|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
cpsa_problems1 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have difficulty remembering to do things that I have scheduled. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems2 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget to go to doctor's appointments. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems3 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have difficulty remembering to take medications. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems4 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget to do housework or chores. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems5 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have difficulty remembering to take a bath or shower. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems6 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget whether I've taken my medication. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems7 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble remembering events that are coming up in the next few weeks. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems8 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget people's names. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems9 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble remembering the names of my medications. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems10 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget my medication dosages. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems11 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have difficulty memorizing things that I need to know. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems12 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I forget details from conversations. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems13 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have problems with memory retrieval (I know the information is in my brain, but I just can't seem to get it out). |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems14 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble learning new information. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems15 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I lose things like my keys, glasses, or wallet. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems16 |
Integer |
|
Recommended |
Problems with Thinking and Memory: If I have a lot of things to do, I have trouble knowing which thing to do first. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems17 |
Integer |
|
Recommended |
Problems with Thinking and Memory: My living space is a mess because I have trouble getting organized with my chores. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems18 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I run out of medication because I have not planned ahead to get my medication. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems19 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble staying focused during conversations. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems20 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I get distracted by other things when I am talking with someone. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems21 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble staying focused while I work on a task. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems22 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I get distracted by other things when I am working on a project. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems23 |
Integer |
|
Recommended |
Problems with Thinking and Memory: When I have a conversation, I get off track instead of staying on the topic. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems24 |
Integer |
|
Recommended |
Problems with Thinking and Memory: When I don't understand what someone is saying, I just pretend that I do understand. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems25 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble understanding what to do when someone gives me instructions. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems26 |
Integer |
|
Recommended |
Problems with Thinking and Memory: I have trouble solving problems. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems27 |
Integer |
|
Recommended |
Problems with Thinking and Memory: My thinking gets stuck in a rut. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems28 |
Integer |
|
Recommended |
Problems with Thinking and Memory: When I need to solve a problem, I try one solution, and if it doesn't work, I give up. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems29 |
Integer |
|
Recommended |
Problems with Thinking and Memory: There is only one way to solve a problem. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_problems30 |
Integer |
|
Recommended |
Problems with Thinking and Memory: If I'm solving a problem and my solution is not working, I keep trying the same strategy until it works. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies1 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I use a calendar regularly to schedule and remember appointments and activities. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies2 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I check a calendar every day to see what I have scheduled that day. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies3 |
Integer |
|
Recommended |
Memory and Thinking Strategies: Once a week or so, I look at my calendar and make a plan for the week. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies4 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I keep a written list of things I need to do. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies5 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I keep a written list of appointments I need to go to. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies6 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I remember to do certain things by pairing them up with other things that I do on a regular basis (e.g., remember to clean out the refrigerator every time I come home with groceries). |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies7 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I remember where things are by putting them in the same place all the time. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies8 |
Integer |
|
Recommended |
Memory and Thinking Strategies: If I need to remember something, I write it down somewhere. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies9 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I place reminders for myself where I am sure to see them. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies10 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I remember things by creating visual pictures in my mind. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies11 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I take notes on things I want to learn and remember. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies12 |
Integer |
|
Recommended |
Memory and Thinking Strategies: If I want to remember something I've just heard, I repeat it to myself over and over. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies13 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I remember things by linking new information to information I already know. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies14 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I use acronyms to remember things. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies15 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I put things I have to remember into categories. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies16 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I use rhymes to remember things. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies17 |
Integer |
|
Recommended |
Memory and Thinking Strategies: If I want to learn something, I study it over and over until I know it by heart. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies18 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I repeat back what I hear to make sure I've understood things people tell me. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies19 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I make eye contact with someone who is talking to help me understand what is being said. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies20 |
Integer |
|
Recommended |
Memory and Thinking Strategies: To stay focused, I talk to myself while I'm working on a task. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies21 |
Integer |
|
Recommended |
Memory and Thinking Strategies: If I don't understand something that someone says, I ask the person questions about it until I am sure I understand. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies22 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I usually stick to a daily schedule. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies23 |
Integer |
|
Recommended |
Memory and Thinking Strategies: My living space is organized so there is a place for everything, and everything is in its place. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies24 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I use brainstorming to help me solve problems. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies25 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I use a problem-solving method to help me solve problems. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies26 |
Integer |
|
Recommended |
Memory and Thinking Strategies: When I am solving a problem, I talk myself through it, step by step. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies27 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I test out my ideas to see if they are accurate. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies28 |
Integer |
|
Recommended |
Memory and Thinking Strategies: I test out ideas by gathering "pro" and "con" evidence. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies29 |
Integer |
|
Recommended |
Memory and Thinking Strategies: When I am working on something, I monitor myself to see how I'm doing. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
Query
|
cpsa_strategies30 |
Integer |
|
Recommended |
Memory and Thinking Strategies: When I'm having trouble solving a problem, I switch to a different strategy. |
0::3
|
0 = Rarely/Never; 1 = Sometimes; 2 = Often; 3 = Always
|
|
|
stusdy |
String |
40
|
Recommended |
Study ID |
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
ptm_total |
Integer |
|
Recommended |
Total Score: Problems with Thinking and Memory |
|
|
|
Query
|
mts_total |
Integer |
|
Recommended |
Total Score: Memory and Thinking Strategies |
|
|
|
|
eal_tools |
String |
500
|
Recommended |
Environmental Tools |
|
1 = Step-by-step division of a task ; 2 = Preparatory steps for a task ; 3 = Calendars ; 4 = Filing folders ; 5 = Shaping procedure to sustain attention ; 6 = Minimize distractions ; 7 = Notebooks ; 8 = Diaries ; 9 = Checklists ; 10 = Pictures ; 11 = Signs ; 12 = Sticky notepapers and reminders ; 13 = Magnetized notepads ; 14 = Customized audiotapes ; 15 = Voice alarms ; 16 = Computerized reminder phone calls ; 17 = Timers ; 18 = Timed pre-recorded messages ; 19 = Beeping watches ; 20 = Alarms ; 21 = Plant ; 22 = Other Tool
|
|
|
eal |
String |
100
|
Recommended |
Specify Other Environmental Adaptation Tool |
|
|
|
Query
|
eal_all |
Integer |
|
Recommended |
Were Environmental Adaptation Tools used for all weeks (every visit)? |
0;1
|
0 = No; 1 = Yes
|
|
|
eal_weeks |
String |
100
|
Recommended |
Which Weeks were tools used? |
|
Select all that apply: Weeks 1 - 12; 13 = Extra Weeks
|
|
Query
|
eal_cost |
Float |
|
Recommended |
Environmental Adapdation Cost (in $) |
|
|
|
Query
|
eal_per |
Float |
|
Recommended |
Environmental Adaptations: Percent Successful |
|
|
|
Query
|
lineno |
Integer |
|
Recommended |
Line number (lines per participant) |
0::150
|
|
|