|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
interview_date_csq |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
csq_md01 |
Integer |
|
Recommended |
How would you rate the quality of the program? |
1::4
|
1=Poor; 2=Fair;3=Good,4=Excellent
|
q1, servicequality |
Query
|
csq_md02 |
Integer |
|
Recommended |
Did your patients get the kind of help they need? |
1::4
|
1=No, definitely not;2=No, not really;3=Yes, generally;4=Yes, definitely
|
q2, servicekind |
Query
|
csq_md03 |
Integer |
|
Recommended |
To what extent has our program met your needs in the management of patients with bipolar disorder? |
1::4
|
1=None of my needs have been met;2=Only a few of my needs have been met;3=Most of my needs have been met;4=Almost all of my needs have been met
|
csq_cor1, metneeds, q3 |
Query
|
csq_md04 |
Integer |
|
Recommended |
How likely would you be to recommend our program to a patient with bipoolar disorder in the future? |
1::4
|
1=No, definitely not;2=No, I don't think so;3=Yes, I think so;4=Yes, definitely
|
q4, recommend |
Query
|
csq_md05 |
Integer |
|
Recommended |
How satisfied are you with the procedures for referring patients to the program? |
1::4
|
1=Quite dissatisfied;2=Indifferent or mildly dissatisfied;3=Mostly satisfied;4=Very satisfied
|
amountsatisfied, q5 |
Query
|
csq_md06 |
Integer |
|
Recommended |
Did the program help you out in your efforts to take better care of your patients? |
1::4
|
1=No, it seemed to make things worse;2=No, it really didn't help;3-Yes, it helped somewhat;4=Yes, it helped a great deal
|
helped, q6 |
Query
|
csq_md07 |
Integer |
|
Recommended |
How satistifed are you with information received about patients as the progressed through the program? |
1::4
|
1=Quite dissatisfied;2=Indifferent or mildly dissatisfied;3=Mostly satisfied;4=Very satisfied
|
csq_cor2, q7, servicesatisfied |
Query
|
psq8 |
Integer |
|
Recommended |
C: If you were to seek help again, would you come back to our program? P: If you were to seek help again for your child, would you come back to our program? |
1::4
|
1 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely
|
comeback, csq_cor3, csq_md08, q8 |
Query
|
interv |
Integer |
|
Recommended |
Intervention Status |
0;1
|
1=ITV, intervention; 0=TAU, treatment as usual
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
csq1 |
Integer |
|
Recommended |
The FREQUENCY of having blood draws was: |
1::4;7;8
|
not the blood draws themselves; 1 = Very convenient; 2 = Convenient; 3 = Inconvenient; 4 = Very inconvenient; 7 = Refused; 8 = Don�t Know
|
|
Query
|
csq2 |
Integer |
|
Recommended |
The frequency of coming for visits was: |
1::4;7;8
|
1 = Very convenient; 2 = Convenient; 3 = Inconvenient; 4 = Very inconvenient; 7 = Refused; 8 = Don�t Know
|
|
Query
|
csq3 |
Integer |
|
Recommended |
Participating in interviews was: |
1::3;7;8
|
1 = Very helpful; 2 = Helpful; 3 = Not helpful; 7 = Refused; 8 = Don't Know
|
|
Query
|
csq4 |
Integer |
|
Recommended |
Meeting with the psychiatrist was: |
1::3;7;8
|
1 = Very helpful; 2 = Helpful; 3 = Not helpful; 7 = Refused; 8 = Don't Know
|
|
Query
|
csq5 |
Integer |
|
Recommended |
Did you benefit from participating in this study? |
1::4;7;8
|
1 = Not at all; 2 = Somewhat; 3 = A Lot; 4 = A Great Deal; 7 = Refused; 8 = Don't Know
|
|
Query
|
csq6 |
Integer |
|
Recommended |
How troublesome was participating in this study for you? |
1::4;7;8
|
1 = Not at all; 2 = Somewhat; 3 = A Lot; 4 = A Great Deal; 7 = Refused; 8 = Don't Know
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
Query
|
me2 |
Integer |
|
Recommended |
Status |
0;1
|
0 = Past [Inactive]; 1 = Active
|
|
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
|
|
csq_th1 |
Integer |
|
Recommended |
Was there a therapist listed? |
0;1
|
0= No; 1= Yes
|
|
|
csq_cor4 |
Integer |
|
Recommended |
Have you received any therapy or treatment from a provider besides the study therapist while participating? |
0;1
|
0= No; 1= Yes
|
|
|
csq_cor5a |
String |
150
|
Recommended |
What type of therapy or treatment did you receive? |
|
|
|
|
csq_cor5b |
String |
150
|
Recommended |
Who provided these services? What is their title? |
|
|
|
|
csq_cor5c |
String |
150
|
Recommended |
When did you begin receiving theses services? |
|
|
|
|
csq_cor5d |
String |
150
|
Recommended |
How often did you receive these services? |
|
|
|
|
csq_cor6 |
Integer |
|
Recommended |
Did you read the "Take Charge of your Pain" booklet? |
0;1
|
0= No; 1= Yes
|
|
|
csq_cor7 |
Integer |
|
Recommended |
If yes, did you find the information in the "Take Charge of your Pain" booklet helpful? |
|
|
|
|
csq_total_score |
Integer |
|
Recommended |
CSQ Total Score |
|
|
|
|
csq_3 |
Integer |
|
Recommended |
How much of a problem were the following: Disruption of family routines due to your child's illness |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_4 |
Integer |
|
Recommended |
How much of a problem were the following: Any family member having to do without things because of your child's illness |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_6 |
Integer |
|
Recommended |
How much of a problem were the following: Your child getting into trouble with the neighbors, community or law enforcement? |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_7 |
Integer |
|
Recommended |
How much of a problem were the following: Financial strain for your family as a result of your child's illness |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
whichtool |
String |
100
|
Recommended |
Which tool is this about? |
|
|
|
|
usedtool |
Integer |
|
Recommended |
Did you use the following tool? |
0;1
|
0= No; 1= Yes
|
|
|
featuresatisfied |
Float |
|
Recommended |
How satisfied were you with this feature? |
1::5
|
1= Not at all; 3= Somewhat; 5= Extremely
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
cssq_1 |
Integer |
|
Recommended |
Help with healing? |
1::4
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent
|
|
|
cssq_2 |
Integer |
|
Recommended |
Help with community reconciliation? |
1::4
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent
|
|
|
cssq_3 |
Integer |
|
Recommended |
Match religious beliefs and cultural practices? |
1::4
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent
|
|
|
cssq_4 |
Integer |
|
Recommended |
Recommend program? |
1::4
|
1 = No definitely not; 2 = No I don't think so; 3 = Yes I think so; 4 = Yes definitely
|
|
|
cssq_5 |
Integer |
|
Recommended |
Overall satisfaction |
1::4
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied
|
|
|
cssq_total |
Integer |
|
Recommended |
Sum score |
5::20
|
Lower scores means less satisfied
|
|
|
ref_child_id |
String |
50
|
Recommended |
Referencing Child ID how it is defined in lab/project |
|
|
|
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
1::94;-999
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
|
csq8_8 |
Integer |
|
Recommended |
If you were to seek help again, would you come back to our service? |
1::4; 999
|
1 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_1 |
Integer |
|
Recommended |
How would you rate the quality of service you received? |
1::4; 999
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent; 999 = Missing
|
|
|
csq8_2 |
Integer |
|
Recommended |
Did you get the kind of service you wanted? |
1::4; 999
|
1 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_3 |
Integer |
|
Recommended |
To what extent has our service met your needs? |
1::4; 999
|
1 = None of my needs have been met; 2 = Only a few of my needs have been met; 3 = Most of my needs have been met; 4 = Almost all of my needs have been met; 999 = Missing
|
|
|
csq8_4 |
Integer |
|
Recommended |
If a friend were in need of similar help, would you recomment our service to him or her? |
1::4; 999
|
1 = No, definitely not; 2 = No, I don't think so; 3 = Yes, I think so; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_5 |
Integer |
|
Recommended |
How satisfied are you with the amount of help you received? |
1::4; 999
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied; 999 = Missing
|
|
|
csq8_6 |
Integer |
|
Recommended |
Have the services you received helped you to deal more effectively with your problems? |
1::4; 999
|
1 = No, they seemed to make things worse; 2 = No, they didn't really help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great deal; 999 = Missing
|
|
|
csq8_7 |
Integer |
|
Recommended |
In an overall, general sense, how satisfied are you with the service you received? |
1::4; 999
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied; 999 = Missing
|
|
|
csq_9 |
Integer |
|
Recommended |
How much of a problem were the following: Disruption or upset relationships within your family due to your child's illness |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_10 |
Integer |
|
Recommended |
How much of a problem were the following: Disruption of your family's social activities resulting from your child's illness |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_11 |
Integer |
|
Recommended |
How you felt about life in your household: How socially isolated did you feel as a result of your child's illness? |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
csq_11a |
Integer |
|
Recommended |
Please rate how confident or strongly you feel or believe that this would be your choice. |
1::4; 999
|
1= Mild; 2= Mild-Moderately; 3= Moderately; 4= Moderately-Strongly; 5= Strongly; 6= Extremely
|
|
|
csq_12 |
Integer |
|
Recommended |
How you felt about life in your household: How sad or unhappy did you feel as a result of your child's illness? |
1::5; -7; -8; -9; 999
|
1 = Not at all; 2 = A little; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply; 999=missing
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
acsq_md8 |
Integer |
|
Recommended |
If you were to seek help again, would you come back to our program for treatment? |
0::6
|
0=Yes, definitely; 2=Yes, I think so; 4=No, I don''t think so; 6=No, definitely not
|
|
|
acsq_md1 |
Integer |
|
Recommended |
How would you rate the quality of treatment you received? |
0::6
|
0=Poor; 2=Fair; 4=Good; 6=Excellent
|
|
|
acsq_md2 |
Integer |
|
Recommended |
Did you get the kind of treatment you wanted? |
0::6
|
0=Yes, definitely; 2=Yes, generally; 4=No, not really; 6=No, definitely not
|
|
|
acsq_md3 |
Integer |
|
Recommended |
To what extent has the treatment met your needs? |
0::6
|
0=None of my needs have been met; 2=Only a few of my needs have been met; 4=Most of my needs have been met; 6=Almost all of my needs have been met
|
|
|
acsq_md4 |
Integer |
|
Recommended |
If a friend were in need of similar help, would you recommend this treatment to him or her? |
0::6
|
0=Yes, definitely; 2=Yes, generally; 4=No, not really; 6=No, definitely not
|
|
|
acsq_md5 |
Integer |
|
Recommended |
How satisfied are you with the amount of help you have received? |
0::6
|
0=Very satisfied; 2=Mostly satisfied; 4=Indifferent or mildly dissatisfied; 6=Quite dissatisfied
|
|
|
acsq_md6 |
Integer |
|
Recommended |
Has the treatment you received helped you to deal more effectively with your problems? |
0::6
|
0=No, they seemed to make things worse; 2=No, they really didn''t help; 4=Yes, they helped somewhat; 6=Yes, they helped a great deal
|
|
|
acsq_md7 |
Integer |
|
Recommended |
In an overall, general sense, how satisfied are you with the treatment you have received? |
0::6
|
0=Quite dissatisfied; 2=Indifferent or mildly dissatisfied; 4=Mostly satisfied; 6=Very satisfied
|
|
|
csq8_c_7 |
Integer |
|
Recommended |
In an overall, general sense, how satisfied was the client with the service they received? |
1::4; 999
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied; 999 = Missing
|
|
|
csq8_c_8 |
Integer |
|
Recommended |
If your client were to seek help again, would they come back to the service? |
1::4; 999
|
1 = No, definitely not; 2 = No, I don''t think so; 3 = Yes, I think so; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_c_tot |
Integer |
|
Recommended |
CSQ-8 Total Score: Counselor-Report |
8::32
|
Sum of all counselor-reported CSQ-8 items
|
|
|
csq8_tot |
Integer |
|
Recommended |
CSQ-8 Total Score: Self-Report |
8::32
|
Sum of all CSQ-8 items
|
|
|
csq8_c_1 |
Integer |
|
Recommended |
How would your client rate the quality of service you provided? |
1::4; 999
|
1 = Poor; 2 = Fair; 3 = Good; 4 = Excellent; 999 = Missing
|
|
|
csq8_c_2 |
Integer |
|
Recommended |
Did the client get the kind of service they wanted? |
1::4; 999
|
1 = No, definitely not; 2 = No, not really; 3 = Yes, generally; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_c_3 |
Integer |
|
Recommended |
To what extent has the service met your client''s needs? |
1::4; 999
|
1 = None of my client''s needs have been met; 2 = Only a few of my client''s needs have been met; 3 = Most of my client''s needs have been met; 4 = Almost all of my client''s needs have been met; 999 = Missing
|
|
|
csq8_c_4 |
Integer |
|
Recommended |
If your client''s friend were in need of similar help, would they recommend the service you provided? |
1::4; 999
|
1 = No, definitely not; 2 = No, I don''t think so; 3 = Yes, I think so; 4 = Yes, definitely; 999 = Missing
|
|
|
csq8_c_5 |
Integer |
|
Recommended |
How satisfied was your client with the amount of help they received? |
1::4; 999
|
1 = Quite dissatisfied; 2 = Indifferent or mildly dissatisfied; 3 = Mostly satisfied; 4 = Very satisfied; 999 = Missing
|
|
|
csq8_c_6 |
Integer |
|
Recommended |
Did the services you provide help the client to deal more effectively with their problems? |
1::4; 999
|
1 = No, they seemed to make things worse; 2 = No, they didn''t really help; 3 = Yes, they helped somewhat; 4 = Yes, they helped a great deal; 999 = Missing
|
|