|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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|
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
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subjectid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
visit_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
site_uid |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
visit_name |
|
session_id |
String |
20
|
Recommended |
session ID/screening ID |
|
|
screening_id |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
form_name |
Query
|
ptdied |
Integer |
|
Recommended |
patient died |
0;1;-7
|
0=No; 1=Yes; -7=Refused
|
subjst |
|
csdeath |
String |
255
|
Recommended |
Cause of death |
|
|
dthcs |
Query
|
dthdis |
Integer |
|
Recommended |
Death secondary to study disease |
1;2
|
1=Yes; 2=No
|
|
Query
|
autopsy |
Integer |
|
Recommended |
Was an autopsy performed? |
0;1; 999
|
0 = No; 1 = Yes; 999 = Legitimately Skipped
|
autpsst |
|
autpsydt |
Date |
|
Recommended |
Date of Autopsy |
|
|
|
Query
|
autpsrp |
Integer |
|
Recommended |
Has a copy of the autopsy report been obtained? |
1;2
|
1=Yes; 2=No
|
|
|
lstalvdt |
Date |
|
Recommended |
Date subject was last known to be alive |
|
|
|
|
lstinfdt |
Date |
|
Recommended |
Date this information was obtained |
|
|
|
|
lstinf |
String |
250
|
Recommended |
How this information was obtained |
|
|
|
|
date_updated |
Date |
|
Recommended |
Date record updated |
|
|
edit_date |
|
height_weight_2 |
String |
20
|
Recommended |
Height and weight |
|
H=, W=
|
|
|
monthofdeath |
Integer |
|
Recommended |
The month when subject dies January=1 and December=12 |
1::12
|
1=January; 2=February; 3=March; 4=April; 5=May; 6= June; 7=July; 8=August; 9=September; 10=October; 11=November; 12=December
|
|
|
timeofdeath |
String |
50
|
Recommended |
Time when the subject died |
|
|
|
|
cause_of_death |
String |
255
|
Recommended |
Cause of death of the subject |
|
|
|
|
brain_weight |
Float |
|
Recommended |
Mass of brain in grams |
|
-9 = Missing
|
|
|
marital_status |
Integer |
|
Recommended |
Marital status of adult subject |
1::6; 9
|
1 = Married; 2 = Divorced; 3 = Single or never married; 4 = Widow or widower; 5=Remarried; 6=Separated 9 = Unknown
|
|
|
smoker |
Integer |
|
Recommended |
Smoker? |
0 :: 4; 9
|
0=No; 1=Yes; 2= Yes, but not regularly (less than 10 per day); 3= Yes, regularly (10 or more a day); 4= Former smoker; 9=NK/missing
|
|
|
race |
String |
30
|
Recommended |
Race of study subject |
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
|
|
|
|
ethnicity |
String |
30
|
Recommended |
Ethnicity of participant |
Hispanic or Latino; Not Hispanic or Latino; Unknown
|
|
|
|
sexual_orientation |
Integer |
|
Recommended |
Sexual Orientation- Do you identify as: |
1::13
|
1 = Asexual; 2 = Bisexual; 3 = Gay; 4 = Lesbian; 5 = Pansexual; 6 = Queer; 7 = Questioning; 8 = Straight or heterosexual; 9 = Other; 10 = Homosexual; 11 = I am not sure yet; 12 = Multiple Orientations Listed; 13 = Decline to answer
|
|
|
diagnoses_1 |
String |
4,000
|
Recommended |
List all diagnosis here |
|
|
|
|
ph |
Float |
|
Recommended |
tissue pH |
|
-9 = Missing
|
|
|
pminterval |
Integer |
|
Recommended |
Post mortem interval in hours |
|
-9 = Missing
|
|
|
bmi |
Float |
|
Recommended |
body mass index of subject |
|
-9 = Missing
|
|
|
gender_at_death |
Integer |
|
Recommended |
Gender of the subject at death |
0::8
|
0=Female; 1=Gender Fluid; 2=Male; 3=Non-Binary; 4=Not Reported; 5=Other; 6=Transgender Female; 7=Transgender Male; 8=Unknown
|
|
|
dthrcrd01 |
Integer |
|
Recommended |
Was this related to ataxia? |
0;1;999
|
0=No; 1=Yes; 999=Unknown
|
|
|
dthrcrd02 |
String |
50
|
Recommended |
If yes, did it involve the following? (select all that apply) |
|
0=Fall; 1=Respiratory Failure; 2=Complication of Infection(UTI; bedsore; etc); 3=Other(Specify)
|
|
|
dthrcrd03 |
Integer |
|
Recommended |
Recent surgery? |
0;1;999
|
0=No; 1=Yes; 999=Unknown
|
|
|
dthrcrd04 |
String |
225
|
Recommended |
If yes; describe surgery |
|
|
|
|
dthrcrd05 |
String |
50
|
Recommended |
IDC10 Code: |
|
|
|
|
manner_of_death |
Integer |
|
Recommended |
Manner of the death of the subject |
0::7
|
0=Accident; 1=Homicide; 2=Natural; 3=No autopsy performed; 4=not filled in; 5=Pending; 6=Suicide; 7=Undetermined
|
|
|
pmi_confidence |
Integer |
|
Recommended |
Confidence on the PMI value |
0::3
|
0=Certain; 1=no level; 2=Not Filled In; 3=Uncertain
|
|
|
sexdesc |
String |
60
|
Recommended |
Participant sex at birth |
M;F;888
|
M = Male; F = Female; 888 = Choose not to respond
|
|