|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
subjectid, subjectnumber |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
chrgfrs_interview_date, chrgfrsfu_interview_date, chrgfss_interview_date, chrgfssfu_interview_date, datacollecteddate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
gfsr_1 |
Integer |
|
Recommended |
Do you have friends? |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_2 |
Integer |
|
Recommended |
Are they casual or close friends |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_3 |
Integer |
|
Recommended |
If only casual - are they school or work friends only |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_4 |
String |
25
|
Recommended |
If close - how long have you been close friends |
|
|
|
Query
|
gfsr_5 |
Integer |
|
Recommended |
Do you share personal things with each other |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_6 |
String |
25
|
Recommended |
How often do you see friends |
|
|
|
Query
|
gfsr_7 |
Integer |
|
Recommended |
Do you see them outside of work/school |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_8 |
String |
25
|
Recommended |
When was the last time you saw one of your friends outside of work/school |
|
|
|
Query
|
gfsr_9 |
Integer |
|
Recommended |
Do you usually initiate contact or activities with friends or do they typically call or invite you |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_10 |
Integer |
|
Recommended |
Do you ever avoid contact with friends |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_11 |
Integer |
|
Recommended |
Do you ever have problems/falling outs with friends |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_12 |
Integer |
|
Recommended |
Arguments or fights |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_13 |
String |
25
|
Recommended |
How are they typically resolved |
|
|
|
Query
|
gfsr_14 |
Integer |
|
Recommended |
Are you dating or interested in dating |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_15 |
Integer |
|
Recommended |
Do you spend time with family members (at home) |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_16 |
String |
25
|
Recommended |
How often do you comunicate with them |
|
|
|
Query
|
gfsr_17 |
Integer |
|
Recommended |
Do you ever avoid contact with family members |
0;1
|
0=No; 1=Yes
|
|
Query
|
gf_social_scale |
Integer |
|
Recommended |
Global Functioning: Social Scale score |
0::10;-900;-300
|
1=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioning; -900 = Missing; -300 = N/A
|
a_social_current, chrgfs_gf_social_scale, chrgfsfu_gf_social_scale, gbl_func_soc_curr, gf_social_scale_current, p_social_current |
Query
|
gf_social_low |
Integer |
|
Recommended |
Global Functioning: Social Scale low score (past year) |
0::10;-900;-300
|
1=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioning; -900 = Missing; -300 = N/A
|
a_social_lowest, chrgfs_gf_social_low, gbl_func_soc_low, p_social_lowest |
Query
|
gf_social_high |
Integer |
|
Recommended |
Global Functioning: Social Scale High score (past year) |
0::10;-900;-300
|
1=Extreme social isolation; 2=Inability to function socially; 3=Marginal ability to function socially; 4=Major impairment in social and interpersonal functioning; 5=Serious impairment in social/interpersonal functioning; 6=Moderate impairment in social/interpersonal functioning; 7=Mild problems in social/interpersonal functioning; 8=Good social/interpersonal functioning; 9=Above average social/interpersonal functioning; 10=Superior social/interpersonal functioning; -900 = Missing; -300 = N/A
|
a_social_highest, chrgfs_gf_social_high, gbl_func_soc_high, p_social_highest |
Query
|
gf_primaryrole |
Integer |
|
Recommended |
Primary role used for this rating |
1::4;-900;-300
|
1=School; 2=Work; 3=Homemaker; 4=Part-time school + Part-time work; -900 = Missing; -300 = N/A
|
chrgfr_gf_primaryrole, chrgfrfu_gf_primaryrole, gfsr_18 |
|
gfsr_19 |
String |
25
|
Recommended |
Where do you work? What are your job responsibilities? |
|
|
|
Query
|
hworked |
Integer |
|
Recommended |
About how many hours a week do/did you usually work? |
|
999 = Missing
|
gfsr_20 |
|
gfsr_21 |
String |
25
|
Recommended |
How long have you been at your current job |
|
|
|
Query
|
gfsr_22 |
Integer |
|
Recommended |
Have you had any recent changes in your job status |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_23 |
Integer |
|
Recommended |
Do you usually need assistance or regular supervision at work |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_24 |
String |
25
|
Recommended |
How often do you need extra help at work |
|
|
|
Query
|
gfsr_25 |
Integer |
|
Recommended |
Are there any tasks that you are not able to do alone at work |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_26 |
Integer |
|
Recommended |
at workDo you ever have trouble keeping up |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_27 |
Integer |
|
Recommended |
Are you able to catch up if you fall behind at work |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_28 |
Integer |
|
Recommended |
Have you received any comments (positive or negative) or formal reviews regarding your performance at work |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_29 |
Integer |
|
Recommended |
Have others pointed out things that you've done well or poorly. At work |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_30 |
Integer |
|
Recommended |
What type of school do you attend |
1::3
|
1=general education; 2= non-public school; 3=residential/hospital
|
|
Query
|
gfsr_31 |
Integer |
|
Recommended |
Have you ever been in special education classes or other non-general education classes |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_32 |
String |
25
|
Recommended |
How long have you been at this school |
|
|
|
Query
|
gfsr_33 |
Integer |
|
Recommended |
Have you had any recent changes in your school placement |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_34 |
Integer |
|
Recommended |
Do you receive any extra help or accomodations in your classes |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_35 |
Integer |
|
Recommended |
Do you receive tutoring or extra help in school or after school |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_36 |
Integer |
|
Recommended |
Do you receive extra time to take tests or are you able to leave the classroom to take tests in a quiet place |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_37 |
Integer |
|
Recommended |
Do you have trouble keeping up with your coursework |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_38 |
Integer |
|
Recommended |
Are you able to catch up if you fall behind, school |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_39 |
Integer |
|
Recommended |
How are your grades? Are you failing any classes |
0;1
|
0=No; 1=Yes
|
|
|
gfsr_40 |
String |
25
|
Recommended |
What are your responsibilities around the house or for the family |
|
|
|
|
gfsr_41 |
String |
25
|
Recommended |
How long have you been in charge of the home |
|
|
|
Query
|
gfsr_42 |
Float |
|
Recommended |
How many hours per week do you spend working on household tasks |
|
|
|
Query
|
gfsr_43 |
Integer |
|
Recommended |
Are you able to keep up with the demands of your household |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_44 |
Integer |
|
Recommended |
Household. Do you ever fall behind |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_45 |
Integer |
|
Recommended |
Fall behind in household tasks. If so, are you able to catch up or do you need others' help |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_46 |
Integer |
|
Recommended |
Are you avoiding any tasks at home |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_47 |
Integer |
|
Recommended |
Do you need regular assistance or supervision for any tasks within the home |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_48 |
Integer |
|
Recommended |
Have you received any comments (positive or negative) regarding your performance at home |
0;1
|
0=No; 1=Yes
|
|
Query
|
gfsr_49 |
Integer |
|
Recommended |
Have others pointed out things that you've done well or poorly. Housework |
0;1
|
0=No; 1=Yes
|
|
Query
|
gf_role_high |
Integer |
|
Recommended |
Global Functioning: Role Scale High score (past year) |
0::100;-900;-300
|
1=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioning; -900 = Missing; -300 = N/A
|
a_role_highest, chrgfr_gf_role_high, gbl_func_role_high, p_role_highest |
Query
|
gf_role_low |
Integer |
|
Recommended |
Global Functioning: Role Scale Low score (past year) |
0::100;-900;-300
|
1=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioning; -900 = Missing; -300 = N/A
|
a_role_lowest, chrgfr_gf_role_low, gbl_func_role_low, p_role_lowest |
Query
|
gf_role_scole |
Integer |
|
Recommended |
Global Functioning: Role Scale score |
0::100;-900;-300
|
1=Extreme role dysfunction; 2=Inability to function; 3=Marginal ability to function; 4=Major impairment in role functioning; 5=Serious impairment in role functioning; 6=Moderate impairment in role functioning; 7=Mild Impairment in role functioning; 8=Good role functioning; 9=Above average role functioning; 10=Superior role functioning; -900 = Missing; -300 = N/A
|
a_role_current, chrgfr_gf_role_scole, chrgfrfu_gf_role_scole, gbl_func_role_curr, gf_role_scale_current, p_role_current |
Query
|
sofas_currscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) current score |
0::100
|
0-10=Persistent inability to maintain minimal personal hygiene, unable to function without harming self or others without considerable external support; 11-20=Occasionally fails to maintain minimal personal hygiene. Unable to function independently; 21-30=Inability to function in almost all areas; 31-40=Major impairment in several areas such as work, school, or housework if a housewife/househusband, family relationships; 41-50=Serious impairment with work, school, or housework if a housewife; 51-60=Moderate difficulty in social, work, or school functioning; 61-70=Some difficulty in social, occupational, or school functioning; 71-80=No more than slight impairment in social, work, or school functioning; 81-90=Good functioning in all areas, occupationally and socially effective; 91-100=Superior functioning in a wide range of activities
|
|
Query
|
sofas_highscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Highest score in past year |
0::100
|
|
|
Query
|
sofas_lowscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Lowest score in past year |
0::100
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
highest_year_rs_gf |
Integer |
|
Recommended |
Rate the patient''s highest level of functioning in occupational, educational, and/or homemaker roles, as appropriate, within the past year |
1::10
|
1= Extreme role dysfunction; 2= Inability to function; 3= Marginal ability to function; 4= Major impairment in role functioning; 5= Serious Impairment in Role Functioning. Serious impairment independently; 6= Moderate impairment in role functioning; 7= Mild impairment in role functioning; 8= Good role functioning; 9= Above average role functioning; 10= Superior role functioning
|
|
|
file_upload_rs_gf |
File |
|
Recommended |
Upload any notes/documents |
|
|
|
|
comments_rs_gf |
String |
1,000
|
Recommended |
Comments |
|
|
|
|
current_ss_gf |
Integer |
|
Recommended |
Rate the patient''s most impaired level of social functioning within the past month |
1::10
|
1= Extreme social isolation; 2= Inability to function socially; 3= Marginal ability to function socially; 4= Major impairment in social and interpersonal functioning; 5= Serious impairment in social/interpersonal functioning; 6= Moderate impairment in social/interpersonal functioning; 7= Mild problems in social/interpersonal functioning; 8= Good social/interpersonal functioning; 9= Above average social/interpersonal functioning; 10= Superior social/interpersonal functioning
|
|
|
year_ss_gf |
Integer |
|
Recommended |
Rate the patient''s most impaired level of social functioning in the past year |
1::10
|
1= Extreme social isolation; 2= Inability to function socially; 3= Marginal ability to function socially; 4= Major impairment in social and interpersonal functioning; 5= Serious impairment in social/interpersonal functioning; 6= Moderate impairment in social/interpersonal functioning; 7= Mild problems in social/interpersonal functioning; 8= Good social/interpersonal functioning; 9= Above average social/interpersonal functioning; 10= Superior social/interpersonal functioning
|
|
|
highest_year_ss_gf |
Integer |
|
Recommended |
Rate the patient''s highest level of social functioning in the past year |
1::10
|
1= Extreme social isolation; 2= Inability to function socially; 3= Marginal ability to function socially; 4= Major impairment in social and interpersonal functioning; 5= Serious impairment in social/interpersonal functioning; 6= Moderate impairment in social/interpersonal functioning; 7= Mild problems in social/interpersonal functioning; 8= Good social/interpersonal functioning; 9= Above average social/interpersonal functioning; 10= Superior social/interpersonal functioning
|
|
|
file_upload_ss_gf |
File |
|
Recommended |
Upload any notes/documents |
|
|
|
|
comments_ss_gf |
String |
1,000
|
Recommended |
Comments |
|
|
|
|
current_rs_gf |
Integer |
|
Recommended |
Rate the patient''s lowest level of functioning in occupational, educational, and/or homemaker roles, as appropriate, within the past month |
1::10
|
1= Extreme role dysfunction; 2= Inability to function; 3= Marginal ability to function; 4= Major impairment in role functioning; 5= Serious Impairment in Role Functioning. Serious impairment independently; 6= Moderate impairment in role functioning; 7= Mild impairment in role functioning; 8= Good role functioning; 9= Above average role functioning; 10= Superior role functioning
|
|
|
year_rs_gf |
Integer |
|
Recommended |
Rate the patient''s lowest level of functioning in occupational, educational, and/or homemaker roles, as appropriate, within the past year |
1::10
|
1= Extreme role dysfunction; 2= Inability to function; 3= Marginal ability to function; 4= Major impairment in role functioning; 5= Serious Impairment in Role Functioning. Serious impairment independently; 6= Moderate impairment in role functioning; 7= Mild impairment in role functioning; 8= Good role functioning; 9= Above average role functioning; 10= Superior role functioning
|
|
|
gfsr_39_compare |
String |
140
|
Recommended |
(baseline only) How does this compare to your performance as a homemaker one year ago? [follow up question to gfsr_39] |
|
|
|
|
gfsr_49_compare |
String |
140
|
Recommended |
(baseline only) How does this compare to your performance as a homemaker one year ago? [follow up question to gfsr_49] |
|
|
|
|
ampscz_missing |
Integer |
|
Recommended |
Please click if this form is missing all of its data |
0;1
|
0 = Not clicked; 1 = Clicked
|
chrgfrs_missing, chrgfrsfu_missing, chrgfss_missing, chrgfssfu_missing |
|
ampscz_missing_spec |
Integer |
|
Recommended |
Please specify the reason for missing data on this form |
0::6
|
0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit
|
chrgfrs_missing_spec, chrgfrsfu_missing_spec, chrgfss_missing_spec, chrgfssfu_missing_spec |
|
ampscz_entry_date |
Date |
|
Recommended |
Date of Data Entry |
|
MM/DD/YYYY
|
chrgfrs_entry_date, chrgfrsfu_entry_date, chrgfss_entry_date, chrgfssfu_entry_date |
|
chrgfs_overallsat |
Integer |
|
Recommended |
How satisfied are you with your current social life on a scale from 0 to 5 (with 5 being the most satisfied)? |
0::5;-900;-300
|
0 = 0; 5 = 5; -900 = Missing; -300 = N/A
|
chrgfsfu_overallsat |
|
chrgfrs_global_role_decline |
Integer |
|
Recommended |
Decline in role functioning (highest score in lifetime - current score) |
0::10;-900;-300
|
-900 = Missing; -300 = N/A; chrgfr_gf_role_high-chrgfr_gf_role_scole
|
chrgfrs_decline_in_global_role_functioning |
|
chrgfss_global_social_decline |
Integer |
|
Recommended |
Decline in social functioning (highest score in lifetime - current score) |
0::10;-900;-300
|
-900 = Missing; -300 = N/A; chrgfs_gf_social_high-chrgfs_gf_social_scale
|
chrgfss_decline_in_global_social_functioning |