|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
fos_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
fos_sec_a_1 |
Integer |
|
Recommended |
We know the next steps for our child's growth and learning. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_2 |
Integer |
|
Recommended |
We understand our child's strengths and abilities. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_3 |
Integer |
|
Recommended |
We understand our child's delays and/or needs. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_4 |
Integer |
|
Recommended |
We are able to tell when our child is making progress. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_5 |
Integer |
|
Recommended |
We are able to find and use the services and programs available to us. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_6 |
Integer |
|
Recommended |
We know our rights related to our child's special needs. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_7 |
Integer |
|
Recommended |
We know who to contact and what to do when we have questions or concerns. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_8 |
Integer |
|
Recommended |
We know what options are available when our child leaves the program. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_9 |
Integer |
|
Recommended |
We are comfortable asking for services & supports that our child and family need. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_10 |
Integer |
|
Recommended |
We are able to help our child get along with others. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_11 |
Integer |
|
Recommended |
We are able to help our child learn new skills. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_12 |
Integer |
|
Recommended |
We are able to help our child take care of his/her needs. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_13 |
Integer |
|
Recommended |
We are able to work on our child's goals during everyday routines. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_14 |
Integer |
|
Recommended |
We are comfortable talking to family and friends about our child's needs. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_15 |
Integer |
|
Recommended |
We have friends or family members who listen and care. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_16 |
Integer |
|
Recommended |
We are able to talk with other families who have a child with similar needs. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_17 |
Integer |
|
Recommended |
We have friends or family members we can rely on when we need help. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_18 |
Integer |
|
Recommended |
I am able to take care of my own needs and do things that I enjoy. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_19 |
Integer |
|
Recommended |
Our child participates in social, recreational, or religious activities that we want. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_20 |
Integer |
|
Recommended |
We are able to do things we enjoy together as a family. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_21 |
Integer |
|
Recommended |
Our medical and dental needs are met. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_22 |
Integer |
|
Recommended |
Our child care needs are met. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_23 |
Integer |
|
Recommended |
Our transportation needs are met. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
Query
|
fos_sec_a_24 |
Integer |
|
Recommended |
Our food, clothing, housing, needs are met. |
0::4
|
0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
|
|
|
fos_ei |
String |
5
|
Recommended |
Is your child current receiving Early Intervention (EI) services? |
Yes;No
|
|
|
Query
|
fos_sec_b_1 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about the services and supports for you and your child? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_2 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about your rights related to your child's special needs? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_3 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about who to contact when you have questions or concerns? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_4 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about available options when your child leaves the program? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_5 |
Integer |
|
Recommended |
How helpful has early intervention been in explaining your rights in ways that are easy to understand? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_6 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about your child's delays or needs? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_7 |
Integer |
|
Recommended |
How helpful has early intervention been in listening to you and respecting your choices? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_8 |
Integer |
|
Recommended |
How helpful has early intervention been in connecting you with other services or people who can help your child and family? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_9 |
Integer |
|
Recommended |
How helpful has early intervention been in talking with you about your child and family's strengths and needs? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_10 |
Integer |
|
Recommended |
How helpful has early intervention been in talking with you about what you think is important for your child and your family? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_11 |
Integer |
|
Recommended |
How helpful has early intervention been in developing a good relationship with you and your family? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_12 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about how to help your child get along with others? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_13 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about how to help your child learn new skills? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_14 |
Integer |
|
Recommended |
How helpful has early intervention been in giving you useful information about how to help your child take care of his/her needs? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_15 |
Integer |
|
Recommended |
How helpful has early intervention been in identifying things you do that help your child learn and grow? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_16 |
Integer |
|
Recommended |
How helpful has early intervention been in sharing ideas on how to include your child in daily activities? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|
Query
|
fos_sec_b_17 |
Integer |
|
Recommended |
How helpful has early intervention been in working with you to know when your child is making progress? |
0::4
|
0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
|
|