 |
Query
|
sradhd_organize |
Integer |
|
Recommended |
How often do you have difficulty getting things in order when you have to do a task that requires organization? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs2, asrs_q_2, organize, pasrs2 |
Query
|
sradhd_remappointment |
Integer |
|
Recommended |
How often do you have problems remembering appointments or obligations? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs3, asrs_q_3, pasrs3, remappointment |
Query
|
sradhd_avoidstart |
Integer |
|
Recommended |
When you have a task that requires a lot of thought, how often do you avoid or delay getting started? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs4, asrs_q_4, aviodstart, pasrs4 |
Query
|
sradhd_fidget |
Integer |
|
Recommended |
How often do you fidget or squirm with your hands or feet when you have to sit down for a long time? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs5, asrs_q_5, fidget, pasrs5 |
Query
|
sradhd_overactive |
Integer |
|
Recommended |
How often do you feel overly active and compelled to do things, like you were driven by a motor? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs6, asrs_q_6, overactive, pasrs6 |
Query
|
asrs_score |
Integer |
|
Recommended |
ADHD Self report total score |
|
|
asrs_adhd_rs, asrs_part_a_score |
Query
|
asrs_exclusionscore |
Integer |
|
Recommended |
Exclusion score |
|
1 point for items 1-3 if the item score is 2 or higher; 1 point for items 4-6 if the item score is 3 or higher
|
|
Query
|
sradhd_diffproj |
Integer |
|
Recommended |
How often do you make careless mistakes when you have to work on a boring or difficult project? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs7, asrs_q_7, pasrs7 |
Query
|
sradhd_repwork |
Integer |
|
Recommended |
How often do you have difficulty keeping your attention when you are doing boring or repetitive work? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs8, asrs_q_8, pasrs8 |
Query
|
sradhd_diffconc |
Integer |
|
Recommended |
How often do you have difficulty concentrating on what people say to you, even when they are speaking to you directly? |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
asrs9, asrs_q_9, diffconcspeak, month6_diffconc, pasrs9 |
Query
|
sradhd_misplace |
Integer |
|
Recommended |
How often do you misplace or have difficulty finding things at home or at work? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs10, asrs_q_10, pasrs10 |
Query
|
sradhd_distract |
Integer |
|
Recommended |
How often are you distracted by activity or noise around you? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs11, asrs_q_11, distracted, pasrs11 |
Query
|
sradhd_meeting |
Integer |
|
Recommended |
How often do you leave your seat in meeting or other situations in which you are expected to remain seated? |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
asrs12, asrs_q_12, month6_leftseatunexpectedly, pasrs12 |
Query
|
sradhd_restl |
Integer |
|
Recommended |
How often do you feel restless or fidgety? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs13, asrs_q_13, pasrs13 |
Query
|
sradhd_relax |
Integer |
|
Recommended |
How often do you have difficulty unwinding and relaxing when you have time to yourself? |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
asrs14, asrs15, asrs_q_14, month6_troublerelaxing, pasrs14 |
Query
|
sradhd_soctalk |
Integer |
|
Recommended |
How often do you find yourself talking to much when you are in social situations? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs_q_15, pasrs15 |
Query
|
sradhd_finsent |
Integer |
|
Recommended |
When you're in a conversation, how often do you find yourself finishing the sentences of the people you are talking to, before they can finish them themselves? |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
asrs16, asrs_q_16, month6_finishedsentences, pasrs16 |
Query
|
sradhd_turn |
Integer |
|
Recommended |
How often do you have difficulty waiting your turn in situations when turn taking is required? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs17, asrs_q_17, pasrs17 |
Query
|
sradhd_inter |
Integer |
|
Recommended |
How often do you interrupt others when they are busy? |
0::4; 999
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing
|
asrs18, asrs_q_18, pasrs18 |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid |
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
timepoint |
Query
|
month6_dependentuponothers |
Integer |
|
Recommended |
Dependent on Others |
0::4; 999; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; 999 = Missing; -8=DON'T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
Query
|
sldc150 |
Integer |
|
Recommended |
ADHD. Current, age of onset |
|
|
|
Query
|
life_howmanyyearsadhd |
Integer |
|
Recommended |
NCS-R ADHD: ADHD - Number of Years |
|
|
|
Query
|
asrs_flag |
Integer |
|
Recommended |
Exclusion score flag |
0;1
|
1=asrs_exclusionscore is 4 or higher; 0=asrs_exclusionscore lower than 4
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
visit_year |
Integer |
|
Recommended |
Year of visit |
|
|
|
|
asrs_int |
Integer |
|
Recommended |
ASRS Inattentive Sum (sum of sradhd_finaldetail, sradhd_organize, sradhd_remappointment, sradhd_avoidstart, sradhd_diffproj, sradhd_repwork, sradhd_diffconc, sradhd_misplace, sradhd_distract) |
0::36
|
|
|
|
asrs_hyp |
Integer |
|
Recommended |
ASRS Hyperactive Sum (sum of sradhd_fidget, sradhd_overactive, sradhd_meeting, sradhd_restl, sradhd_relax, sradhd_soctalk, sradhd_finsent, sradhd_turn, sradhd_inter) |
0::36
|
|
|
|
asrs_c5 |
Integer |
|
Recommended |
How often do you put things off until the last minute? |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Very Often
|
who_adhd_5 |
|
asrs_c6 |
Integer |
|
Recommended |
How often do you depend on others to keep your life in order and attend to details? |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Very Often
|
who_adhd_6 |
|
who_adhd_1 |
Integer |
|
Recommended |
How often do you have difficulty concentrating on what people say to you, even when they are speaking to you directly? |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Very Often
|
|
|
who_adhd_2 |
Integer |
|
Recommended |
How often do you leave your seat in meetings or other situations in which you are expected to remain seated? |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Very Often
|
|
|
who_adhd_3 |
Integer |
|
Recommended |
How often do you have difficulty unwinding and relaxing when you have time to yourself? |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Very Often
|
|
|
who_adhd_4 |
Integer |
|
Recommended |
When you?re in a conversation, how often do you find yourself finishing the sentences of the people you are talking to before they can finish them themselves? |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Very Often
|
|
|
life_howoldfirstadhd |
Integer |
|
Recommended |
NCS-R ADHD: First Time ADHD Age |
|
|
|
|
asrs_dist_rs |
Integer |
|
Recommended |
Raw score derived from ASRS V1.1 symptom checklist |
0::8
|
Higher scores indicate more problems with distractibility related to ADHD.
|
|
|
asrs5_adhd_rs |
Integer |
|
Recommended |
Raw score derived from a screening assessment of current DSM-5 adult ADHD |
0::25
|
|
|
|
asrs5_adhd |
Integer |
|
Recommended |
ADHD indicator based on DSM5 ADHD score, Raw Score greater than or equal to 14 |
0;1
|
0=No; 1=Yes
|
|
|
asrs5_adhd_aoo |
Integer |
|
Recommended |
ADHD age of onset |
|
|
|
|
asrs5_adhd_trs |
Integer |
|
Recommended |
ADHD number of years |
|
|
|
|
diffconcspeak_2wk |
Integer |
|
Recommended |
ASRS-V1: Difficulty Concentrate People Say (2 wks) |
0::4; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
distracted_2wk |
Integer |
|
Recommended |
ASRS-V1: Distracted Noise Around You (2 wks) |
0::4; -5; -7; -8
|
0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Very Often; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
pals_strat01 |
String |
2,000
|
Recommended |
What strategies do you use to help with focus (e.g., keep working on a task, avoid distractions, hear what people tell you)? |
|
|
|
|
pals_strat02 |
String |
2,000
|
Recommended |
What strategies do you use to help you avoid doing or saying things impulsively (e.g., interrupting people, acting without thinking of the consequences)? |
|
|
|
|
pals_strat03 |
String |
2,000
|
Recommended |
What strategies do you use to help with organization (e.g., managing your time, remembering things, getting tasks accomplished)? |
|
|
|
|
pals_strat04 |
Integer |
|
Recommended |
Having ADHD has benefited me in some way, or has brought something good to my life. |
1 :: 5
|
1= Strong Disagree; 2= Disagree; 3= Neutral; 4= Agree; 5= Strongly Agree
|
|
|
pals_strat05 |
String |
2,000
|
Recommended |
How has having ADHD benefited you? |
|
|
|
|
asrs_c1 |
Integer |
|
Recommended |
How often do you have difficulty concentrating on what people are saying to you even when they are speaking to you directly? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
asrs_c2 |
Integer |
|
Recommended |
How often do you leave your seat in meetings or other situations in which you are expected to remain seated? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
asrs_c3 |
Integer |
|
Recommended |
How often do you have difficulty unwinding and relaxing when you have time to yourself? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
asrs_c4 |
Integer |
|
Recommended |
When you're in a conversation, how often do you find yourself finishing the sentences of the people you are talking to before they can finish them themselves? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
asrs_c5_v2 |
Integer |
|
Recommended |
How often do you put things off until the last minute? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
asrs_c6_v2 |
Integer |
|
Recommended |
How often do you depend on others to keep your life in order and attend to details? |
1::5
|
1 = Never ; 2 = Rarely ; 3 = Sometimes ; 4 = Often ; 5 = Very Often
|
|
|
custom_src_id |
String |
30
|
Recommended |
Subject ID how it's defined in lab/project (used for source IDs that change depending on timepoint/visit/etc.) |
|
|
|