|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
fhdate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
fh08, gender |
|
family_user_def_id |
String |
25
|
Required |
Family Pedigree User-Defined ID |
|
|
fh01 |
Query
|
fh03 |
Integer |
|
Recommended |
3. Generation number |
1;2;3;4;5; 9
|
|
|
Query
|
control_proband_relation |
Integer |
|
Recommended |
if the participant has a relative diagnosed with ASD, specify the relationship to the affected person 0=mother; 1=father; 2=sister; 3=brother; 4=uncle; 5=aunt; 6=cousin; 7=grandmother; 8=grandfather |
0 :: 8
|
0 = Mother; 1 = Father; 2 = Sister; 3 = Brother; 4 = Uncle; 5 = Aunt; 6 = Cousin; 7 = Grandmother; 8 = Grandfather
|
fh04 |
Query
|
fh04oth |
String |
12
|
Recommended |
(specify other) |
|
|
|
|
fh05 |
String |
20
|
Recommended |
5. Biological mother's id |
|
|
|
|
fh06 |
String |
20
|
Recommended |
6. Biological father's id |
|
|
|
Query
|
fh07 |
Integer |
|
Recommended |
7. Subject adopted |
0;1;9
|
|
|
Query
|
fh13 |
Integer |
|
Recommended |
Birth order |
0::13; 99
|
99 = Missing value
|
|
Query
|
fh14 |
Integer |
|
Recommended |
14. Social sibship order |
0;1;2;3;8; 9
|
|
|
Query
|
fh15 |
Integer |
|
Recommended |
15. Side of family |
0;1;8; 9
|
|
|
Query
|
age_at_death_months |
Integer |
|
Recommended |
Age at death in months |
|
|
fh16 |
Query
|
fh17 |
Integer |
|
Recommended |
17. Marital status |
0;1;2;3;4;5;6;7;8; 9
|
|
|
Query
|
fh18 |
Integer |
|
Recommended |
18. Consanguineous marriage |
0;1;2;8; 9
|
|
|
Query
|
fh18b |
String |
40
|
Recommended |
(specify relationship) |
|
|
|
Query
|
fh19 |
Integer |
|
Recommended |
19. Offspring of consanguineous parents |
0;1;2; 9
|
|
|
Query
|
fh19b |
String |
40
|
Recommended |
(specify details) |
|
|
|
Query
|
fh20 |
Integer |
|
Recommended |
20. Number of marriages |
0::9
|
|
|
Query
|
fh21 |
Integer |
|
Recommended |
21. Education |
0;1;2;3;4;6;7;8; 9
|
|
|
Query
|
fh22 |
Integer |
|
Recommended |
22. Occupation |
0;1;2;3;4;5;6;7;8; 9
|
|
|
Query
|
fh23 |
Integer |
|
Recommended |
23. Inapplicability |
0;2; 9
|
|
|
Query
|
fh24 |
Integer |
|
Recommended |
24. Peculiar gait |
0;1;2;7;8; 9
|
|
|
Query
|
fh25 |
Integer |
|
Recommended |
25. Epilepsy |
0;1;2; 9
|
|
|
Query
|
fh26 |
Integer |
|
Recommended |
26. Language delay |
0;1;2;7;8; 9
|
|
|
Query
|
fh27 |
Integer |
|
Recommended |
27. Mental retardation |
0;1;2;3;4;7;8; 9
|
|
|
Query
|
fh28 |
Integer |
|
Recommended |
28. Cause of retardation |
0;1;2;3;7;8; 9
|
|
|
Query
|
fh29 |
Integer |
|
Recommended |
29. Reading retardation |
0;1;2;7;8; 9
|
|
|
Query
|
fh29am |
Integer |
|
Recommended |
29A. Learning disability: Math |
0;1;2;7;8; 9
|
|
|
Query
|
fh29as |
Integer |
|
Recommended |
29A. Learning disability: Spelling |
0;1;2;7;8; 9
|
|
|
Query
|
fh29aw |
Integer |
|
Recommended |
29A. Learning disability: Writing |
0;1;2;7;8; 9
|
|
|
Query
|
fh29b |
Integer |
|
Recommended |
29B. Language articulation |
0;1;2;8; 9
|
|
|
Query
|
fh30 |
Integer |
|
Recommended |
30. Social disorder |
0;1;8; 9
|
|
|
Query
|
fh31 |
Integer |
|
Recommended |
31. Lack of affection |
0;1;2;7;8; 9
|
|
|
Query
|
fh32 |
Integer |
|
Recommended |
32. Impaired social play |
0;1;2;7;8; 9
|
|
|
Query
|
fh33 |
Integer |
|
Recommended |
33. Circumscribed interests (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh34 |
Integer |
|
Recommended |
34. Circumscribed interests (adultdhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh35 |
Integer |
|
Recommended |
35. Impaired friendships (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh36 |
Integer |
|
Recommended |
36. Impaired friendships (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh37 |
Integer |
|
Recommended |
37. Shyness (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh38 |
Integer |
|
Recommended |
38. Shyness (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh39 |
Integer |
|
Recommended |
39. Lack of conversation (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh40 |
Integer |
|
Recommended |
40. Impaired conversation (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh41 |
Integer |
|
Recommended |
41. Social dysfunction (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh42 |
Integer |
|
Recommended |
42. Social dysfunction (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh43 |
Integer |
|
Recommended |
43. Socially odd (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh44 |
Integer |
|
Recommended |
44. Socially odd (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh45 |
Integer |
|
Recommended |
45. Over-sensitive (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh46 |
Integer |
|
Recommended |
46. Over-sensitive (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh47 |
Integer |
|
Recommended |
47. Rigid style (childhood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh48 |
Integer |
|
Recommended |
48. Rigid style (adulthood) |
0;1;2;7;8; 9
|
|
|
Query
|
fh49 |
Integer |
|
Recommended |
49. Impairment in social interaction |
0;1;2;7; 9
|
|
|
Query
|
fh50 |
Integer |
|
Recommended |
50. Impairment in communication |
0;1;2;7; 9
|
|
|
Query
|
fh51 |
Integer |
|
Recommended |
51. Repetitive behavior |
0;1;2;7; 9
|
|
|
Query
|
fh52 |
Integer |
|
Recommended |
52. Age abnormalities manifest |
0;1;8; 9
|
|
|
Query
|
fh53 |
Integer |
|
Recommended |
53. Autism |
0;1;2;6;7; 9
|
|
|
Query
|
fh54 |
Integer |
|
Recommended |
54. Psychiatric disorder screen |
0;1;8; 9
|
|
|
Query
|
fh55 |
Integer |
|
Recommended |
55. Alcohol abuse |
0;1;2;3;8; 9
|
|
|
Query
|
fh56 |
Integer |
|
Recommended |
56. Drug abuse |
0;1;2;3;8; 9
|
|
|
Query
|
fh57 |
Integer |
|
Recommended |
57. Depression |
0;1;2;3;5;7;8; 9
|
|
|
Query
|
fh571 |
Integer |
|
Recommended |
57.1. Number of 2-week episodes |
0::888; 9
|
|
|
Query
|
fh572 |
Integer |
|
Recommended |
57.2. Number since second child with disability |
0::888; 9
|
|
|
Query
|
fh57a |
Integer |
|
Recommended |
57A. Anxiety |
0;1;2;3;5;7;8; 9
|
|
|
Query
|
fh57a1 |
Integer |
|
Recommended |
57A.1. Number of months symptoms lasted |
0::888; 9
|
|
|
Query
|
fh57a2 |
Integer |
|
Recommended |
57A.2. Number since second child with disability |
0::888; 9
|
|
|
Query
|
fh58 |
Integer |
|
Recommended |
58. Affective disorder (summary) |
0;1;2;3;5;7;8; 9
|
|
|
Query
|
fh59 |
Integer |
|
Recommended |
59. Bipolar affective disorder (summary) |
0;1;2;3;5;8; 9
|
|
|
Query
|
fh60 |
Integer |
|
Recommended |
60. Schizophrenia etc. |
0;1;2;3;5;8; 9
|
|
|
Query
|
fh61 |
Integer |
|
Required |
61. Hyperactivity and ADD or ADHD |
0;1;2;5;8; 9
|
|
|
Query
|
fh62 |
Integer |
|
Recommended |
62. Oppositional defiant disorder |
0;1;2;5;8; 9
|
|
|
Query
|
fh63 |
Integer |
|
Recommended |
63. Conduct disorder |
0;1;2;3;5;8; 9
|
|
|
Query
|
fh64 |
Integer |
|
Recommended |
64. Obsessive-Compulsive Disorder |
0;1;2;3;5;8; 9
|
|
|
Query
|
fh65 |
Integer |
|
Recommended |
65. Tics |
0;1;2; 9
|
|
|
Query
|
fhsocdef |
Integer |
|
Required |
FHI Social (0=No, 1=TypeI, 2=TypeII) |
0::2; -999
|
0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
|
|
Query
|
fhcomdef |
Integer |
|
Required |
FHI Communcation (0=No, 1=TypeI, 2=TypeII) |
0::2; -999
|
0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
|
|
Query
|
fhrepdef |
Integer |
|
Required |
FHI Repetitive (0=No, 1=TypeI, 2=TypeII) |
0::2; -999
|
0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
|
|
Query
|
fhtot |
Integer |
|
Required |
FHI Total # of deficits (0,1,2-3) |
|
|
|
Query
|
fhsoc |
Integer |
|
Required |
FHI Social (0=No, 1=Yes) |
0; 1;-999
|
0 = No deficit; 1 = Yes deficit; -999 = Missing value
|
|
Query
|
fhcom |
Integer |
|
Required |
FHI Communcation (0=No, 1=Yes) |
0; 1;-999
|
0 = No deficit; 1 = Yes deficit; -999 = Missing value
|
|
Query
|
fhrep |
Integer |
|
Required |
FHI Repetitive (0=No, 1=Yes) |
0; 1;-999
|
0 = No deficit; 1 = Yes deficit; -999 = Missing value
|
|
Query
|
fhdefs |
Integer |
|
Required |
FHI Pattern of deficits |
|
|
|
Query
|
fhscrmsg |
String |
200
|
Recommended |
FHI Scoring message |
|
|
|
Query
|
fhqual |
Integer |
|
Required |
FHI: Quality of information |
0; 1;2;8;9
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
hcmnt |
|
fhi_8 |
Integer |
|
Recommended |
We do not feel we can survive if another problem hits us |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_9 |
Integer |
|
Recommended |
We believe that things will work out for the better if we work together as a family |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_10 |
Integer |
|
Recommended |
Life seems dull and meaningless |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_11 |
Integer |
|
Recommended |
We strive together and help each other no matter what |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_12 |
Integer |
|
Recommended |
When our family plans activities we try new and exciting things |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_13 |
Integer |
|
Recommended |
We listen to each others' problems, hurts and fears |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_14 |
Integer |
|
Recommended |
We tend to do the same things over and over...it's boring |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_15 |
Integer |
|
Recommended |
We seem to encourage each other to try new things and experiences |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_16 |
Integer |
|
Recommended |
It is better to stay at home than go out and do things with others |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_17 |
Integer |
|
Recommended |
Being active and learning new things are encouraged |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_18 |
Integer |
|
Recommended |
We work together to solve problems |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_19 |
Integer |
|
Recommended |
Most of the unhappy things that happen are due to bad luck |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_20 |
Integer |
|
Recommended |
We realize our lives are controlled by accidents and luck |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_1 |
Integer |
|
Recommended |
Trouble results from mistakes we make |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_2 |
Integer |
|
Recommended |
It is not wise to plan ahead and hope because things do not turn out anyway |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_3 |
Integer |
|
Recommended |
Our work and efforts are not appreciated no matter how hard we try and work |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_4 |
Integer |
|
Recommended |
In the long run, the bad things that happen to us are balanced by the good things that happen |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_5 |
Integer |
|
Recommended |
We have a sense of being strong even when we face big problems |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_6 |
Integer |
|
Recommended |
Many times I feel I can trust that even in difficult times things will work out |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|
|
fhi_7 |
Integer |
|
Recommended |
While we don't always agree, we can count on each other to stand by us in times of need |
0::3;99
|
0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
|
|